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Levothyroxine for Hashimoto's disease User Reviews (Page 2)

Brand names: Synthroid, Euthyrox, Levoxyl, Tirosint, Unithroid, Eltroxin, Tirosint-Sol, Thyquidity, Levo-T, Ermeza Eutroxsig Novothyrox Levolet Evotrox …show all brand names

Levothyroxine has an average rating of 5.2 out of 10 from a total of 170 reviews for the treatment of Hashimoto's disease. 45% of reviewers reported a positive experience, while 50% reported a negative experience.

Reviews for Levothyroxine

  • Penny...
  • Taken for 1 to 6 months
  • April 3, 2019

Tirosint (levothyroxine) "After nature thyroid and armour seemed to not be working I was put on tirosint by my Endo. I felt great the first week or so but since then I’ve had heart palpitations, fast heart rate, swollen legs and ankles, hair falling out and in the short 2 months I’ve been on it, I put on 13lbs. While all these symptoms were going on my TSH was 0.20, which meant I was very hyperthyroid."

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  • Judyau
  • August 12, 2013

Tirosint (levothyroxine) "I had tried several tablet forms of levothyroxine, all of them causing terrible problems with my stomach. I have absolutely no problems with Tirosint so I love it, but my insurance company pays nothing for it and the manufacturers keep raising the price. Initially it was about $75 for an 84-day supply; this year in Feb. & May, I paid $86, and when I filled a new prescription a few days ago, the price has gone up another $20, and I'm paying $105."

10 / 10
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  • Lucas
  • Taken for 1 to 6 months
  • June 27, 2023

Tirosint (levothyroxine) "Switched over from taking Levo 125 and now taking Tirosint 125. My main issues with Tirosint are chronic insomnia followed by a long list of other symptoms. Overall, I cannot even function on this medication as a person. I am currently getting insomnia on Tuesday morning, 27th June 2023, at 2:44 am. Here are some of my notes about how I feel on Tirosint right now, daily insomnia, awkward anxiety, depression, brain fog, feeling out-of-place in public, and feeling out-of-place at home. Multiple times, I've had panic attacks and have had to take a walk in my neighborhood just to shake off this dreadful feeling of doom. Also, I'm really cold all the time. Either this medication works TOO WELL OR IT DOESN'T WORK AT ALL. I took Tirosint 150mcg in the past, and it was enjoyable, but these current batches of Tirosint have caused me nothing but suffering. I've tried taking Tirosint at least 4 different times over the past 5 months. Stay with Synthroid or Levo."

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Frequently asked questions

  • Toast...
  • December 6, 2018

Tirosint (levothyroxine) "I was on naturethroid but I had trouble taking the two doses every day so it was not working for me. Tirosint is only one dose per day (I take 200 mcg). I am 35 year old female and have a 5-year old. Before tirosint my energy levels were always low, I felt like a walking zombie. Naturethroid worked ok but no big improvements. On Tirosint, I can get through the day without feeling like I will crash when I get home. I struggled after giving birth, my libido went down the drain. Tirosint has done wonders for my sexual health in the short 3 weeks I’ve been on it. I also have absorption problems and tirosint is best for people who have lactose intolerance and absorption issues. I love Tirosint. It’s a blessing, truly. I am 5 feet and 177 lbs (obese because of thyroid). Tirosint has also helped me eat less. I only lost one lb so far but honestly the weight loss is secondary, the fact that I don’t feel dead AND my libido is back, is more than enough three weeks into it."

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  • Luv2L...
  • March 22, 2015

Tirosint (levothyroxine) "Just switched from Synthroid. I had been on Synthroid for about 9 years. No fillers. No brain fog. So far, I feel really good. A lot more expensive. But I don't care. A lot more energy. Much better medicine. Try it!"

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Are you taking this medicine?

  • Marga...
  • April 18, 2016

Tirosint (levothyroxine) "Tirosint has been the best med I've taken for Hashimoto's thus far. I tried Westhroid, which is NDT (because I've read such good things about it online), and it was terrible. I went hyperthyroid in a big way and had a panic attack at work. Immediately went back to Tirosint. I also take compounded T3 as needed, which is extremely helpful. I do hate that I have to pay out of pocket for it each month (BCBS FEP), but it's worth it to feel normal. It's also important to add that I am completely gluten-free and heavily limit my processed sugar and dairy intake; that has been crucial in the healing process, and no thyroid medication will solve your problems if you have a poor diet."

