Dupilumab for Eczema User Reviews (Page 2)

• Socce...
• Taken for 1 to 2 years
• April 21, 2017

Dupixent (dupilumab) "I did the study for this drug all 3 phases and have been on it since 2015 and never dreamed it would actually work. Works amazing I had to stop for the transition once the FDA approved this and omg I wake up all hours of the night itching I get hot and itch. I am finally taking it again I can't imagine my life without this stuff"

• Peony
• Taken for 6 months to 1 year
• April 20, 2019

Dupixent (dupilumab) "Absolutely life changing! My son’s skin was painful , infected and he literally could barely move or walk much less have a normal life. After less than a year on Dupixengt he has his life back and can attend school and do normal physical activities. Bless the doctors who worked to develop this. It is amazing for sufferers of the severest form of disfiguring eczema that debilitated my sons mind and body. ❤️"

• JSano
• Taken for less than 1 month
• November 12, 2019

Dupixent (dupilumab) "One week after the initial dose of Dupixent for eczmea, I started having what the ER doc called 'serum sickness'. Itchy rash over entire body and extremities, ears swollen, red and hot. I was put on high dose prednisone for 1 week, which obviously helped the reaction as well as the eczema. 2 days after finishing the steroid, the rash and eczema came back. Not sure how long Dupixent stays in your system, but I am miserable! Obviously not taking another dose. So disappointing, as I was praying for a cure!"

• Joe
• Taken for 1 to 6 months
• September 1, 2019

Dupixent (dupilumab) "My teenage daughter has been dealing with eczema all her life. Inside her arms, back of her legs and on her neck were the worse and main areas of her flair ups. She’d scratch herself until she’s bled and scarred. We’ve tried all topical creams over and under the counter types, lotions, soaps, bleach baths and more. Nothing worked. After one injection of Dupixent it was a significant improvement. Now after applying her third injection, her skin is normal again, even during the hot summer season. I highly recommend this treatment as it is the only thing that has ever worked for my child. If you can get over doing the injections then this will change your life."

• Chad
• Taken for 1 to 6 months
• September 10, 2019

Dupixent (dupilumab) "I’m 25 years old, I have had severe eczema since I was 18 months old. I was placed in multiple studies for new medications when they came out (ex protopic) which worked for a couple years and then I built a tolerance and my skin got worse. Off and on steroids pretty much every month. I tried Dupixent for about 4 months late 2017-2018. It cleared my skin completely, no restless nights, no scratching, no bleeding. It was perfect!! Until my eyes started flaring up. I don’t have perfect vision anymore, and the doctor suggested I get off the medicine in order to save my sight. I’ve been off of this medicine for about a year and a half. My skin is much worse now and contemplating going back in this medicine but staying in close contact with my eye doctor... I’m losing sleep again due to scratching, and always exhausted. My skin is miserable and hurts to the touch..., so I think it might be worth trying again."

• Lynn
• Taken for 1 to 6 months
• July 16, 2019

Dupixent (dupilumab) "I have had severe eczema for about 7 years. Finally I tried most everything and decided to try Dupixent. I had great success with it and also a significant problem. About about 2 and 1/2 months, I developed pain in my eye. I went to doctor and I have herpes simplex 1 in my eye. I have been off Dupixent and I’m on several medications for the herpes in the eye over a month and still have it. It also had gone into the underlying cornea not just the surface. Two months ago I stopped taking Dupixent.. It really helped my skin - felt like a miracle- but at what cost ? I don’t think I can risk my eye but I have to tell you I am upset because I know Dupixent is a treatment not a cure and my eczema will come back. I feel even worse because I have to get off a drug that was really helping me. (I’m on Medicare and I still have to pay almost $6,500 annually."

