Upadacitinib for Rheumatoid Arthritis User Reviews (Page 4)

Brand names: Rinvoq, Rinvoq LQ

Upadacitinib has an average rating of 6.4 out of 10 from a total of 104 reviews for the treatment of Rheumatoid Arthritis. 48% of reviewers reported a positive experience, while 28% reported a negative experience.

Reviews for Upadacitinib

Poo...
Taken for 1 to 2 years
January 27, 2023

Rinvoq (upadacitinib) "I have been taking Rinvoq for 16 months and have no pain and very little swelling and the fatigue has improved tremendously. I have been on at least 12 different meds and while Remicaid worked well, after 3 years I was taken off it due to spikes in liver enzymes. I am hoping Rinvoq continues to work long-term as it is amazing. It's quite pricey, but I was able to get copay assistance through the pharmaceutical company."

10 / 10

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Tom...
Taken for 2 to 5 years
May 26, 2023

Rinvoq (upadacitinib) "I have been taking Rinvoq for a number of years to combat my arthritis. I have seen incremental reduction in pain levels and local swelling after a few years of 15mg/day. I haven't experienced any serious side effects while taking this drug."

8 / 10

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Flu...
Taken for 2 to 5 years
May 27, 2023

Rinvoq (upadacitinib) "My lab results are good. My level of fatigue did not change. but seems to work as good as Enbrel, Humira, and Actemra. They all worked well up until 3 years and then they stopped. Coming up on the 3 year mark with Rinvoq."

6 / 10

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Frequently asked questions

Rub...
Taken for 6 months to 1 year
December 12, 2022

Rinvoq (upadacitinib) "I had a good start with Rinvoq but ended up in Acute Care with double pneumonia 6 weeks in. Since then, I have had vertigo and constant headaches. It’s now 6 months into my treatment, my vertigo is getting worse, and I wake up every day with another spot on my face or neck. I had perfect skin before and am way too old for acne."

5 / 10

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Pai...
Taken for 1 to 6 months
April 23, 2024

Rinvoq (upadacitinib) "I have been on Rinvoq for two months and it has been a life-changing medication for me. No longer have flares in my wrists, thumbs, and hands. I can actually use my hands to pick up a full glass of water, cook, and open things. Have more energy and less stiffness. Life is different on Rinvoq and I hope it stays that way. Downside is some acne, dry mouth, and dry eyes - something I can deal with because the upside is so great. So far none of the serious side effects."

10 / 10

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Chl...
Taken for 1 to 2 years
May 31, 2023

Rinvoq (upadacitinib) "Rinvoq WAS a lifesaver for me, but not without side effects including sinus infections, yeast infections, nausea, and most bizarre tooth rot below the gumline. I experienced such needed symptom relief with Rinvoq, I believe it sent me into remission."

5 / 10

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Mic...
May 3, 2023

Rinvoq (upadacitinib) "I have been taking Rinvoq and I have gained 18 pounds in four months. It’s helped my RA, ok but I do have big flares once a month. I tapered the drug down to one every other day myself. I am so depressed too. I have never been so big in my life. I am not liking this drug but don’t want to go on steroids again was on them for 7 years. I have tried all the RA drugs."

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Bec...
Taken for 6 months to 1 year
March 13, 2023

Rinvoq (upadacitinib) "I was diagnosed 40 years ago and have tried so many different meds. After 3 months on Rinvoq, I started to feel better. More energy and very little swelling. It's now been 9 months and I feel like before. It's just barely keeping symptoms at bay. How I wish for a medicine that helps me in the long run! I haven't had any side effects like others so I am thankful for that."

5 / 10

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hit...
Taken for 2 to 5 years
December 24, 2023

Rinvoq (upadacitinib) "Stopped flares in hands. No real problems with managing lifestyle. Taking 15 mg daily for the last 2 years, but have gained 8 kg. Have many of the aforementioned side effects, but that might just be old age."

10 / 10

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Anonymous
Taken for less than 1 month
January 17, 2023

Rinvoq (upadacitinib) "I have had Rheumatoid Arthritis since 2019 and in the last six months, I could not get it fully under control. I was prescribed Rinvoq and have been taking it for 5 days and I have really felt the difference for the better. The swelling is definitely reducing. I have also found wearing arthritis compression gloves helps me to sleep better at night."

8 / 10

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Wil...
Taken for 1 to 2 years
October 22, 2023

Rinvoq (upadacitinib) "I still have flare-ups, however, the day-to-day pain and swelling are greatly reduced! I get very exhausted after several hours, but still much better than without Rinvoq. Thank you Advie for making it affordable… Without the drug, I would be completely disabled."

8 / 10

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HH ...
Taken for less than 1 month
October 4, 2024

Rinvoq (upadacitinib) "I diagnosed RA almost 7 years back. I went through Methotrexate, Arava, Enbrel, Actemra, and finally Rinvoq. It's a recent start, and initial doses feel amazing, reduction in pain and swelling. However, I am observing disturbance in sleep, very few sleep hours. I don't know if it's normal at the start of the medicine. Please share your experiences on the sleep matter. God bless you and heal you from any pain."

