Dupilumab for Eczema User Reviews (Page 5)

• smooth...
• October 8, 2017

Dupixent (dupilumab) "I am 49 years old and have eczema for most of my adult life. I would have severe flare up that would come and go. I never knew when waking up what my skin would look like due to scratching in my sleep. I started Dupixent in July with immediate results after the first dose. Itching was gone, 98% clear skin. My allergies as a result of taking this medicine have calmed down as well. I did notice that in the review people mentioned that they had problems with their eyes. I experienced this side too and almost stopped taking the medicine. When I spoke to my dermatologist he assured me that my body would get use to the medicine. Within a month my eye issue stopped. Dupixent has changed my life."

• richard
• Taken for less than 1 month
• March 24, 2021

Dupixent (dupilumab) "This stuff after two weeks had little affect on my rash. It did, however, make me itch all over my body. I live on benedryl to get by. So, for $10,000 dollars all I got was constant itching and no evidence of curing my rash."

• MzCrz
• Taken for 1 to 6 months
• December 19, 2022

Dupixent (dupilumab) "I'm in Australia and commenced the treatment in September 2022, two injections to begin with and the one a fortnight. The results were fabulous and almost immediate. My skin was better than it had ever been, and even my hands which have always had eczema cleared up. The injections were painful and there was no way I could've done it myself, so a nurse from the clinic did it. However, after two months (6 injections), I started noticing joint pains in my knees, elbows, and fingers, plus my eyesight was deteriorating. I consulted with an Optometrist before starting the treatment and saw him immediately after ceasing it. His opinion was that the acceleration of my cataracts was abnormal, and he attributed this to the Dupilumab injections. In collaboration with my Dermatologist, I immediately stopped the treatment, and it is now two months on. The joint pain has gone but my eyesight is still the same and my skin is starting to regress slowly."

• Jaye
• Taken for 1 to 6 months
• January 15, 2022

Dupixent (dupilumab) "I had 8 doses of dupilumab over fortnightly increments and it didn't work for me so the dermatologist opted to stop the treatment in November 2021. Since stopping my eyes are constantly itchy and watery and I have developed aleopicia."

• Julie
• Taken for 1 to 6 months
• March 26, 2018

Dupixent (dupilumab) "I was misdiagnosed with psoriasis at first and was put on several biologics that of course didn't work then, the right Dr and Dupixent and my hands and feet, where the eczema had been for years, is now gone!! I am so happy! I started Dupixent on Nov 18, 2017 and just came back from the a Caribbean where I was able to walk in the sand and ocean!! Thx for a medication that finally works for eczema!"

• c-k
• Taken for less than 1 month
• May 4, 2023

Dupixent (dupilumab) "One week after the starter dose, I lost all my energy, and all my muscles and joints completely shut down. I had cold sweats and could not swallow or eat. The injection sites are a 4 to 5-inch circle of inflammation. It was absolutely one of the worst experiences of my life, and I thought I was going to die."

• Sam
• Taken for 1 to 6 months
• April 23, 2018

Dupixent (dupilumab) "I love Dupixent! Before I started injections I was beyond miserable. If there’s a worse word for it... I’ve been using Dupixent since January 17, 2018 and within the first day of taking it I noticed a drastic change. The itch started to cease quickly and all of my eczema patches started to dry up and peel off. After about a month, many of my active spots healed. The hyperpigmentation on my face, hands and legs have lightened up. My derm said hyperpig can take a year to go away. I’m fine with that because I never thought I’d be able to look myself I’m the mirror and not cry. I rejoice quite often because I have a normal life again. I can cook, clean and go to work consistently without having to book an appointment. I do keep breaking out around my eyes, the temple of my head and neck but it’s not nearly as bad as it was 4 months ago. My eyes itch really bad sometimes but my doctor gave me something for them. I’ll take itchy eyes over a complete body of hives anyway!"

• JoJo
• Taken for 1 to 6 months
• March 22, 2018

Dupixent (dupilumab) "I have been on Dupixent for a month now and I have to say my life is anew. I suffered so badly from eczema (for all of my 48 years) on my feet that I couldn’t walk for 4 months out of the year. The eczema on my hands made it so I couldn’t button my childrens’ sweaters or wash dishes. Dermatologists and allergists were no help at all. They just plied me with Triamcinolone and Prednisone, to no avail. Patch testing was a wash. After taking the loading dose, I saw an immediate difference in how itchy I was - not one fire ant remained. It is amazing to not feel something that has been part of your existence for decades. My skin has been healing for the last month: smoothing out; losing the thickness of over-steroid ointment usage; losing the red, angry inflammation; peeling like I’ve had a slight sunburn. This drug has been a God-send to me."

