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Invega Sustenna User Reviews & Ratings (Page 4)

Invega Sustenna has an average rating of 3.9 out of 10 from a total of 175 reviews on Drugs.com. 25% of reviewers reported a positive experience, while 62% reported a negative experience.

Reviews for Invega Sustenna

  • Pixel...
  • Taken for 1 to 6 months
  • January 17, 2015

For Schizoaffective Disorder "Wow this is like a miracle for me. More free space in my head than ever before, easy to think straight, increased motivation to look after myself, no paranoia. Overall I have found this fantastic. Was on Seroquel and have lost a few kgs already since swapping to Invega! Yay."

9 / 10
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32 Report
  • Bob
  • Taken for 6 months to 1 year
  • February 25, 2020

For Schizophrenia "I don't feel much on this medication. It takes away the pleasure of enjoying things like video games sadly. I've lost my sense of smell while on this drug. I've gained the most weight I have compared to other antipsychotics. I tried coming off it for a month with no success, it's really strong on preventing delusions and hearing voices. I can't ejaculate or feel much sexual pleasure while on this medication."

5 / 10
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18 Report
  • Jojo
  • Taken for 1 to 6 months
  • July 31, 2021

For Schizoaffective Disorder "This medication gave me a chemical lobotomy. Turned me into a zombie for 3 months and after I recovered from going cold turkey, I got crippling anhedonia permanently from it. I consistently contemplate suicide now. Thanks for nothing..."

1 / 10
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13 Report

Frequently asked questions

  • Nickn...
  • December 17, 2016

For Schizoaffective Disorder "I have been on this medication overy a year now and it has done wonderful things for me. Before I was on it I had my first episode and was in and out of the hospital 4 times in 5 months trying different medications and being unstable. Now I'm going back to school and I have no symptoms. Side effects are minimal, a little tired the day or two after the shot and I've gained 15 pounds or so not too bad. This medication gave me my life back. I just hope my new insurance will cover it."

9 / 10
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26 Report
  • Anonymous
  • Taken for 1 to 6 months
  • June 18, 2014

For Schizophrenia "I have been on Invega for 5 months now and it has significantly improved my quality of living. Prior to the shot I was on numerous antipsychotics and would begin to stop taking the pills and go into relapse with symptoms. I'm not on the shot and auditory and visual hallucinations and paranoia have decreased dramatically. I like that it is a monthly shot and it cuts down remembering (or wanting) to take a pill once or twice a day."

9 / 10
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32 Report

Are you taking this medicine?

  • buddy...
  • Taken for 1 to 6 months
  • November 17, 2019

For Schizophrenia "this drug is driving me crazy! I don't like the weight gain and it slows me down considerably... I can't eat whatever! every thing has sodium in it. my body has gone through the wringer(think using the potty) and people have to take things away to keep me from committing suicide.things are done behind my back to keep me stable as well. the edge is gone (me saying the f word on regular basis) but what about sleep? I am 43 years old and i need my beauty sleep! I never want to feel the feeling of being awake for weeks on end! Guess It doesn't help that I discovered coffee... bring on the drugs that encourage you and not make you fat and bloated!"

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18 Report
  • Charles
  • Taken for 1 to 6 months
  • April 21, 2016

For Schizophrenia "Clears the mind of weird thoughts, delusions and hallucinations. Weight gain has been noted as well as a general feeling of restlessness and drowsiness. I'm always on slow-motion and need to think things twice or 3 times. Still better than having conversations with dead people or thinking my brain can see in the future... by the way, DON'T try quitting this drug cold turkey. It's a recipe for disaster."

8 / 10
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27 Report

More FAQ

  • Anonymous
  • Taken for 1 to 6 months
  • May 13, 2012

For Schizophrenia "Invega is working great on auditory symptoms and no lethargy noted. I have noted some of the adverse side effects after the first dose: sudden weight gain, indigestion, pain at injection site and sore throat. In addition to these there has been increasing facial and abdominal bloating, I am concerned but there is no other medicine I am aware of at this time and the doctor feels the benefit outweighs the side effects."

9 / 10
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36 Report
  • Voice...
  • Taken for 1 to 2 years
  • November 29, 2017

For Schizophrenia "I was going through thyroid storm because I had taken liquid iodine with thyroid pills. At the time I was having a episode... and forced treatment against my will. The doctor told me that it was the only drug I could take and coerced me into taking it. 432 mg shot that was nearly the twice the max dose. I didn't like it because before I was on a dopamine 2 and not dopamine 3 antagonist like this drug does. Absolute crap! Before the episode I was healthy able to run 10k in under 40 minutes on Seroquel xr.... and now I'm dealing with withdrawals and high inflammation that was .7 now 4.3 because of stupid shot. It'll make you not able to think or do your job. You'll lose interest in things like working out and being healthy. The drug is rubbish!!"

