Tacrolimus and Tremors: What Users Say

• Ash...
• Taken for 5 to 10 years
• March 8, 2019

For Organ Transplant, Rejection Prophylaxis "I despise tacrolimus! It's caused me to go on insulin, whereas I was on pills first. I shake often. And worst of all, it's destroying my kidneys. It's hard on that organ. I'm 9 years out from a cystic fibrosis double lung transplant, and I truly hate this drug. If I ever need a second transplant, I'll think twice because I know what this program has done to me."

• Dav...
• Taken for 10 years or more
• April 24, 2018

For Organ Transplant, Rejection Prophylaxis "Tacrolimus (aka FK506) saved my first renal graft in 1994. Second renal graft in 2016, and tacrolimus is still working great. No side effects noted in 20+ years of use, except if the dose gets too high, some hand tremors."

• Nak...
• January 20, 2018

For Organ Transplant, Rejection Prophylaxis "I started taking tacrolimus 11 years ago. For the first 2 years, no problems. But then I started having reactions to foods, breaking out in bright red rashes, super hypertensive episodes, like 190/100. Shaking, itching, tongue burning, which goes from bad to bloody awful some days. I start choking, unable to swallow, and a severe rash that came on my face. Had to call the ambulance. It has completely changed my metabolism, where I can't take any other meds without serious reactions."

• mor...
• April 10, 2013

For Organ Transplant, Rejection Prophylaxis "I received a modified multivisceral transplant in 2008 due to a desmoid tumor. I had this surgery performed at U.P.M.C. of Pittsburgh, where I was blessed by God to have had amazing transplant doctors. I was on Prograf for the longest amount of time and had since been switched over to the generic. I had noticed for quite a while, however, that I do suffer from tremors, and lately, I have been having the feeling of eye twitching, which is slightly annoying to me, but I cannot complain, as without God and my medicine, I would not be here to share this. I have heard of long-term conditions down the road from others that I have come across, and Lord willing, that will not be my case, I have become diabetic. I hope this helps."

• r00...
• July 15, 2013

For Organ Transplant, Rejection Prophylaxis "Renal transplant 2000. No problems besides a slight tremor in my hands. Cyclosporine caused terrible reactions for me, immediately post-transplant. Had to have 6 plasma apheresis rounds to clear the cyclosporine and then smooth sailing on tacrolimus."

• Anx...
• January 26, 2013

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Prograf seems, so far, to be a great immunosuppressive medication. Bad - tremors and anxiety."

• ale...
• Taken for 10 years or more
• October 18, 2018

Tacrolimus for Organ Transplant, Rejection Prophylaxis "No problems of liver rejection from when I use Prograf (Tacrolimus), but I have some collateral effects like alopecia and tremors in my hands, and sometimes I feel buzzing in my ears. 9/10!"

• WD4...
• Taken for 6 months to 1 year
• May 24, 2018

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Been using Envarsus XR for over a year. Started at 1.75 mg and now at 1.5 mg. The most notable side effects are the tremors. Hands noticeably shaking. I'm adapting."