Remicade User Reviews & Ratings (Page 5)

• Woo...
• Taken for 1 to 6 months
• October 2, 2015

For Ulcerative Colitis "Have had UC and Crohn's for about a year now and started off with a serious flare that had me bedridden. I was finally talked into trying Remicade, and a couple of days after the initial dose, I felt great with no pains. A week after the dose, I developed C. diff and was right back to square one. So, I got the C. diff taken care of and did a second dose, and the C. diff came right back. So, I got that taken care of again and did a third dose, and guess what? C. diff again. I told my GI I wasn't going to waste my time or money on it anymore. I went to the Mayo in Minn for a second opinion on my condition, and after days of testing, they said that I had already developed antibodies to the Remicade. I'm not sure the Remicade caused the C. diff, but now to Humira."

• Lul...
• Taken for 1 to 6 months
• September 14, 2018

For Psoriatic Arthritis "I feel very tired all the time, am housebound due to fatigue and pain. I also have ankylosing spondylitis. I’m due for my third 8-week treatment next week. It also makes my moods labile in the first week after treatment. I’m 62 years old, unable to work. I’m hoping for things to get better soon."

• Pau...
• November 13, 2019

For Crohn's Disease, Maintenance "After being diagnosed with Crohn's, I took two (2) Remicade infusions. I believe it was only two (2). My condition deteriorated quickly. I lost forty pounds (40), the last ten (10) pounds I lost took only ten (10) days. I had a Prometheus study done, and it showed no trace (0) of Remicade in my system. How is that possible? Has anyone else had this happen?"

• Tes...
• October 25, 2019

For Crohn's Disease "I was on this for about 3 months, and I felt awful almost every time. After an infusion, I ended up in the hospital. I decided it wasn't for me, even though my Dr. tried to force it on me. I now have rheumatoid arthritis and a constant cough. I don't advise this drug."

• tkg...
• March 12, 2013

For Ulcerative Colitis "I was diagnosed with Ulcerative Colitis 3 years ago after being on several different meds for it. My doc and I decided to try Remicade. It works fine, I think, but the side effect for me was diarrhea. Plus, the cost I just couldn't afford it any longer. I am back on Asacol."

• Pen...
• April 23, 2020

For Crohn's Disease "I have Crohn's. Had symptoms when I was 2 years old, but was misdiagnosed for 5 years. I was officially diagnosed at age 7. I tried a lot of medicines as a child, but when I got a blockage located where the small and large intestines meet, it was time for Remicade or surgery. At that time, Remicade was new. My parents made the best choice and chose Remicade. I was 12 when I started and have been on it for 11 years. Yes, it's longer than I should be on it, but I was finally given a life. My intestines look like I've never had Crohn's. There were side effects, and over the years they increased. Now my body has gotten used to the Remicade. At age 23, it has spread to 3 of the 4 saliva glands in my mouth, blisters in my mouth/throat, and facial swelling. Other than these beauty flaws, my gut looks great! Long story short, my antibodies are fighting the Remicade, and I must face my fear and try something new."

• cry...
• June 12, 2017

For Rheumatoid Arthritis "I started Remicade in 2010 and stopped Remicade in 2016, almost seven years it worked absolute wonders for me. Amazing for my juvenile idiopathic arthritis (JIA), my arthritis started when I was a baby, and I am now a 25-year-old female. Within the first year, I developed psoriasis, who cares, right? I can walk, I can actually bend my knees, zero pain. I started doing UVB light therapy, and my psoriasis has not been back. In 2016, I developed what I first thought was heat rash. Turned out, after months and months of pain, swelling, and a terrible rash all over my legs, that I had developed hypersensitivity leukocytoclastic vasculitis. A listed rare, severe side effect, which immediately had my doctor taking me off of Remicade. Giving Remicade a 5 because it worked for me but I couldn't continue."

• Sk8...
• Taken for 6 months to 1 year
• April 23, 2024

For Ulcerative Colitis "I was diagnosed with UC (pancolitis) in early 2023. Took budesonide and it did help some, then went on Mesalamine and had a horrible spiral of symptoms. Started prednisone and struggled a lot to taper it. Tried Entyvio and was told that I was a primary nonresponder, switched to Remicade. Was finally able to taper the prednisone and felt so much better after completing the loading doses. I'm about 8 months in now and am either in or very close to remission (didn't get scoped to confirm yet). My only real side effect is bad headaches, which I will take any day over the UC being out of control. My dose is 10mg/kg every 8 weeks and I am very happy with the medicine. I can leave the house without worry, no longer wake up every night with urgency to use the restroom, urgency overall is so much better, and I have gone from 15 BM/day to about 3-4 which is amazing. I can eat whatever I want except spicy or fried food and my gut does fine."

