Mesalamine for Ulcerative Colitis User Reviews (Page 3)

• Love...
• April 16, 2015

Lialda (mesalamine) "****Helpful information**** Search the web for Lialda coupons to get Lialda for $10 a month! I am a 24 year old that has been diagnosed with ulcerative colitis since age 11. I started on Colazal when I was first diagnosed; but it only continued to keep me in remission for a few years. I was prescribed many of other medications that didn't seem to work for me either. Finally, once I was prescribed Lialda, my health and quality of life improved greatly! Lialda is such a life saver for me! (Although I still have occasional flare-ups, things calm down when suppositories are used in conjunction with Lialda )"

• North...
• Taken for 2 to 5 years
• April 2, 2020

"For the first 4 years mesalanine worked alright for my UC, but then my body had enough and I got side effects of feeling bloated all day long, bones felt weak, joint pain, chest pain etc. I ended up quitting it and switching on dipentum."

• CureUC
• February 22, 2019

Asacol (mesalamine) "This medicine didn’t even help me find remission. It’s not a good choice in my opinion for anyone with colitis that extends throughout the entire colon and rectum. Might be good for people with sigmoid but not pancolotis"

• Anonymous
• Taken for 1 to 6 months
• April 19, 2013

Lialda (mesalamine) "After 8 weeks on Lialda, it did not clear up the blood, still had abdomen tenderness, and caused me to have diarrhea. I did get a discount card which brought the cost down to $10. If you like this medicine, you should go to their website and see if you can get this card. I got it from my MD."

• Bonny
• Taken for 1 to 6 months
• February 23, 2019

Asacol (mesalamine) "Sadly I was one of the 8% of users who are allergic to Asacol, and I got very ill before the nurses suggested it may be the drug making my condition worse. Within a week of using Asacol my C-reactive protein (CRP) blood test readings started to rise steadily from an already high score of 16 until at six weeks of still taking the drug they reached 100 , I was using the bathroom 5 times in an hour some nights and dropped weight rapidly. As soon they thought I may have an allergy I was told to stop taking them and went onto a decreasing dosage of steroids instead. By the time I finished the steroids my CRP tests were normal."

• gary
• Taken for less than 1 month
• April 21, 2023

"I am 77 years old and had been very healthy until three months ago when I had a very bad flare-up of UC. I experienced diarrhea, very bad cramps, and lots of mucus and blood. I was on the toilet over 10 times a day, sometimes for half an hour. I was that way for over a month. It was a horrible experience. My first G.I. prescribed me mesalamine, 1.2 grams, two times daily. After four days, I seemed to get worse, so I quit taking it for three days. I started to feel a little better, but I was in so much misery that it was hard to tell. I decided to try it again, but after a few days, it definitely was making me worse. The bad cramps were the worst part, and lots of blood in my stools was also scary. My first G.I. told me to come back in six weeks, so I decided to find a better G.I., and I did. My current G.I. took me off the mesalamine and immediately put me on a regimen of 40mg of prednisone. He also ordered me to be tested for a C. diff infection, which I had. He then ordered 125mg of vancomycin, four times a day. After a couple of weeks, I was feeling much better. I am weaning off steroids now and feeling good."

• Corums
• March 9, 2015

Lialda (mesalamine) "I was diagnosed with UC at 18 years old. After a week in the hospital they came up with the final diagnosis and after a few tried meds they landed me on Lialda and it worked great for me for 7-8 years, only experiencing flare ups if I were to drink too much alcohol and lose sleep which was rare but in that case I would need to use prednisone to get back into remission. Healthy diet, sleep, exercise, and Lialda kept me normal! I am 26 now and I feel my body has built up a tolerance, for the past year I have been on a low, going to the restroom more than 5 times a day. Up until now Lialda was perfect. With the Shire card and health insurance it was only $10 a month."

• vndrc...
• September 1, 2016

Lialda (mesalamine) "Works fairly well on the ulcers, but the side effects are terrible. two days in my knee swelled to twice the normal size and I can't stand on it. Fever and headache constant. ache all over. eyes hurt. Going back to Colazol."

• Bear
• Taken for less than 1 month
• June 13, 2020

"I was diagnosed with celiac and proctosigmoidcolitus and was prescribed mesalamine suppositories and had no trouble or flareups for a year. Recently had a flareup and started back on it. I am happy with this stuff except for the uncomfortable feeling after you deliver it. But otherwise a great medicine"

• Kenda...
• Taken for 10 years or more
• November 28, 2017

Apriso (mesalamine) "I was on Asacol for over 10 years taking 2 pills 4 times a day. I switched to Apriso for another 10 years taking 4 pills once a day thanks to the time release. Lately I've been finding it cheaper than it used to be. I'll still have flares about 5 times a year. Sometimes I forget to take them for a few days and it doesn't bother me much. I am searching currently just to change it up since I've been on Apriso for so many years. For the most part, it's been fine though. My insurance counts it as a tier 3 which is a joke and I find it cheaper to order through online coupon sites getting 3 months at a time."