• twinmom
• Taken for 1 to 6 months
• May 6, 2018

Dupixent (dupilumab) "My daughter was started on this and it has been a miracle drug for her. We tried everything since she was 3 months old; prescription ointments galore, the best moisturizers, bleach baths, daily baths, different prescription meds. Nothing has helped her in all her years. After one month, there was a very noticeable improvement in her skin. Now, 2 months later, she only has some dark patches where she used to have eczema."

• Caz
• November 12, 2018

Dupixent (dupilumab) "Injection worked for the first four months and then not much improvement. Eyes were burning. I started in March 2018 and stopped in October. No more burning eyes and actually after I stopped treatment, skin got better. I will never use it again even though I had no cost. Better to just use the external ointment. It's no fun to poke your belly."

• dtram
• Taken for 1 to 6 months
• June 15, 2021

Dupixent (dupilumab) "I had severe hand dermatitis for about 6 months prior to beginning Dupixent. My hands were so raw and constantly peeling and painful. It was so bad that I had to wear cotton or nitrile gloves day and night. I tried many different prescription topicals and OTC lotions. I had not had any skin issues prior to this, except occasional psoriasis on an elbow or knee in the winter. Began Dupixent in February and it was better within a week! I can not believe how quickly my hands stopped peeling. Three and a half months on Dupixent and I have not had any more issues or side effects. I was able to get on the Dupixent assistance plan at no cost for the medication."

• Roxx
• Taken for 1 to 6 months
• July 21, 2018

Dupixent (dupilumab) "Been on Dupixent for about 12 weeks now. Giving myself biweekly injections, and my eczema that kept me up at night with scalp itching IS GONE! Have had a little bit of eye itchiness but this is something I'm used to dealing with since I have allergies etc. Skin looking basically, NORMAL...less big red bruises when I rub up against something too."

• clover
• Taken for 2 to 5 years
• August 16, 2023

Dupixent (dupilumab) "I’ve been on this for about 3-4 years now. Hands down, the best treatment for my eczema. Before this, it would get so severe I couldn’t walk or bend my legs, and it itched all the time. Within a week, my skin was less itchy and it stays clear now unless I'm late on a dose. Hurts 10/10 to inject, go slow. I do have some dryness on my face and eye problems, but they seem to go away quickly!"

• Killm...
• Taken for 1 to 6 months
• April 5, 2018

Dupixent (dupilumab) "I've had severe eczema my whole (29 years old) & nothing seemed to work except prednisone. However, there are many long term effects of prednisone. So I decided to look for an alternative. When I learned about Dupixent from my dermatologist, I was extremely eager to try it. After my first shot, I noticed that it took about a week to start taking effect. Now I'm about 4 months in and about 80% clear. I still get the occasional flare ups but it could be much worse. The other 20% may not be visually appealing but at least I'm not in severe pain so I'll take that as a win. All in all, Dupixent is amazing and hope that it can take me to 100%."

• bravo...
• Taken for 2 to 5 years
• January 27, 2018

Dupixent (dupilumab) "Was in clinical trial and steadily the incessant itching went away... Have been on the drug more than 3 years and have calm skin. Still prone to minor flares if I over heat or get too stressed. Initially had itchy eye rims but now wash lids with baby shampoo in shower and it stopped. I carry mild steroid cream just in caseI feel a sense of itching coming on.... oddly I have increased thick hair growth - no hair thinning as before. Rarely get sick. Seem to heal faster. I sometimes feel as though itch might be coming back just prior to my second shot of month"

• No Name
• Taken for 1 to 6 months
• January 31, 2021

Dupixent (dupilumab) "I've had eczema on legs, feet, heels. I got the Dupixent injection four months ago, cleared up. But recently I started itching again, and starting to see the side effects. Peeling cracking and dryness inner and upper eyelids. Just a few hours ago, my left lower eyelid (above my cheek) is getting loose and soft. My dermatologist told me there would be eye side effects. Been waking up eyelids stuck together crusty, have to use warm compress. From what I read, the main active medicine is what clears the eczema is what makes the eyes break out. Not sure how long the side effects will last only my first shot."

• Ocean
• August 23, 2022

Dupixent (dupilumab) "Age 30 - tried dupixent for 3 months 2 shots a month. Was essentially sick the entire time with a stinging peeling painful needle feeling rash getting rashes in places I never had before was losing hair by the handful. Did help with body eczema a bit but not worth the intense pain. I looked and felt like a burn victim. It was sort a cycle - I would take the shot and be extremely sick for about twelve days, then have 2 somewhat okay days before I had to take the shot again. The only relief I ever felt was near the end of the cycle and when I stopped altogether. My quality of life and my mental health were in the toilet. The side effects were so bad it started to affect my job. Tried treating for fungal and demodex to see if it would help and it never did. The rash was like a raised red hard bordered rash that went down to my shoulders. Not as painful as the three years I did TSW but I was younger then and that was 3 years long. Dupixent was just as painful for a shorter amount of time."

