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Paliperidone for Schizophrenia User Reviews (Page 5)

Brand names: Invega, Invega Sustenna, Invega Trinza, Invega Hafyera

Paliperidone has an average rating of 4.2 out of 10 from a total of 282 reviews for the treatment of Schizophrenia. 28% of reviewers reported a positive experience, while 56% reported a negative experience.

Reviews for Paliperidone

  • Voice...
  • Taken for 1 to 2 years
  • November 29, 2017

Invega Sustenna (paliperidone) "I was going through thyroid storm because I had taken liquid iodine with thyroid pills. At the time I was having a episode... and forced treatment against my will. The doctor told me that it was the only drug I could take and coerced me into taking it. 432 mg shot that was nearly the twice the max dose. I didn't like it because before I was on a dopamine 2 and not dopamine 3 antagonist like this drug does. Absolute crap! Before the episode I was healthy able to run 10k in under 40 minutes on Seroquel xr.... and now I'm dealing with withdrawals and high inflammation that was .7 now 4.3 because of stupid shot. It'll make you not able to think or do your job. You'll lose interest in things like working out and being healthy. The drug is rubbish!!"

1 / 10
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  • Nina
  • Taken for less than 1 month
  • July 28, 2020

Invega Sustenna (paliperidone) "I checked myself into the hospital for being severely underweight, dehydrated and malnourished (I have suffered from anorexia nervous for a long time). Instead of giving me medical attention, the staff at the hospital took my blood and urine , and quickly received a court order to take invega and to be inpatient treatment. My blood pressure seemed to keep declining. If you think 80/40 blood pressure is alarming, you are right. The nurses who were making a ton of money off of me did not care. My blood pressure got as low as 70/26~ in the hospital, where people are supposed to be receiving care. This is a very traumatic experience for me, and I really just want to live straightedge and abstinent (no sex, drugs, drinking, or smoking)."

1 / 10
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  • Dust
  • Taken for 1 to 2 years
  • November 30, 2020

Invega Sustenna (paliperidone) "When taking Invega Sustenna you have either no emotions some days or it's out of control literally laughing crying and anger. Also if you're like me you can't hardly sit down makes me move a whole bunch."

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Frequently asked questions

  • Inawo...
  • May 12, 2017

Invega (paliperidone) "I feel like this medication is making me feel extremely depressed in a way I haven't suffered before. Unfortunately, my doctor says this can't be the case and it must be my condition ( despite the fact I have never felt this way before)."

2 / 10
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  • Mental
  • Taken for 2 to 5 years
  • March 11, 2022

Invega (paliperidone) "Would not recommend this drug it made me feel less like myself and more depressed. I never had things such as voices or hallucinations in my life and all the doctors wanted to tell me was I was a paranoid schizophrenic then the doctor decided to diagnose me bipolar on top of that. Be very careful who you trust and what you put into your body. Some doctors will try to convince you that there is something defective with your brain and that you need drugs. I have been off all psychiatric medications for 16 days now and haven't gotten the invega trinza for over 3 months and I'm starting to recover. I now am going to exercise 30 minutes a day, eat right and get plenty of restful sleep. Also invega could make you gain a lot of weight, as well as make your emotions so dulled down that you'll forget what you were like before. It should be illegal to use this drug on people especially when there's no real evidence that a person needs the drug."

1 / 10
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Are you taking this medicine?

  • Robbi...
  • July 13, 2021

Invega Sustenna (paliperidone) "Invega Sustenna was difficult at first. I felt very tired and would get headaches. I believe this was my body adjusting. After a few months, and now on the drug for a few years, I have had a great experience. I still have symptoms once in a while, but not as bad. With the education I was given, before taking the drug for my first time, I am now well aware of what a "symptom" is. I am prepared. The drug Invega Sustenna has only improved my thoughts, speech and dialect. As I would hear voices, preventing me from speaking clearly, Invega Sustenna has given be the ability to articulate my sentences. When I am ready, I will take either oral tablets or a 3 month injection. I think this will only help my limitations that I keep private. I no longer have headaches. I am no longer fatigued. I am in a good position and I am proud of the person I am becoming."

