... without treatment? I had a benign cyst removed from my throat 7 years ago and this triggered my burning tongue syndrome. What hell! I've been to countless dentists, ENTS, oral surgeons, GPs and NONE of them know what to do. I've had my teeth ground-down, capped and night guarded, all to no avail. This site helps me feel I'm not so alone and suffering in silence. I can't stand to think I will live with this the rest of my life. Is it possible for it to just dissappear and resolve on its own? Thanks all
Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?
Question posted by gonzo jen on 5 Sep 2013
Last updated on 5 May 2024
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
143 Answers Page 9
Krahn
6 June 2015
I also have burning mouth syndrom. The first 3 years were unbearable. I tried many things. Many doctors.my doctor put me on loraspam.it was 70% better.stll take loraspam. But not as many.its been around 7 years , but now a lot better.
debbiedod
25 May 2015
I was diagnosed with Burnt tongue syndrome and started taking Lipoic Acid 600 mg a day and saw relief within a week.
I was told to avoid spicy foods, hot food, caffeine, all alcohol and not smoke (but I am not a smoker) and was given a list by the Mayo Clinic of Rochester, MN. They have more information on their website about this condition but they don't list treatments. I was told that this affects more women than men and usually women going through menopause.
It has affected my ability to taste and like most foods.
Oh, I have also used Oral Gel when it gets really bad to numb it and also Ibuprofen.
Good luck to everyone.
Karla9405
14 April 2015
Potassium/Magnesium deficiency. Trust me, load up on it and it will go away.
katmac22
15 April 2015
I just started a regiment of Calcium, magnesium and zinc, along with alpha lapoic acid and 1000 mg of vitamin c, this according to my dentist should help. I have been on this for a little over a week now. I have had three molars pulled within the last few weeks too. I am going crazy with this, just crazy. I will let you all know if this helps. Wish me luck!!!
Summerset
21 March 2015
When I stopped taking Verapamil, a blood pressure medicine, the burning pain in my palate was over. It was awful, and I think the meds were drying my tissues out. I also got a bladder infection and so started antibiotics, Macrobid. So I don't know if it was the antibiotics or stopping Verapamil, but it went away in a day! I feel for you all, and hope mine is gone for good.
I was fine on my meds for months, except for dry mouth at night, then this burning started on the roof of my mouth. I even almost stopped eating solid food. So check out medicines you may be taking regularly that may be causing the BMS. Especially drugs that cause constipation and or dry mouth. Good luck.
Rosidalia
20 Feb 2015
I am on my 8th year! I took some ideas from this foro and I am brushing my teeth and my tongue several times at day with toothpaste with baking soda and it has helped me. BMS doesn't dissapier entirely but I feel relief and better at the day.
shania
20 Feb 2015
I will give it a try. Thank you. God bless you.
Rosidalia
20 Feb 2015
Somebody wrote to me and post this in facebook "Hi try stop using toothpaste, and make your own within 2-3 week whole mouth will change. Recipe 2 table spoons coconut oil, 2 table spoons bicarbonato or baking soda, 10 drops peppermint extract, u have nothing to lose but trying". I wanted to share with all of you. I will try it this week.
Rosidalia
17 Feb 2015
I am from Guatemala I have BMS too. Nice to meet you. I am glad to find people who understand me.
shania
17 Feb 2015
I am so sorry!
lruth1
14 Feb 2016
Dry eyes and dry mouth are symptoms of Sjogrens Syndrome, an autoimmune disorder, and can cause pain and sores in mouth, sore throat, joint pain, tiredness, etc., and is diagnosed by a Rheumatologist. You might want to check with Rheumatologist. Most doctors miss this diagnosis.
lscheffel
30 Oct 2017
Ya, but the only answer they have is steroids!! Who wants to have a moon face and big gut! This is truly a miserable disease!!