• Jv1299
• April 4, 2021

Dupixent (dupilumab) "My first dose was in December. I had a really bad rash and hives within 24 hours that lasted about a week, 10 days. I also had some wheezing. However, my hand eczema, (which was crippling and raw) started to clear up almost immediately. It remained clear for almost three months, so I didn't take the second dose until March. I had no side effects after the second dose. Hand eczema is 90% clear. I just took a dose today (one month from last). I hope this continues to work for me."

• caffy
• October 5, 2017

Dupixent (dupilumab) "I have been suffering from Eczema for close to 6 years now and I am now 52 years old. Most of my problems have been on my right hand, but it gets so severe my hand can't function. After my 4 week injection I started to see flare ups in new places....legs and around waist, as well as serious inflammation on upper chest and back of neck (all new to me) and believe me I did start to panic. Actually my hand looked better than the other places so I was happy and sad. I know someone else here posted the same experience. Anyway, had 6 week injection yesterday and now seeing results everywhere. I was losing hope but I am now seeing light at the end of the tunnel. I will definitely provide updates a month later."

• Bob
• February 23, 2021

Dupixent (dupilumab) "Dupixent is a miracle drug, completely curing my raw hands in a matter of weeks. I have less glowing reports on their patient assistance program, which provide a slow roll process to patients renewing annually. My eczema has returned while paper sits on a desk. 10 of 10 for the product managers, 0 of 10 for admin managers. It takes a Village"

• Anonymous
• Taken for 6 months to 1 year
• September 15, 2021

Dupixent (dupilumab) "I have had eczema since birth. I am now 68 years old. My dermatologist told me about wonderful results had been achieved with this drug, and that chance of side effects would be minimal. I was desperate to escape the topical steroid treatment and so after a year, I cautiously moved forward. Within four months my skin was clear, and I was free from chronic itching and rash. It was like a miracle. Then 6 to 7 months into treatment with Dupixent, I experienced a sudden visual loss. I was hospitalized and had diagnostic testing. No significant findings. Just told to discontinue Dupixent. It has been 4 months since stopping it. I was out of work for 3 months adjusting to this life altering event. My left eye is still blind. My eyes stick together and I use lubricant constantly. Recently, I was finally able to get some glasses that help my good eye. But everything is still hazy. I guess this is a long term visual effect of the drug. That’s the risk you take. So much for miracles."

• Iyee
• February 8, 2018

Dupixent (dupilumab) "I've suffered from eczema my whole life. I am now 31 years old. It got extremely severe at age 21 (probably due to introduction of alcohol) and have broken out from head to toe consistently every week. I've been prescribed ointments, prednisone, steroid injections in the hips, light treatment, I even have a prescribed standing light bed (tanning bed) in my closet, nothing works. I'm now on my third injection and my life has changed drastically. My skin is so smooth and is at 95% clear. I can now wear makeup without the dry flaky skin at the end of the day. I have not called out sick due to my breakouts in over a month which is rare because I used to about once every week. I used to suffer the consequences of a major breakout because of one or two alcoholic beverages but I was able to have multiple this past week on vacation with no sign of a breakout. This drug literally erased 30 years of severe eczema!!"

• My...
• Taken for 1 to 6 months
• October 31, 2023

Dupixent (dupilumab) "After 2-3 days, my severe eczema that I've been struggling with since I was age 1 had vanished after injecting myself with Dupixent. I use it every 2 weeks because it also controls my allergies. I can finally use my hands!"

• GF17
• Taken for 1 to 6 months
• November 15, 2017

Dupixent (dupilumab) "I have had eczema my whole life. I started using Dupixient about 3-4 months ago and saw significant results within a few weeks. Recently however, the redness and itchiness has been returning and I am concerned. I read in the studies that 20% of the patients in the trial saw results initially (within 3-4 months) but then developed an immunity to the drug so that it was no longer effective. I hope that this is not the case for me. Hoping this is just a minor flare up."

• Sk18
• Taken for 1 to 6 months
• March 26, 2018

Dupixent (dupilumab) "I started Dupixent October 2017 after not sleeping, bleeding, having infections and being on all kinds of steroids, creams, and antibiotics. It has changed my life! I've had eczema my whole life, 34 years, and as I aged it kept getting worse and while pregnant with my son my skin was just peeling off. Now 5 months in Dupixent I'm 95% clear but the 1-2 days before an injection are brutal, I flare up something fierce, especially on my face. Then it's takes about 2 days after the injection to clear up. 24 days out of a 28 day cycle isn't bad at all but I'd love it to be better. I'll stick with this for sure!"