6 / 10

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Dav...
Taken for 1 to 6 months
July 17, 2024

Rinvoq (upadacitinib) "I have been on medication now for over 2 months. It started to work within 3 days. Side effects include nausea and feeling tired all the time. After a month on Rinvoq, I have gotten used to the side effects. I am on week 9 and starting to have other side effects, not sure if it is from the medication. These include sleep problems, my left knee suddenly swelling up and hurting, and my hips starting to hurt again."

7 / 10

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Lin...
Taken for 6 months to 1 year
January 5, 2024

Rinvoq (upadacitinib) "I find it alleviates my joint pain. I do suffer from muscle cramps on my right arm, pain in my left side (rib area) and stiffness, pain in the left side of my neck and pins and needles in my left arm. I also get very fatigued from time to time. I also suffer from symptoms of a UTI on and off."

7 / 10

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Kat...
Taken for 1 to 6 months
November 28, 2023

Rinvoq (upadacitinib) "I too started Rinvoq about 6 months ago and at first it worked wonders. It still works really well, but now I take low dose prednisone when I have a flare-up (maybe twice a month). In the last few months, I've noticed that my scalp has become very sensitive, if not downright painful - it feels just like cystic acne that I had as a young woman. After reading these reviews, I'm realizing acne is a side effect and I 'fortunately' see one other person with this issue on their scalp as well. I realize these reviews aren't an answer, but at least it's a relief that there are others with this issue. On a side note, this Rx was a royal pain to get authorized by my insurance. I was supposed to go on Xeljanz (sp?), but they declined it and made me do this one first. Fortunately, the Rinvoq pharmaceutical offered a discount and I qualified for it."

8 / 10

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Kch...
Taken for 1 to 6 months
July 6, 2023

Rinvoq (upadacitinib) "I have been on Rinvoq for 1 month. I had my labs drawn today and my results of my CBC are alarming! Low WBC, RBC, Platelets and more. I'm stopping this med and calling my Dr first thing in the morning."

3 / 10

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MBC...
Taken for 2 to 5 years
May 19, 2022

"Prior to being diagnosed with RA, I was extremely active. I was a personal trainer and then a flight attendant. I was diagnosed with RA after it hit me like a freight train rendering me bedridden and in pain at 26 for month. After 6 different medications that either I didn’t tolerate or didn’t work well, my rheumatologist put me on Rinvoq. The initial adjustment period to the drug took about 2 months where I was nauseous after I took it. After that- it’s like I was pre-diagnosis. I’m able to lift weights in the gym, hike, travel, and live my life. I don’t follow a diet other that mostly healthy/fast foodie. The medication controls my RA and has prevented a flare for years now. The only time I did flare was after an issue with insurance and I was without the drug for a month. The same cycle happened again after starting back- nausea in the AM after I took it. My friends and family know about my dx but beyond that you would never guess I have RA thanks to Rinvoq."

10 / 10

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Mol...
May 2, 2021

"I was on Humira but it wasn’t lasting two weeks. My rheum wanted to try another injectable but my insurance wouldn’t cover it until I failed this class of meds. This is the worst my RA has ever been! This seems to do worse than nothing! I have a bunch of edema in my feet and ankles now, too, not to mention what is in my knuckles. I can barely open a door handle by myself now and I am only 40."

1 / 10

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Dee...
Taken for 1 to 6 months
August 5, 2020

Rinvoq (upadacitinib) "I was on Humira and Rasuva injections, as well as several oral meds. I am off all of them except Rinvoq. And I feel great!"

10 / 10

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Deb...
Taken for 1 to 6 months
January 1, 2021

Rinvoq (upadacitinib) "This was my 10th medication in 2 years, and we finally found one that works for me-hurray! Started feeling better within 2 weeks. Life-changing."

10 / 10

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Anonymous
Taken for 1 to 6 months
September 18, 2021

Rinvoq (upadacitinib) "Been on Rinvoq a little over a month, it was working great until my leg got very painful and inflamed. Found out that there were blood clots in there caused by the Rinvoq :-(."

2 / 10

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Ker...
Taken for 1 to 6 months
September 2, 2024

Rinvoq (upadacitinib) "It seems to help. The side effects are brutal. Always exhausted. Always wake up feeling sick with a cold. I think my heart rate is accelerated. I only take it every other day."

5 / 10

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My...
Taken for 6 months to 1 year
August 14, 2021

Rinvoq (upadacitinib) "This has been the best medicine. I feel like I do not have RA now. It worked quickly. Easy."

10 / 10

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Anonymous
Taken for 1 to 2 years
March 21, 2023

Rinvoq (upadacitinib) "Amazing medicine, has treated my rheumatoid well. No pain after meds used. Once per day."

10 / 10

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Liv...
Taken for less than 1 month
October 16, 2021

Rinvoq (upadacitinib) "My skin is breaking out after taking Rinvoq. Never had this problem in my life. It's not just my face, it's all over my body. It's only been 3 weeks. I guess it's time to talk to my doctor."

3 / 10

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14 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.