heav613
11 Feb 2015
I don't know if this is the right place to post this but I received an email from this site saying someone was asking about my post. Someone named, Shania, wanted to know the Dr I am seeing. His name is Dr. Sirois in NYC. He is a DDS but teaches neurology at NYU ,as well. He prescribed Imipran titer from 10 to 30 mg over three wks along with .5 mg clonozapim for my weight (115#). It did help initially but feeling burning again. I start the full thirty mg tomorrow night. He definitely helped my husband's customer two times with similar doses. The man had burning mouth for only two mths and those drugs cleared it up within a week. I am going on one year and praying for relief. My rheumatologist says my salivary gland biopsy was indicative of Sjogrens but I do not have dry mouth or eyes. I did. ,however, have a history of neuroapathy. Dr. Sirios told me to stay the course. We shall see...
shania
12 Feb 2015
Thank you for responding to my questions. Please keep me informed. I will pass this on to my Doctor. Shania
heav613
20 Feb 2015
Shania, after an optimistic start, I am back where I started. I have sent an email to the dds to see if it takes a while to kick in. I was dxn with Sjogrens by a rheumatologist but the dds says my labs do not indicate that. I am Very dry from the Imipram and would have to tolerate if the mouth pain stopped but now I am super dry and burning. Unreal... will keep this updated. I might indeed be dealing with a rhuematologic problem, I don't know which Dr to believe. All that said, the DDS did use those drugs on a friend of mine during two bouts withBMS and he was healed both times, as I mentioned before. Therefore, I would try it if you have not already.
katmac22
8 April 2015
Hi everyone, I too am a sufferer, burning palate, tongue, just unbearable pain, all day, every day, sometimes my lips even peel. I have been to family doc, ent, dentist, you name it. I have tried ala, b12, now trying a rinse from the ent... still no relief. I have had this constantly for the past year. I am not sure about taking some of these meds people are posting, mostly because I don't want to become addicted. I have had blood tests and it is showing nothing, no thyroid problems, auto immune... nothing!! The only relief I have is when I am sleeping. I know how you all feel, believe me.
Vickie Flowers
9 Dec 2019
Any luck with these meds now ?
Vickie MS
Singergrl20
26 Dec 2014
Hi everyone! I am so glad that I found this. I have been suffering for five months now. My symptoms are: burning tongue and sometimes cheeks, tingling sensations on my tongue which sometimes affect my chest and my throat, headaches, and occasional pins and needles in my hands or feet. I've been to many different doctors and specialists and none have offered a definite diagnosis. They all look at me like I'm crazy when I describe my symptoms and suggest that it's just anxiety.
My tongue is in pain every day and it tends to get worse by night time. My tongue turned white and I was treated for thrush. The white went away, but the pain didn't. Now, the white is back.
This has been a very difficult and stressful four months because of the pain and not knowing what it was. It is such a comfort to know that I'm not alone and I actually cried when I found this. God bless and I hope this goes away for all of us.
shania44
2 Dec 2014
Now going on my 8th year. No cure, know one knows how to treat it. Sorry, I hate to be the barrier of bad news. But it gets worse year after year. May God Bless and keep you strong. He is the only way I get through the day. Oh an walking around in my house eating ice chips all day long. Take care and I shall add you to my prayers.
heav613
28 Jan 2015
I have found someone cured of burning mouth. Just paid my friends dds $550 for consult and exam. Going to treat me same way as my friend with increasing doses of tricyclics and clonazapim .5 mg. The dds is also a neurologist and teaches at NYU. I am finally hopeful as he helped my friend two times
Friend had BM a few yes ago and it was cured in days. Went off meds and back after years. Dr gave him new rx and cured again!! I wish u all relief as I have had essentially no life and suicidal for a year. Ask a neurologist or dds or someone to give u rx for these drugs. Peace
JimBe
10 Feb 2015
I'm on my 6th year! It's horrible! Almost unbearable! I, too eat ice ALL DAY LONG! It hurts to eat or talk. I feel for everyone who has to endure this. I have tried everything. Nothing works! God bless you!
shania
10 Feb 2015
heay613, Could you tell me please who the doctor is and how to reach him? I need to know what tricyclics were given to help you and your friend. Please help. My doctor will contact your doctor. If you will just give me the information, please.
lsirowkop
11 Feb 2015
Yes, please share name of the doctor at NYU and the tricyclic. Clonapin does help me, but it's VERY adictive!
