Levothyroxine for Hashimoto's disease User Reviews (Page 3)

• Ano...
• Taken for 1 to 6 months
• July 19, 2019

Levothyroxine "Was diagnosed with Hashimoto's about 2 months ago. I would wake up feeling very fatigued, and I would have to take a power nap at work before I could drive home. I had seen the endocrinologist, and he put me on 50 mg of Synthroid once a day. After about two weeks, I felt great, I was back to my normal self minus the weight I gained (10 lbs in 2 weeks). Now, all of a sudden, I woke up this past Monday with a migraine and no appetite. Today is Friday, still battling the migraine and have lost 7 lbs. Every time I think of food, I want to vomit. Had labs done, and everything came back normal. Body feels very hot, and a lot of sweating. Doc lowered me to 25 mg on Wednesday, but still no changes in headache or appetite."

• Anonymous
• June 24, 2010

Levothyroxine "I was on this medicine for about 6 months, and in that time, I felt worse than when I wasn't taking it. It took the migraines away, but I still had muscle aches, fatigue, hair loss, dry skin, brittle nails, and more. The huge symptom I had on this medicine that bothered me was the depression. I felt dread and doom every day. I couldn't take it anymore, so I stopped taking it, then I went to a different doctor who prescribed me Armour."

• Lau...
• Taken for 1 to 2 years
• December 13, 2023

Levothyroxine "I am on Tirosint and also Armour. I cannot sleep, and my fingernails stay horrible. My TSH fluctuates. I feel better when it’s around 2.0, mine is 3.93. I fight fatigue and mentally lack ambition. I wonder if others have this same complaint."

• Flo...
• September 7, 2016

Levothyroxine "I have Hashimoto's/hypothyroid and have been on Tirosint after being on Synthroid for the first 7 weeks of my diagnosis. I have been on it for 5 years and absolutely love it. No reaction as there are no fillers or dyes like the other synthetic drugs. Most recently, my doctor added a little T3, and I have never felt better."

• Nan...
• Taken for 1 to 6 months
• February 11, 2020

Levothyroxine "Started this at the new year. My hair is falling out like crazy. It's been very distressing to see. It says it can cause hair loss, but in time will correct itself. I really hope it stops soon! My numbers look good (or at least that is what my doctor thinks)."

• Doe...
• Taken for 6 months to 1 year
• May 7, 2018

Levothyroxine "I thought this med would be my silver bullet! I was so relieved and excited to try it. Five months in and no difference whatsoever! Even after multiple increases in dosage. Terribly disappointing as I had to fight to get it with insurance, etc., etc., etc. and it is not cheap! I feel I am out of options as generic levo did nothing and I’ve also tried Unithroid and Armor, which was worse than all of them combined! Armor is not worth all the praise it receives. I’m at a loss now. Gained over 25 MORE pounds on this Tirosint!"

• Dio...
• December 11, 2019

"My mother and I both have hypothyroidism, and our pharmacy switched our levothyroxine to the Lupin brand. Months after taking the new pill, we were ill again. We experienced all of the symptoms we had before being diagnosed and medicated: extreme exhaustion, weight issues, brain fog, and generally feeling sick. I feel that this “medication” isn’t even medication. It is terrible. After calling around to different pharmacies, we found the old brand we took before, and now we are feeling 100% again."

• Car...
• Taken for 1 to 2 years
• March 28, 2017

Levothyroxine "I was on Levoxyl for 15 years and had terrible side effects of reflux and asthma symptoms. The doctors had to put me on all kinds of asthma and GERD medications. Turns out it was the Levoxyl causing all those symptoms. Been on Tirosint for about 2 years and now off all GERD and asthma medications. My endo did not believe there was a correlation, I don't see her anymore. I feel pretty good on Tirosint, my new endo just upped my dosage, so hopefully I'll start losing some of the weight I gained when the old endo put me on a lower dose. All in all, I'd rather pay a higher price and feel better than have to deal with all the side effects from the Levoxyl."

• Lau...
• July 22, 2015

Levothyroxine "has not relieved any of my symptoms from Hashimoto's. Recently, I have been getting severe leg muscle and joint pains. It was not until my son started jotting down all of my symptoms that I thought were not related, he figured out that my medication was not doing its job. I originally was on Synthroid and switched off because of the cost of it, even with insurance, and I was having regular side effects from the pills."

