Remicade User Reviews & Ratings (Page 2)

• Sus...
• Taken for 10 years or more
• May 6, 2015

For Psoriatic Arthritis "I have severe psoriatic arthritis, and I've had it since I was 18. I've been on Remicade for almost 10 years, and I have almost no pain. My joints get a little stiff close to my infusion, but that's it. It is my miracle drug, and I owe my life to it. I would be crippled without it."

• Mec...
• May 8, 2013

For Ulcerative Colitis "I was diagnosed with ulcerative colitis about 12 years ago and have been on Remicade for about 2 of those years. I am still taking Asacol and getting the Remicade infusions every 8 weeks, but I feel about 90-95% better since being on Remicade. I have not noticed any real side effects from taking Remicade, but I have heard from other patients that they have had them. I still think that if I had any side effects (with the exception of major ones), I would stay on it as long as I can. The only thing I honestly can complain about is the cost. I would say if anyone is being told that it is an option for their ulcerative colitis or any of the other issues that are in the same family (IBS, Crohn's, etc.), it is a huge help."

• J R...
• Taken for 10 years or more
• May 14, 2019

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's disease when I was 26 years old, and I am now 66 and have been on Remicade since 2008. I get my infusion every 8 weeks, and for me, it works for my Crohn's. I am somewhat tired after my infusion, sometimes the next day for about half the day. For me, I can't imagine not being on it."

• fes...
• Taken for 6 months to 1 year
• February 25, 2013

For Crohn's Disease "First couple trips are the worst, but after that, it becomes a routine and it works wonders. I'm not lying, it gave me my life back until my insurance couldn't pay. Now I use Humira, no competition. Remicade, hands down. So if you are doing bad, try it."

• Cyn...
• June 29, 2009

For Rheumatoid Arthritis "I have been on two other DMARDs (Enbrel and Orencia) with little or only so-so results. With Remicade, I felt relief almost immediately with no adverse reactions. I noticed my inflammation and pain have greatly decreased, but most importantly, the fatigue that dogged me has lifted. I am hoping that this medicine keeps working for a long time. Best wishes."

• Ilo...
• February 26, 2012

For Rheumatoid Arthritis "For two years (09' 10') we were trying to figure out why my knee hurt so bad. Over the two years, it moved into my whole body! I had seen 5 doctors, but they had no idea and gave me guidelines of what I could not do, which made the RA flare-up worse. On Dec. 8, 10, I was at school (I am not one to complain about pain) and I broke down crying. My rheumatoid arthritis had gotten so bad in my back that it started shutting down my SNS and I could not walk. I had to have my friends carry me to the school office. My parents stayed home with me for a week because I could not move without someone. We were able to get in to see a pediatric rheumatologist on Dec. 15, 10. That day I was diagnosed with the disease. This is the first medicine that has helped."

• Jma...
• Taken for 6 months to 1 year
• February 21, 2016

For Ulcerative Colitis "I was diagnosed with UC in March 2015 out of nowhere. Rapidly got bad and needed to be hospitalized for a week to get the flare under control. Was given heavy doses of steroids (awful), and they did nothing to help. I was released from the hospital after a week, and symptoms were still bad. About 2 weeks later, after not being able to eat and losing 20 lbs, I was barely able to walk and was readmitted, this time I went to Columbia in NYC. I wasn't able to eat for the full first week in the hospital, and symptoms were steadily horrible. My doctor decided to give me a loading dose of Remicade, and the results were almost immediate! I have been on Remicade every 8 weeks since and don't have a single symptom of UC. It's been a lifesaver!"

• ADL...
• October 30, 2008

For Rheumatoid Arthritis "After a double synovectomy of my right wrist and left elbow in 1985 at the age of twenty, I had sixteen years of remission until 2001 when I had a downward spiral rheumatic flare. I was disabled for eight months, and my rheumatologist put me on very high doses of methotrexate and Vioxx. I was only able to walk with a cane. I found relief in 2002 to 2003, but another flare-up dislocated my left wrist and crippled my fingers. I started the year 2004 with a synovectomy of the left wrist. At this point, I had enough of the methotrexate and Vioxx. I sought alternative treatments of glucosamine/MSM, with Tylenol Arthritis for pain. In 2006, during another flare-up, I moved to RTP, where my doctor introduced me to Remicade with medium doses of methotrexate. No pain, I'm happy."