• Stack...
• Taken for 6 months to 1 year
• April 17, 2019

Dupixent (dupilumab) "I’ve had eczema since I was tiny, and as I got older it just got worse, hospital tried everything to make it better such as light therapy, azathioprine and other similar tablets and they would improve me slightly for maybe 2 months then back to the usual dryness and itching. Then finally my consultant put me in touch with a company that does dupixent, and it has transformed me. I can now just go to bed and go to sleep rather than 30 mins cream, 30 mins scratch then sleep I don’t have to hoover 2 -3 times a day I don’t have to carry creams everywhere I go I cant recommend this enough to anyone with eczema! Injections were daunting for me but no problems after being showed how to do it, I would say generally isn’t painful, more uncomfortable but it 100% worth it. The only reason isn't a 10 is the side effects (itchy/watery eyes) can be infuriating tho the itch is only 1/10th of what my eczema caused me so I’m happy with that trade"

• Bama
• December 28, 2019

Dupixent (dupilumab) "I have received 3 injections and call it a life saver and miracle drug for me. My situation is a little different from most because my Eczema was a result from stress. I never had it before until after the death of my brother and then 3 years later reoccurred after the death of my mother. I called it my living nightmare. No quality of life and had no sleep; cried due to nothing working, tried everything! I was awake most of the night and stood in front on my freezer door and would sit next to the fireplace in the middle of the night and then go to my garage and use my light. I could not hardly wear any clothing and was confined to my house. Needless to say, Eczema affected the quality of my life and life was just too hard living in constant misery. It works great for me. I don’t want to stay on it long if I don’t have too. Mine was situational . I am very thankful to see results like I have. It has given me my life back!"

• Aano
• Taken for 6 months to 1 year
• August 21, 2020

Dupixent (dupilumab) "I have severe eczema, and was on dupixent for almost a year. I had no symptoms, however, it didn’t work. My skin was still constantly flaring up, and my dermatologist finally agreed that it was not helping, and if anything, seemed to be getting worse."

• SWG
• Taken for 1 to 6 months
• March 16, 2019

Dupixent (dupilumab) "I just wanted to say that you need to give the Dupixent the full 16 weeks. I almost stopped. At the beginning my head was so hot I started buying new pillows. My face turned pink. The itch subsided pretty quickly then the body. Face and head took longer. I had a flare on my wrist that I tried to get rid of for 3 years! That is now a lot better at 16 weeks with spot treating. I still use a bit of Scalpicin once in a while. But the Dupixant definitely takes the edge off. I find if you just place the needle it slips in by itself. You don’t have to stab yourself. Good luck."

• Amber
• Taken for 1 to 6 months
• January 14, 2020

Dupixent (dupilumab) "The medication starting working within the first month. I noticed significant reduction in my eczema, unless I drink a lot of alcohol. I am on month 5, and I am starting to have issues breathing. I am not sure if the medication is giving me anxiety (I'm not an anxious person). I also developed a stye for the first time. I will occasionally get numbness in my feet. The breathing has become such an issue that I do not think it is worth taking the medication."

• Mar...
• Taken for 1 to 6 months
• July 28, 2018

Dupixent (dupilumab) "My first few doses were helping a lot, taking the itch away and clearing my skin. My 4th does made my eyes very red, my Dermotaligst referred me to an opthalmologist to check the pressure in my eyes. Perssure was ok, only some inflammation in the whites of my eyes. So I continued the Dupixent injections, red eyes and all, then I started getting small red pimple like spots on my face along with redness. When my joints started aching after the 6th dose I stopped dupiexent. It has been approximately 2 months and the redness on my face is finally going away, my eyes cleared right after stopping Dupixent. I seem to think the dose was too strong for me. But there’s only 1 strength. I’m still itching and having breakouts and don’t know what to do at this point as nothing seems to work."

• Mom
• Taken for 1 to 6 months
• July 27, 2020

Dupixent (dupilumab) "I have been taking Dupixent for about 5 months for eczema. It's a wonder drug. No more itching. But I'm having some serious joint pain in both shoulders. I hear a lot of grinding and popping. I'm 73 and have a lot of arthritis. I think this might be a side effect. How long do you have to be off of Dupixent before the side effects begin to subside? Do the side effects go away at all."

