Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?

Is there a significant moment you think may have caused your condition? I was contemplating some of the events which may have caused my pain and one of them was when I had a deep tissue massage in 2009. I remember the massage giving me a headache for weeks. It's it possible that I trapped a nerve somewhere? One nerve is the Vargas nerve, which I believe can cause this issue. One other thing I get is ringing in my left ear which also happens to be the side my mouth and tongue hurts the most. I thought it would be good to share some of this as it might also remind you of an event and help join the dots.

Hi all, please check to see if you have an intolerance to fructose. I believe this is what the issue is for me. I'm going to be referred to an allergist/immunologist, I'll see what comes out of it. Thanks

I read about you using CBD oil, I just happen to have purchased it on trial and I put the drops in my morning tea. How do you use it, thanks for the additional info about B 12 and zinc

My tongue was torturing me for over a week this time,

I am approaching 9 months w burning mouth. The first 4 months were unbearable and miserable. The last few months I have been getting through most days w a mild discomfort of my lips. I went on a combination of gabapentin and amitriptyline. I also used tobacco sauce as a rinse 3-4 times a day. The last 6 weeks I cut my dosage way down of gabapentin and do not use the tobacco. I chew gum usually once a day and feel Colgate toothpaste helps morning and night. It’s not perfect and some stressful days are worse than others . I do sleep much better at night w the 25 mg of amitriptyline. I also think my problems began w 2 visits to the dental hygenist for deep cleaning of my gums. The shots or laser pick I believe caused nerve damage. I am curious about the CBD oil and it’s specifics. I am in mild discomfort each day but would like to beat this awful condition!!

wow. thank you all for your posts! i still have bms but have had tremendous relief with cbd oil and b12 injections. green earth medicinals is the cbd brand i use. i have used it twice a day without fail now for two years. it’s the BEST thing i’ve tried. lyrica was the worst. made me feel like i was falling down a cliff. Klonopin was best rx but started giving me migraines. amitriptolyne was ok but felt its effects systemically. cbd was a godsend. good luck all.

I have had BMS for about 2 yrs and cannot remember any particular incident that could have triggered it. However on my annual exam via phone with my GP, she suggested B12, B6 and zinc along with Sertraline (generic for Zoloft) 25mg, She also prescribed a diuretic. I'm not sure what it was for. This combination gave me almost immediate relief. All I have is a slight "tingle" on the side of my tongue which "comes and goes". I hope this may be of help.

I have had severe BMS for 3 years. As I was told by many doctors that there is always an underlying cause for burning mouth. In January they found mine. I have Follicular Lymphona for 10 years according to previous scans. That is in my lymph nodes where your immune system is. I have had 5.5 chemo treatments and my mouth is 90 percent better at this point. My oncologist said that no one should even know you have a tongue in your mouth. It should never hurt but with that he said that would have to be the most painful place to hurt because the tongue has so many nerves in it! He said anybody whose tongue hurts and they cannot find out the reason should have a whole body scan done to help figure out what is causing it! Certainly most everyone is not going to have cancer but they might detect what is going on in your body that could cure it! I understand y’all pain and it hurts!

Can I ask, do any of you have a crown fitted with a post? I'm seriously thinking that my crown is what is causing the issue with my BMS. Anyone else out there with a crown that hasn't considered the link?

I have suffered since October. My story started with acid reflux and then awful dry mouth. In November my mouth, tongue and lips started to burn and along with night time dry mouth . It severely limits quality of life . I suffered through winter and was in awful moods losing sleep and just not wanting to interact w anyone . Gabapentin took away my anxiety and helped a little . Then my doc prescribed Amitriptyline. I take 25 mg before bed and sleep is better. I also do the tobacco sauce in water a few times a day. Chewing mint gum helps for an hour or two. Stress free days do help . I am thinking of trying the mouth tape to help w dry mouth b/c my lips are my main issue in April . I can tolerate BMS and most days my pain level is a 3.. I want to eliminate or move it to a 1.. After half a year I am more positive it could happen.. I feel all your pain.. good luck and keep sharing ideas .

I’ve had BMS since July 2018. Same story, dentist, GP and ENT are mystified or tell me there is no cure. Suggested medications, mouthwashes have done nothing for me. Anything cold is soothing but it’s there 24/7. I do think it is a nerve issue because it started about the same time as trigeminal nerve pain on one side of my face. That has gone away but I’ve noticed when I move the tip of my tongue across that side of the roof of my mouth I get a tingling on the side of my face. My lips on that side burn most of the time too. It’s terrible because although I get hungry I can’t taste food very well and many foods aggravate it. I wonder if I’ll ever get to enjoy eating a nice meal again. I love chocolate and now I can’t taste it. It feels lonely because people can’t relate and no one really wants to hear me talk about it again so I don’t. So then friends and family tell me they thought I didn’t have it anymore because I never say anything.

Hey everyone! I have suffered from BMS since September 2019, to the point I thought I was going crazy. Doctors had no clue and neither did my dentist. Filed some teeth down, used a steroid cream in my inner lips (most of my burning and painful irritation was the inside of my upper lip and tip of my tongue. I HAVE FOUND RELIEF, by accident. I got a huge fever blister on my mouth (same side as BMS) my doctor prescribed me Valtrex and in one day I was having relief in my mouth. I am on day 6 of taking it 3 x's a day with little pain unless I really hit it with something irritating like almonds/chip etc. I read that a few other people have found relief with doing the Valtrex 3 x's/day for 10 days then going to 1 x/day for 3 months. I hope and pray this continues working as I was losing my mind! :) Studies say that the people that Valtrex worked well on had i high count of HSV1 which is what causes cold sores on your mouth. Has anyone else tried Valtrex???

My oral surgeon gave me a trial
Prescription to an antinflamatory oral rinse called dexamethasone. It has really helped. It’s like a steroid rinse to calm the body’s immune response. I urge you to ask a doctor to let you try it. People who haven’t experienced mouth issues like this have no idea the misery. I wish you the best of luck... don’t give up.

At the suggestion of a friend, I drank kombucha. At first I drank maybe 5 bottles and seriously in a week it was gone. From time to time I will feel my mouth tingling. I drink a couple bottles and it’s gone.