Marilyn M
22 Feb 2015
Yes please share. I am in pain 24/7 & it is unbearable !!
TIA
Amy-Lou
24 April 2015
Are you still suffering with this? I am 27 and have only had this 13 weeks so far but have been to many different specialists and a few docs who have no idea what is causing it. I have found that popping a clove in my mouth does really help until I spit it out and then the pain starts up again.
heav613
25 April 2015
Sorry to report the DDS turned out to be unreliable. I had issues with dryness from meds and despite many emails and calls (he's only in office once a WK), I gave up trying to reach him. He told me he would call twice but did not. Very unprofessional and bad practice. Anyway, he advised me to stop Plaquenil which I did. New rhuem has me back on plaquenil and started pilocarpene today. Though rheumy not sure what is going on he is treating me for Sjogrens.
sandraelsie
31 July 2016
please , please try clonazepam oral liquid if you can get it. thats if you have not tried it before, i have spent thousands of pounds on this illness and now through a new pain specialist i am getting some relief
TLS1
30 April 2017
I have had burning tongue for quite a few years so I know how everyone feels. I have been reading a lot about aloe vera and burning tongue. I ask my naturopathic doctor about using aloe for this purpose and she told me to drink 1oz aloe vera juice daily to see if it helps. If anyone wants to try it make sure you use organic. Hope this might help someone.
Bsrbie
2 May 2017
I've stated putting vitamin e on my lips... after three years I am feeling a difference in just a few weeks. I use a vitamin e stick from Walmart
kelsey01
16 July 2017
Hi... I have had burning mouth for 16 months and have tried many drugs..alternative diets... and home remedies.
I was reluctant to try Tabasco sauce in a teaspoon of water... it sounded counterintuitive. However I was desperate and so I tried it... 4-6 drops of tabasco in a teaspoon of water. Out it on your mouth and keep in your mouth for up to a minute then spit... it will feel hot... but after a few minutes you may have some relief like I have had. Do it four times a day. I have also gone to Sprouts and bought hot pepper capsules and I have been taking them once a day for four days. I also found a clinic in san diego for acupuncutre and paid for 10 sessions... they are priced reasonably. I read a trial study that had great results with acupuncture taking burning mouth away... completely for some. That is my current regime and I have improved... I have been given all the drugs and they all make me feel terrible and non helped. This is awful and any relief is welcome.
debsulkov
20 Aug 2017
Hi Shania--I've read many of your posts. I've had severe mouth pain for 7 months. Feels like I put a handful of nails in my mouth. Or a mouthful of scalding hot coffee and can't spit it out. I heard from 2 doctors, and a dentist -- 3 doctors in 7 visits. They're all quacks. No one had any idea what was going on. "I've never heard of this before." One said Thrush. One said Dry Mouth. I'm on my 4th prescription. Have had 2 "Magic Mouth" prescriptions. No magic whatsoever. I should be a stockholder in Biotene. Biotene Dry Mouth spray isn't bad. I finally went to Johns Hopkins University. My insurance won't cover it. Don't care. I've spent countless hours on the internet researching stuff. The consensus is they don't have a clue what causes it, and there is no cure. Here's the path I'm on with Johns Hopkins. It's appears to be either nerve related or saliva production related.