1 / 10
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23 Report
  • Nina
  • Taken for less than 1 month
  • July 28, 2020

For Schizophrenia "I checked myself into the hospital for being severely underweight, dehydrated and malnourished (I have suffered from anorexia nervous for a long time). Instead of giving me medical attention, the staff at the hospital took my blood and urine , and quickly received a court order to take invega and to be inpatient treatment. My blood pressure seemed to keep declining. If you think 80/40 blood pressure is alarming, you are right. The nurses who were making a ton of money off of me did not care. My blood pressure got as low as 70/26~ in the hospital, where people are supposed to be receiving care. This is a very traumatic experience for me, and I really just want to live straightedge and abstinent (no sex, drugs, drinking, or smoking)."

1 / 10
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15 Report
  • Dust
  • Taken for 1 to 2 years
  • November 30, 2020

For Schizophrenia "When taking Invega Sustenna you have either no emotions some days or it's out of control literally laughing crying and anger. Also if you're like me you can't hardly sit down makes me move a whole bunch."

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14 Report
  • jodubz
  • Taken for 1 to 6 months
  • October 8, 2016

For Schizophrenia "this medication is the best anti psychotic i ever took, i'm getting the shot 244 mg, and the delusions and hallucinations are under control, this medicine is a life saver. the side effects i experience is anxiety and weight but overall it's a great medicine."

8 / 10
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24 Report
  • Robbi...
  • July 13, 2021

For Schizophrenia "Invega Sustenna was difficult at first. I felt very tired and would get headaches. I believe this was my body adjusting. After a few months, and now on the drug for a few years, I have had a great experience. I still have symptoms once in a while, but not as bad. With the education I was given, before taking the drug for my first time, I am now well aware of what a "symptom" is. I am prepared. The drug Invega Sustenna has only improved my thoughts, speech and dialect. As I would hear voices, preventing me from speaking clearly, Invega Sustenna has given be the ability to articulate my sentences. When I am ready, I will take either oral tablets or a 3 month injection. I think this will only help my limitations that I keep private. I no longer have headaches. I am no longer fatigued. I am in a good position and I am proud of the person I am becoming."

10 / 10
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  • Healed
  • Taken for 1 to 6 months
  • March 17, 2017

For Schizophrenia "Hi folks. Have been on Vega inj. For 2months. Most hallucinations, auditory, visual, and mental gone. Has been a game changer for me as my life was completely unmanageable before. Still not leaving home much and have gained a few pounds nothing to drastic but it beats having conversations with people only I can see and not having a choice about it. Also my insurance wouldn't cover it, it's about $2000usd for 1month inj. Thanks, hope this helps."

9 / 10
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23 Report
  • h0m39...
  • Taken for 2 to 5 years
  • February 8, 2018

For Schizophrenia "So I've been on this medication since 2014. Diagnosed with schizophrenia back in 2011 when I told doctors I was visited by spirits at a young age. They didn't believe me though I swear on my life it is true. Anyway, I was on 150mg. Had the worst side effects you could imagine. Very high prolactin levels, lactating from my breasts, amenorrhoea, absolutely no motivation at all, pretty much glued to my bed & phone. So they adjusted my dose twice & now I am feeling a bit better. Not a lot better though I would say. They say that a schizophrenia diagnosis is something you deal with for life so I would be careful what you tell your doctors. You could be on medication for life."

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  • Anonymous
  • January 17, 2011

"I think this medicine is awesome! I've personally struggled with hearing voices since age 17 and visions since age 20. I have been on psychotropic medications since age 14, all different types. From age 19 I have been taking the Risperdal Consta injection until 2 months ago when I started the Invega Sustena injection. The voices and visions are completely gone. And, I'm alot more alert than I was on Risperdal Consta injection."

10 / 10
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34 Report
  • Helpm...
  • Taken for 1 to 2 years
  • November 6, 2021

For Schizophrenia "When I was on the 75mg injection I wouldn’t stop gaining weight my weight went from 104lbs to 136lbs and was increasing with crazy hunger. I had bad acne from this medication, no period, couldn’t workout, went to bed at 6:00pm, lost my internal voice, couldn’t think at all. They dropped me down to 50mgs and the weight persisted. They then spaced out my injection to five weeks apart and I dropped some weight but not enough to be proud of I’m around 120lbs still don’t have a period, have crazy hunger, no internal voice, can’t perform like I used to, have puffy eye lids, one drooping eye lid, can’t use my imagination, bad memory, can’t lose weight, don’t sleep at night and the side effects keep piling up. It has taken away my voices during the day and my delusions."

