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Invega Sustenna User Reviews & Ratings (Page 5)

Invega Sustenna has an average rating of 3.9 out of 10 from a total of 175 reviews on Drugs.com. 25% of reviewers reported a positive experience, while 62% reported a negative experience.

Reviews for Invega Sustenna

  • Sarah
  • Taken for 2 to 5 years
  • April 24, 2023

For Bipolar Disorder "I take 75mg of the Invega Sustenna and it has given me my life back. I’ve gained 40 lbs over the last 5 years on it. But I don’t mind as long as I have stability. No mania. No psychosis. I feel amazing. I had severe anxiety on the Invega Trinza but went back to Sustenna and that went away. I feel great!"

10 / 10
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  • inveg...
  • Taken for 1 to 6 months
  • November 24, 2022

For Schizophrenia "I've been off this med for three years, and I've never recovered my sex drive. I have permanent erectile dysfunction. I'm unable to feel love, happiness, joy, or excitement. I can't even cry. Oh, and it also made me infertile. My semen is completely clear and I did a semen analysis and my levels are incredibly low."

1 / 10
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6 Report
  • pazma...
  • Taken for less than 1 month
  • April 12, 2015

For Schizophrenia "My daughter had the injection this month.It stopped her psychosis, still a little paranoia. The first ten days severe pain in neck. Also some dizziness still and balance problems she says. She took cogentin for neck. Some relief from the neck now. Another issue from blood test is high prolactin level. We will be seeing her Dr this week .Dont know if side effects worth it"

7 / 10
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21 Report

Frequently asked questions

  • Nim
  • Taken for less than 1 month
  • June 10, 2019

For Schizoaffective Disorder "I had to take Invega sustenna after running away from being treated 5 times. It helps eliminate the delusions and voices. I love it as it does not make me believe that the Kings Son is in love with me; or Adam Sandler is talking to me through every thought with another person in my head and sharing tips for his movies while looking at an image. But I hate the fact that it has a weight gain affect that have muscle constraints. Feeling happy through space is barely not there... natural life is much better ... and keeping all the craziness of Schizophrenia is way more intresting than waking up."

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  • Million...
  • January 7, 2017

For Schizoaffective Disorder "Took just one 156mg a month ago (33 days). I was given this by force to control my irritability. I was misdiagnosed as my irritation is caused by a physical condition that I kept mentioning to the Drs who did not listen, and said I had mood swings. Unable to get sore from workouts. Have lost muscle tone. Loss of strength and stamina. Constant sore throat and thirst. 0 sexual interest and completely impotent. Heavy increase in urination. Have occasional feeling of tight band around head after slight arousal. Rarely some left ab pain. Blood ast & alt lvls increased by 30 points I have noticed my 15 inch arms shrink to 13 inches in just a month. I cannot exercise or pick up weights all. I am not getting even slightly sore from intense work."

1 / 10
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Are you taking this medicine?

  • Hira
  • Taken for 2 to 5 years
  • May 9, 2020

For Schizoaffective Disorder "Invega 156mg every three weeks have been good to me. I no longer have voices and I am able to maintain my weight .....I don’t menstruate that’s a negative. I can’t drive or work get out of the house by myself because of agraphobia caused by invega as I suspect. I don’t have anxiety that’s a plus no panic attacks that a plus ....."

8 / 10
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  • Tonyt
  • June 3, 2017

For Schizophrenia "Before my psychotic break that turned into a delusional police chase I was manic, terribly delusional, thought the devil was everywhere I went, thought people were after me, thought devil controlled electronics and the internet. Just too many bad symptoms and after receiving invega injection I've been told that I was more outgoing, and had absolutely no symptoms. But the side effects sucks such as high prolactin levels which resulted in low testosterone, anhedonia, and lower emotions"

9 / 10
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16 Report

More FAQ

  • Bless...
  • Taken for 1 to 6 months
  • October 12, 2021

For Schizoaffective Disorder "Wow where do I even begin with this horrible drug. About 3 days after I received my injection, I started to experience severe restlessness.I couldn’t sit still and had to constantly move. My sperm was gone. I was literally counting every hour, praying so that the drugs half life wears out (which is 1 month so you can imagine how torturous that was).I couldn’t think straight I was only focused on counting the hours. I had no pleasure in doing anything. I literally got turned into a vegetable that you see in movies about psychiatric patients. PLEASE,only try this drug AFTER you tried other antipsychotics that proved to not work. Stay healthy"

1 / 10
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  • Inveg...
  • Taken for 1 to 6 months
  • March 25, 2022

For Schizoaffective Disorder "Yeah it controlled my hallucinations, but at what cost? This drug should not be prescribed to anyone, especially young males. Literal chemical castration. Invega robbed me of my erections, sex drive, and sperm. When I ejaculate nothing comes out. High prolactin and low T levels. My memory is awful, no pleasure in doing anything at all. Restlessness, brain fog, no thoughts or emotions. This injection will leave you bed ridden. Literally all I do is lay down and hope for the day to pass by fast nowadays. My depression got a lot worse on this drug. Stay far away."