• A H...
• Taken for 10 years or more
• July 25, 2017

For Crohn's Disease, Maintenance "I have been on Remicade since I was 7 years old when I developed Crohn's disease. I am 26 years old this year. For the past 19 years, I have been receiving this medicine, and it has kept me healthy. You do need to find a cycle, be it 4, 6, or 8 weeks, for your infusions. I do every 6 weeks, and it keeps my symptoms minimal. The day of and the day after the infusion, I feel like crap, tired, painful joints, but after that wears off, I feel a lot better than before the infusion."

• Anonymous
• April 19, 2012

For Rheumatoid Arthritis "I was on Remicade for the past four years. It has recently started giving me bad reactions during the infusion. My arthritis would also flare 1.5-2 weeks after the infusion. Loved Remicade, hated how expensive it was."

• Dan...
• March 10, 2015

For Ulcerative Colitis "I was diagnosed 3 years ago with severe ulcerative colitis. Asacol and prednisone worked at first, but after each outbreak, the medicines seemed less effective. My last attack left me under 100 lbs, severely anemic, and in enough pain that I needed to be kept in a continuous Dilaudid-induced daze. So many people have told me how terrible Remicade is and that I just need to, 'find the right diet.' If diet works for you, great! Remicade was the only thing that worked for me. The cons: it's expensive, but luckily my insurance covers it. It's inconvenient to go to the hospital every 6 weeks. I haven't noticed any side effects except hair loss at first, but now my hair is growing back. I've been told that the hair loss could also have been from all the weight loss."

• Jes...
• March 24, 2015

For Rheumatoid Arthritis "I had been on Remicade for many years with no side effects at all, perhaps a little tired every once in a while, but nothing serious. My doctor and I questioned whether I had rheumatoid arthritis. Then, all of a sudden, the Remicade stopped working, and bam, I had 2 flares that were unbelievable before the doc could get anything to work for me. I was heartbroken because it was such a good medicine for me."

• Mom...
• Taken for 1 to 2 years
• December 29, 2014

For Crohn's Disease, Maintenance "My son started Remicade at 13 years. He has severe Crohn's flare-ups, and this was a last resort aside from surgery for him. The Remicade treatment gave him few side effects. He didn't get any headaches or tiredness. And he didn't get sick easier like they said he would. When almost our whole house (7 of us) got the flu, Micah didn't. Micah just took his last dose 8 weeks ago after being on Remicade for over a year and a half. (Micah was on Lialda too.) Even when they used the amount of Remicade, Micah was still getting flare-ups every other month or so. They tested his blood and found out he had antibodies to the Remicade, which means his body was attacking the Remicade, and that's why it was only working right after the infusions."

• Anonymous
• January 13, 2010

For Rheumatoid Arthritis "Have had 4 Remicade infusions in combination with MTX and Plaquinil. The 1st infusion was great and all my pain was gone. I thought OMG a miracle drug! Then, 2nd infusion I had a reaction which felt like I was having a stress test performed, a bit scary, and then the hands and feet broke out with a horrible psoriasis-type rash which I have never had before (and still can't seem to cure). 3rd infusion with Benadryl injection was 6 hours of slight reaction and then little or no relief from the pain. 4th injection with twice as much Benadryl prior to the injection and 10 hours of reaction while being infused and zero relief after. The fact. I gave up on Remicade."

• Bab...
• Taken for less than 1 month
• July 13, 2019

For Ulcerative Colitis "I have only been living with this UC for about 5 months and couldn’t find anything to help. After the 1st infusion, I noticed a big improvement until I hurt my back and took a lot of ibuprofen and Aleve for the pain, and had a major flare-up. I had my 2nd infusion, and then that cleared up by about 80%. Now I have anxieties, but not from Remicade. I'm going for my 3rd infusion in 2 1/2 weeks, then every 8 weeks. Prayers, a positive attitude, and a good diet, I will be fine."

• Aus...
• Taken for less than 1 month
• April 22, 2015

For Ulcerative Colitis "I could not get the colitis under control for 18 months, finally, my doctor prescribed Remicade. Well, after the first treatment, bleeding stopped, and I feel like a normal person again. Only small side effect for me is I feel a bit dizzy just after the treatment."

• car...
• Taken for 2 to 5 years
• September 1, 2018

For Rheumatoid Arthritis "After several years on the drug, I developed asthma and then chronic bronchitis, which ended with a severe bout of pneumonia. This happened despite my taking the vaccination for it. Please be aware of these problems. I had told my doctor, who really did not listen until I got very sick and then agreed it was, in part, the Remicade."

