Mesalamine User Reviews & Ratings (Page 4)

• JMacB...
• Taken for 5 to 10 years
• March 5, 2017

Pentasa (mesalamine) for Crohn's Disease, Maintenance "I take Pentasa much in the way people take Rolaids. As soon as I feel like my intestines are reacting poorly I will take 2 pentasa.500mg and my stomach calms down within 10 minutes. I have no idea why it works for me, a Crohns patient for 10 years in this way. I do not ever take it as a preventative medicine. As a topical way to calm intestine discomfort, it just seems to be miraculous."

• Vitam...
• Taken for less than 1 month
• June 23, 2016

Pentasa (mesalamine) for Ulcerative Colitis "Age 37, diagnosed with bad UC at 12, recent years only flares up 2-3 times/year. Currently fighting first bout of the year with pentasa suppositories, taking 1-2/day. Has stopped the bleeding and going less frequently BUT awful headaches (as with Asacol/Salofalk foam enemas). Note to self/others who are sick of drugs: I have found (25 yrs in) that it IS possible to be symptom free if you properly and consistently take care of yourself. This means plenty of rest/sleep, camomile tea/water, gentle exercise, meditation (mindfulness is a cliché/buzzword but there's a lot to it), steamed veggies/rice, avoiding sugar/alcohol/dairy/caffeine (going gluten-free can help some people too) ... I intend to cure myself completely one of these days!!"

• Anonymous
• March 19, 2010

Asacol (mesalamine) for Ulcerative Colitis, Maintenance "I have been taking Asacol for my UC for 6 years now. I strongly recommend taking it 3 times a day (I take 3 pills, 3x per day), it is better to have a higher frequency of the drug in your system. I haven't had a flare in 3 years, it is has provided great results."

• Anonymous
• Taken for 1 to 6 months
• October 27, 2016

Lialda (mesalamine) for Ulcerative Colitis, Active "This medicine has little to no effect on my Ulcerative Colitis. I was diagnosed with in in early Aug of this year, I was prescribed Lialda because my case wasn't "too severe." I have seen no improvement from this medicine, and I would say my symptoms/flare ups have become worse and more frequent. Apparently this medicine works for some people, not me. I haven't noticed any of the side effects from Lialda, but it definitely isn't doing what it is supposed to."

• Happy...
• Taken for 2 to 5 years
• March 15, 2018

Lialda (mesalamine) for Ulcerative Colitis "Initially when I started taking Lialda, it worked. However, I ignored the side effects because the medication was working well. I pushed aside all the warnings in my body until my symptoms became severe. I had loss of hair, muscle weakness, fatigue, anxiety, and the final straw was the rash that overcame my body. The doctor did not believe it was due to the Lialda, because I was on it for 4 years, however, I know my body better then the doctor and chose to stop taking it. After 2 weeks I felt like a new person. I am now on Balsalazide Disodium, and for now it seems to be working fine. Listen to your body despite what the doctor says. Ignoring the warnings signs my body was experiencing was ignorance on my part and will never happen again."

• Anony...
• April 7, 2017

Lialda (mesalamine) for Ulcerative Colitis, Active "I was diagnosed with moderate to severe universal colitis on 3/27. I was prescribed lialda and take 4 pills a day as well as 1 uceris. I am not exaggerating when I say the relief was almost instant! Within 3 days I went from urgently using the bathroom 5 - 6 times a day with unbearable abdominal cramps to using the bathroom once a day with no cramps! Only side effects I have noticed so far is slight headaches, occasional trouble sleeping and more frequent urination which I will take over my colitis symptoms any day :) Lialda seriously has changed my life in the short 2 weeks I've been taking it ——————————————————— 19 years old Moderate to severe universal colitis Flare started: May 2016 Diagnosed: March 2017 Remission: April 2017"

• Peaches
• Taken for 5 to 10 years
• June 3, 2020

Lialda (mesalamine) for Ulcerative Colitis "I’ve been taking Lialda for 6 years. I started on a very high dose but have reduced it over the years. I do believe it gives me gas, stomach aches, and I often have soft stools and mild cramping. I spoke to my doctor about it and he agrees it is probably the Lialda, but I didn’t want to switch in fear a new drug would not be as effective. I can deal with the side effects I have but I definitely don’t want another flare up. With that said, it works for me but with annoying side effects. Also, the price is ridiculous!!!! For a while I could use coupons but they aren’t available since a generic was introduced. Thank goodness I have insurance, but it’s still high."

