Invega Sustenna User Reviews & Ratings (Page 3)

• cjiang
• Taken for less than 1 month
• May 26, 2019

For Schizoaffective Disorder "I was misdiagnosed with schizoaffective disorder and received the booster and initial shot of this medication. I had terrible side effects including 60 lb of weight gain. I also slept a lot and had little energy. After 6 months of discontinuation, I finally started losing weight and returned to my normal weight. I had to take a gap year during this time and this drug wasted a year of my life."

• saep
• May 7, 2019

For Schizophrenia "I've been on this drug/medicine for about two years and it has caused a lot of problems in my life. It barely helped with the auditory hallucinations such as the voices and paranoia. I feel like a zombie all the time, really tired, drained of energy, and like my brain is slowed down. I've had little to no sex drive (Sexual Dysfunction) and have no pleasure from sex. Within the first couple weeks of getting the injection of invega sustenna every month. I get muscle stiffness in my neck, arms, and hands. I feel like I can't breathe along with a rapid heart beat and a fever. I become confused, unable to function, dizzy, and lightheaded. This happens two to three times a month within a few weeks after getting the injection. I believe it might be because of NMS (neuroleptic malignant syndrome) which is a rare side effect of the drug/medicine which might cause death. This is a horrible drug/medicine for me iIm going to try a different medicine from a different doctor and hope for the best."

• Kenny
• Taken for 1 to 6 months
• August 29, 2023

For Schizoaffective Disorder "I am Kenny. I have schizoaffective bipolar type, and I am a 26-year-old male. When I first started this drug 4 months ago, I was 360 lbs. Now, I am 300 lbs, so I lost 60 lbs (due to not being depressed and working out). I haven't noticed any bad side effects of this drug. My mood is cheerful, my sex drive is what it should be at my age, and I don't have ED. It's very hard, on this drug, to slip into psychosis for me. It keeps me grounded. I'm absolutely afraid of what my life would be like without it."

• Straw...
• Taken for 6 months to 1 year
• November 5, 2018

For Schizophrenia "Invega Sustenna was a horrible experience for me. This medication caused me to gain 20-30 pounds. It stopped my monthly cycles. I was also not able to experience sexual pleasure. This medication ruins lives."

• Anonymous
• Taken for 1 to 2 years
• May 10, 2022

For Schizophrenia "I have been on Invega sustenna for almost 2 years for schizophrenia. I’ve stuck with invega sustenna for so long because it is the second best option in terms of side effects (definitely not saying that it is a good drug). I have erectile dysfunction, insomnia, feeling of mental pain and loneliness, extreme fatigue, lack of motivation, worsened vision, and short term memory loss from this medication (all of the medications in fact). I’m showering about once a month, brushing teeth about twice a week and never exercising because I physically can’t do better on this medication. I used to shower and brush teeth daily in addition to having a six pack (abs). This medication is another antipsychotic that was marketed without care of how the patients feel physically or mentally while taking it. In short, current antipsychotics do work but the side effects are unbearable"

• DoNot...
• Taken for 1 to 6 months
• April 27, 2022

"First off, your psychiatrist only give this drug to you if he doesn’t like you. Threatened to sue my psychiatrist and argued with him while hospitalized before injected. After just one injection of this drug you will no longer get morning wood, you won’t feel anything in your nether region, and you will barely get hard with erection pills and you will also gain 50+ pounds and every woman will leave you when they realize you have the sexual function of a toddler. Your brain won’t know what “horny” feels like, you will lose all your friends, you will be unable to laugh or cry anymore. You will just stop caring about anything anymore. This drug doesn’t care how in-shape, or sexual you are. It will destroy your sexual function as a male for good and turn you into a slug with no purpose. Your dick and balls will go from being a grape into a raisin. Taking this drug is basically a life sentence that ends with you dying alone while everyone tells you it’s all in your head."

• Ken...
• Taken for 6 months to 1 year
• January 13, 2023

For Schizoaffective Disorder "This drug has affected my personality and my ability to sleep restfully, causing me to have constantly bizarre dreams. I find myself speechless and unable to hold a conversation. My legs and entire body feel like they are crawling inside, and I feel the need to pace the room. Since starting this medication 6 months ago, I have had to move back in with my parents at the age of 36. I take the 156mg dose for schizoaffective disorder, but the recommended dose for schizophrenia is 117mg. I believe I am overmedicated, and this has caused me to have no emotions and no life. I don't like how this makes me feel and I wish I could stop taking it."

