Dupilumab for Eczema User Reviews (Page 4)

• MZano
• Taken for 1 to 6 months
• December 10, 2018

Dupixent (dupilumab) "Dupixent has honestly changed, and possibly saved, my life. I had eczema covering my hands for over a year, to the point where it was painful to touch anything or type on a keyboard (something required everyday at my job). I had trouble cooking, because to prep food I often needed to wash it, which caused major pain on my hands. I was embarrassed to shake other people's hands. I was embarrassed to be in public. I tried every steroid cream, I tried diet changes, I saw multiple dermatologists. Getting approval for Dupixent was a bit of a hassle, but in the end, it turned my life around. I now have occasional small patches of eczema, but for the first time in my life I've had months where none of the skin on my hands is broken. It's miraculous, and I just pray that it continues to work! I've had some eye dryness and a cold sore or two as side effects, but the benefits far outweigh these effects."

• Dano
• February 21, 2021

Dupixent (dupilumab) "I received my 1st injections of Dupixent. I developed itchy eyelids. 3 days later I had a red rash on one of my arms. That went away. The eczema itch really hasn't changed any. In fact the eczema looks worse, I am not that impressed with this drug. This is rather disappointing."

• HipHo...
• Taken for 1 to 2 years
• September 9, 2019

Dupixent (dupilumab) "Reduced eczema with in first month, caused some eye irritation upon starting as predicted. After 6 months wound healing seemed impeded had impetigo like infection that wouldn't go away in the inner ankles for a month until I stopped taking Dupixent. After a month of being off of it the wounds healed. Started dupixent again about 6 months and the ankle like ulcers returned. but no eye lid issues like the first time. Stopped taking dupixent for a month dark spots and wounds healing again. I've never had this issue before in my life as a 36 year old. I have to assume its related to Dupixent and how it inhibits the interleukin. Random thought the drug is pooling in my feet as the circulation in my feet tends to be poor and after serious aerobic exercise it seems to clear up a little. I inject in the belly 300MG twice a month and have about 25% body fat Will try halving the dose."

• Thank...
• Taken for 1 to 6 months
• February 28, 2019

Dupixent (dupilumab) "LIFE CHANGING! I have struggled with horrific eczema on my back for the past 5 yrs. My entire back was covered, from neck to waist. I don't need to tell any of you the emotional toll it will take on you. I tried Everything. This is simply life changing and I am so thankful for it. Cost: It was a pain to get covered, but finally I did, then learned of the copay card, which makes it free. Results: By day 3 I was crying at the sight of my back clearing. I noticed on day 12 it started to come back some, but by day 15, after the next dose it was clear again. The itch stopped after about 3 weeks! Side effects: The 2 days following the initial 600mg dose, as well as the morning after each dose, my eyes are gunky but it clears within a few hours. I am also now glued to chap stick, lips get soo dry, but it is worth it. Pain: I take it in the stomach, I don't think it hurts at all."

• meem
• Taken for 1 to 6 months
• February 21, 2019

Dupixent (dupilumab) "I have been on Dupixent now for 5 months and I just occurred to me to review. If you are suffering out there with eczema (like I do) please do not hesitate to try this medication. I definitely have my life back. It started healing my skin from, literally, Day 1. I still get eczema on my face (my worst spot) if I am exposed to my big triggers. But it is WAY less severe than it was. God bless Dr and the others who worked on this drug. My advice: do it, do it, do it."

• Mom
• Taken for less than 1 month
• December 12, 2018

Dupixent (dupilumab) "My significant other has had severe eczema all of his life. I've been withhim for 13 years. He takes 4 allergy shots a week and we have tried every thing including the new topical Meds. Nothing has ever worked for his severe itching, until now. 2 days after taking the first 2 shots the itchy feeling was better. 1 week later there was no new rash forming and he said that the itches have all gone. I am beyond happy. Now we can work on getting his skin cleared up."

• Moe
• Taken for 1 to 6 months
• January 12, 2020

Dupixent (dupilumab) "I started on dupexet and all my eczema is gone. I cannot get my insurance to pay for it been getting samples but I believe I am done. Hoping it will not come back.only side effect I think I have is some blurring in eyes and small pimple like on top of my foot. Price must go down o"

• Bex
• Taken for 6 months to 1 year
• July 7, 2018

Dupixent (dupilumab) "I started experiencing severe eczema on my hands in 2009 at the age of 28. I had minor patches here and there growing up. I would have tears and painful cuts that hurt and burned constantly and only worsened after having my second child. The itch was so crazy. The only thing that kept it at bay was a relatively high dose of prednisone which I did not want to be on because of the side effects. I had even tried cyclosporine which didn’t even touch it. I was started on dupixent in November 2017 and my skin is 100 percent clear as of June. I saw improvement within the first month in that I didn’t feel quite as itchy, but I first noted significant improvement at around 3 months. The only side effects to mention were really dry eyes, which are better with drops. I am so grateful and happy. I just hope it continues to be covered by my insurance and the copay assistance program through dupixent!"