• UP2020
• Taken for 2 to 5 years
• August 14, 2014

Lialda (mesalamine) for Ulcerative Colitis, Maintenance "I have diagnose with Ulcerative Colitis (Proctitis) for last 4 years. Lialda has worked for me best with no side effect. I am taking 2 tab twice daily. For people with Ulcerative colitis in distal part of colon Lialda will work best. I had tried 2 years ago to switch to Apriso only because of the cost of Lialda and had a worst flare up and took 6 month to get normal with oral steroid and steroid enemas. I am using Lialda Pharmacy Saving card which reduce my copay to $10/month."

• GAGator
• December 1, 2012

Lialda (mesalamine) for Ulcerative Colitis, Active "I have been taking Lialda for9 months now for my microscopic colitis and it is working! I take 3 pills a day with zero side effects. I only have flare ups if I eat something on my no-no list. My doctor told me I could come off the medication if I want to as it is the type that will cause remission but I am to afraid to go back to the pain of my colitis so I decided to remain taking it. The only problem with this medication is that it is very expensive."

• Ilee
• Taken for less than 1 month
• March 31, 2018

Lialda (mesalamine) for Ulcerative Colitis, Active "I have been on this drug for twenty days. I took myself off it because I've experienced severe joint and muscle pain. I also have rashes all over including my head. I have lost 11 pounds, which would be nice except it is not fat, it is muscle mass. This drug need more study! I sincerely hope no one else has to suffer as I have. I have been off it for 9 days now, and things have not improved. I hope this is not sometime I have to live with, but it appears it might be."

• Pedro...
• Taken for less than 1 month
• August 24, 2012

Asacol (mesalamine) for Inflammatory Bowel Disease "Have had IBD for years, got relief after just 3 doses. The disease has had me housebound for a year because I never knew when I was going to have an accident. Had no control at all. Am hoping this will be the solution and I can have a normal life."

• JLB
• Taken for 5 to 10 years
• February 14, 2016

Apriso (mesalamine) for Ulcerative Colitis "I have ulcerative sigmoiditis & proctitis. I couldn't retain rowasa very long. The GE switched me to sulfasalazine, first 4/day which worked for a few months, then 8/day which worked for two-three years. I still had flare-ups a few times per year. Then he upped it to 16/day, but that only worked for about a year. I was having flare-ups all the time, I was tired of taking pills, so I asked my PCP to try me on another drug, Apriso. I was in the middle of a flare-up, so it took a few weeks to kick in. But that's the last flare up I've had. It's 4 capsules only, once per day, and I haven't had a flare-up since I started taking it about 5 years ago. I have not noticed any side effects."

• May
• Taken for 1 to 6 months
• October 6, 2017

Pentasa (mesalamine) for Crohn's Disease, Maintenance "I have been taking 4 x Pentasa 500mg twice daily since I was diagnosed with Crohn's in June this year. I haven't noticed any side effects but my stomach cramping, bloating, gas and just general pain has dramatically decreased so I think it is helping! Yay. My specialist has advised that if my symptoms don't totally subside on this medication I've to try a steroid so hopefully it continues to work for me. Thankfully I'm in Scotland as well so I don't need to pay for the prescription."

• Cassidy
• Taken for 2 to 5 years
• May 5, 2020

For Ulcerative Colitis, Active "I’m on mesalamine for colitis just wanted to mention the company that makes it will help with the cost I called them directly sent in an application for patient assist I now get it at no cost I work they have different income levels if you are over a certain amount but under a certain amount you pay $50 a month"

• Miche...
• Taken for 1 to 6 months
• March 18, 2019

For Ulcerative Colitis, Active "Prescribed mesalamine for ulcerative colitis in Jan this year after two weeks had severe tummy cramps, bloody diarrhea, headaches, fevers, nausea and rashes. Was then put on pentasa after a week and symptoms got worse. Went back to specialist and stopped it all 7 days ago and put on a course of steroids until I go back for my 2 scope in three weeks and third in 10 months. Symptoms have subsided but still experiencing severe tummy pains, extremes diarrhea (especially once the steroids wear off, I'm up all night constantly on the toilet 15 + times) and loss of appetite and nausea. I can't find any information on how long this takes to leave my system and I regret ever starting this medication. Its made my life awful for the last 2 months. :("

• Babs
• June 8, 2014

Lialda (mesalamine) for Ulcerative Colitis, Active "I am on day 3 of Lialda. The first day I took all 4 pills with breakfast. Did the same on day 2. Day 2 I had severe diarrhea and chills and headache. I felt like I had the flu. That night I did the Canasa suppository. Woke up several times in the night but did not go to the bathroom. Day 3 woke up with severe headache and mild diarrhea. I decided that I would take 2 Lialda's with breakfast. I started feeling a little better. It is now night 3 and I just took 2 Lialda's with dinner. Headache is not as severe. I am hoping that by day 7 I feel normal again. I was diagnosed with Ulcerative Colitis in 2003. I have not had a flare since 2006 until recently."