1 / 10
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7 Report
  • Sam_mig
  • December 26, 2017

For Schizophrenia "Absolutely amazing. Made me back to normal, before I took the invega shot I had extreme paranoia thinking people wanted to kill me, thought the government was purposely making it hard for me not to be homeless and literally thought my life was like the Truman show at some points and that everyone was actors around me, and wanted to kill me, literally within a day after taking this my life had changed and I became myself again before all the medication started."

10 / 10
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15 Report
  • cnoble
  • Taken for 2 to 5 years
  • December 15, 2016

For Schizophrenia "My side effect was like no other side effect I have had. I was leaning to the left no matter what I was doing. Sitting, standing, walking, even driving a car, My 3 boys revoked my license. I really was okay and thankful to them. I am and have been going to a pain clinic for many years because of my back. It only made my back hurt more. Free of mental pain? Free of physical pain? Physical won!! My family doctor figured it out. So I guess just watch for anything different, Because if there was any good, the bad took it away. That is my opinions, It hurt me more than it helped me, I am very to see how many received help and relief from it."

1 / 10
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16 Report
  • newk
  • Taken for 2 to 5 years
  • May 5, 2016

For Schizoaffective Disorder "Before i was on this injection i was taking up to 7 pills a day and lucky me i had a good social worker and nurse who talked to my doctor to find something better too for me to take i was having episode and tripping out like i was in the spirit world tvs were talking to me and people were turning in too demons but after takeing this medicine it clears my mind and keeps me sane i have quit my medication a couple of times but the episodes come back this medicine is really good i did gain weight but rideing my bike too school helps the longer you stay on this medicine the better it works i find but i was always getting head akes i thought it was the medication but really i just needed glasses the medicine works i get it in my arm"

8 / 10
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  • Anony...
  • Taken for 6 months to 1 year
  • December 29, 2020

For Schizophrenia "I was first almost forced to take this as an injection at the Mental Health Center. I have been on it for some time but notice it causes way too much anxiety and feeling that I'm afraid of myself. I'm not sure if I was ever supposed to take this at all."

1 / 10
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  • Gsuite
  • March 27, 2020

For Schizoaffective Disorder "I've been on haldol, aristada, zyprexa, and invega and so far these medications just give your brain time to heal not actually heal your your disorder. They help manage your symptoms. So far I've had delusions, hallucinations, and voices. Invega may be harmful but when you have schizophrenia like me you have to be on something so far invega helps the most but has the worst side effects works kinda like that. I advise taking it over the ones I mentioned for me personally."

6 / 10
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  • Anonymous
  • Taken for 1 to 2 years
  • April 9, 2022

For Schizoaffective Disorder "I was on invega from almost 2 years. The drug worked it did what it was suppose to do I was leading a good life and my relationship was great for about 2 months then the symptoms came and it was the one symptom a man did not want of all of them. Erectile dysfunction is really a problem for a guy in his late 20's. My girlfriend left me cause she thought I was no longer attracted to her. I went without and erection for 18 months and decided to get off the Invega shot and for about another 6 months I was unable to get an erection still and I have never been the same since. I've been prescribed to 150mg Viagra, Cialis, and Levitra none of them worked for me.. i took 2 of the Viagra and nothing. My condition has now gotten worse and I've become extremely aggressive and irritable since getting off this drug. Worst thing that ever happened to me. I feel we should all file a class action lawsuit for this particular symptom and the damage it has cause to our brains and bodies."

4 / 10
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  • Tried...
  • Taken for 1 to 6 months
  • January 18, 2018

For Schizoaffective Disorder "Best medication if you get the right dose that works for you. I went from being miserable on this drug to “this is the best medication I’ve ever been on”. It only took 8 years with trial and error and giving this med another try. I still can’t do as much as I could before the illness set in, but my motivation and joy have returned. I never thought recovery was going to be possible, now filled with hope for the future. Don’t give up it’s worth the fight!"

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  • MiGor...
  • Taken for 6 months to 1 year
  • May 23, 2019

For Schizoaffective Disorder "Invega Sustenna will make it easier to take your medication as it’s an every 4 week shot in the arm (or butt). However the side affects are many. This drug, though stopped all hallucinations and mania, caused my skin to flake, my face to get puffy, my overall weight to increase by 40 lbs, incur symptoms of depression and other personality changes and lastly, caused me to sleep for hours on end. If you enjoy sleeping your life away, this is the drug for you. However I myself miss living my full life!"