We're approaching the saliva production first. The doctor prescribed Pilocarpine 5 Mg 3X/day. It will take several weeks to see if it works. I'm having a CT Scan to see if the nerves fit in. With this stuff, all you can do is pray!
nomorewalnuts123
9 Nov 2017
Hello fellow sufferers... how I feel for all of you/us. Mine started about a year ago, after I had a salad with a very spicy-hot dressing. That kicked off a couple of weeks of hell in my mouth after never having had a reaction like that to anything. Ever since then... I have had on and off outbreaks. My theory is that it's the food we are eating. I have to be extraordinarily careful as to what I eat. For me, it feels like "dry mouth" has something to do with the condition. If I eat, say, crackers and they both dry out my mouth and they scrape it up... then I get the pain and burning starting within an hour or two. I have found that I cannot eat walnuts or apples. (They were never a problem before the initial onset after burning my mouth with that spicy-hot dressing) I also cannot eat anything that is even the tiniest bit spicy-hot, it's as if my mouth can no longer tolerate any "heat" at all. So I avoid those types of foods and it's helped.
Also... since my mouth would dry out SO much when I slept at night, I became a "mouth-taper." Yes, you read that right! At night, just before I go to sleep, I use a small section of a band-aide and tape the middle section of my lips together. My goodness it makes me sleep so much better. No more dry mouth at night! I think that is helping my mouth stay less sensitive during the day. I also swish with a tiny bit of coconut oil about 3 times a day to keep the interior tissues of my mouth less dry., and drink lots of water. Bottom line: Dry food with sharp edges (popcorn, chips, toast, etc) I avoid like the plague. Salted food, same thing. Salt is murder on my mouth. Spicy food. Nope, can't do that, either. Anything that scrapes or dries out your mouth, or irritates it, try avoiding. I was shocked at how the acid in apples can irritate, I love them and they are so good for you, but I no longer can eat raw apples. Since I have made these changes, my life has gotten a lot better. And yes, poking around in your mouth with your tongue... yes I have noticed a relationship between "pestering" my mouth with my tongue and an increase in the irritation/pain... so bottom line, the goal to try is not causing physical or chemical irritation to your mouth. Once an outbreak happens, I found it took over a week for it to clear up once I adhered to more careful eating and not irritating the lining in the mouth. Taping my mouth closed at night (try it... you breathe better and your mouth stays moisturized) has also been a real helpful discovery. As for the misery, the depression, the feelings of hopelessness... I know it all well, I still live with the fear of outbreaks, and I pray for everyone on this site that answers are found and people are helped because it is hell. Don't give up in your search. My own theory is that the answer lies with the food that comes in contact with your mouth, and the fact that we are all probably not producing the amount of saliva that we used to... which makes the tissues of the mouth more vulnerable to irritations.
Beth
Marilyn M
29 Nov 2014
Hi, I just wanted to let you all know that I use Biotene Toothpaste & Mouth Rinse, it helps a bit for a little while. I am in so much pain that even a little relief is good. You may want to try it. I also chew Juicy Fruit Gum & spread it over my tongue. That helps a little too. I drink Ice water all the time & like someone else said, when I'm outside I find it doesn't hurt as much. I have noticed that any spicy food at all kills me !!! The Doctor says it's Damaged Nerve Endings but I don't agree ... BUT I really don't know !! I do know it hurts & I'm lost as to how to get rid of it !! It's been 15 Months now & I really don't know !!! I'm willing to try anything at this point !!!
Thanks for sharing your thoughts & ideas ... it helps to know I'm not alone !!
There are days I don't want to get out of bed because as soon as I get up it starts !! I say ... Mine wakes up about 15 minutes after I do !!! Anyone else find that to ??
Thanks & God bless you all !!
Marilyn
shania44
2 Dec 2014
I sure hope you no longer have this condition. I'm going on my 8th year. I hate to give you bad news. Mine has gotten worse and worse every year. I'm now at the point. I have no quality of life at all. I can hardly speak anymore, due to the pain. When I first had it . It would die down during the night. Start back up in the morning as you said. Now it is 24/7. The only relief I get at all, is walking around my house with ice chips all day. I'm on so much pain medication. But honestly it doesn't work either. May God Bless you, I pray yours has gotten better.
Marilyn M
6 Dec 2014
Yes Shaina44, I still have the BMS. I am having a good day tho, it seems to have settled a bit. I am praying for you all when I pray for relief for myself !
It's no harm to call this " The Curse " !!!