• Kay
• Taken for 1 to 6 months
• August 14, 2019

Dupixent (dupilumab) "I took Dupixent about 3 to 4 months . Did great on my eczema. But for my eyes decrease my eye sight 2 times worse and I’m already legally blind in one eye and now my other eye is weak from the use of it"

• CCHRa...
• May 3, 2017

Dupixent (dupilumab) "I have had Eczema, for my whole life. I am a woman in mid 40's. It seems to be mainly stress related and has been fairly awful the past 10 years. I stopped kenalog shots about 6 years ago, my eyesight and joints were suffering. The past 6 years have been hell. My allergist helped get me this drug and even worked with the pharm rep to get a coupon for zero co-pay (using commercial insurance). I am thrilled to have had my first 300 dose just a few days ago. Within hours my skin felt softer. I have read all the studies and appears you will see max results between 30-45 days so I will come back and write more. I do see my eczema clearing up -- I am very flaky on my face right now so that is itchy but the intense itch seems to have subsided."

• Abby
• January 16, 2019

Dupixent (dupilumab) "Wow. I'm not sure where to even start! I have suffered with Eczema my whole life (28 yrs old), recently turning into Dermatitis Eczema after an episode of Eczema herpeticum. I have tried absolutely everything from steriod creams, UV lights and was recently on Azathioprine for 4 years, but no real change! I started on Dupixent last week, and I can honestly say this has been life changing! I am actually managing to sleep through the WHOLE night... I don't have to hoover my bed every morning because of dry skin, I don't itch constantly, and I feel 100% better in myself! I panicked at the thought of having to self inject, but it was nothing.... I panicked over nothing, so if you're reading this and haven't had your first injection yet.. please don't worry! Thanks again to whoever invented this medicine! You have changed my life for the better (and I'm only 1 week in)!!"

• Chatt...
• Taken for 1 to 6 months
• June 14, 2017

Dupixent (dupilumab) "I have had severe eczema since I was a child. Therapies included the usual prednisone, topical creams and testing for everything under the sun. Desperate and searching online night after night for help, I came across the hospital a few years ago and began working with the doctor who led the groundbreaking eczema research to get this drug on the market. I knew within hours this drug was different---it was actually working! I am extremely lucky to have found medical tam and their research on Duplixent. I am now itch free and almost 100% clear; something I thought I'd never experience in my lifetime! God bless all the folks involved including the clinical trials. The future is exciting for eczema cases. I am very, very, very grateful."

• Kano
• Taken for 1 to 6 months
• January 13, 2019

Dupixent (dupilumab) "I’m probably the only person who has had an adverse reaction to dupixent. Somehow after starting the treatment my eczema has worsened. Flaring up in places it’s never been before. Flaking and even peeling all over my hands. I have seen no change in the amount of itching. I have done 3 injections and do not notice any good results at all. I will stick with it though because I still have some hope that this will help clear up my eczema. I'm hoping that because I started it during the cold and dry season that it doesn’t work as well."

• San
• August 24, 2018

Dupixent (dupilumab) "I was put on Dupixent in Aug of 2017. My Derm mentioned I would be the first patient she used it on. Two weeks in, I immediately noticed an improvement in my skin. My eczema flare up covered my entire body which I've never experienced before. The side effects mentioned to me were itchy eyes, conjunctivitis, cold sores. I stopped the Dupixent in October of 2017; so I took it for about a 2 months, 4 injections in total. I decided to stop as I began to feel my lips forming a cold sore and my eyes were terribly itchy. While on Dupixent, the itch it caused my eyes was unbearable. In May of 2018, I visited my Ophthalmologist again because my vision was slowly getting worse. There, I was diagnosed with having Keratoconus which is a condition where the eye is no longer round but bulging. This was said to be caused by excessive rubbing of the eye. There is no cure for this eye condition just treatment. Your vision is constantly changing, I mean changing by the week."

