Remicade User Reviews & Ratings

• Anonymous
• Taken for 1 to 2 years
• November 4, 2018

For Rheumatoid Arthritis "My wife had RA from when she was a child. She had used the normal meds till Remicade. She was in Japan and started on Remicade in Apr 2007 and died in Feb 2008 from the reactions/side effects to it. I advise that if you get any of the side effect symptoms, see your doctor right away. I have found that if you get one symptom, you will get more. There are 3 pages of side effects/reactions."

• Anonymous
• Taken for 5 to 10 years
• February 15, 2013

For Ulcerative Colitis "Remicade literally gave me my life back 9 yrs ago. I was so ill; in & out of hospitals, steroids, taking 20+ pills a day & I was still extremely sick. I finally went to Philly (where on my first visit, they were planning my surgery to remove my colon...during that conversation I stopped listening.) My Dr. suggested I give Remicade a try - before surgery. At that point, I would have done anything. Honestly, I did not believe anything would work since I had this disease for years and could barely function. The Remicade worked like magic - it is liquid gold - I have never had any side effects or adverse reactions - I have been in remission ever since!"

• Too...
• Taken for 1 to 6 months
• April 30, 2020

For Ulcerative Colitis "This medication Remicade made me in constant pain. I slept for two months, 20 hours a day. I felt very depressed. My body was in pain everywhere, and I was covered in a rash. Parts of my body have permanent nerve damage months after I got off it. My specialist told me it is hard to diagnose nerve damage, as if that matters. Is everyone a liar till a doctor proves it? This same specialist wanted me to go back on it. I said I really didn't want to go through that again. The specialist would not leave it alone. I mentioned COVID-19 to him, and he said it won't make a difference if I am off Remicade or not. Oh okay, I guess all these tests were for nothing then? Now I am without a specialist. He then talked down about me to my family doctor, saying I am refusing treatment. Now my family doctor is treating me like I am just wasting people's time. I suspect this is exactly how people become homeless. Do I have no rights? People should consider their specialist might value money more than your life."

• Dee...
• Taken for 1 to 6 months
• November 10, 2014

For Rheumatoid Arthritis "Horrible joint swelling/pain, fatigue like none other. Diagnosed with rheumatoid arthritis, Dr. figures I probably have had this 15 years, a few replacements along the way. Took MAJOR flare to be diagnosed. Loads of joint damage all over. Started on Remicade, nervous. Cannot take methotrexate due to kidney disease. Third dose dr increased dose, 5 days feeling worn then MIRACLE! NO swelling, pain, best I have been in years, no fatigue. Hoping it continues with each infusion. In tears of joy everyday with my quality of life."

• Tom...
• Taken for 2 to 5 years
• February 23, 2014

For Ulcerative Colitis "Life-changing. I once thought I was doomed to a life of pain and suffering. Now that I've been on Remicade for 3 years, I feel like a normal human being again. My disease has become a small part of my life, and I don't even think about it much anymore. I do seem to be slowly losing response. I had to increase the frequency of infusions, and now I sometimes have minor symptoms around the time I am due for my next dose. I was nervous when I started this medicine because of the trips to the hospital for infusions and because my doctor at the time made it sound like a huge deal to be on this. I wish I had started it sooner!"

• Anonymous
• Taken for 10 years or more
• May 13, 2016

For Ulcerative Colitis "My younger brother was on Remicade for 10 years, and yes, it helped him with the UC, but he just passed away from cancer and liver failure at 27 years old, most likely from the years of Remicade. So I am leaving the warning to be careful and think that this is just some miracle drug. Everything has consequences."

• UC...
• Taken for 5 to 10 years
• December 12, 2013

For Ulcerative Colitis "I had a second relapse of Ulcerative Colitis in 2005. I spent 2 weeks in hospital, been given a fistful of medicines and sent home. Nothing worked. I contemplated having surgery to free me of the disease and wear an ostomy. To my eternal gratitude, my Gastro MD suggested Remicade. After my last colonoscopy in 2013, he said if I had not seen you as sick as you were, your colon looks perfectly healthy. I will accept the side effects (I have experienced none as of yet) to have my life back. Remicade has assistance programs to help those who need it. I am not a spokesman, I do not sell this. But I use and will as long as I can. I wish this medicine was around for my Dad as he suffered with Crohn's and Colitis for years."

• Len...
• July 3, 2015

For Crohn's Disease, Maintenance "I have been on Remicade for nearly 4 years. Prior to that, I had a variety of Crohn's issues, including two surgeries for peri-anal fistulas, severe fatigue, and lots of other fun stuff. I have been very lucky in that I have responded very well to the stuff, and now most days I am fortunate enough to forget I have the disease. I was apprehensive about potential side effects, but to date, I have experienced none. Prior to Remicade, I took a few medications which did absolutely nothing, but the Remicade had a pronounced effect within 24 hours of my first infusion. If you have Crohn's or Colitis, I would seriously consider an anti-TNF blocker (haven't used any of the others) and stay the hell away from steroids."