• Not...
• May 16, 2016

For Psoriatic Arthritis "Remicade just isn't working for me, or not yet. When I did my 1 and 2 infusions, I could tell a difference. I had my 3rd one and have to wait 8 weeks. After 3 weeks, I had a flare-up, and I am in week 6, and I still feel awful. Maybe I need them more frequently or a higher dose. I am feeling so darn frustrated. I was hoping for a miracle drug to make me feel better, and so far, it's not. I read how it helps everyone, but I want that for me too! Can't wait to see my doctor so we can get together and discuss the pain."

• Goo...
• Taken for 1 to 6 months
• August 17, 2020

For Ankylosing Spondylitis "I went on Remicade after Humira not working for my Ankylosing Spondylitis (AS). I am 60 years old. I was diagnosed with AS in 2017. I had the symptoms for many years before getting diagnosed correctly. Many women are misdiagnosed with fibromyalgia. I had the Remicade infusions due to Medicare not covering any of the other biologics. I had 4 infusions of the drug. Each time I felt unwell 3-4 days after getting the infusion. After the last infusion, the bottoms of my feet became seriously red, sore, painful, and peeling. The doctor said it was a reaction from the Remicade. Then I started to have eczema on both of my arms and feet. I am still struggling with side effects from this drug. Now I have the AS symptoms along with not feeling well at all. I would not recommend taking this drug. It's a biological med and my elderly body obviously could not handle it. Never would I take this drug again!"

• Jos...
• Taken for 1 to 6 months
• October 27, 2020

For Ulcerative Colitis "I've been on Remicade for four months, not very long I guess. After being in the hospital for a couple of days, I noticed almost immediate improvement after my first dose, and over the course of the next four months had good and bad days, mostly good until this past week. They increased my dosage to every four weeks. But even this whole last week, I've been in a major flare. I get my next dose tomorrow, and I'm hoping it works and everything will get back on track until the next dose. I never understand what's going on. All I eat is chicken and carrots or squash every day. I just want it to work regularly, and I want a normal life again :("

• Bun...
• Taken for less than 1 month
• May 30, 2018

For Crohn's Disease "Got this med two times. The first time I used it, I got just a little cough, but a couple of days later, I couldn't walk at all, and the pain was really bad. Went to the hospital, nothing found. The pain eased, so I tried another time, and my airways closed up. After a couple of years after this, my hips still hurt, can't get up from bed or chair every time by myself. This shouldn't be used."

• Der...
• December 28, 2015

For Ulcerative Colitis "I was diagnosed with pan UC 2 years ago. My doctor gave me different medication that didn't work for me and made me worse. I lost 20 pounds in two weeks and didn't eat or drink anything because I would go to the bathroom ten times a day. My doctor finally recommended Remicade, symptoms went down, and a year later, I've started flaring up again. They increased the dosage, and I get it every month now. But while I'm writing this, my flare-ups started again, and it's been two weeks of bleeding, and my doctor is on vacation. I don't know what to do next, I don't want to have surgery."

• Red...
• June 5, 2011

For Uveitis "My son will be 17 next week. He was diagnosed with idiopathic bilateral panuveitis 6 years ago. He had double cataract surgery at age 14. He was treated with 6-7 different immunosuppressant medicines, nothing worked. Last August, he was placed on Remicade, once a month. His inflammation has been almost quiet for nine months. His vision is stable. He is back to school, and for the first time in five years, he is able to enjoy being a normal teenager."

• Don...
• October 9, 2017

For Crohn's Disease "I was on Remicade for five years, and the Crohn's disease went into remission, but it did a number on my immune system. I got a staph infection and eventually a septic hip. I had to have hip surgery, which consisted of a spacer for six months, as well as medication through a PICC line. I was in the hospital for three and a half months and nearly another three months at home before I was in a condition to have a hip replacement. I also have kidney disease, which is partly due to the medications I took while fighting Crohn's disease. Just waiting to die and get these diseases over with. Really consider the side effects of Remicade - septic hip was not mentioned."

• Sho...
• September 8, 2014

For Uveitis "I am a 28-year-old African American female. Four years ago, I was diagnosed with an autoimmune disease called sarcoidosis. Upon being diagnosed with that autoimmune disease, I was also diagnosed with chronic uveitis in both of my eyes. I was placed on several immune suppression medications, as well as an oral steroid called prednisone. The prednisone left me with unbearable side effects. About a month ago, my rheumatologist started me on Remicade and also upped the dosage of my methotrexate. Since my condition is so aggressive, I have to use the maximum dosage of the medication to see progress. I have only received two infusions of Remicade, and I can literally see a difference. I was lucky to receive the Remicade for free through a foundation."

