Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?

I’m telling everyone here... kombucha. It is what cured mine. Every one in awhile I will feel tingling in my mouth so I just drink a couple bottles and it goes away. It’s amazing

Has anyone tried cbd oil for bms?

Maybe it is triggered by stress but I don’t know. I got BMS after a bout of Shingles for 10 weeks and the symptoms are still in my body since last June. I have pain in my abdomen and back and I still have the side bulge (some nerve reaction from Shingles) so maybe it is stress related. I asked my Urologist last week. He never heard of BMS but thinks it may be nerve related. Everyone just guesses

I am sorry for everyone.As a 4 month sufferer and followed the cycle of Drs and hearing them tell me “I have BMS and there is no cure” sounds ridiculous in this day and age. With so many sufferers you would think someone would know something. Just frustrated and venting.

Hello All,

I’m sad and sorry to hear these painful stories. I live with this terrible syndrome everyday. Like many, it is most difficult at night and when I am under stress. I have found relief with chewing gum and colonzapam, but try only to take it when absolutely needed as it makes me very tired. I’ve been to the NYU oral clinic and was diagnosed over two years ago. It is hard but I try to block it out and accept my new normal. Wishing you all comfort. ❤️

I'm going on year 4, and was told Kombucha would help, but it didn't. I take Neurontin (Gabapentin), I just started Amitriptyline, it's helping some, also take Xanax which helps calm my mouth down. The other day it burned so bad that two days later my lips peeled. This is a horrible disease, syndrome what ever it is, IT'S pure hell. Yes eating helps but you can't eat ALL day long. Mornings are fairly good but my nighttime I'm in so much pain again. I'm irritable and at my wit's end. I pray for a cure. I don't know if this helps, but know you're not alone

Going on 7 years of suffering from BMS.
Pretty sure I am going to suffer chronically forever.. Turning 40 this April and life has been... challenging. Some days the pain is so bad I don’t know what to do.

I feel for you if you are going through this.

Same here they don't know what's going on. I had dental work done and then they thought it was from the many crowns, I could pay a costly amount to have them redone or pull them, I did thinking it would help, but nope. I read where one Lady has had it for 11 year's.
I don't know about you but I can't imagine having this for the rest of my life. Supposedly they're doing CLINICAL studies on it now, so I pray for a CURE.
I take Neurontin, Xanax, and Benadryl.
My Dog smells my mouth all the time, if only she could tell me what is going on!

I have had BMS for 2 1.2 years. I just came back from seeing doctors at the University of Florida, where I was sent to from the Mayo Clinic in Jacksonville, FL. There is a possibility that BMS can go away. They say 66 percent of women it goes away in. It hurt like nobody's business. I went to 11 doctors in Mississippi before recently going to FL in November 2019. They prescribed for me 0.5 dissolvable clonazepam . Drink a little water spit it out, place clonazepam on the sore places in your mouth and then swish it around for 3 minutes and spit it out. This help some at bedtime. I was also given a rinse that seems to help deadens it at times. I will share this if you need it.
Praying for you.

Mine has more or less gone. It does flare up but if I take low dose tramadol straight away it doesn't get any worse and usually goes within a couple of days. I had it really bad I was very very ill with it, so there is hope. I think mine started due to a sudden drop in hormones, I went to see many specialist both private and British NHS. Tried liquid morphine as a mouth wash which helped slightly but oral clonazepam worked much better, this was also a swish and spit out treatment. Tramadol was the other medication which helped, I didn't have to stay on it all the time. My tongue looked like it had been slashed with a sharp knife, I couldn't eat or drink due to the pain and I had electric shock like pain 24 hours a day in my mouth. It was a very dark time but I am now much better. I found mouthwashes made it worse, as did alcohol. Hope it gets better soon.

Turns out I didnt have burning mouth syndrome but mandibular tori which was a bone growth behind my lower gum which started irritating my gum and toungue..not knowing this I thought it was a variety of diff things starting with Thrush..tried many oral rinses to kill bacteria..more I did worse my mouth felt..I actually wound up with such a dry mouth and irritation it felt like burning mouth..along the way stopped taking omeprazole which I really need everyday because someone mentioned long term use could cause burning mouth..I finally figured it out on my own from much internet research.when I asked my dentist to check for the bone growth behind gum and he confirmed it..the slight irritation now is just something I've learnt to live with and ignore it and not stress myself out ..I hope this helps someone looking for answers

I certainly know how you feel, I'm like what the heck is going on. I'm praying it goes away, or they find a cure. The thought of the rest of my life with this burning is something that I'm ready to be done with. Do you take anything for it? I take Neurontin, Xanax and Benadryl, they help for now. I've researched this and for now we're basically figuring this out on our own.b

I have been suffering with BMS for 7 months or more now and it is no fun at all to put it mildly. Also notice I must push my tongue against the back of my teeth at night and wake up with teeth impressions on edges of tongue. I have no clue why I would start that! I drink k cup coffee(one a day) and was wondering if the BMS could be an allergic chemical reaction to whatever makes up the plastic in the k cups. I also put the artificially flavored coffee creamer (oh so good but so bad) in my coffee. I only have one cup a day but think I need to give this up also and see if I clear up. I do not think it is a vitamin deficiency with me as I have always taken numerous supplements over the years - most of which are recommended for BMS. Anyone else look into kcups, preservatives, even cooking frozen vegetables in those plastic bags they come in and popping corn in the micro in the bags they come in - might be problematic to some of us? Since doctors have no clue, it seems to be left to all of us sufferers to try to get to the bottom of this‼️

I have had the same issue for 7 months and the pain is hell. My doctor seems to think it will go away on its own. I have tried every special mouth wash and toothpaste but nothing has helped. Today I went to Boots and purchased corsodyl toothpaste which has antiseptic in it and an oral mouth liquid called ANBESOL which you dab onto your mouth and tongue which gives oral pain relief. I have used it today on my tongue, mouth and lips. It is unpleasant but it soothes within a minute and actually gives pain relief. It is also suitable for teething babies.