God Bless you all !!
Marilyn
shania44
6 Dec 2014
I have never had a good day since I got this disease. Sure glad you have good days.Take care. Hope you have more and more good days .Mine is 24/7 and has got worse as years go by. Now going into my 7th year. I just ask for prayers for those who understand this horrible disease.
jgibson6
2 July 2016
Try oragel paste. ..it numbs and lasts longer. Vitamin b12 and B complex for several weeks helped. My dentist said my tongue had the look of lacking those vitamins... has helped a lot but not totally gone
jbrownback
16 Nov 2014
I have had BMS for almost 3 years. In May it just stopped for about 3 months. Then one day, it came back. I hate to think I may have this for the rest of my life, but I'm starting to think that is a possibility.
sam13dan
17 Nov 2014
I HAD THE SAME THING HAPPEN. Wow!!!
Marilyn M
29 Nov 2014
I've had BMS ( even tho the doctors say it's not BMS that I have ) I have all the symptoms ) for 15 Months now. It went away for 3 weeks & came back again !!!
I am going thru HELL !!!
Does anyone have any suggestions ???
Marilyn
shania44
6 Dec 2014
Sorry to tell you this. It only gets worse and worse over time. I'm going into my 7th year, They do not know what causes it, how to treat it. I'm told there is no cure. No medications work. I have never had mine leave and come back. Mine has just gotten worse as years go by. I suggest prayer and a lot of it. Walk with Christ and he will help you through your day. God bless you, I pray he will relief you from this awful disease. The pain is so intense, some days I think I'm going to loose my mind.
Jancaulf
9 Nov 2014
Have had burning mouth syndrome 2.5 years - tried everything, also two hospitals and no luck
BUT in the last couple of weeks have been using anbesol (has lidocaine ) occasionally, also chew sugar free gum and the thing that has made a BIG improvement is to melt quarter of a disprin (soluble aspirin) on the sore part of my mouth (half the tongue and roof of mouth) 3 or 4 times a day (nowhere near the amount you can use) and after a couple of days it started to feel better - now a week on can't tell you the relief. Good luck, I know how distressing this can be.
shania44
9 Nov 2014
I'm willing to try anything. I have had it going on 7 years now. I have no quality of life left. Mine has continued to get worse year after year. It is at a point now. That I can't even talk. The pain is so intense. The worse pain I have ever encountered, It is in my whole mouth. I don't go anywhere. I can't do anything. For the pain controls my whole life. Yes I've tried lidocaine, magic mouth wash. I now take 10mg/325 of oxycodone. 4 times a day. 2mg.
of zanax 3 times a day. 2 100mg of Trazadone to help me sleep. I also take Baclofen 10 mg. 4 times a day.Clonidine 2 4times a day. Nothing works. I don't mean to sound like you must of had a mild case. Or you were not in pain. But if you were experiencing what I am 24/7 for 7 years. I don't believe an aspirin would give me any relief. But I will try it. I'm glad for you. But I'm not sure if there is anyone in this forum who is experiencing the extent of pain I deal with everyday of my life.
Marilyn M
29 Nov 2014
Thanks, I'm going to try the Aspirin now !!
I'm going crazy in pain today !!! :(
shania44
6 Dec 2014
Tried the aspirin. Didn't work for me. Thank you though.
heav613
11 Feb 2015
Shania Dr. Sirios in NYC. He is a DDS and teaches neurology at NYU. He healed a customer of my husband's two times with klonopin and Imipram (a tricyclic anti depressant used for neuropathy). I am titrating up to thirty mg of Imipram right now and already been on klonopin .5 mg),with some relief. Please God it will work for me,too. I weigh about 115# so that is my dosage.
JimBe
12 Feb 2015
Not sure how to use this site, but Shania, I hope you read this. My BMS pain is off the charts!! No quality of life! Eat ice chips all day and look forward to going to bed! That's my life. Sometimes I feel like I'm not going to be able to take it anymore! I'm in my 6th year with this! You're not alone. Some day we'll be vindicated, like people who had Chronic Fatigue Syndrome 30 years ago. Everybody thought they were nuts, or just hypochondriacs! Now doctors know it's a REAL condition. Hang in there!