5 / 10
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  • Iamme
  • Taken for 1 to 6 months
  • August 3, 2020

For Schizoaffective Disorder "I have MDD with psychotic features and Ive been on this med Invega Sustenna for 4 months. I've gained a lot of weight, feel numb, feel dumb, feel like my life is now one big act like I'm a puppet that's doesn't really have any emotions because I don't feel good or bad and I just act and do what I feel should be the norm alt though I don't feel anything. Hope that makes sense... I don't always feel that way sometimes I feel my normal positive self but for the most part that is the case. It has stoped hallucinations visual/auditory and tactile. I don't know how to make a informed decision on this med :/ I'm 50/50."

4 / 10
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  • delucz
  • January 13, 2014

For Schizophrenia "I found this medication to cause side effects of swaying while standing up & sometimes rocking back and forth whilst sitting down. Because this is taken monthly I am on 150mg, towards the end of the month I became unwell and psychotic symptoms reoccurred. Delusional thoughts mainly. I am now going to try Abilify and hope I don't have bad side effects but I know that without my medication I would relapse. "

5 / 10
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27 Report
  • RBano
  • Taken for 1 to 2 years
  • December 4, 2019

For Schizophrenia "Took 100 mg of the paliperidone drug (european dosing) when I was psychotic and, for 1 year (same dose, later added 20 mg Zyprexa), while the psychosis had gone, delusions and hallucinations persisted the entire time. Also, it raised my prolactin level to rocketing levels (2000 mIU/L). Although it kept me away from psychosis, there are better alternatives for the disease."

3 / 10
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  • Vandkk
  • Taken for 1 to 2 years
  • June 12, 2022

For Schizophrenia "I loveeee invega. It has helped me with my schizophrenia 100%. No more delusional thoughts and paranoia. No more of this fearful feeling. My life is bright and back to normal. I've been taking it for 2 years. The only side effect I've had is hyperproteinemia. It stopped my periods, had liquid coming out my breast. You know.. symptoms of high prolactin levels. So my doctor put me on ability along with a lower dose of Invega Sustena and within a month and a half I had my period and my prolactin went back to normal. I never want to get of this injection because it REALLY took away my mental health problems. I would definitely recommend. Works like a miracle"

9 / 10
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8 Report
  • Dude
  • Taken for 6 months to 1 year
  • February 9, 2021

For Schizoaffective Disorder "I've been on Invega Sustenna for about 6 months. I feel like a zombie. I have no emotions, I feel flat. I have no motivation to do anything. I sleep 11 to 12 hours a night. I feel very tired all the time and I have anedonia (lack of pleasure). Don't take this medication. It will steal your soul. You won't want to do anything. I would rather have my symptoms than be on this. Im going to talk to my doctor about getting off this."

1 / 10
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  • Mille...
  • Taken for 5 to 10 years
  • June 18, 2017

For Schizophrenia "I've been taking invega (all forms) since 2011. I have to say it is a god send. Risperdal and abilify gave me sexual dysfunction. This at least allows me to get an erection. It's done a great job at controlling my positive symptoms of schizophrenia. The voices are dulled down to the point of single sentences and like only 1-4 times a day so it's a lot more managable in day to day life. Started on sustenna, went on the tablets and now on Trinza. All versions work very well for me. This medication is the metabolite form of risperdal and it's a god send. It's easier on the liver and I highly recommend sustenna and Trinza as the form to take for schizophrenia/schizoaffective!"

10 / 10
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19 Report
  • Rose
  • Taken for 1 to 6 months
  • April 29, 2020

For Schizophrenia "Taking this drug invega sustenna helped a bit with my schizophrenia symptoms. The side effects on the other hand were something else. I was significantly slowed down both mentally and physically. I did lose about 5 pounds and lost interest in food most probably due to feeling really depressed about my condition. I also couldn’t stop walking about, I couldn’t sit still anywhere for up to 2 mins. I also had abnormal muscle movements, my vision became really bad and blurry and I was drowsy all the time especially after taking a dose."

3 / 10
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13 Report
  • BIbij...
  • December 17, 2015

For Schizoaffective Disorder "Would be an absolutely perfect drug without the side effects. Constant tiredness and dizziness makes it almost impossible to work. It definitely has high effects on motor skills and sexual ability. But, hallucinations and delusions are gone. No more voices, and paranoid thoughts after only a month. It's a good drug if you want to sleep all day."

8 / 10
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21 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.