Caplyta and Hallucinations: What Users Say

• Hap...
• Taken for 2 to 5 years
• December 13, 2021

For Schizophrenia "I would often complain to my psychiatrist about how many meds I was taking for my schizoaffective bipolar. He'd always assure me that brains and meds are like locks and keys; sometimes you only need one key to open the lock, and other times you need multiple keys at once. I'm a multiple keys type of girl. I've been on a myriad of psych meds, but slowly found out that I needed several at once to keep things steady, but I still felt 'crazy'. I was angry, extremely paranoid, sleepy, hallucinating constantly, and I felt so unsafe in the world, like everyone was out to get me. I read about a new med coming out and begged my psychiatrist to let me take it. 'Okay, we'll see how it works for you,' he said. It was slow at first, or so I thought. I didn't realize the small changes that were happening. I became less angry, less paranoid. I stopped hallucinating. But most of all, I started to feel happy. I never realized life could be so peaceful."

• THa...
• Taken for 1 to 6 months
• December 13, 2020

For Schizophrenia "I felt burning the first day on Caplyta, and it continued the whole time. Hair loss started in about two weeks, and that was before the medicine became really intense. I couldn't stop talking, couldn't sleep, and couldn't stop moving. My throat became very sore from talking so much. I felt like I had to walk to settle my mind. I could sleep for about an hour or two a night for about the last 3 weeks on the medication. My hallucinations became terrifying to me. This was like a whole other level of my nightmare life. It was like living in an insane world. Watching TV was terrifying. I felt like I was being hunted by people at night. Urinating became painful, and I felt like I wanted to scream. There was difficulty in urinating from the pressure. I was also hallucinating more. 6 1/2 months after stopping the medication, I'm still trying to recover. It was a nightmare."

• Chr...
• Taken for 6 months to 1 year
• April 16, 2022

For Schizophrenia "I have bipolar schizoaffective disorder. I've been on dozens of antipsychotics, including old-school ones like Haloperidol. I was beginning to lose hope of ever getting relief until my psychiatrist put me on Caplyta! It doesn't do much for my bipolar symptoms, but has been immensely helpful with my schizophrenia symptoms. My voices have diminished almost entirely. I'm rarely paranoid, and I've had just a few short-lived delusions since starting the medication six months ago!"

• Chr...
• Taken for 6 months to 1 year
• April 16, 2022

For Schizophrenia "I have bipolar schizoaffective disorder. I've been on dozens of antipsychotics, including old-school ones like Haloperidol. I was beginning to lose hope of ever getting relief until my psychiatrist put me on Caplyta! It doesn't do much for my bipolar symptoms, but has been immensely helpful with my schizophrenia symptoms. My voices have diminished almost entirely. I'm rarely paranoid, and I've had just a few short-lived delusions since starting the medication six months ago!"

• Sti...
• Taken for less than 1 month
• January 28, 2021

For Schizophrenia "I was only on Caplyta for two days, and it’s the worst medication I’ve ever tried. The side effects were absolutely awful. I had insane dry mouth. I was so lightheaded that I felt like I was going to fall every time I stood up. I was nauseous and incredibly anxious, to the point where I had anxiety attacks that lasted up to 4 hours. I couldn’t regulate my body temperature, so I was burning hot and freezing at the same time. Within the 2 days, the voices became a lot worse and it was very overwhelming. It was an absolute nightmare and honestly borderline traumatic for me. If you’re sensitive to medication, I wouldn’t take Caplyta."

• Mom...
• Taken for less than 1 month
• May 16, 2021

For Schizophrenia "My 21-year-old son's been on this med for bipolar 1 with psychosis. He has been on it for 3 weeks now after coming off Vraylar, which was great until it stopped working as well (but did cause weight gain). So far, the Caplyta is not doing as well, and he's sleeping or about to fall asleep all day. He looks and acts drugged, with slurred speech at times, like he did when he was on Seroquel. And he's having sleep paralysis more often, with increased hallucinations at night. Should say he's also on Depakote, Buspar, and Lamictal (generic forms) and Ingrezza for muscle spasms, so I'm not sure if there is some interaction or overdosing going on. We talk to his N.P. this week, and he wants off it when he's awake enough to think about it."

• Anonymous
• Taken for 1 to 6 months
• November 17, 2022

For Bipolar Disorder "I started Caplyta because I was sick of the weight gain, flat affect, and sedation that I was getting from other antipsychotics. The first two weeks were physically rough. I was waking up after 5 hours of sleep every night, I was incontinent of stool 3x, and I was incredibly nauseous with no appetite to the point where I'd go 5 days without eating. Then, after 2-2.5 weeks, something changed. All the side effects went away, and I was finally able to focus on how it made me feel mentally. It has changed my life. My family says I have a completely different personality - one that is engaged in life, confident, calm, social beyond belief, and genuinely happy. I have had no psychosis, and I feel like Caplyta pulled me out of a depression that I had just unconsciously accepted as my 'normal.' I'm very happy I found this drug and will continue to use it. FYI."

• Phi...
• Taken for less than 1 month
• March 15, 2022

For Schizophrenia "My son, who has bipolar with some schizophrenic symptoms (schizoaffective), did not do well on this medicine. He was hearing people calling him insulting names 24/7! I took him back to his psychiatrist yesterday. He put him back on his original medication, Risperidone, and so far, the voices have already stopped. Thank God! Caplyta did not work for him at all!"