• Anonymous
• August 16, 2010

Levothyroxine "I was diagnosed with Hashimoto's about seven years ago, nine months after giving birth. I was so tired, losing hair, had terrible brain fog, and was very irritable. My doctor placed me on Levoxyl 110. My symptoms went away fairly quickly (2 weeks), but then I started having panic attacks. She reduced me to 88 mcg, and the anxiety went away. I stayed on that dose for the next seven years. Though my blood work showed normal, I was still always cold, found it hard to wake up in the mornings, and would feel lethargic after workouts. I convinced my new doctor to let me try the next higher dose - 100 mcg. I feel so much better now. My feet are never cold, I don't lose hair, and I am back to being a morning person. Blood work AND symptoms must be addressed."

• Hop...
• Taken for less than 1 month
• June 3, 2016

Levothyroxine "I hope that the FDA is reviewing and testing Tirosint. Thought I was going to die after only taking a low dose of Tirosint for a few days. Chest pains, extreme disorientation, very sick, could not stop crying. The hospital did not know what to do. My pharmacist suggested drinking lots of water to get it out of me, which I did. Nightmare experience!!!"

• 178...
• Taken for less than 1 month
• February 11, 2018

Levothyroxine "I had been on Synthroid for over 10 years for hypothyroidism. I was then diagnosed last year with Hashimoto's. I felt like the Synthroid was no longer working for me. I saw a new endocrinologist who gave me samples of Tirosint. I am a migraine sufferer and have been for years. I started getting headaches with the Tirosint that were different from my migraines. Not even two weeks after starting Tirosint, I had a headache so bad I could not stop puking. I ended up at the ER. As they started an IV and pain/nausea meds, they told me they needed to admit me to ICU. My heart rate was 166, and I was in AFIB. I have never had heart problems in my life, and there is no history in my family. Luckily, the drugs they were giving me in my IV put my heart back in rhythm, or they were going to have to stop/restart my heart. Once released from the hospital, I never took Tirosint again and went back to Synthroid. I am now permanently on Cardizem and an aspirin a day."

• spa...
• June 27, 2017

Levothyroxine "I am taking Eutirox, and too bad for me, I have noticed I am experiencing a lot of the side effects. I don't have any problems with allergies, but I have redness, swelling, itchy eyes, a swollen face, etc. I used to use Eltroxin 100, but it’s very hard to get. Eltroxin is so much better for me. :("

• nan...
• Taken for 1 to 6 months
• July 21, 2019

Levothyroxine "First of all, there are coupons for this, and I pick it up from Walmart for 28.30. Search coupons free for Tirosint. I first tried a company that is a scam company. They charged me 50 dollars, saying my medication was going to be 60 a month. Too late, I gave the scumbags my credit card and forget this bogus company out of Florida. The medication doesn't work for me, my hair falls out, I'm tired, and I'm gaining weight, so I'm going back to a compound which worked for me in the past. Good luck everyone with this. Uggh."

• Jul...
• Taken for 2 to 5 years
• July 26, 2020

Levothyroxine "I thought I was having a heart attack. Flushing, sweaty, feeling feverish, heart palpitations, those symptoms seem to bring on the dizziness, which led to nausea and vomiting. The worst experience of my life. Actually passed out multiple times, and this was my only medication I was taking. They actually put me on blood pressure medication, and once I stopped this medication, I no longer needed blood pressure medication."

• Lib...
• October 9, 2016

Levothyroxine "I was on levothyroxine for 10 years, and it never did anything for me. My levels were never optimal, and I continued to gain weight, be depressed, and waste money on a useless drug. So far with the Tirosint, my only side effect is a slight headache. For the first time in my life, my hormone levels are excellent, but my wallet is empty. Tirosint is ridiculously expensive. I use a compounding house that sells a month's supply to me for $68 (Willow), as opposed to the $125 per month that CVS wanted. I feel the price is a disgrace, and something needs to be done about this. I have insurance that does not cover this drug (BCBS). My doctor gave me a discount coupon for $35 a month, but Blue Cross Blue Shield would not honor it. Ask your doc for this."

• Tit...
• Taken for 1 to 6 months
• June 24, 2019

Levothyroxine "I had a concern related to feeling bad, and now I have a problem. The doctor recommended Tirosint for 28 days. My results used to be optimal. I just got results, and my TSH is 9. I never ever had more than 1 after being medicated for 12 years. Feeling really frustrated."

