OnabotulinumtoxinA for Urinary Frequency User Reviews (Page 5)

• skyli...
• August 22, 2020

Botox (onabotulinumtoxinA) "I have had Botox surgery 2 times in a year for urinary issues, but do not find the results to be that great. I have a lot of UTI's and have to use a catheter all the time. It has helped some so probably will continue with Botox in future. I do not think the drug works as well as it should or does not work as advertised."

• Tapper
• March 14, 2019

Botox (onabotulinumtoxinA) "I had Botox last Nov 2018 for my bladder and I hate it - it has changed my life. I go through more pads now and had to change to the bigger ones. I can't go anywhere for any length of time. I walk around the block have to come in and change a pad. Other then my surgery it was the worse thing I did. BUT I had to try I was desperate to get my life back. But I realize now that the life I had was okay, and now its gone. Good Luck"

• Lulu
• February 20, 2019

Botox (onabotulinumtoxinA) "I had Botox for the second time 23rd Jan and a week later I had to go to A&E as I couldn’t wee, they tied to put a catheter in but I was screaming crying as it was so painful, they eventually got it in and I had retained 518mls, I don’t use catheters now but the sensation I get when I need to go is painful and I’m finding I have to squeeze the last drop out, I also get a shivering/shuddering sensation as I start to wee. The first time I had Botox was brilliant no problems at all that’s why I agreed for a second treatment, I’m never having it done again all I think about is my bladder, I’d rather wet my self than go through that again, can’t wait for it to wear off"

• Vicky
• Taken for less than 1 month
• September 21, 2018

Botox (onabotulinumtoxinA) "Had it done today. Worked for me right away. For once I feel normal again. That being said, I was given a percocet and valium one hour before procedure. Still felt half the needle sticks in bladder. Scale 1 to 10 , it was a 5.. but it was quick..Results almost immediate. I feel like my old self! I'm a 58 year old woman that had to double up on pads just to walk my dogs..Can't wait to walk them now."

• Camel...
• July 25, 2015

Botox (onabotulinumtoxinA) "After many years of mesh implants, gyroscopes, and prescriptions, I had the big injection. So far I am just upset. I have finally been able to stop the oral medications but not stopping wearing several pads per day and now the catheterization at night before bed. My doctor says it will get better when some of the effects wear off. Whether or not I will do thus again remains optional. My insurance has agreed to pay for the procedure so I still hold high hopes for a good outcome!!"

• Dental
• Taken for 1 to 6 months
• June 3, 2020

Botox (onabotulinumtoxinA) "I'm a relatively healthy 29 year old male and botox did nothing to help my over active bladder and urge incontinence, I had 100 units of botox injected, about 6 weeks ago and the only thing it has done for me is that it is more difficult to empty my bladder, I really have to push it out. So I feel like if I do have another treatment with more units, it seems like I wouldn't be able to pass anything and will have to use a catheter like others have explained which I'm not ok with. Back to physio training and seeing how that goes, bit of a waste of money the botox was but worth a try"

• Jayms
• Taken for 1 to 6 months
• June 18, 2016

Botox (onabotulinumtoxinA) "I had botox in my bladder because of nerve damage in my back i had to go sometimes every five minutes and could not leave the house. Its four months after first treatment. I still can not urinate at all unless I self cath. Sometimes five times a day sometimes ten when i take water pill for heart condition. Cant get answers if this is normal"

• Cooper
• Taken for 1 to 6 months
• November 10, 2018

Botox (onabotulinumtoxinA) "I deeply regret being talked into getting a botox injection by my specialist. I have an extremely small bladder capacity (about 100ml at best) and extremely high bladder pressure of 100 per 50 ml....This meant I was going to the toilet to pee every 20-30 minutes or so. It was frustrating, but somewhat manageable by wearing uridomes and leg bags. I was talked into undertaking a botox injection by my specialist and it has completely backfired for me. I am now urinary retentive and cannot pee at all. I have a constant sensation of having a full bladder and am needing to self catheter every 1-2 hours, day and night. Apparently I may be like this for several months until the effects of the botox start to wear off. It is now costing me a small fortune buying catheters, lube, hand sanitiser etc....I am going through about 70-90 catheters per week, so it adds up very quickly."

• JenF
• December 14, 2016

Botox (onabotulinumtoxinA) "I have been dealing overactive bladder for years. I tried different medications and they would either stop working or send my blood pressure sky high. My doctor and I decided to go with Botox. I know there is a chance of having to self cath. I asked to have a smaller amount than normal to see if I tolerate it. I did it yesterday. I initially had burning and some other things but that has stopped. Apart from being tired, I am ok. I am still urinating ok, which is good. I have an appointment in a few weeks to see if I am retaining urine. I will update when I go back."