• Jacob...
• Taken for 1 to 2 years
• September 14, 2017

For Schizophrenia "Okay let me get started. Every social worker, psychologist, and mental health doctor shouldn't prescribe this drug to anyone. It is harmful in so many ways. I took it for 1-2 years because they said: I had said that I had bad schizophrenia. I did not have bad anything except a drug issue- which they already knew as they had tested my urine, but they didn't take that into consideration. If you take this drug you will sleep away your life. You will lose you train of thought every 5 sentences. You will probably 75% chance to lose your job in a fast pace environment. When you take this drug you will lose muscles, goals, and cause you too get depressed. "

• Theo
• May 11, 2018

"Invega tortured me. My life was ruined. The drs (lowercase on purpose) will never admit the side effects greatly outweigh the benefits (there are none). It is a chemical lobotomy. It helps the same way getting part of your brain taken our helps with the symptoms. Severe akathisia, low testosterone for four months, feeling like muscles are dying (they shrunk a ton), fat gain, high prolactin, destroyed my metabolism, impulsive outbursts. My dr didn't even know the half life was as long as it was. It stays in your system for ages. There are so many tales of misdiagnosis. If you life in a state where they can force you to continue the torture at home then I recommend you submit a daily vlog"

• Citiz...
• Taken for 6 months to 1 year
• May 21, 2022

For Schizophrenia "I have been getting injections for 8 months now, and I have no energy, no stamina, I have a really difficult time organizing my thoughts, and any suicidal ideations I may have had before this medication, were nothing compared to the urgent need I sometimes have to kill myself. I know that these impulses are not what I consciously want, but I get trapped within my own mind sometimes, and start crying and cussing uncontrollably. I feel dizzy, disoriented, without hope or a lifeline connecting this dedicating husk of a man, to the passionate person who used to volunteer at the animal shelter and local charities. I was a productive member of society before this nightmare started, a good person who strove to remain productive and busy with day to day task. I cannot complete a sentence most of the time, and the doctor's refusal to take me off of this dangerous drug is bad for me. I can barely associate what I have become, to what I was."

• tk999
• Taken for 2 to 5 years
• May 14, 2023

For Schizophrenia "This medication has turned me into a couch potato. Most of my life I have been a fit and physically active person, but since I have been givin this medication I have been struggling to get the energy to do anything. It took away my motivations in life and I have become numb emotionally. It does help with my symptoms abit but there has to be better medication out there then this."

• Kelsey
• Taken for 1 to 6 months
• April 29, 2023

"I have Bipolar disorder and Invega Sustenna ruined my life. I was given the injection 2 years ago and I am still not back to being who I was before completely. Don’t lose hope that it can happen but it is a long journey. I was told it was more effective and more convenient than taking pills but it left me feeling like a zombie, a vegetable. I felt a restlessness in my whole body, I couldn’t be still but moving didn’t seem to relieve it either. It stopped my period and I do not know if I am still fertile. My mind was blocked, I couldn’t think of words or make conversation or laugh. All I wanted to do was sleep and eat and I gained 50 lbs. I lost all joy in my life and was in the worst depression I’ve ever experienced. I spent almost two years on my mother’s couch. I couldn’t cry, and I couldn’t write anymore. I didn’t want to be around my friends or my family. It does wear off eventually but it was a huge mistake that I was told was a miracle drug. Do not take this drug."

• Takey...
• Taken for 2 to 5 years
• January 11, 2020

For Schizophrenia "I've been on this med Invega for years without it I was suicidal and often hurt myself with this med I'm happy again and have no desire to cause harm to myself only side effects are weight gain and long sleep"

• O2joe
• Taken for 1 to 6 months
• August 26, 2019

For Schizophrenia "The combination of drugs I was on, which included invega sustenna, caused a great amount of pain and suffering. Puking, coughing, kidney pain, prostate pain, brain on fire, lock jaw in the middle of the night, in some order which I've forgotten."

• Anony...
• Taken for 6 months to 1 year
• January 30, 2021

For Schizophrenia "Worst experience of my life. Literally got rid who I am as a person. I feel nothing. No emotions, no joy out of life. Just an empty shell. I've felt suicidal, as it might be a better option than just living day to day feeling like a zombie. I wish the doctor never put me on this. LIVING IN A NIGHTMARE!!"

• Reali...
• Taken for 1 to 6 months
• December 3, 2019

For Schizophrenia "Let’s start off by saying it causes bloating. I hate the feeling. I been dieting and exercising but no results after eating. I have no sex drive, tiredness, no emotion, and lack of energy. I also don’t want to leave the house. This shot has worked for my voices but the side effects are worst. Hopefully getting off of it soon."