10 / 10
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  • jodubz
  • Taken for 1 to 6 months
  • October 8, 2016

Invega Sustenna (paliperidone) "this medication is the best anti psychotic i ever took, i'm getting the shot 244 mg, and the delusions and hallucinations are under control, this medicine is a life saver. the side effects i experience is anxiety and weight but overall it's a great medicine."

8 / 10
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More FAQ

  • Healed
  • Taken for 1 to 6 months
  • March 17, 2017

Invega Sustenna (paliperidone) "Hi folks. Have been on Vega inj. For 2months. Most hallucinations, auditory, visual, and mental gone. Has been a game changer for me as my life was completely unmanageable before. Still not leaving home much and have gained a few pounds nothing to drastic but it beats having conversations with people only I can see and not having a choice about it. Also my insurance wouldn't cover it, it's about $2000usd for 1month inj. Thanks, hope this helps."

9 / 10
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  • Smorn
  • Taken for 1 to 6 months
  • November 25, 2017

Invega (paliperidone) "I have been on this medication on and off for about 5 months now and it’s been rough I can’t think of anything positive to say about it I can’t sleep I have to take medicine just to sleep I have been feeling depressed and unmotivated and I have gained so much weight I use to weigh 165lb after getting back on this medication I am now 187lb after about a couple of weeks. I'd honestly rather that I have delusions and hear voices than to have life stripped away from me like this. I am not hearing voices but my doctor still wants to keep me on it no emotions or feelings on this med currently on 156mg injection"

1 / 10
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  • h0m39...
  • Taken for 2 to 5 years
  • February 8, 2018

Invega Sustenna (paliperidone) "So I've been on this medication since 2014. Diagnosed with schizophrenia back in 2011 when I told doctors I was visited by spirits at a young age. They didn't believe me though I swear on my life it is true. Anyway, I was on 150mg. Had the worst side effects you could imagine. Very high prolactin levels, lactating from my breasts, amenorrhoea, absolutely no motivation at all, pretty much glued to my bed & phone. So they adjusted my dose twice & now I am feeling a bit better. Not a lot better though I would say. They say that a schizophrenia diagnosis is something you deal with for life so I would be careful what you tell your doctors. You could be on medication for life."

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  • Three
  • Taken for 1 to 2 years
  • August 27, 2019

Invega (paliperidone) "Stuff is great, works very well actually makes you work on problems in a more sober state. Definitely increased my sex drive. Life is getting better and better with time the longer on it the better I get. Works overall for about 98% of the hallucinations the voices are still ongoing butt for they're a lot better now only sometimes bad for the most part not"

10 / 10
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  • Barry
  • Taken for 1 to 6 months
  • August 22, 2019

"Made me have no thoughts, emotionally numb, worsened my psychosis, temporarily evaporated my personality. Couldn't do anything enjoyable. Been off it for 2 months, slowly gaining my former self and confident I'll be back to 100%. Don't take this drug"

1 / 10
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  • Helpm...
  • Taken for 1 to 2 years
  • November 6, 2021

Invega Sustenna (paliperidone) "When I was on the 75mg injection I wouldn’t stop gaining weight my weight went from 104lbs to 136lbs and was increasing with crazy hunger. I had bad acne from this medication, no period, couldn’t workout, went to bed at 6:00pm, lost my internal voice, couldn’t think at all. They dropped me down to 50mgs and the weight persisted. They then spaced out my injection to five weeks apart and I dropped some weight but not enough to be proud of I’m around 120lbs still don’t have a period, have crazy hunger, no internal voice, can’t perform like I used to, have puffy eye lids, one drooping eye lid, can’t use my imagination, bad memory, can’t lose weight, don’t sleep at night and the side effects keep piling up. It has taken away my voices during the day and my delusions."