• Sim
• Taken for 1 to 6 months
• August 20, 2018

Dupixent (dupilumab) "I started my treatment in May 2018. The first 3 injections helped a lot as my skin became clear. After I took my 4th injection, my skin started to flare up again. I took my 5th injection and I am still flaring up. It feels like the benefits of Dupixent are starting to wear off. I will be taking my 6th injection this week and hopefully my skin will clear up. Will update soon."

• Krizten
• January 22, 2018

Dupixent (dupilumab) "Super annoyed. Hives stopped. Rashes 90% clear two months in. I actually started to think I was going to get my life back. Then my eyes started being attacked - itching, burning red eye, puffy/swollen eye lids, swollen cornea. I’m miserable and I have to stop. It’s really a terrible choice between eyes of fire and hives/rashes. "

• CNs...
• July 28, 2021

Dupixent (dupilumab) "My adult son had a reaction to Dupixent that has never gone away. He had eczema on his hands, feet, arms, and legs. He began taking Dupixent in high school, and, while all of his body eczema went away, he began getting it more and more on his face. At first the doctor said it was a reaction to sunblock, but he continued to get eczema only on his face when not using sunblock at all. Then that doctor stopped practicing medicine. My son had never had any face eczema before Dupixent. NONE. It is obvious this was due to the Dupixent. He uses all non-toxic products for washing both body and clothing. His face got worse and worse. I have photos. Even though he has quit Dupixent for about a year, his face continues to break out in terrible painful eczema. It flares up especially in the heat & plain tap water can even irritate it. He has burning, itching, and red scaly blotches all around his forehead and eyes. It's not only uncomfortable, but it's also embarrassing."

• Kal
• Taken for 1 to 6 months
• April 1, 2022

Dupixent (dupilumab) "The first time I was given dupixent was about four years ago. I stopped after three months because I developed conjunctivitis in both eyes as well as proctitis from it. A different dermatologist physician asst. just convinced me to try the child's dose this time. After three shots blurry vision, conjunctivitis and sore prostate has returned. I've immediately stopped talking dupixent and will never try it again."

• Birdi...
• Taken for 1 to 6 months
• January 28, 2021

Dupixent (dupilumab) "Have been trying to get my refill approved for a month. Call every week and get the same lines. They have everything they need and it is being processed?!?! If you do not hear from us in a week call us back. Six calls, same response."

• K422
• Taken for 6 months to 1 year
• March 3, 2023

Dupixent (dupilumab) "Just an update. It has been almost 2 years since stopping Dupixent after becoming blind in my left eye. Still no improvement. Eyes still so dry that I cannot open them in the morning, and have to wake up 3 times at night to use artificial tears. My lifestyle has been greatly impacted. I can manage, and that’s about it. I am pleading with those considering taking this dangerous (miracle) drug. Do your homework! The doctors I encountered were mostly in denial about possible severe side effects. They did not even want to address it when it happened. I was pretty much on my own. So beware. Have your ophthalmologist check you out before you begin treatment. Be informed! My life is very likely forever impacted simply because I was so desperate for eczema relief. I trusted my cavalier dermatologist. What a colossal mistake! Now I have multiple problems. Dupixant was covered by my insurance, however, now I am paying the price."

• Hugh
• Taken for 1 to 6 months
• May 18, 2024

Dupixent (dupilumab) "Have been using Dupixent for about seven weeks. After the first 3-4 weeks, all rashes have disappeared. Occasionally, a rash will start to appear, it will itch a bit, then overnight will disappear. I'm taking 300mg every two weeks by injection, which is very easy. I've not noticed any side effects. This is a condition I've lived with for over 20 years, and am so grateful for finally getting relief. I have experienced increasing attacks lasting months."

• Dee
• Taken for 6 months to 1 year
• June 12, 2018

Dupixent (dupilumab) "After 50 years of painful, itchy eczema skin, dupixent has given me hope for clear skin. I started in December, so 6 months ago. It cleared up my hands, back of the knees and elbows, but it still flares on my torso. Mainly when the drug wears off. Seems I get one week of relief, one week where a flare kicks in and stays until two days after I take my shot. So, I need weekly injections, but I am very happy now with some relief. Life has changed, I can date now, I can go to the pool and I can finally wear rings. The cashiers no longer stare, my friends no longer tell me to "just stop itching." If they only knew... I treat myself to acrylic nails because they are thicker and don't tear up my skin. Plus now my hands are normal, the nails look nice. I will probably be taking this drug the rest of my life. The side effect of a weepy right eye was worth it and has improved over time. I was turned down my BCBS three times, so keep after your dermo for this drug!"

