Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?

Hi. I'm the one who posted this initial topic question. The best thing for me has been .25mg of klonopin every day. I did that for a year and just finally stopped. I find when my anxiety is high that my bms is worse, also when I start fiddling my tongue across my teeth it gets worse. Such a painful condition. The lidocaine topical ointment helps with the intensity but doesn't last long. I also quit coffee which mildly helped. Yoga, healthy diet, regular exercise, trying to get your mind on something else... all this helps. Good luck and stay hopeful.

The topic question was written by me. I got your e-mail about the spg block. not spd. I had looked up spd. I didn't find anything. So thanks for the update. I've tried everything. That all of you are saying. Nothing works. So if I could get a block. Tell me where to sign up. I have no quality of life left. Going into my 8th year now. Please keep me posted. Thank you. Shania44

hi, i have seen the new pain specialist again. he has increased the dose for the clonazepam to 5mls twice a day i can split this up if i need to, i.e. half the dose 4 times a day. had quite a bad four days last week so had two tramadol on friday which gave some much needed relief. the spg block will only be done if i get no relief from these medications. hopes this helps someone out there.

Sandraelsie. I receive an e-mail from you. But when I go on the site to find it . It's not there All it says in my e-mail is please try clonazepam oral liquid.. Maybe if you ask to be my friend. We may be able to see each others post. I would really like to be able to read what you wrote. I hope you get this. The site is not very user friendly. Hope to hear back from you somehow.

Hi, My wife had terrible BMS for six months after colon surgery. Thankfully she had an ENT at University of Colo. Anschutz medical center that has been researching and treating patients with BMS. She prescribed clonazepam and CLOVER honey. The honey and clonazepam didn't seem to help. After trying it for a couple of weeks my wife got another appt. to see her and she was told that you not supposed to swallow the pill but hold it on your tongue or where the pain is What a difference! The pain went from a 10+ to a 2 overnight and now a month later pain is totally gone. The ENT said that research has shown clonazepam repairs the fiberous material surrounding and protecting the nerves. She has treated several patients and all have had success! I would suggest trying this and expect results. without spd block.

Good luck and may you be pain free!

This is Mellick, I was finally able to find your comment and when I click on to make a comment back to you, it brought me here. I hope you get this. I wanted to ask you about the clonazepam and clover honey. How much did your wife take. I mean how many times a day and what mg? How much clover honey? Does she mix them together and then swallow or spit it out. I'm a bit confused. I also read somewhere that I can find again, someone else out there is using liquid clonazepam. Would you please explain. When I know, I can call my Doctor and she will prescribe it for me. Thank you, hope to hear back from you soon. Shania 44

i too am on clonazepam. mine is an oral liquid. i swish it in the mouth and after about three minutes spit it out. it is the only thing that has helped me and i was very severe. all i can say to people is please try this it has changed my life.

I am sorry to hear how bad your situation is. I too was in a very bad desperate situation with burning tongue up into sinuses and had sinus surgery. I also went to every specialist under the sun. You sound like you have silent acid reflux. See a GI doctor to confirm - they put you under to do a painfree endoscopy and only takes like 10 mins. I also want to add - take zantac 150, do NOT eat after 6:00 pm so the acid will not creep up into your mouth or sinus area. Do NOT drink coffee or pop/soda at all!!! Do not chew gum with spermint or peppermint. Google to see what to avoid. Also, take a fresh can of pop and swish it around and if it sizzle alot and you spit it out and stringy black comes out - it's acid mixing with the pop and turning the pop into a solid. It's nasty. Acid reflux can be very serious so please get it checked out. Inbox me on face book at vickie mnis. I want to help others.

I also wanted to add that STRESS is a contributor of acid reflux. Try to relax and not worry about this as you will overcome it. Seek the answers and they will come to you. I needed someone to tell me that as it was a long road - 6 months. I"m still recovering - it's a slow process but it is getting better thankfully.

I had a temporary block done under by tongue into the glossopharyngeal nerve. It was temporary freezing to determine if that would take away the pain. It did, very temporarily (about 30 mins), so I am having the block you speak of done in September and will post about its effectiveness afterward. I also use Xylocaine spray, which is also very temporary (and doesn't taste very good) but is effective in providingn temporary relief. I have had this for 7 years :(

This is Shania 44. I'm so sorry. Would not wish this disease on anyone and it only get worse over time. It's called BMS, not BMT..I went from 120lbs to 220lbs in over a course of 8 years now. The pain is so severe. I'm unable to do nothing now (therefore the weight). I was always active. But now I don't even go out of the house. NO cure, no treatment gives any relief. I will be 63 in September and this started 8 years ago. The Doctors don't know what causes it and they don't know how to treat it. It's just that simple. Yes, they want to blame it on menapause. Their all nuts. The don't know. I'm sorry you have this and I hate to give you this bad news. I no longer have any quality of life. I hold on to my faith, I pray and read my Bible and God brings me through another day. That my suggestion to you. He is the only one who really knows, anyway and He is the only one who could cure it. God Bless you, I'll be praying for all who suffer from BMS.. For anyone really who has to endure cronic pain 24/7.

Please read what i have posted on the above question regarding an spd block. Might not work but if you are suffering anything like myself it might be worth considering. I wish you all the best, nobody understands the pain that this causes, I am also trying topical clonazepam but don't know how effective this is as only been on it a week.

Hi i live in the UK. I started with dry mouth syndrome after coming off HRT after taking it for 11 years I wish I could go back on it. The dry mouth went worse and worse and then I also got burning tongue syndrome. It is hell and the pain is off the pain scale ,had no taste buds at one time and can't stand my teeth touching my tongue. Have been to see loads of drs.on both the NHS and private. Nothing has helped. My new pain specialist is going to try an spd block please look this up on you tube, they anesthetize the nerves at the back of the nose and tongue I hope this gives you hope and I will be informing all the drs. who didn't know about this. It doesn't work for everyone but anything is worth trying. Good luck.

did you realise gabapentin can increase the dry mouth. i am taking oral clonazepam and this has been fantastic. i still have it but the pain is so much better. one problem now is that it has increased the severity of the dry mouth, which sounds like not a lot to cope with , but you get absolutely no sleep with it. i wouldn't stop the treatment but am cutting down the medication slightly in hope it helps the dry mouth. my pain levels are now at the lower end of the pain scale hope this helps.

I have the eyes Itch and the pain is unbearable and cant sleep because of it , I think lying on me back and just resting dose help , iv had it for 6 years it started when the Dentis took a wisdom tooth out with out the needle you have to num it and I was screaming and then when I got home me eye would not close and me mouth went to the left side and stuck like that for hours & got told it was bellporsly with was a scock to me body , feel sorry for who ever gets it & the fizzo dose not help it , makes it worse

Hi- I actually stopped cutting out these foods-- I just couldn't do it. I started using the neem toothpaste cinnamon flavor and my bms subsided. It really only acts up when I eat sugar and bread --- I haven't cut these foods out entirely but try to cut back. I also heard that exercising causes your body to be more alkaline - so I've started to exercise again.