5 / 10
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  • anong...
  • Taken for 1 to 2 years
  • April 11, 2019

Invega Trinza (paliperidone) "I have been on this injection since 2017. Received the monthly injections for about three months before my doctor noticed my remarkable stability in mood and made the switch to the tri-monthly injection. When switched to the tri-monthly injection, I noticed that in the third month of being on it, my symptoms of paranoia and delusions would flare up. I've learned to live with it. However, my sex drive is completely gone and my menstrual cycle is TOO light. As well, there are nights that my insomnia flares up. Have not gained any weight but I haven't lost any either. To counter all the bad side effects, I have to say that this is the longest that I have been out of the hospital. Besides the odd paranoia/delusions in the third month, I don't hear any voices like I used to or experience a full-blown manic episode (diagnosis is schizoaffective with bipolar tendencies)."

6 / 10
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  • Anonymous
  • March 12, 2010

Invega (paliperidone) "Invega is a great medication. I can speak more clearly and think more thoroughly. I've felt better about myself in almost about 2 years, and I've been on this medication for about 2 weeks! I would recommend it to anyone with this diagnosis!"

9 / 10
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  • Alexa
  • Taken for 2 to 5 years
  • October 23, 2019

"Since being injected with paliperidone, I have put on weight, from 10 stone to 11. I try to control weight gain eating next to nothing due to a reduced metabolism. I have lost muscle tone and motivation, I used to be a keen cyclist, artist, photographer, amongst other hobbies but now (although I have a degree in architecture) my brain is foggy and I can't even play computer games without feeling anxious from the effort of trying to concentrate, the same applies to reading novels, which I have given up on. Sometimes it scares me when my heart goes very quickly, since my jags started. I used to do Michael Jackson impressions but now I can barely dance at all. My emotions are flat; I rarely cry (the only plus side) and rarely laugh, so my friends say I've become very quiet, especially as my mind is usually emptied by the drug so I don't contribute much to conversation."

1 / 10
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  • delucz
  • January 13, 2014

Invega Sustenna (paliperidone) "I found this medication to cause side effects of swaying while standing up & sometimes rocking back and forth whilst sitting down. Because this is taken monthly I am on 150mg, towards the end of the month I became unwell and psychotic symptoms reoccurred. Delusional thoughts mainly. I am now going to try Abilify and hope I don't have bad side effects but I know that without my medication I would relapse. "

5 / 10
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  • TinyC...
  • Taken for 5 to 10 years
  • October 20, 2022

Invega (paliperidone) "First schizophrenia is a hallucination disorder caused by a defective gene responsible for glutathione s transfarase which detoxifies a naturally occurring hallucinogen in the body. I showed my shrink a nutraceutical program that maximum medical cures schizophrenia. He said go to med school. The tranquillizer does not address the hallucinogen but it does plug up all the neurotransmitters that are affected by the hallucinogen. I’ve been taking invega sustenna for 5-7 years and yes; half life is a month, it causes brain damage and nobody has enough money to file a class action, it gives you limp dick or broken menstrual cycles, and relapsing off the medication causes withdrawal syndrome that is more dangerous than crack withdrawals. The alternative to any drug like this is; living on the street and under bridges, living with emotional variety from lunatic to fanatic, losing touch with reality and terrorized by hallucinations."

4 / 10
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  • Anony...
  • June 5, 2018

"On a high dose it was worse. But, even on a low dose, I experienced poverty of thought, slow movement and thinking, not being able to memorize anything, not being able to think creatively, a huge IQ drop, inability to learn new things, muscle cramps, a weight gain of over 30 kg, akathisia, loss of periods, breasts sagging and becoming heavy and lactating, muscle seemingly wasted away, swelling in my feet and legs (possibly edema), extremely high levels of prolactin in my blood (over 1, 700 MUI), lack of motivation, infection in the site of injection, high cholestrol, difficulty absorbing nutrients, suicidal ideation, stretch marks, flat affect in my face, emotions flat like a zombie with no happiness or pleasure and more. I have stopped taking the drug for about four months now, but I still experience side effects, including loss of period. I'm only 27 years old but I'm worried the drugs have made me permanently infertile."