• lin...
• Taken for 2 to 5 years
• December 17, 2013

For Ulcerative Colitis "I have been getting Remicade infusions for 4 1/2 years. I went into remission within a week of my first infusion. My only side effects I have are headaches and some chest pain off and on. But considering how my life was before Remicade, I can handle it for now."

• PHI...
• Taken for 10 years or more
• April 1, 2019

For Psoriatic Arthritis "I have been taking this med for over ten years now, truly a lifesaver. I have had no side effects and have been able to do almost everything I used to. I only take Remicade, no methotrexate, as I took myself off of that because of liver side effects. I also have, for several years now, extended my infusion out to every 10 weeks. I am the only patient I know who does this. I have not seen any negative effects from doing this. Great drug."

• Pad...
• Taken for 2 to 5 years
• December 1, 2018

For Ulcerative Colitis "I have been diagnosed with UC for about 15 years. I have been on various forms of mesalamine for the entire time. On and off of prednisone, 5-60 mg a day. Remicade had me close to remission for 5 years. While on Remicade, I was able to drop the prednisone. For that, I'm grateful for the Remicade. After about 5 years, it suddenly lost its effectiveness. I then went back to the prednisone while waiting to get approved for Entyvio. Remicade was given via IV every two months. Entyvio did absolutely nothing for me. I'm now on Simponi, which is starting to show promising results. It supposedly works on the same inhibitors as Remicade. A lot of trial and error. Be patient and keep the faith."

• Red...
• Taken for 10 years or more
• August 22, 2015

For Rheumatoid Arthritis "I was diagnosed with reactive rheumatoid arthritis in August 1998 after getting the first shot of the Hepatitis B vaccine, which triggered my RA. I was on prednisone for a year, Plaquenil, sulfasalazine (which almost killed me), Arava (leflunomide) for a while, and was on Humira, which didn't help. I changed to Enbrel, which gave me rashes. In 2000, my rheumatologist, who was into RA research and had RA himself, ordered Remicade infusion with MTX. That's 15 years of quality of life, and I am continuing 5 mg Remicade every 10 weeks. All my RA labs and tests are negative except for CCP (which is 5X higher than normal). This coming month, I'll be off my MTX. Even when I'm in remission, I did not stop my Remicade because flare-ups are worse than the first symptoms."

• Mot...
• October 17, 2015

For Crohn's Disease, Maintenance "My son has Crohn's and lost 30 lbs in 2.5 months. He took the medicine the doctor said to take, but then he developed a fistula. I could tell he was in a lot of pain, but yet he would not tell me what was going on. Both of us, being very uneducated about this disease, had no idea of the trouble he was headed towards. I made an appointment with the surgeon, the surgeon confirmed a fistula and said he needed to take Remicade. My son has had four Remicade treatments, and I have to say he was doing a lot better after the first treatment. It has been almost nine months now, and he is back to his average weight of 190. We are both afraid of the Remicade, and we don't talk about it very much at all, but I do have to admit it has given my son his life back."

• joh...
• November 9, 2009

For Rheumatoid Arthritis "I suffered with RA for over 15 years in most of my joints. 6 years ago I moved to a new state and started with a new RA doctor. She started me on Remicade and lowered the dosage of methotrexate. I have been pain-free for the past 6 years. Love my doctor and Remicade."

• WNY...
• Taken for 5 to 10 years
• October 27, 2015

For Ulcerative Colitis "I was diagnosed with UC in my twenties. For many years, I maintained with various medications and only a couple of relatively minor flare-ups. Suddenly, at age 56, I had a severe flare-up that did not respond to prednisone. Removing my colon was brought up. After much suffering and weight loss for about 3 months, I was put on Remicade by my wonderful GI. Within a couple of weeks, my condition began to improve. I am now almost 7 years in with infusions every 8 weeks. I am very grateful for this medication, although I do wonder if my immune system is weakened. It really doesn't compare to almost dying or having major surgery. I know it doesn't work for everyone, but for me, it was a miracle."

• Glo...
• February 17, 2015

For Rheumatoid Arthritis "I had been on Remicade since 2003 (11 years), 5 vials every 4 weeks. My doctor took it away due to issues with the infusion department. I hate not being on Remicade. Remicade did wonders for me, it gave me my life back, and unfortunately, I am back to where I started 11+ years ago. I am having difficulty with everything, I can barely type this comment."