9 / 10
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  • LoLo
  • Taken for less than 1 month
  • October 23, 2020

Euthyrox (levothyroxine) "I have had Hashimoto's for 8 years. Tried Levoxyl, Synthroid, Armour thyroid, Finally went to generic since they all seemed about the same and the cost was far less. I felt great, very stable TSH etc. Walmart switched to Euthrox with my last refill and I feel absolutely horrible. Low energy, weight gain, complete brain fog and many many more. Since it was a new med, I alternated it every other day with my old generic and this. Felt ok, so I swithched to Euthrox daily and honestly feel as if I am taking NOTHING. Glad to hear it seems to be an almost universal complaint. I plan on visiting Walmart tomorrow to see if there is anything they can do about replacing this horrible medication."

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More FAQ

  • dance...
  • November 14, 2020

Euthyrox (levothyroxine) "I was switched from my normal levothyroxine to Euthyrox recently because Walmart pharmacy switched me (without asking me). I was told the blister pack was a better option because it maintains the freshness of the medication which is supposed to make it work “better.” My TSH typically sits around .9-1.2 and now I’m at 3.69 as of last week. The only thing that has changed is my medication! I’ve felt terrible - very cold, lots of crushing headaches again, joint paint, fatigue...I’m afraid it’s from switching over to this med. I’m calling my endocrinologist to try and move my rx to a different pharmacy to see if I can get off the Euthyrox."

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  • Anonymous
  • December 10, 2011

Synthroid (levothyroxine) "If you are taking Synthroid and you are still depressed, overweight, or losing hair (all symptoms of hypothyroidism, which this drug treats) then your dose is still not high enough. If your doctor tells you that you are 'within the normal range,' switch doctors - if you are still having symptoms, then your dose should be higher. I have been on this medication for several years now and as long as I'm on the right dose, I feel fine. I know I need an adjustment when I start to get tired and depressed. Those are the two most obvious symptoms for me (as well as hair loss). I have used low-carb diets effectively (New Atkins for a New You is good - has a section for vegetarians) to lose the weight I had gained when my thyroid became inactive."

10 / 10
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  • MissB...
  • Taken for 2 to 5 years
  • October 1, 2018

Synthroid (levothyroxine) "I've been taking generic (levothyroxine) for 2.5 years. I took for a little while about 4 years but I didn't keep up with my health as I should have. My TSH was 58.8 and I started on 50 mcg. After seeing my GP and now an Endocrinologist, I am now up to 150 mcg and the last TSH was .99 I have had no side effects from either Synthroid or the generic. The medicine does what it's supposed to do. My hair grew back, the fog lifted, got my energy back, severe muscle pain went away, joints no longer hurt and my cholesterol went down from 280 to 200. I take it in the morning but don't follow any rules. The endo just said to take it. I usually take it with my Vitamin D, prescription pepcid, and Vitamin C. I take it with coffee or milk. The endo said it really didn't matter, just take it because not taking it is not an option."

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  • Notal...
  • December 11, 2020

Euthyrox (levothyroxine) "Walmart switched my prescription from levothyroxine to Euthyrox about 4 months ago. I noticed that I had been feeling off for a long time but chalked it up to 2020 blues. I started having terrible heart palpitations though and knew something was wrong. Went to GP and she put me on an anxiety med. I didn’t think to tell her that they switched the prescription because the pharmacist told me it was the same medication. The palpitations continued and they got so bad that my husband started looking up reviews for everything I take including vitamins and found out that this drug causes heart issues. I called my doc and got it switched back. The pharmacy tried to give me Euthyrox again and said that they have to special order the levothyroxin and it costs 5x as much as it used to. This sucks."