• Leaky...
• December 30, 2015

Botox (onabotulinumtoxinA) "I have read all the posts and they all sound very similar. I will tell you I had the problem since I was a small child but it was chalked up as being a bed wetter. No treatment. Got married and symptoms not only worsened with intercourse but was treated as bladder infections instead of sever IC (was never diagnosed until many many years later). After having three children the spasms were so intense with the severe pain of IC I thought I would loose my mind. Pads were my best friend for the most part but would not be able to control the urine with the intense spasms so had a lot of wetting accidents even after taking every med created to treat the spasms to no avail. The vicious cycle became quite depressing. Always making sure I knew where.."

• Fiano
• Taken for 2 to 5 years
• July 3, 2019

Botox (onabotulinumtoxinA) "Hi i have an over active bladder, tried lots of tablets that worked for awhile then it wore off. I've required botox approx. once a year for four years. On two occasions I've had flu like type symptoms a couple of weeks after that have lasted for two weeks. But it's well worth it. I've always chosen to go for general anaesthetic as I was too scared to go for local. Today, my Dad went for bladder botox under local. And Dad said it was so painful they had to stop. I keep getting asked to go for local. I think this is to save money. I could be wrong. (Scotland)"

• jimbo
• Taken for 1 to 6 months
• January 14, 2019

Botox (onabotulinumtoxinA) "3 months ago I had my first injections. It made it so I go even more often in my pants. I read where someone did it a second time and they got better. I go in tomorrow for my second try. Mine is worse now than before I started treatment. I damaged something from my radiation. I was great until my 40 treatments of radiation. I hate wetting myself and feeling so dirty. I even decided to retire at 61 because sometimes I'd wet myself in front of customers. I pray this time it works. It's very depressing so now I am on depression meds. Wish me luck"

• ladiedi
• Taken for 1 to 2 years
• February 19, 2019

Botox (onabotulinumtoxinA) "So far the best decision for me. Had the injections Jan. 19, 2018 and is still working I make an appointment every month just in case but so far so good! I am so sorry for other peoples nightmare results as I must be one of the lucky ones!"

• HLano
• Taken for 1 to 6 months
• August 17, 2019

Botox (onabotulinumtoxinA) "My mom had the Botox injection done two months ago, the worst decision she’d ever made. She’s was in a lot of pain when she had it done and still experience pain here and there till this day along with other side effect. People should read up on common and rare side effect from this procedure, weigh out pros and cons. Please think carefully before you decide to go for it. It’s awful to see my mom going through this whole ordeal and unable to help her."

• Melme...
• December 19, 2015

Botox (onabotulinumtoxinA) "Hi I just got the highest dose of Botox in my bladder 6 days ago it hasn't started working yet! Can anyone say how long till they felt better? I have severe over active bladder no meds worked and I'm so desperate. I'm 38"

• Col
• September 2, 2017

Botox (onabotulinumtoxinA) "I have had overactive bladder for many years and have found Botox to be a life changer. It has made a big difference to my quality of life, although I am still wearing protection at night. The only down side is having to wait so long for repeated treatment when the effects wear off as symptoms seem to come back with a vengeance. For me it lasts for about 4 months. Yeah I have to self catheterise but I don't think that is much of a problem. Can't wait for my next dose as I have frequent accident without it."

• dmariep
• Taken for 1 to 6 months
• December 20, 2015

Botox (onabotulinumtoxinA) "I had Kenalog injected along with the Botox, the kenalog worked right away, but it took about 2 weeks until the Botox kicked in. It has about 7 months now. I had no pain for at least 6 months. The symptoms are just now starting to come back. And I should say they are coming back with a vengeance. Starting to get the sharp shooting pain in my uretha and the itching and burning in and around both my anus and vagina. I should make note though that my doctor did say the 5 ulcers now have combined into 3, and the largest one he said is on the left side, and that is the side that I have the most pain. But it was really great for 6 months not to have to worry about repeatedly having to find a restroom that's near."

• Sally
• March 19, 2019

Botox (onabotulinumtoxinA) "Best thing I’ve ever done, I had urge incontinence and was rushing to the loo all the time. Had 200 mgs of Botox. It was very uncomfortable having the injections but didn’t take long. Had a bad month where I thought "I’m not having this done again", but then it settled in. I sleep through the night. I have to self cath about 4 times a day. I can now go 5 hours without wanting to go. I’ve booked three holidays and regularly go out walking and travelling on public transport. Definitely a life changer."

