Vedolizumab for Ulcerative Colitis User Reviews (Page 4)

• Dan
• Taken for 2 to 5 years
• June 22, 2018

"The good: It worked incredibly well for me when I used it every four months. The bad: Now I don't know if this is linked to the drug for sure...but a few months after taking the drug my blood tests started coming back abnormal. Later in the year I was diagnosed with PSC (Primary sclerosing cholangitis ) a form of liver disease. Likewise there are lots of horrible side effects like sore throat, fatigue, increased joint pains, etc. Due to the weakened immune system I also got a bunch of infections, especially in hair follicles which caused severe itchiness. I also got a heart infection (pericarditis), two lots of pneumonia and an opportunistic lung infection that forced me to permanently cease use of the drug. My consultant told me if I remained on it I would die. So all of these infections are all pretty serious and life threatening. Only take this drug if you are desperate and have no other options. Bear in mind as good as the drug can be for treating the bowel, the drug could cost you your life."

• DeeC
• Taken for 1 to 6 months
• July 11, 2023

"I have been on this drug treatment for 6 months now. It is keeping my UC in remission for which I am grateful. However, side effects of fatigue and joint pain are very annoying. Still, at least I can now travel without a Public Toilet app on my phone."

• Maddie
• Taken for less than 1 month
• December 4, 2018

"I have UC effecting my rectum and sigmoid. I have been flaring since last Christmas went on prednisolone, tacrolimis suppositories, foam enemas, pred suppositories with little effect. I then started to react to prednisolone so tapered down as quickly as possible. I had a reaction to azathioprine so no go there. I've had months of budesonide MMX which worked until September then stopped despite taking foam enemas and suppositories. I started vedolizomab 2 weeks ago and already I've halved the amount of times I go to the toilet, now able to sleep through and hardly any bleeding. So far this is my magic cure! I've just had my second dose today. I just feel sleep in the evening of the infusion, get leg cramps for a day or two and that's about it. Keeping my fingers crossed"

• Gary
• Taken for 2 to 5 years
• August 7, 2024

Entyvio (vedolizumab) "Excellent for UC. However, I have had a case of terrible shingles (herpes zoster) for which I hadn’t been given a preventative vaccine in Spain. I also have horrific sinusitis/rhinitis, which may or may not be connected. The last three months have been tough. By the way, in Spain, this drug is free on the national health service for all UC patients."

• Softy...
• Taken for 1 to 2 years
• July 15, 2019

"I have been on Entyvio for about a year and a half. It has been wonderful, as long as I follow my diet. I think it’s great. I had a colonoscopy April 30 and the results were the best that I ever had, so the drug is doing something and it’s great."

• Kara
• Taken for 6 months to 1 year
• August 20, 2023

Entyvio (vedolizumab) "I took Renflexis for 7 months but had a widespread and itchy rash that started in month 3 and just got worse. I was switched to Entyvio and have been taking it for 8 months. I'm not a fan of infusions, but at least this one only takes half an hour. I haven't had any more rash problems. I still have bleeding occasionally but no bad cramping. I got a strange, bad headache after the first few doses. It was in the back of my head and ran down my neck, shoulders, and arms. Now the only side effect I experience is tiredness. It's the worst right after the infusion. I know to go straight home and rest for the rest of the day. I'm okay with taking Entyvio for now. Too bad it doesn't help my chronic, severe eczema. It would be nice to have some biologics approved by insurance companies that do double duty for those of us who have more than one autoimmune issue. I do appreciate the company's financial assistance program."

• snowman
• Taken for 6 months to 1 year
• March 12, 2024

Entyvio (vedolizumab) "I tried two other meds before my doctors found this. They were not good experiences. I've had good infusions with Entyvio. Years ago, I did prednisone and Sulfasalazine. I hated it. What to do? Just hang in there. The Entyvio is working great."