• SIa...
• Taken for 1 to 6 months
• September 16, 2019

For Ankylosing Spondylitis "I have ankylosing spondylitis. I was given Remicade IV infusion three times. It helped a little with the stiffness in my SI joints and lower back. After each infusion, I felt like I had the flu for about four days. After the third infusion, the bottoms of my feet became red with a rash and were burning, painful, and itching. Now, three weeks later, both of the bottoms of my feet are numb. No one can tell me anything except perhaps it's a side effect of getting 'chemotherapy.' I will not take it again!"

• sta...
• March 8, 2009

For Uveitis "My 15-year-old daughter was diagnosed in January 2008 with uveitis. We did drops for 5 months with no result. Starting in May of 2008, we began an infusion treatment of Remicade, and today, her flare is controlled. Life has returned to 'almost' normal. We started at every 4 weeks and have progressed to every 6 weeks. We hope to make it to 8 and still control the flare. I am calling it a miracle drug. The issue is health care. We have insurance due to the grace of God. Each treatment comes with a price tag of $12K."

• Sup...
• May 23, 2009

For Uveitis "I am an 18-year-old male. I have been on Remicade for about a year now. I got uveitis about 4 years back. My thing, according to the doctors, is chronic bilateral panuveitis. I have it in both my eyes. I had been on so many medications, including 6 months on steroids. But a miracle came with Remicade - my inflammation is under control now. I will be on it for about a year or two more."

• ton...
• Taken for 1 to 6 months
• May 10, 2021

For Ulcerative Colitis "I have been on the medication Remicade for 5 months now, with no side effects. I eat everything and lots, except coffee (gives me the runs) and beans. I introduced salads back into my diet after the second month of treatments. I am almost back to where I was before I had my first and only flare. The only 'inconvenience' is that I have to use the washroom before going out just in case. I usually have a window of 3 to 4 hours between bowel movements. From the first infusion, I noticed improvement. In the stool chart, I am between types 5 and 6, which is understandable by the lack of fiber, which I am introducing slowly."

• rhi...
• May 24, 2009

For Crohn's Disease, Active "The medicine was given I.V. over a period of 2-4 hours. My problem was the nausea side effect. It was like chemotherapy nausea. They stopped the infusion, but the symptoms continued for a couple of hours. That said, they gave me Zofran 20 minutes before the next try and slowed the infusion to about 1/4 the rate, and all went very well (well, minus the 6-8 hours it took to infuse it). The therapy sessions were carried over to outpatient (I was in once every 4 weeks for 4 months, then a maintenance schedule for every 8 weeks). It worked GREAT, complete remission, which really hadn't happened for me in 12 years of acute Crohn's disease."

• Nol...
• Taken for 10 years or more
• March 6, 2021

For Ulcerative Colitis "While Remicade did help with my UC, it also has serious side effects that were not in the black box info when I was taking it and can attest it caused me to develop a rare skin cancer that caused major constructive surgery and also attribute it to creating psychological issues like depression, which I had never experienced until after taking Remicade. I ultimately had to discontinue Remicade. Please be careful with this medication, there are serious side effects that will eventually show up."

• Kyl...
• Taken for 10 years or more
• January 14, 2022

For Crohn's Disease, Maintenance "I have had Crohn's for the past 17 years. Diagnosed at 21. They put me on Remicade and Pentasa right away. Worked so well at the time they thought they misdiagnosed me, and they took me off everything. I was good for maybe 3-4 months, and it came roaring back. Two years battling with prednisone, Imuran, etc., I finally got back on Remicade in 2008 and have been on it for going on 14 years. Since the second or third infusion back in 2008, I've had zero symptoms. No signs of Crohn's at all. The only side effect is about 8-9 years ago I got scalp psoriasis and have battled it since. I see a specialist outside Boston who noted that although Remicade is also used to treat psoriasis, it can cause about 5 percent of people taking it for other reasons to develop psoriasis. The immune system is a very complex thing for sure. I get Remicade every 8 weeks. Doesn't make me tired or sore. Knock on wood. So if you're reading this and have lost all hope, there is hope."

• KDC...
• February 23, 2013

For Crohn's Disease, Active "I'm a 19-year-old female with severe Crohn's disease. I began Remicade 4 months ago following a severe flare-up that landed me in the hospital, and it has been a miracle. I did have one hospitalization 4 weeks ago, but I think I would have had many more without this. I will admit that the infusions are long and expensive, and the fact that it's an IV (I hate needles). With that being said, Remicade works! In late August, I had 30 cm of disease and a fistula. As of late January, I was down to less than 9 cm and my fistula is gone! Without Remicade, I would have had more hospital visits and would probably have needed surgery. I am adding Imuran to supplement the Remicade, so we'll see how that goes."

• Anonymous
• February 15, 2009

For Behcet's Disease "Remicade has been a godsend for my condition, especially effective with the arthritis. I stopped the infusions for about a year, and since I've returned to the infusions, I've been getting lots of weird skin problems."