Cdulitz
26 Oct 2019
I have had this BMS for 2 yrs. tried a lot of thins as well as several Drs. I now have been going to a Dr. at UCLA who put me on a few different drugs and nothing works. She said as a last resort I can try Acupuncture in my mouth and there are two Drs here in Calif that do it——once a week for 6 weeks. I guess that will be next. Has anyone had it and did it help? Don’t expect to ever get rid of it but anything to reduce the pain. Some things that make it horrible: chocolate, of course salt and most spices, acid foods, etc. Chew packs of gum a week—always in my mouth. A Dr told me to use coconut oil at night but doesn’t do much. Tried all kinds of mouth washes, etc. but no relief .
Cdulitz
26 Oct 2019
I have had this BMS for 2 yrs. tried a lot of thins as well as several Drs. I now have been going to a Dr. at UCLA who put me on a few different drugs and nothing works. She said as a last resort I can try Acupuncture in my mouth and there are two Drs here in Calif that do it——once a week for 6 weeks. I guess that will be next. Has anyone had it and did it help? Don’t expect to ever get rid of it but anything to reduce the pain. Some things that make it horrible: chocolate, of course salt and most spices, acid foods, etc. Chew packs of gum a week—always in my mouth. A Dr told me to use coconut oil at night but doesn’t do much. Tried all kinds of mouth washes, etc. but no relief .
WMKC
25 Oct 2014
This is my first birthday with BMS. Blessed to be alive and all. But no one understands "No, not really in the mood to go out and WATCH you all enjoy dinner". Everyone here is right. It's a very lonely & frustrating condition. And none of us can really complain out loud because we ar'nt looking for pitty. We want answers! We smile and bear it. I wish you all well. It shouldn't have taken me 4 visits between 3 doctors JUST for a diagnosis. So please, let's all keep posting & pushing for a cure or we won't get answers. Finding this page of posts made me feel better. Thanks all! :)
shania44
9 Nov 2014
So sorry you have this condition. I have no quality of life left. What are you taking for pain and suffering. No one has any answers. I've had it now going on 7 yeas. May God bless you. Mine only continued to get worse year by year.
Misha6
18 Aug 2015
Just wanted to say that I admire your attitude regarding your BMS. Although it is a painful and depressing condition you can still say Blessed to be Alive. I hope that you will get some relief soon and will keep you in my prayers.
Misha6
18 Aug 2015
Just wanted to say that I admire your attitude regarding your BMS. Although it is a painful and depressing condition you can still say Blessed to be Alive. I hope that you will get some relief soon and will keep you in my prayers.
RTM21
11 Oct 2014
Hi everyone,
I believe I am in the same boat as everyone in here. Back in January of 2014, I attended a bachelor party and completely lost my voice. I also teach for a living so this was not good. I gradually began to feel a scratchy sensation in my gums and the roof of my mouth whenever speaking (My mouth gets very dry). If I am resting, it's really not an issue. Anyway I thought this was just something to do with a strained voice. When the school year ended, it did not become better. I eventually saw my general practitioner, two ENT's, my dentist, an oral surgeon, and had an endoscopy through a gastroenterologist. Luckily, my vocal cords are fine and well but they did say I may have GERD and prescribed me omeprazole 40 mg. It stopped my acid reflux but did not relieve the symptoms of my mouth. All professionals I saw stated that there were no sores or lesions so there's no infection.
I began to think I was going crazy but I knew something was not right. Anyway, I have it narrowed down to dry mouth or Burning Mouth Syndrome. I just began taking Alpha Lipoic Acid so hopefully that helps. Does anyone have symptoms like mine? I feel a scratchiness in the GUMS BEHIND MY UPPER MOLARS, along the inside gums of my upper teeth, and along the roof of my mouth. I wouldn't say it's a burning but more of a dry scratchiness. Thanks for your help.