1 / 10
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  • Vandkk
  • Taken for 1 to 2 years
  • June 12, 2022

Invega Sustenna (paliperidone) "I loveeee invega. It has helped me with my schizophrenia 100%. No more delusional thoughts and paranoia. No more of this fearful feeling. My life is bright and back to normal. I've been taking it for 2 years. The only side effect I've had is hyperproteinemia. It stopped my periods, had liquid coming out my breast. You know.. symptoms of high prolactin levels. So my doctor put me on ability along with a lower dose of Invega Sustena and within a month and a half I had my period and my prolactin went back to normal. I never want to get of this injection because it REALLY took away my mental health problems. I would definitely recommend. Works like a miracle"

9 / 10
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  • RBano
  • Taken for 1 to 2 years
  • December 4, 2019

Invega Sustenna (paliperidone) "Took 100 mg of the paliperidone drug (european dosing) when I was psychotic and, for 1 year (same dose, later added 20 mg Zyprexa), while the psychosis had gone, delusions and hallucinations persisted the entire time. Also, it raised my prolactin level to rocketing levels (2000 mIU/L). Although it kept me away from psychosis, there are better alternatives for the disease."

3 / 10
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  • Brolo
  • Taken for 1 to 2 years
  • February 22, 2018

Invega Trinza (paliperidone) "This drug is the worst thing that has happened to me. At first I was over medicated this drug caused my tongue to tic the upper part of my mouth. I would have all sorts of hallucinations and delusions which have gradually gone away as the medicine has been reduced to the recommended dose. Not only to mention I was only experiencing delusions prior to medication. They have gone away now but it seems as though my thoughts echo mimic align with sounds I hear. Also, it feels as though there are bugs under my skin due to micro muscle spasm. Worst part about this drug is that it causes you to zone into things like stare at things or become immobile in your line of vision. Which this only happens occasionally it really is difficult to drive or hold down a job. I have heightened energy level with adding Abilify. As this Invega Trinza causes couch lock not no energy, no motivation, and no drive. At least on this medication I don’t experience sexual dysfunction."

1 / 10
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  • Mille...
  • Taken for 5 to 10 years
  • June 18, 2017

Invega Sustenna (paliperidone) "I've been taking invega (all forms) since 2011. I have to say it is a god send. Risperdal and abilify gave me sexual dysfunction. This at least allows me to get an erection. It's done a great job at controlling my positive symptoms of schizophrenia. The voices are dulled down to the point of single sentences and like only 1-4 times a day so it's a lot more managable in day to day life. Started on sustenna, went on the tablets and now on Trinza. All versions work very well for me. This medication is the metabolite form of risperdal and it's a god send. It's easier on the liver and I highly recommend sustenna and Trinza as the form to take for schizophrenia/schizoaffective!"

10 / 10
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  • Rose
  • Taken for 1 to 6 months
  • April 29, 2020

Invega Sustenna (paliperidone) "Taking this drug invega sustenna helped a bit with my schizophrenia symptoms. The side effects on the other hand were something else. I was significantly slowed down both mentally and physically. I did lose about 5 pounds and lost interest in food most probably due to feeling really depressed about my condition. I also couldn’t stop walking about, I couldn’t sit still anywhere for up to 2 mins. I also had abnormal muscle movements, my vision became really bad and blurry and I was drowsy all the time especially after taking a dose."

3 / 10
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  • turtle
  • Taken for 5 to 10 years
  • March 14, 2019

Invega Trinza (paliperidone) "I been on invega trinza for almost four years for my schizophrenia. The first side effect I had was weight gain over 70pds. I stopped having my period due to high prolactin. I also found out I have high triglycerides, high cholesterol, and low white blood cell count. I have schizophrenia so I do need this medicine. But seriously weighing the side effects I have against the mental stability I have."

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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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