• Kiwi
• Taken for 1 to 2 years
• May 18, 2018

For Schizophrenia "Invega sustenna is gross. It blocks dopamine in the brain. So causes a long list of side effects. This drug is a gimmick it has no therapeutic value whatsoever. I think I threw up over a dozen times!"

• anony...
• June 7, 2015

For Schizoaffective Disorder "alot of issues with this medication: extreme bloating, weight gain and hunger. pain in abdomen, gurgling sounds in abdomen area, burping and belching after every single meal, which normally never occurred with me. Dizziness almost all the time, extreme headaches, EXTREME muscle stiffness and much difficulty walking and doing daily activities. Sweating for no apparent reason. Insomnia."

• Invega
• Taken for 1 to 2 years
• March 21, 2016

For Schizophrenia "My wife has suffered from late onset schizophrenia with severe positive symptoms for over 10 years. She started Invega Sustena treatment (monthly injection) a year ago and has made dramatic improvements. All of her positive symptoms have gone away. Residual negative symptoms remain but is now manageable with talk therapy. The injection method helps with compliance as daily pills are difficult to maintain and easy to discontinue. This is a wonder drug..."

• Strip...
• Taken for 1 to 6 months
• May 29, 2018

For Schizophrenia "I find the drug makes me calm/relaxed.. but I have the most severe insomnia. I've gone 7 weeks without much sleep and have 0 energy or motivation. This drug has basically ruined my life and turned me into a stay at home vegetable with no future. Gonna switch to abilify and hopefully have a life back and good healthy sleep back"

• kodein
• Taken for 5 to 10 years
• September 30, 2018

For Schizophrenia "Gained over 30 lbs on this medication even though I'm eating less and I've cut out sugar from my diet. What's even more depressing is that even though I'm heavier I'm actually weaker than I've been when I was skinny and off meds. Also when I skip my injection for a week I'm hitting threes and long two's like it's nothing on the basketball court, while on the medication there's no point in going to the court. Also the results of treatment are suboptimal: I don't have friends, during 6 years of treatment I've never been on a date (which probably also has something to do with poor sexual functioning while on the medication), I stay at home all the time, am unemployed and gained the status of a disabled person. However when on the medication I don't have positive symptoms like thought broadcasting. I'm seriously considering switching the medication, I'm depressed, desperate, feel awful all the time and can't do it anymore."

• Sea
• February 10, 2021

For Schizophrenia "I have paranoia, panic disorder, and Bipolar 1 with psychotic features. I zoned out and day-dreamed living nightmares. It shattered my self-esteem. I heard people say my thoughts and I heard their thoughts. It did not clear my mind, it made it race with the paranoia condition I have. I gained 100 pounds in one year. My labs showed I would have cirrhosis of the liver in 2-5 years due to obesity. I saw a nutritionist, but lacked all motivation. I was constantly terrified. I rarely spoke. When I switched to another anti-psychotic, my hallucinations stopped. Five years later, I have no idealizations about people reading my mind. I am grateful I was too scared to talk about how I felt because my diagnosis could have changed. I lost my whole sense of who I was by getting injected with 150mg each month for four years. I blame myself little for sleeping the pain away. I would never recommend this medication to anyone."

• Jen
• Taken for 1 to 2 years
• January 12, 2021

For Schizophrenia "My husband is borderline schizophrenic and he is given the injection once a month. He has been given the needle for 18 months. During this time he is always asleep, no energy, no interest in life, very slow walking and just can’t do anything. This is not living just existing. Is there an alternative to this drug. So fed up with it all."

• Phleb...
• October 18, 2017

For Schizophrenia "Well I have been on this medication for some time now. It has helped me with the voices but to be honest you do sleep a lot and that's the only constant this medication has. It makes you eat a lot and as far as sex drive goes lol I won't talk about it. I think that it depends on who you are around to make you feel depressed you have to keep in mind that it's a serious disease but with medication it can be manageable. And if you are getting too fat exercise. You will get the weight off. Keep positive people and remember the struggle is never done we may always have a stigma put on us or a label put on us but prove the enemy wrong. Be the best you can be and shine bright like a diamond. And remember god loves u"

• Chris...
• Taken for 2 to 5 years
• July 6, 2021

For Schizophrenia "Both me and my brother have been on invega for schizophrenia and it seems to have no affect on either of us. My brother for at least a month and me for more than 3 years. It is not getting rid of the hallucinations or paranoid delusions. We take it to keep our parents happy."