• Dude...
• Taken for 2 to 5 years
• October 17, 2021

Lialda (mesalamine) "PT 1: Took Lialda after being diagnosed with UC in 2010 with visible ulcers in the ascending and transverse sections of the colon. I was having severe bleeding with stools, frequent abdominal cramping and gas after meals, frequent diarrhea and BMs with constant urgency. I took it for 3 years and in combination with adjusting diet it cleared the UC symptoms and got me back to normal. I didn't have any severe side effects, it might've made me feel lethargic and overweight at times which is why I wanted to get off it as soon as I felt better. I had remission for 5 years after I stopped taking it. PT 2: Microscopic colitis came back in the lower colon and I’ve had no luck with Lialda (generic and brand versions) or Apriso. Had to go on Prednisone twice for flares and have had constant gas, bloating, constipation and urgency issues for 3 years now. Looking at switching to a biologic pill like Zeposia or Imuran because Xeljanz is now on FDA watch for blood clots."

• Tee
• Taken for 2 to 5 years
• February 15, 2020

"This medication works well for me. The only side effects I experienced was bloating and weight gain. I did stop taking it for a while just to see if that’s where my weight was coming from. But being pain free outweighs the weight any day."

• Anonymous
• August 28, 2022

Lialda (mesalamine) "This caused gas, bloat, cramps and slight nausea I have no idea why this med didn't work. I figured at 76 years old who needed the extra pain and agony Oh I also had diarrhea was not good either never stopped"

• San...
• Taken for 10 years or more
• November 14, 2023

Pentasa (mesalamine) "Pentasa has been a lifesaver. I have been taking it for 23 years with no side effects and have been in remission for 12 years. Pentasa is extremely expensive but works as a maintenance for UC. Now, I am forced to look for an alternative due to costs."

• UCsuf...
• June 28, 2020

"Mesalamine is great, it has kept me in remission for longer periods of time than other drugs. Even biologics. Only thing I can somewhat complain about is that it makes me extremely gassy, and the occasional headaches from it."

• Rc010...
• Taken for 1 to 6 months
• October 1, 2023

"Seems to be working, taking both oral and suppository. Been about 4 weeks now - still feel pressure like having to go to the bathroom quite often (10-12 times a day), but mostly gas. Seems to cause production of more gas than normal, causing feeling of having to go to the bathroom. Stools are less bloody and with less mucus than they have been, closer to normal."

• resea...
• Taken for 10 years or more
• March 17, 2022

"I had part of my colon removed about 20 years ago due to UC and was on mesalamine for 17 years. Possibly as a side effect I experienced nausea and peripheral neuropathy in hands and feet. After reading a number of studies on NIH I substituted 8 mgs of nicotine (lozenges) daily for the mesalamine and have not had any UC symptoms for the last 3 years. I am not a not a doctor and cannot recommend this to anyone else, but nicotine does appear to be protective against UC in my case. Whatever you do, do not use tobacco products to get your nicotine!"

• Anonymous
• Taken for less than 1 month
• March 3, 2021

Apriso (mesalamine) "I recently just started taking this, but I noticed a few days in I got an incredibly sore throat. No other symptoms of a sickness except for an odd dry sore throat. I read it could be a possible side effect, but I noticed no one else mentioned this. Idk my flare up seems to be getting better though."

• Jorge
• September 7, 2015

"I am a practicing dentist and health book author. I sufferd a flare-up of ulcerartive colitis and was treated with IV corticosteroids. When I weaned off the prednisone pills, within a week I was having the emergency diarrhea again. I was on melasamine but it only stopped the bleeding. The emergency diarrhea continued and the stomach cramps were unbearable. I stopped the mesalamine and went on prednisone. Predisone works 100%. I would rather suffer an unwanted side effect from prednisone but be able to go to functions and work, etc and have diarrhea running down my pants. I continually attempt to wean myself off the prednisone."

• DuncanA
• Taken for less than 1 month
• February 4, 2021

"I was first given Asacol while on steroids for the initial case of UC, I only managed to take a few, it gave me diarrhoea. So I only took it for a short time. The steroids helped me return to something fairly normal stool. After years the doctor won't let me have anymore steroids. Only saying take mesalamine, that had unfortunate effects with explosive diarrhoea. That was vile for me, never reaching the toilet in time, very messy."

• Anonymous
• February 5, 2012

Rowasa (mesalamine) "I took the advice of another poster and bought a large volume enema and did a clean out first. My Dr. is OK with it, though says I don't need to. It sure makes hold it in much, much easier. I still sleep with a towel under me, but I don't leak if I do the enema first. I would say that if you have a hard time keeping it in (as I did) try the enema bag trick....You can get one at any drugstore. It sounds not fun, but its not that bad and it works!"

• Anonymous
• November 25, 2020

"I've had Ulcerative Colitis (UC) for 6 years now and take 6 octasa tablets (mesalamine brand in UK) a day if I get a flare up bad I take the salafalk foam every night and after a few days my symptoms seem to die down. I find it very good although I find it uncomfortable to do and feel I need to run to the loo for the first 30 seconds. I had asacol foam at first but didn't make me feel I needed to run to the loo but found this foam made me really bloated and constipated."

• Anonymous
• Taken for 1 to 2 years
• August 19, 2021

"Awesome a 240 MG dose a day keeps my Ulcerative Colitis in remission. Best taken at same time every day, 12 hrs late and you'll feel it a bit. Good for uc maintenance. Got me into remission for over a year."

• SZ0
• Taken for 2 to 5 years
• March 4, 2024

Lialda (mesalamine) "I love Lialda. I live as if I do not have UC (when I exercise the self-control to properly modulate my diet and habits). I am incredibly grateful."

• Petie
• December 6, 2019

Pentasa (mesalamine) "This drug made my colitis worst... more flare ups and extreme pain... I do not recommend this for ulcerative colitis"