• Deedee
• January 25, 2020

Dupixent (dupilumab) "I am happy to announce that since my first injection of Dupixent on December 26, 2019; I don't itch. The first week was hard, I stopping itching then after a couple of hours I itched a lot. I course I scratched, but I didn't get a rash. Then about 2 weeks later an ugly rash developed. It looked different from the "normal" rash that I'm use to seeing. Now a month later that ugly rash is still here, but I'm not ITCHING. Hopefully, it will heal quickly, but did I say that I don't itch. I'm 45 and I have had eczema all of my life. People that have eczema know about the itch and how amazing it feels to scratch. For the first time in my life I believe this is what normal feels like. No itching, no scratching means no rash. I can't wait to completely heal, Dupixent is giving my that opportunity."

• Anonymous
• Taken for 1 to 6 months
• July 7, 2017

Dupixent (dupilumab) "I could describe my suffering for the past 43 years, but instead I'm going to sing the praise of what the next 43 years will be like. For the first time ever, my skin is clear, itch free, and I sleep through the night. I'm been on Dupixent for 4 weeks (just took 3rd injection yesterday)."

• JohnDoe
• Taken for 1 to 6 months
• October 7, 2019

Dupixent (dupilumab) "I have had eczema all my life since I was a kid and absolutely nothing worked.I have been using dupixent for about 3-4 months and it worked immediately. I place the shot in my thigh bi-weekly and I haven't seen any major side effects from taken it. I stop using it for about 60-90 because my skin was so clear then my eczema came back in crazy fashion. So I got back on it and a week later the flare is gone and Im happy to be back on it!"

• Anonymous
• Taken for less than 1 month
• June 26, 2017

Dupixent (dupilumab) "It's only been about 4 days since my first loading dose and I am absolutely amazed at how much my skin has improved and I'm feeling a lot less itchy. I've struggled with severe eczema since I was little and to finally experience relief is really exciting and amazing. I'm so grateful and happy to finally be feeling better and to know that others who struggle can feel better too!"

• R W
• Taken for 1 to 6 months
• February 11, 2019

Dupixent (dupilumab) "Life saving. I am 60 years old. I have been suffering with eczema since 4. It took my Dermatologist 6 months to talk me into taking Dupixent. I have tried every natural alternative but finally gave in. I can't believe how blessed and happy I feel. It is a bit scary at first but nothing in comparison to the torture of eczema. All the sleepless nights, social isolation, thousands of dollars on anything that might help..no problems anymore. I have only a little eye redness but I had eczema in my eyes on occassion so this is manageable. My neck burns at times but isn't red, Cerave calms. So happy! Hopefully my insurance and Dupixent drug company will keep the medications available to me. If you are on the fence deciding, don't wait. It was worth the try for me."

• Sara
• Taken for 1 to 6 months
• February 5, 2019

Dupixent (dupilumab) "This drug has been amazing. I developed Eczema at about age 35. Oddly, never had skin problems, but I took Zyrtec for allergies. Immediately after going off Zyrtec, my body was on fire for weeks. Eventually, it localized to my arms and back. It was awful. For years I dealt with this. Constant itching, threw away so many blood spotted shirts, couldn't wear short sleeves, everyone always thought I had poison ivy, couldn't sleep without heavy antihistamine which made me non-functional the next day. I was skeptical when my Dr mentioned this drug. I've used every lotion and potion on the market, the success stats weren't that impressive and giving myself a shot every 2 weeks sounded awful. But, 10 days in, my Eczema was gone. Not reduced. GONE. It's been about 7 weeks now and my skin is clear and hasn't itched at all. I'm lucky my insurance covered it, and I still worry about as yet undiscovered long term side effects, but this medicine has been a life saver for me."