• Anonymous
• February 21, 2011

For Ankylosing Spondylitis "Remicade is the only medicine I have taken in the last 6 years that has given me relief. I was scared to try it, but I have not had any side effects, and the improvement is significant. It kicks in quickly for me (within a day), but it also wears off before my insurance will let me get another dose. Some relief is better than none, though, so no complaints from me. I only hope that I don't build up an immunity to it anytime soon."

• and...
• July 24, 2013

For Crohn's Disease, Maintenance "I am 37 and have had Crohn's since I was 18. Three surgeries of the terminal ileum. From 18 to 27, I was very, very ill. The Remicade has basically helped me to have a normal life again. I feel great these days, but one gets to the point where you feel good and want to be medicine-free. You hear horror stories of people getting off Remicade and getting galloping Crohn's disease coming back, and then the Remicade doesn't work so well."

• mom...
• Taken for 1 to 6 months
• March 29, 2013

For Ulcerative Colitis "I was diagnosed with ulcerative colitis in Nov. They thought they had it under control, so after being in the hospital for three weeks, I went home for two and almost died! I went back and stayed for over a month. The docs were trying everything with no answers, then they told me about Remicade and said it was for Crohn's disease, but we could try it out and see because it was my last hope. I really was happy to see that it was working, and in the first of Jan, I went home! I have had a kidney stone because of it, and it has acted up, which made docs think it was either my appendix or diverticulitis. I still take it every 8 weeks through I.V., but the only other problem that I'm experiencing is hair loss now, and I don't know if it's the Remicade."

• Col...
• November 8, 2016

For Ulcerative Colitis "Severe UC flare hospitalized, prednisone intravenous didn't do anything. Remicade infusions every 4 weeks to start, now every 8. It worked within one week, and after about one year, I was in complete remission with no sign of UC on my colonoscopy! The IV is okay, very expensive, but you can go to the Remicade website for help paying deductibles no matter what your financial situation is. I wish my dr told me that before I spent $10,000 in deductible and copay this year! I guess it was worth it all around."

• Tsa...
• October 27, 2013

For Crohn's Disease, Maintenance "Ok, I have had Crohn's disease for 15 years this December. I have maintained myself just fine with minor problems. Recently, I have learned my pain tolerance is so extreme I have been putting up with stuff I shouldn't be for an uncertain amount of time. Two questions from people with experience would help: 1. How is it going forward with these fistulas? Unheard of before last Wednesday, and I have two forming or in the process of. 2. I have limited options going forward, and Remicade is seeming the best course of action. How have people done with it long term, it being an immune suppressant? I am knowledgeable about these things, and I am hoping to hear from people who have experience dealing with fistulas and taking Remicade. Thanks, Troy S."

• Jkl...
• March 30, 2016

For Crohn's Disease, Maintenance "This nightmare all started 9 years ago with an abscess. This turned into a fistula. The fistula went away after years, then I developed another one on the opposite side. Then multiple fistulas. 10 surgeries later, and now I have a fistula through the vagina. I finally changed doctors. My doctor put me on Remicade and methotrexate, and I am finally seeing results. Extremely tired, I could continuously sleep my life away. I haven't felt any inflammation for weeks. No pain pills for 4 weeks now. So cross my fingers this works."

• SHE...
• June 28, 2009

For Crohn's Disease, Maintenance "I'm 32 and I've had Crohn's now for 14 years. Remicade was a godsend but only for a limited time. I started off like everyone else with IV every 8 weeks. Then after a couple of years, it was wearing off faster, so then every 6 weeks. Then every 4 weeks, then I was back on the steroids along with the 4-week treatment. Well, after 6-7 years on Remicade, it wasn't working anymore. I do recommend it because I would give anything right now to get those 6 years back, because even though I became immune to it, I felt 20 times better than compared to now. Since the Remicade, nothing has worked for me since."

• She...
• September 29, 2013

For Psoriatic Arthritis "I had my first infusion last week, and within 3 days, I can honestly say I have no pain for the first time in weeks. I didn't have any reactions or side effects except for feeling exhausted, but that may be related to not being able to sleep for weeks prior due to pain. I am so happy with the effectiveness and results I have had. I would definitely recommend it!"