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  • Big...
  • November 16, 2019

Tirosint (levothyroxine) "Hypo/Hsahis - 42 years. I recently moved and I went to an Endocrinologist that looked at the last several years of labs and advised she could see I was not absorbing meds, so she put me on Tirosint. My TSH was 14.99. 3 weeks later, my TSH was .78. After that, depression, anxiety, irritability, mood swings and major bathroom issues around the clock for a month. Went to Mayo Clinic to figure this out and after 2 months on Tirosint, my TSH was 43.2. No one believes I am taking meds. Yes, I am. Mayo put me on NP Thyroid last week. Tirosint had already done it's damage to my gut. I ended up in the ER Monday with severe stomach pains/bloating, pressure, pain, bleeding. CT scan revealed ulcerative colitis. I took med as prescribed. Dr. that prescribed it to me called me and told me that she can CLEARLY see I stopped taking my medication over 2 weeks ago. No. I have no thyroid, my Hashis attacked it and it is no longer there. I am 100% dependent on thyroid replacement now."

2 / 10
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  • Tina
  • January 6, 2023

Tirosint-Sol (levothyroxine) "Tirosint Sol has given a consistency in efficacy. Other "natural" brands were always being recalled for either too little or too much thyroid. I kept having issues of heart palpitations when the other brands I was taking had too much thyroid, and other times I would be sluggish and have brain fog when there was too little. A month or two later, after the fact I would get a notice that the batch of thyroid np or armor thyroid was being recalled. It was a roller coaster. So with the Tirosint Sol, it has given me consistency and the solution I feel is more quickly absorbed. I wish they would come out with something similar to a glucose monitor for thyroid levels so that one could monitor their thyroid hormone levels throughout the day"

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  • Thatg...
  • Taken for 1 to 6 months
  • November 3, 2020

Euthyrox (levothyroxine) "I was on Levothyroxine for three years. Three months ago Walmart (without permission) changed my prescription to Euthyrox. At the time, I didn't think it would matter so I took it as I had my previous med. I started having leg and hip pain - then extreme brain fog - tingling and numb extremities - depression. I went to to the dr and was told my levels were w/in range. The dr stated he had not heard of Euthyrox. Nothing has changed in my life (other than COVID), but the med. I called Walmart and they told me they could no longer get Levothyroxine. The pharmacist explained that Euthyrox was much better in foil packs and would not lose its purpose as Levothroxine would once it was open. After reading other comments, I'm switching back and to another pharmacy"

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  • Hypos...
  • Taken for 5 to 10 years
  • November 7, 2013

Synthroid (levothyroxine) "6+ years on Synthroid, and this is what I have to show for it..Used to be a size 12 now a 28, no periods, pain all over, Hypo symptoms still, mental and mood symptoms ( anxiety, depression, mood swings) My Growth Hormone is only 40 and my FSH is 78. I can't have children. Finally switched to Cytomel, it broke me out, and still had same symptoms as above. My level was over 20 last they checked. Just got a RX for Armour, hoping I finally get my life back"

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  • Hopef...
  • October 18, 2013

Synthroid (levothyroxine) "I was on this medication for about two weeks or so and within the first couple of days it made me feel extremely anxious and depressed. I felt as if I was not in control of my emotions. As if this was not bad enough I also felt an uncomfortable sensation in my neck and experienced trouble sleeping."

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  • Mimi
  • Taken for less than 1 month
  • September 19, 2018

Tirosint (levothyroxine) "I've tried several different thyroid meds for hashimotos and this is the worst I've felt by far! I couldn't go to the bathroom couldn't eat, couldn't sleep, felt a lump in my throat, gained weight, was freezing cold and ended up in the ER because of my stomach pains. I switched back to Armour Thyroid but now need to see a gastroenterologist because my stomach is still suffering because of that dreaded Tirosint!!!!!"

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  • davet...
  • Taken for 2 to 5 years
  • September 6, 2017

Synthroid (levothyroxine) "Synthroid is only one of the four hormones produced by the thyroid. So it produces about the expected mediocre result. For me it was worse than mediocre, it was horrible, leaving me essentially bed-ridden for almost 3 years. This company has a bad record, and pressure is put on Docs to use this stuff exclusively. Why aren't we offered other options at the start??"