• Flubb
• September 20, 2018

Dupixent (dupilumab) "For years I suffered with eczema that was so bad my skin when I scratched came off from years of steroid use. My hands were the worst. Prior to starting this drug, I was on methotrexate which helped my hands but they never fully cleared up. This drug is excellent I saw results within 2 weeks I'm losing my insurance by 30th and worried the eczema will return. Thank you for giving me my life back"

• Holly
• Taken for 6 months to 1 year
• July 2, 2018

Dupixent (dupilumab) "I have been on dupixent since Oct 2017. It has changed my life! I am 58 and had eczema since I was six months old. The last 2 years before starting the injections I was in a constant flare over my entire body. I have tried EVERYTHING and went through tubs of medicine. My dermatologist kept saying something is finally coming! I am a nurse in a hospital and was nervous about infections. I have bone loss from the prednisone I took off and on and the steroid creams . I also had serious infections related to my disease and allergy shots. I slept horribly. I am 95% clear. I can sleep and don’t worry about spending the night somewhere and getting blood on sheets. I exercise without being itchy from sweating. I am so thankful. It took 6 months and a lot of persistence to get my insurance to cover the medication. I have had the peeling lips and red, itchy eyes but they are getting better."

• Joano
• Taken for 1 to 6 months
• April 9, 2018

Dupixent (dupilumab) "Another disappointment as I was told today to go off this medicine. Definitely saw great things happening to my skin until my eyes went crazy crusting tearing swelling and flaking. I pray they can correct this side effect of the medicine."

• Anonymous
• Taken for 1 to 6 months
• August 28, 2017

Dupixent (dupilumab) "I am a 30 year old female who has had eczema my whole life but it has gotten severely worse in the past 3 years. I have been on this medication for about 2 months now and so far it is doing well. I noticed results almost immediately and no longer cringe when I shower. But in the past 2 weeks I've noticed a small flare up on my face coming back which I hope is only due to change of season. The flare up is very small compared to what I experienced in the past and not as itchy all the time (there is some itchiness at night) as my flare ups have been in the past."

• Stl_jh
• Taken for 1 to 6 months
• December 3, 2022

Dupixent (dupilumab) "I took three doses of Dupixent and had numerous cases of conjunctivitis and vision changes. My eczema was isolated to a few areas prior to this. After starting and discontinuing for five months - it now covers my entire body. It is bright red, scaly, and inflamed on my ENTIRE BODY. I have never experienced this before and completely blame Dupixent. Worst drug I have ever tried. I cannot sleep or leave the house due to the excruciating pain I am in."

• Anonymous
• Taken for 1 to 6 months
• December 12, 2017

Dupixent (dupilumab) "I am 19 years old and I’ve been suffering from eczema since I was a baby. I’ve been taking this shot since September 2017 and it is currently December 2017. I no longer have eczema ANY WHERE. It’s truly amazing. The only reason I’m giving this a 9/10 is because I’ve noticed it “wears” off slightly before my next dose. Meaning, since I take the shot every two weeks, I’ve noticed the eczema comes back slightly on my face and neck a few days before my next injection. I understand I have to build it up in my system. This has truly taken away all my eczema that I was suffering with before."

• Warning...
• Taken for 1 to 6 months
• January 9, 2022

Dupixent (dupilumab) "DO NOT TAKE DUPIXENT! I was fine for the first few months. I then ended up with Blepharitis (severely itchy eyelids), a terrible bright red patchy rash with white heads on my face that has only almost disappeared after six months, and then significant hair loss in two places in the back of my head. If you do an internet search for people with these symptoms. The photos are terrible and exactly what I experienced. Hope my hair grows back... If I could give this med a minus rating, I would."

• Carly...
• September 17, 2017

Dupixent (dupilumab) "I am 20 years old. I have had eczema since I was in the 7th grade, but it has recently in the past 4 years spread all over my body. I finally went to the dermatologist to see what my options were after trying creams and homeopathic remedies. I was on cyclosporine modified for a while, and it worked AMAZING until they tried to ween me off. It has never been the same since. I have been on Dupixent for almost a month now. I notice a difference in the texture of my eczema, but I SWEAR I get a new patch everyday. I now have it on my sides, stomach, and hands. Places I have NEVER had it before. My derm said it takes awhile to work, so I haven't given up hope yet, but so far I am not too impressed."

• nelli...
• January 9, 2018

Dupixent (dupilumab) "Life long eczema with periods of clear skin. Had severe bouts for 10 years and was on a plethora of drugs cyclosporin, Cell Cept & Methotrexate. I was very clear on the metho, but my Dr. wanted me on the Dupixent. It seemed to work initially, however, as stated above-it starts wearing off at around the 6th day - so by the time I am to take my next shot, I have a full flare going. For my weight I cannot have a dose every week. So, each month my flares are worse and I don't clear prior to next shot to the point that I am full flare (25% of body) now all of the time at 6 months on the drug. I have decided to go back to the methotrexate Very disappointed. Was NOT the end all be all it claims to be (for me)."