• Jes
• Taken for 6 months to 1 year
• October 23, 2019

Entyvio (vedolizumab) "30 years of ulcerative colitis. After just 2 months, I was symptom-free, and last colonoscopy, I was told my colon was fine. Gave me my life back."

• Anonymous
• Taken for 2 to 5 years
• December 30, 2016

Entyvio (vedolizumab) "Entyvio has been miraculous. Very close to getting my colon taken out, we decided to try Entyvio. After using Remicade, Humira and many other options, it's the only thing that's worked for me."

• Sam
• Taken for 6 months to 1 year
• April 11, 2020

Entyvio (vedolizumab) "5 doses of Entyvio...the exhaustion has completely wrecked my life. Seeing some improvement but not enough to continue with the medication."

• Wears...
• Taken for 6 months to 1 year
• February 26, 2017

Entyvio (vedolizumab) "Entyvio works but it wears off after 3 weeks. It is 8 weeks between the IVs. By 5 weeks, I am back to passing mush and having accidents. This is not acceptable for a $40K drug."

• Anonymous
• March 31, 2019

Entyvio (vedolizumab) "I stopped seeing positive results after the loading doses and noticed an increase in symptoms after each subsequent infusion."

• DCano
• Taken for 1 to 2 years
• July 18, 2018

Entyvio (vedolizumab) "Entyvio has been life changing for me. I have been dealing with UC for 18 years. Entyvio has worked better than any other treatments I have tried and I have had no side effects."

• LG45
• Taken for 6 months to 1 year
• July 11, 2017

Entyvio (vedolizumab) "On this for 6 months now, and I've been in remission for the last 3 months."

• Katsl...
• Taken for 6 months to 1 year
• September 28, 2019

Entyvio (vedolizumab) "It worked for a year. Now I'm worse"

• Waad
• Taken for 6 months to 1 year
• December 28, 2019

Entyvio (vedolizumab) "Very bad side effects and no remission, it makes me very tired and have a fever every 2 weeks"

• No...
• Taken for 6 months to 1 year
• September 1, 2023

Entyvio (vedolizumab) "It works! No complications at all, except for one slight headache after the first infusion."

• John...
• Taken for 2 to 5 years
• August 4, 2023

Entyvio (vedolizumab) "Works fantastic, and have an excellent quality of life!"

• Sara
• Taken for 1 to 6 months
• January 22, 2021

Entyvio (vedolizumab) "It did absolutely nothing for my UC. I was unable to get off my Uceris without going into a serious flare again. I stayed on Entyvio for 5 months with no help. Waste of time and money. Disappointed."

• ROJ
• Taken for 1 to 6 months
• May 11, 2023

Entyvio (vedolizumab) "Do not use this drug! My joints hurt so badly that I can hardly walk, move etc. This medication will eat your liver, headaches are beyond pain relivers help."

• CAB
• Taken for 1 to 6 months
• January 21, 2024

Entyvio (vedolizumab) "Good experience. Effective drug. No side effects."

• Terrry
• Taken for 5 to 10 years
• March 2, 2024

Entyvio (vedolizumab) "Started about seven years ago and has been a miracle drug. Have been in remission since then and can live a complete and normal life."

• Jill
• Taken for 1 to 2 years
• December 4, 2023

Entyvio (vedolizumab) "Entyvio gave me my life back. After being on it for 1 month, I no longer had any more symptoms of UC. I never have any side effects after getting the infusion."

• george
• Taken for 1 to 2 years
• February 13, 2024

Entyvio (vedolizumab) "Using 2 years, good results. Last infusion 1 month ago. Severe arthritis-like stiffness, some pain. Lots of sleep, 10-12 hours per day. Not happy."

• 77...
• Taken for 5 to 10 years
• August 24, 2024

Entyvio (vedolizumab) "On Entyvio for 7 years. Tried Humira previously, and it did not work. Entyvio has worked well for me. I still have some mild UC symptoms from time to time. I plan to stick with Entyvio until it doesn't work anymore."