• Ste...
• January 27, 2020

Levothyroxine "I have been on this medication for 22 years. It took about 2 years of taking medication for me to feel normal in the beginning. My hair and skin are great, and I have good cognition and energy levels. I have a busy job, and I feel great and energetic. I have always maintained a normal weight and look young for my age. The only side effect I have found is I feel the cold. If you don’t mind putting the heating on, I can definitely recommend."

• Kee...
• Taken for 2 to 5 years
• October 9, 2024

Levothyroxine "Tirosint gave me my life back! I was suffering for 17 years while on Synthroid. I had Hashimoto’s and hypothyroidism so bad that I had to have my thyroid removed. I feel it was due to Synthroid not working. All of the poison they put in Synthroid and all other thyroid medications should be illegal! My levels were NEVER stable. I felt like I was losing my mind, and doctors would not listen to me. My new doctor put me on Tirosint because my levels were so bad that I was on my way to myxedema coma. My body was not absorbing all of the Synthroid tablets. Tirosint immediately brought me back to normal, and ALL of my crappy symptoms, stomach pain and hair loss, etc., were gone! My levels have been steady for over two years now. I honestly thought my life was going to be miserable forever! Thanks to Tirosint, I am happy again and will forever be grateful! The only issue I have is the very high cost, and now my new insurance is not wanting to approve it."

• Mic...
• April 11, 2015

Levothyroxine "My Hashimoto's with a benign nodule was found after losing my twins to early delivery. Endo believes this was a missed factor in my loss. My TSH was over 4. Started on levothyroxine 100 mcg was great for 2 months, but by the third month, my blood sugars dropped, heart was racing (palpitations), body itching like the burn you feel after a workout, my hair was falling out, severe anxiety, and I was losing 2 lbs every few days (that part I didn't mind). I was insistent to check my TSH and it was 0.27, adjusted down to 88 mcg with an extra half tab once a week. My TSH is now 2.2, but I feel the depression and fatigue. Adjusting back up to 100 since it's been 3 years. At least now I know what to watch for. I no longer experience PCOS or DM 2."

• Kel...
• Taken for less than 1 month
• July 4, 2023

Levothyroxine "I have been on Unithroid for a few weeks. I was diagnosed with Hashimoto's when I was 13, and now at 55, I was on Synthroid for 35+ years. I always felt horrible - irritated, had sleep issues, and couldn't focus on anything. In the few weeks I've changed meds, I feel like a new person! I wish I had asked for other options years ago! I also had gained 25+ lbs, and now I'm losing weight and hoping to be back to where I was years ago."

• Dtr...
• August 17, 2016

Levothyroxine "Love Tirosint. My hair is back and fingernails are not broken anymore. Feel great. Was on Armour for 6 years, got hair loss and lost beautiful nails. Previous meds gave me heart palpitations and I was not able to sleep. This med is the real deal, but it's too expensive."

• MOM...
• Taken for 1 to 6 months
• December 1, 2016

Levothyroxine "ON Tirosint for about 4 months. I certainly have more energy. I have been on Synthroid, Levoxyl, levothyroxine, and Nature Throid, this seems to work the best. BUT I keep getting rashes in odd places, like my chest and now the backs of my shins. I am starting to think it is the meds, as I have not switched detergents, and the one I use is free of scent and dyes. Anyone else suffer with rashes on Tirosint? I won't stop, because the rash is better than the way I felt before Tirosint."

• JJa...
• April 12, 2021

Levothyroxine "I am so thankful I found this page. I literally thought something was seriously wrong. I have had the same exact experience as all the 1-star reviews. Unfortunately, I have been too ignorant of the change to put how I am feeling and the med switch together until now. I would give a negative number on the effectiveness of this drug if I could. It was like taking a sugar pill."

• Kka...
• Taken for 1 to 2 years
• March 31, 2021

Levothyroxine "After 6 thyroid specialists, 3 hospital admissions, a gamut of various T4 meds at dosages ranging from 25 mcg to 125 mcg and allergic reactions and increasing debilitating hypo symptoms. Unithroid is the med that finally started bringing this nightmare under control. 50 mcg + 5 mcg compounded clean T3 3x a day."