• gol...
• Taken for 1 to 6 months
• August 31, 2012

For Crohn's Disease, Maintenance "I am a 65-year-old male, and I acquired Crohn's Disease in 1965 at age 19. Remicade was approved by the FDA in August of 1998, and I was given my first dose the next month. Back then, they only administered 2 doses. I received the second dose 3 months after the first one. I have had no further doses since then. When I got the first dose, I was in the midst of a flare, and I had an actively draining abdominal fistula. Three days after the first infusion, the fistula closed of its own accord, and I happily avoided yet another surgery for Crohn's (I have had over 20 surgeries). I have been SYMPTOM-FREE since the second infusion. I have more health issues now, but at least they are not Crohn's related."

• Fer...
• July 12, 2016

For Ulcerative Colitis "Remicade has been a miracle for me. Last year, this time I was totally desperate and thinking of getting rid of my colon due to severe UC. Now, I am totally healthy and no sign of UC!!! If you are suffering from UC, give it a try without any doubt. Thanks to science and researchers. Of course, it takes a couple of months to feel the full effect of it, but as soon as I got the first infusion, I felt its positive effect. Its combination with Azathioprine works much better."

• Anonymous
• February 20, 2012

For Rheumatoid Arthritis "I love it! I'm 16 and have been treated for five years. Methotrexate made me sick and Enbrel, via EpiPen, was more uncomfortable than my arthritis. Remicade is pain-free and the time inconvenience is worth it."

• mus...
• Taken for 1 to 2 years
• December 31, 2014

For Crohn's Disease, Maintenance "I have been dealing with Crohn's disease for around ten years now, and I was only properly diagnosed 2 years ago. I have received Remicade infusions every four weeks for the last year, and it has made a very significant improvement in my everyday life. I no longer need to take pain meds to get through the day, and my energy levels are closer to normal than they have been in years. Before Remicade, it had got to the point where I could barely walk due to lower back and hip pain, all related to Crohn's."

• Anonymous
• August 18, 2009

For Crohn's Disease, Maintenance "I have had Crohn's Disease for 18 years. I was extremely ill for the first 8 years. My doctor put me on Methotrexate, and I got better, but not 'well'. Then, Remicade came out. I have been getting infusions every 8 weeks for over 7 years, and it has saved my life. I will say, though, that at one time they hoped to wean me off of the Methotrexate, but I started having flare-ups and the time between infusions was increased. Since I am back on the Methotrexate and Remicade, I have had no problems at all. Yes, I know my immune system is very weak, but I avoid anyone who is sick, and try to get enough rest when I can. This combination of drugs has worked for me and I hope I have helped someone out there! You may need something else with Remicade."

• Goo...
• July 21, 2015

For Crohn's Disease, Maintenance "Right after my daughter's 13 yr. birthday, she had severe bleeding and was diagnosed with severe Crohn's and colitis. She has been on Remicade since January and has infusions every six weeks. She was put on Prednisone in March since the infusions did not stop the bleeding alone. She is now being weaned off the steroids, thank God, and is on Remicade for the rest of the year for now. She gets a boost of energy after her infusions, but is very smart about what she can and can't eat. Prayers to you all going through this."

• Anonymous
• May 27, 2011

For Ulcerative Colitis "I used Remicade for a little over a year, and it helped tremendously. While I was on it, I never felt better. The only reason I had to stop taking it was because I lost my insurance after I was laid off. My doctor's office found a program to help pay for the treatments, and I will be going back on the Remicade soon. Can't wait."

• Ann...
• October 13, 2015

For Psoriatic Arthritis "I went in yesterday morning at 9 a.m. to receive my first infusion of Remicade. Had my IV inserted in my arm and had my vitals checked at the beginning and then every 15-30 minutes. By the time I was leaving the doctor, it was about 1:00 p.m. So it takes a while for the first time, but after that it won't take as long. The only kind of downside to it was that I got just a little sleepy, which I read was common. It's 1:15 p.m., the following day of my first infusion, and I haven't felt a single ounce of pain in any of my joints. I understand it's only 24 hours later, but I am usually in a lot of pain all morning and I didn't have any morning stiffness when I got out of bed this morning. Very pleased so far!"

• Jim...
• Taken for 10 years or more
• February 28, 2020

For Rheumatoid Arthritis "I was diagnosed with RA about 12 years ago. Started on Methotrexate but had to discontinue because of higher than normal enzyme levels in either my kidneys or liver (can't remember which organ). My RA doctor recommended we switch to a biologic, Remicade. I was also on Plaquenil and Leflunomide along with Remicade but have since discontinued Plaquenil with no issues. Still taking Leflunomide. I've been taking Remicade (800 mg infusion every 6 weeks) and Leflunomide (pill once a day) now for over 10 years since my diagnosis of RA. I've had no side effects with Remicade or Leflunomide, no joint damage (caught RA diagnosis very early), and in complete remission for over 10 years. Now my insurance company wants to switch me to Inflectra over Remicade because it is cheaper. I may have no choice, but I'll be calling my RA doctor and see what he thinks. May have to appeal to the insurance company if my RA doctor has reservations and stay on Remicade which works remarkably for me!"