Cromolyn for Inflammatory Bowel Disease User Reviews
Brand names: Gastrocrom
Cromolyn has an average rating of 6.4 out of 10 from a total of 5 reviews for the treatment of Inflammatory Bowel Disease. 40% of reviewers reported a positive experience, while 20% reported a negative experience.
- dar...
- Taken for 5 to 10 years
- April 11, 2024
"Been using for five years and it has helped my IBD issues. I have sensitivities to many medications, probably due to mast cell activation syndrome. I have most of my foods back since taking it. Helps with cramping and indigestion. I take it first thing in the morning and then before meals and before bed for a total of four doses. When IBD issues are good, no constipation or diarrhea, I don’t need the one at bedtime."
- BPW...
- March 22, 2021
"I just started taking Cromolyn, but it has been compounded with Ketotifen in a 200 mg/3 mg mixture/capsule. I dissolve it in warm water and then take it at bedtime. As the above reviewer mentioned, I also experience intense fatigue/sleepiness the entire next day. I want to keep taking this med in hopes it will help my intestinal symptoms, but I can barely function during the day. Perhaps my body will adapt? Or maybe it's just not a good fit for me..."
- Ald...
- Taken for 1 to 2 years
- July 27, 2021
"I’ve been taking cromolyn for a year for my probable Mast Cell Activation Disorder. I used to have terrible cramps after large meals and other intestinal distress. I take one vial before meals (usually just once a day because it is expensive) but it really helps. To be fair I had adapted by switching to one large meal per day before starting this. No real side effects: others here claim it makes them tired, and I’m often fatigued, but I always have been."
- Me ...
- Taken for less than 1 month
- December 4, 2022
"Took 100mg on Tuesday felt something in my mouth and stomach. Wednesday did another dose and with in 2 minutes had a sharp crippling stomach. Became nauseous and thought I would throw it up. Kinda wished I did I got flu like symptoms like after the Covid shot three days later the fatigue is got me back in a wheel chair, headaches, light sensitivity ringing in the ears terrible sleep vivid dreams. Had a lot of hope for this"
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- During pregnancy
- Drug class: mast cell stabilizers
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Patient resources
- Cromolyn sodium drug information
- Cromolyn sodium inhalation
- Cromolyn (Inhalation) (Advanced Reading)
- Cromolyn (Oral) (Advanced Reading)
- Cromolyn Capsules
- Cromolyn Oral Concentrate
Other brands
Gastrocrom, Intal, Intal Inhaler
Professional resources
- Cromolyn (Systemic, Oral Inhalation) monograph
- Cromolyn Sodium (FDA)
- Cromolyn Sodium Inhalation Solution (FDA)
"On my second attempt to take this medication for possible mast cell activation disorder. First time around, crushing fatigue and sleepiness lasting all day! Now on day 4, only taking half an ampule (50 mg) before bed, but still with almost debilitating fatigue and sleepiness. This is not listed as a side effect. I'm not sure why it's affecting me this way. It is helping my abdominal pain and cramping even on this low dose, I also notice no intermittent constipation and decreased swelling in my body. Anyone else with side effects of severe fatigue?"