• Golde...
• Taken for less than 1 month
• December 16, 2019

Botox (onabotulinumtoxinA) "Had Botox 2 weeks ago, it was not painful. But a week later started having problems urinating. Then 3 days ago, bladder would not empty at all, ended up in hospital with an in dwelling catheter. My urethra is that painful. It’s early days, but I doubt if I will any more Botox, take me back to leakage!"

• Turke...
• Taken for 1 to 6 months
• February 29, 2020

Botox (onabotulinumtoxinA) "I have to update after reading many reviews everyone’s different It is very uncomfortable while being injected but since it works that’s all that matters Yes I have to self cath not easy for women but as I told my doc in check up it’s so worth it I never want to go back to the need to find the closest bathroom everywhere I go Or get up 4 times a night to urinate Bottom line it gave me my life back. So in my opinion it’s worth the discomfort and the cathing"

• Sad...
• Taken for less than 1 month
• December 11, 2019

Botox (onabotulinumtoxinA) "This procedure has been a nightmare for our family! My sister and I drove her 90 year old husband for this. I live with them and we so regret it!!! Maybe more problems because of his age? He came home in horrible pain and threw up for 2 days. He was going a lot more and so sick and in so much pain after 5 days -we took him to the emergency room. They put in a catheter until he could go to his Dr Monday about 50 miles. They took the Cath out and he can't go at all now!. Then we heard from my other brother in law tell us about having it done also a few months ago. Very painful and he will never do it again. The Drs didn't seem truthful about what might happen and the horrible pain. We hope his bladder will start working again. Drs should have to share percents of problems from this! My 2 family members wish they never had it done. Is it worth the odds of it helping or the potential life changing side effects!??"

• Astro...
• Taken for less than 1 month
• October 21, 2018

Botox (onabotulinumtoxinA) "I am so pleased! I had horrible pain and leakage, so much so that I would wet myself several times a day. I suffered for years! Diapers with pads couldn’t hold all the leakage. I had Botox last week, and from day 1 have had no leakage. I do have a little urgency, but I expect this to get better, and it’s not constant. I did check my residual urine amount via catheter to make sure I was not retaining. I found this very simple to do, and quite reassuring. It was a little scary to have the Botox simply due to fear of the unknown, but everything is great and I’m so excited to have my life back!"

• Jms
• Taken for 1 to 6 months
• November 11, 2017

Botox (onabotulinumtoxinA) "I was very unsure about going ahead with this treatment, but nothing else had worked and have had OAB all my life. From the start of all the OAB treatments that failed and inconclusive results to my first 150ml injection was around 18 months. End of line treatment was Botox or acupuncture, so I opted for Botox. Well, it was definitely worth the wait and the procedure was very straightforward. Fully prepared with my chosen catheters ready to be used, I was pleasantly surprised to find I hardly used them. No UTIs, just a life changing feeling of no urgency. I've read some horror stories on here, maybe I'm lucky. Not getting up in the night anymore, no urgency, catheter free, it's the only treatment that's worked for me!"

• Tee
• August 28, 2018

Botox (onabotulinumtoxinA) "I'm 20 years old, I was diagnosed with an overactive bladder a year ago. I have tried many pills and none of them have worked. I used to always walk every single day when I was bored or had nothing to do. I was outgoing but my background was really unhealthy, I was always depressed ever since I been like this I have had bad anxiety and depression. I always got sad when my family would travel somewhere out of town especially my partner to. I always wished I went to. I had Botox done on July 24 and it hasn't changed a bit. I haven't tried any thing else but I always wondered if anyone has been in my boat and felt like going all the time but embrasses to go every time you have the urge.?"

• Fancy...
• Taken for 1 to 2 years
• June 21, 2019

Botox (onabotulinumtoxinA) "I had this done by a urologist over a year ago and that's the worst thing I could have ever done because it backfired on me. I have multiple sclerosis and I was told by the doctor because I tinkled a little bit when I coughed or sneezed that this would be a great thing for me so I wanted to do that because I didn't like the sneezing and cough problem. 2 days later after having injection I was in the ER with severe pain like I had the worst bladder infection a person would not want and then they gave me a suppository and that helped but that didn't last long and when I went back to the doctor who did this Botox all he could say was I'm sorry It didn't work for you and it ruined my bladder that now I have to wear briefs and this is really out of control so I would not recommend anyone because it didn't work for me and for the ones that did work for I say great for you..."