5 / 10
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  • Cainin
  • September 5, 2017

For Schizoaffective Disorder "This is the most effective medicine I've ever been on for not only the psychosis, but for the depressive symptoms too. The only slight problem I have is that it seems to wear off the week before I get my next shot, but that's and easy fix by getting the injections closer to around every three weeks instead of every four."

10 / 10
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  • mimi
  • January 22, 2015

For Schizoaffective Disorder "I have being on Invega Sustenna now for 4 month. It has been great medication but I started to have facial movement small, but I'm afraid it might increase. I will ask my doctor to reduce the dosage so I might not have side effect."

8 / 10
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16 Report
  • just...
  • Taken for 1 to 2 years
  • January 25, 2018

For Schizophrenia "I have a loved one who had a very long period (over 7 years) where she was unmedicated with active frightening visual and auditory hallucinations before she was able to receive help. After a 4 month hospitalization and oral antipsychotics including Zyprexa she was still totally delusional. After starting community based treatment she was started on Invega Sustana and within 2 months she was better than she has been in over 10 years. I was able to see glimpses of who she was before her brain disorder took over her life. She thinks that the shots are like water and they do nothing. Anosognosia (lack of insight) is a very difficult issue with her so I am beyond pleased this medications ability to improve my love ones life."

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  • one...
  • Taken for 1 to 2 years
  • June 17, 2020

For Schizophrenia "I dunno... I was on this drug three times for mental health reasons and I didn't know that these drugs keep you from enjoying the best thing in life and that's stuffing your face!Iit takes a lot of experimentation to find the right foods that you can use as comfort foods. Watch out for secrets because if you have an eating disorder they tweak the meds and try to keep you from committing suicide. The drug just brings on these eating desires. I'm not blaming the medical profession, it pays to have this information BEFORE you start taking this drug. Its more cost effective to ...oh who am i kidding? im an overweight diabetic who can't stand the heat outside or the heat from exercising... be sure the only thing you have is plain water handy because the heat will do that to you... Severe thirst alert!"

7 / 10
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  • Lochn...
  • February 21, 2018

For Schizoaffective Disorder "I have been on 156mg injections for the past year. Yes, there is weight gain, and its from over-eating because the drug makes you very hungry even shortly after eating. That was the only bad for me. Otherwise it gives me a calm reflective mind, and no symptoms from my illness. I am hoping to get my appetite under control through discipline. If you exercise and eat intelligently I am sure there would be no weight gain, but do be warned: you will be much more hungry than usual. Overall its the best anti-psychotic I've tried though, and that includes Risperdal, Abilify and Haliperidol (the worst one by far.) Compared to Risperdal, it is just as effective but with fewer side effects. I feel like less of a zombie."

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  • Juno
  • Taken for less than 1 month
  • November 30, 2018

For Schizoaffective Disorder "Update: it’s been almost a week since my first shot of Invega. Here is my assessment. After a day or two very sore arm where injection happened. Been very sleepy and lethargic but body couldn’t sit still. Very vivid dreams. Also I haven’t had much let up in my delusions, voices, or mania. It’s just right now I don’t have the energy to do much about them. Due for next shot in 3 days. I’m finally starting to not feel as tired and arm is starting to not be as sore, but not 100% yet. Hoping this next shot will help with the above mentioned things (mania, paranoia etc). I’ll keep you updated."

5 / 10
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  • Nubie
  • Taken for 1 to 2 years
  • August 9, 2019

"I been on Invega sustenna 125mg for 2 years for bipolar Previously I was a zombie when on lithium treatment, I lost two jobs for not being able to show interest. I also suffered from depression but that got fixed with an anti depressant that made things much better. on the Invega I gained weight around 30lbs but it did kill the hallucinations and symptoms of the illness but it had it's side effects like any treatment. Things things got better as I lowered to 75mg and took the antidepressant celexa..."

5 / 10
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  • molat...
  • Taken for 1 to 2 years
  • October 10, 2018

For Schizophrenia "I've been taking invega sustenna for a little over a year now and for the majority of that year I had absolutely no positive or negative symptoms. Recently though, the paranoia a slight delusions have started to creep back into my mind. My psychiatrist upped my dose to 234 mg and now I can't stop eating and I'm hungry all the time. I already had a binge eating disorder but now it's infinitely worse. Also, the newer symptoms are still there. We're currently trying metformin to help with my appetite but so far it's doing absolutely nothing. I'm now thinking that I want to try switching to ziprasidone. It's supposed to be really good with weight management, but I'm worried it might not be as effective with my mental symptoms? I can't freak out because I'm working and going to school now. Back to invega though, I guess I can thank this medication for giving me my life back and making it so I can function in society. But I can't handle the weight gain..."

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9 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.