3 / 10
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  • nancy
  • Taken for 1 to 6 months
  • July 21, 2019

Tirosint (levothyroxine) "first of all there is coupons for this and i pick it up from walmart for 28.30. Search coupons free for Tirosint. I first tried a company which is a SCAM company. They charged me 50 dollars saying my medication was going to be 60 a month, too late I gave the scum bags my credit card and forget this bogus company out of Florida. The medication doesn't work for me, my hair falls out, I'm tired and I'm gaining weight, so I'm going back to a compound which worked for me in the past. Good luck everyone with this,.,, uggh"

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  • Hope...
  • Taken for less than 1 month
  • June 3, 2016

Tirosint (levothyroxine) "I hope that the FDA is reviewing & testing Tirosint. Thought I was going to die after only taking a low dose of Tirosint for a few days. Chest pains, extreme disorientation, very sick, could not stop crying. The hospital did not know what to do. My pharmacist suggested drinking lots of water to get it out of me, which I did. Nightmare experience!!!"

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  • Nancy...
  • Taken for 1 to 6 months
  • February 11, 2020

Tirosint (levothyroxine) "Started this at the new year. My hair is falling out like crazzzzzy. It's been very distressing to see. It says it can cause hair loss but in time will correct itself. I really hope it stops soon! My numbers look good (or at least that is what my doctor thinks)"

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  • Anony...
  • Taken for 1 to 6 months
  • July 19, 2019

Synthroid (levothyroxine) "Was diagnosed with hashimotos about 2 months ago. I would wake up feeling very fatigued and I would have to take a power nap at work before I could drive home. I had seen the endocrinologist and he put me on 50 mg of Synthroid once a day. After about two weeks I felt great, l was back to my normal self minus the weight I gained (10 lbs in 2 weeks). Now all the sudden I woke up this past Monday with a migraine and no appetite. Today is Friday, still battling the migraine and have lost 7lbs. Every time I think of food I want to vomit. Had labs done and everything came back normal. Body feels very hot and a lot of sweating. Doc lowered me to 25 mg on Wednesday but still no changes in headache or appetite."

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  • Babs
  • Taken for 1 to 2 years
  • January 23, 2019

Tirosint (levothyroxine) "The synthroid 75 stopped working after 11 years. I went back to unothroid as my PPO plan said I had to document response. It was awful trying to get out of bed, paying attention to my tasks, remembering where I filed or put stuff. I felt like my self was in another universe. The PPO Plan approved Tirosint and gradually the cloud lifted. I've been on the same dose for over a year and I've done well although there are times that I think I could do better based on the medication level. My problem is that in 2019 the price went for from $515 for a three month supply to $1,423 for a three month supply. So I guess I have to go back to higher levels of unithroid. So freaking sad."

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  • Anonymous
  • August 21, 2012

Synthroid (levothyroxine) "I have been on Synthroid now for 4 years. I wasn't able to take the generic Levothyroxine because it caused me high blood pressure. I was shocked to find out I had Thyroid disease. My dosage continues to go up I'm on 125mcg now, and just had my TSH checked and its again on the low end (which I can tell because of fatigue, weight gain, hair loss). I demand my thyroid to be tested every 4 months. When its in the middle of "Normal" range is the only time I feel good!"

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  • 17895...
  • Taken for less than 1 month
  • February 11, 2018

Tirosint (levothyroxine) "I had been on synthroid for over 10 years for hypothyroidism. I was then diagnosed last year with Hashimotos. I felt like the Synthroid was no longer working for me. I saw a new Endocrinologist who gave me samples of Tirosint. I am a migraine sufferer and have been for years. I started getting headaches with the Tirosint that were different than my migraines. Not even two weeks after starting Tirosint I had a headache so bad I could not stop puking. I ended up at the ER. As they started an IV and pain/nausea meds they tell me they need to admit me to ICU. My heart rate was 166, and I was in AFIB. I have never had heart problems in my life, and no history in my family. Luckily the drugs they were giving me in my IV put my heart back in rhythm, or they were going to have to stop/restart my heart. Once released from the hospital I never took Tirosint again, and went back to Synthroid. I am now permanently on Cardizem and an aspirin a day."

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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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