AMJ60
4 Aug 2014
I have finally figured out that I have BMS. I think mine came from a long drawn out amount of dental work last year and this year and changing dentists was not the answer.The most recent dentist was I feel the cause as I ended up losing a good tooth that hed crowned and root canaled. I have had blood tests and see oral specialist. My zinc was low so I have been taking zinc for 2 weeks but still not improvement. The specialist suggested a mouth rinse of tabasco sauce as capsicum has been known to relieve.
My tongue is always finding teeth so they are making me a guard or plate to put over teeth that seem to annoy me. I do not want to take antidepressants
so am hoping it does go away.. it worsens at night and gone are the days of enjoying a wine and chewing gum relieves it in day. I have no trouble at night so I do think its a nerve condition. The only relief I get is putting my tongue on roof of mouth and focusing on leaving it there and it settles down.
I get very irritable and just want time out a lot..
when I had the long drawn out dental prob I was using all sorts of chemical rinses and also sensitive tooth paste so whether it triggered it and I noted when tooth came out... my tonge was burning hot.. so not sure if this was connected to it. but before tooth came out I had the sensation between teeth now its pred on tongue . so if anyone similar let me know
shania
12 Oct 2014
I'm sorry. No cure, nothing works. It only gets worse as the years go by. I'm now on my 8th year. No one knows what to do to help me. I'm in so much pain. Nothing touches it. Only God get's me through each moment of the day. I'm so sorry you have this horrible disease, I have no quality of life anymore. The pain has taken everything away from me. I can't even talk anymore. I'm so sorry for you, if you have BMS. I'll add you to my prayers
lkbedwell
8 Feb 2015
My Mom who is 76 has been suffering from this disease for 8 years. She has no quality of life right now and is just existing to get through the pain. I am so sad and frustrated for her. I want her to know she is not alone.
Momatude
17 Feb 2015
Benzo drugs help... I used Ativan. Others have used Xanax, Valium or Klonpin. They work to settle the nerve endings. See a neuro.
sandraelsie
1 July 2016
Shania read up on an spd block, I'm having one soon, I'm hoping it works as nothing else has it's not permanent but any relief is welcome. It works for some people and not others look it up on you tube. Only just found out about this after 18 months of hell and pain off the pain scale, been to loads of specialist but nobody mentioned this. Anything is worth a go and I am really phobic about hospital procedures I will have to have diazapam before I go and I hope the staff understand my phobia. Will let you know how I get on.
Dana Bean
23 Aug 2016
Interesting, back in January I had my teeth extracted and have dentures (what a thrill, NOT), anyway, trying to get used to them, the BMS started about a little over a month ago, seem to come along with a Hand Foot and Mouth issue, I am going to ask my dentist about this, maybe it stems from the dentures. It is painful and frustrating, I am going to try the Apple Cider Vinegar mouth mix and see if that helps at all. the product they gave me for the Hand Foot and Mouth was called "magic mouthwash" it gives me some relief, I just dip a cotton ball in it and dab my tongue at night, seems to relieve some of the pain. It's a little better in morning, but gets progressively worse during the day. Some of these comments have put me in a depressed state, doesn't seem very hopeful, but I'm going to try and stay positive, thanks for all the info.
kelsey01
16 July 2017
try the tabaxco sauce in one teaspoon of water... 4-6 drops... keep in mouth for a minute then spit,,, it will feel hot at first then it will calm down your mouth,It has helped me ,,, now I am trying also the hot pepper tablets... I also got this after dental work. I have had it for 15 months and seen 15 profesionals... docs dentists and alternative health providers... I am doing acupuncture also ... 10 sessions at an affordable clinic... one every day... I am feeling good... not healed but better...
JBB7951
31 March 2018
Have you tried orally disintegrating clonazepam yet? You take it twice a day and let it dissolve in your mouth. My BMS is gone.
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burning mouth syndrome, burning, mouth, tongue, throat, treatment, syndrome
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