• imf
• December 3, 2014

Lialda (mesalamine) for Ulcerative Colitis, Maintenance "Have had colitis for 20 years and been on mesalamine for all of it. Asacol was inconvenient because 6 pills throughout the day was hard to do. Lialda is very expensive even with insurance and their card, but it works and it's only two pills a day. The dietary changes and medication are worth it if I can eliminate surgery."

• tpkea...
• June 9, 2015

Lialda (mesalamine) for Ulcerative Colitis, Active "My GP had me on another drug for 4 years and was feeling great. An annual colonoscopy showed nothing so the "Great Gastro" took me off everything and about a month later everything blew up. Went back to a Nurse Practitioner who apologized and put me on Lialda and Canasa.1 week later, great again. Ins Co after 6 months decided not to pay for Lialda so I was put on another couple worked for a couple months then blow up again.NP called Ins Co and got them to approve Lialda, Canasa again and 2 months in all ok except after eating still bloating and gas. We explored my eating habits ans she (NP) took me off gluten and gas and bloating stopped.Joints stopped aching. Try it! Can even touch my toes!!! Best NP around at OSU Gasto Clinic in Co"

• A...
• Taken for less than 1 month
• February 17, 2020

Salofalk (mesalamine) for Ulcerative Colitis "Measalazine Foam enema. Available from NHS in UK so insurance not an issue I have only taken this for a week so it's early to say ... But so far I think it is working better than other formulations. I tried the same brand suppositories which were not effective, pentasa was better but this foam seems to be doing better again.. Probably as my inflammation extends to 20cm. After four days I started to feel better, I had more energy and more regular & solid stools. At first it was hard to keep the enema in, which is still true if I use a double dose as prescribed. It is uncomfortable to take and so far a double pump often leads to a bowel evacuation.. but I'm hoping this improves as the inflammation recedes as stated in the instructions."

• paul
• Taken for 1 to 2 years
• September 17, 2020

Pentasa (mesalamine) for Ulcerative Colitis "2yrs ago very bad colitis spent 7 days in hospital drugs xrays etc I responded well to drugs and I am now on 3 pentasa in the morning and 3 at night, with no side affects and I do eat any thing I want. At the time I went to hospital I was 74 years old and it came on over a period of 2 months in the end I lived on the toilet I did see a specialist and he send me straight to the hospital he said I was gravely ill .I am good now."

• CJN
• July 30, 2009

Asacol (mesalamine) for Ulcerative Colitis, Maintenance "Like the others mention, I was put on Asacol after a hospital stay which included high doses of prednisone and transfusions. I was prescribed Asacol and have been flare free for just over 1 year now. Occasionally I experience slight nausea after taking it, but I have found that taking it with a meal reduces or eliminates that problem. I intend to continue to take this medicine because I feel it has allowed me to live a normal life again."

• walki...
• October 27, 2015

Pentasa (mesalamine) for Crohn's Disease, Maintenance "I have started the Pentasa. It has given me the diarrhea and some stomach cramps when taking it. I have to see if after taking it for a week how it will do with the Crohn's or see about getting off of it. I am also getting cramps in the stomach area when taking this medication."

• Rick...
• July 6, 2015

Asacol (mesalamine) for Crohn's Disease "I was diagnosed with crohn's disease when I was 27yrs old. I'm now 54. Ive been through 2 fistula removal's and many nights awaken with extreme rectal spasams. no fun! Extreme weight loss and fatigue. My Dr. put me on Asacol 400mg (2 in the morning, and 2 at night). turned my life around. Dr. told me I needed to stay on the medicine for rest of my life. I felt great, put weight back on and then I did a stupid thing. I decided to stop taking it. was doing fine for past 5yrs but its back. weight loss and all other symptoms, cramping, loss of appetite, etc.. If Asacol is working for you, stay on it."

• Heywh...
• Taken for less than 1 month
• December 11, 2018

Apriso (mesalamine) for Ulcerative Colitis "I am 24 years old and I have secrete ulcerative colitis. I recently tried apriso for the second time this year and had the same results as the first attempt. Horrible nausea, cramps and insanely urgent diarrhea. Up all night. Couldn’t go to work, couldn’t function. I had better control and management without the drug."

• Carol...
• Taken for 6 months to 1 year
• August 3, 2018

Lialda (mesalamine) for Ulcerative Colitis "It worked for me initially but then stopped working. I didn't really notice any side effects. Have been on 4 pills daily but will need to be switch to something else. I was getting my medication shipped free to my house through the manufacturer. If you qualify for their program you get approved within 2 days."