Foods to avoid when I'm diagnosed with BMS?

I'm new to this, thanks for the blogs. I am 75 and I had oral cancer-15 hours of surgery and 6 weeks in the hospital. After recovery, I was able to eat small portions only. After 33 radiation sessions, I had problems. That was 18 months ago. Since then, it has been a liquid diet. The last time I blended a banana in my smoothie, it burnt my mouth. That is when I went in search of a cause and found BMS, and it certainly matches the description. I see my ENT (Ears, Nose, and Throat) surgeon every three months and have an appointment next Monday for another biopsy of my mouth. I will discuss this burning again. I suspect that he suspects a return of the cancer but I'd like to believe that it is BMS for obvious reasons :). I'll report back next Tuesday. My thoughts to all of you.

So sorry you had to join this group of sufferers without answers. I wish I had some good advice for you, seems so many people are trying the same medications but nothing is really relieving the most annoying of pains effectively. I have personally come to terms with the fact that not enough people are pushing doctors for answers. It's a shaming ordeal to go through when only the people on this site understand it. My own husband doesn't even remember half the time that this pain exists. Reminding the people close to me is just too exhausting. If you don't live with this continual torment 24/7 it's just too hard to understand! But when I'm at the dentist, dermatologist, ophthalmologist I ask them if they've heard or know anyone else who is going through this? So far to no avail, but if we keep asking questions to the professionals the word will get out eventually. I hope the best to you. I don't frequent this sight too often because it can be dismal.

I did my own research because doctors did not help me even after I went to the emergency room. I was donating plasma regularly and I was one of the rare people who got citrate toxicity. When I was at the emergency for a ruptured ovarian cyst I had blood tests done. They gave me no answers as to why my mouth was on fire and dry mouth. I was miserable for 2 1/2 months. Easily he could if seen that I was .2 low on my calcium and that does make a huge difference. I did my research and citrate reaction depletes you from calcium. BMS comes from medication , either switch or different dose. Most commonly comes from a vitamin deficiency. I got myself on 600 mg. Of calcium also D3 helps with not getting kidney stones and K2 it brings the calcium where your body needs it and lots of Jesus. I am already getting better 2 days later. Check if your low on vitamins. Good luck.

I take Neurontin (Gabapentin) Xanax and Benadryl which help tremendously. When I first started with the Burning Mouth it was so bad that the inside of my mouth would peel. It truly is the worst pain ever. It hits me worse at night too. I would try these meds, but you may come up with your own regime that works. I just pray that they find a cure!! And soon!
What type of Doctor diagnosed you? It's hard to get a Doctor to believe that this exists.

Stay away from acidic foods anything spicy I just don't eat anything red no chocolate no coffee or tea unless decaffeinated I'm on percocet and sometimes oxys the pain can get that back this happened 2 yrs ago lasted about a month I got my dentures relined this time I'm replacing them I'm told I'm allergic to the resins in the denture cost me 200 more to more a allergy resistant lining over them u have to try and deal with it as it comes most times it's caused by something else bad fitting dentures or acid reflux or gerd are all culprits of BMS good luck

I was diagnosed with BMS by my ENT several years ago and he stated that it was neuropathic mouth pain and sent me on my way!!! Said there is no medication for it. Such a horrid condition! Wake up each day wondering how bad it will be today! Gets worse as the day goes on. I take a powered aspirin everyday at 6pm just to ease the pain. I have the exact same symptoms that you do. It went away once for a few months but then it returned! So glad I have found this support group to see I am not alone. Wishing you the best.

I have had BMS for 6 months now. First diagnoised by my dentist, who was not helpful at all! Then to my internist for a physical. He hadn't heard of it either, but put me on Gabapentin to try, but I hated the drug, it made me feel foggy. I have investigated on the internet, and learned a lot that way. I currently take Cymbalta 60 mg for anxiety and depression, I have been on this med for years!! Just had my hearing tested, by a ear,eye,nose specialist and he was the first doctor that had heard about this dreadful problem!! Actually gave me tips and advice, but also agreed it will last a long time!! Sending me for blood work to see if I have vitamin problems. I agree with another posting, that stress my make it worse. When on vacation, my symptoms got better? Sometimes, in the evenings I take a strong pain pill, dilaudid, which helps. Left over from surgery one year ago!! When they run out, I plan on asking my doctor for a strong pain med to help in the evening!! BMS is not fun and any info is welcome!!!

I also have the Primary Burning Mouth Syndrome. As other people have written, clonazepam, an off-label anti-depressant such as Cymbalta (meaning this drug helps to inhibit the nerves firing) and possible Gabapentin work for many I know.

I was diagnosed a year ago. I tried everything. We finally decided on the following combination, and knock on wood, my BMS is virtually gone, well not apparent. 300 mg of Gabopentin, 1 mg Clonozepam, and I upped my Zoloft from 100 to 150 mg. I am fine. Try it. Maybe you don't need the Zoloft, but it calms me. Gabopentin is a must. Good luck.

Have posted before that very little seems to help with this syndrome, however, I am more and more convinced that it is linked to worry, stress or depression. When I'm on holiday I notice a distinct drop in frequency and severity of pain. As soon as I return to work, it starts getting worse. As mentioned elsewhere, keep trying different things. If your Dr says it's ok, try a low dose of clonazepan. I find it sometimes eases it if I lat an aspirin dissolve in my mouth, again, if your Dr says it's ok try it. I also chew a lot of sugar-free mint gum, this eases it temporarily. My next thing to try is acupuncture. Sounds a bit silly but if it's worry-related it might work. I'll try and report back on here. Other people have said try capsaicin tablets, I've not done that yet. Main thing, Teddi, try and be positive, the more down you get, the worse it gets. Good luck. Keep posting if you have any success!