OnabotulinumtoxinA for Urinary Frequency User Reviews (Page 2)

• Kich...
• Taken for 1 to 6 months
• July 23, 2016

Botox (onabotulinumtoxinA) "I had Botox for overactive bladder six weeks ago and it's been nothing more than a nightmare for me. My main issues were frequency and bladder spasms and the Botox has only worsened these issues. I initially experienced a great deal of bleeding with large clots for 12 hours which I was unaware could occur - only slight spotting had been mentioned. Within a week I could no longer urinate and a Foley catheter was inserted. Six weeks on, my bladder remains seized and despite a number of attempts to remove the catheter, my bladder hasn't improved. I have had two uti's and been admitted to the emergency dept for severe bladder trauma, urine retention and uti. I have suffered extreme anxiety as a result of all of this. It's not for everyone!"

• Sabri...
• Taken for less than 1 month
• February 11, 2020

Botox (onabotulinumtoxinA) "I had the procedure today at the hospital and the doctor that was doing my procedure said it would be just a little pinch. Well she lied it hurt and burned like I don't know what. Never felt anything like it. I told her many times to stop she continue to torture me. who ever said this procedure and isn't painful is extremely lucky or under anesthesia. This procedure is very painful. I will not complete any follow up treatments"

• rqmonty
• Taken for 1 to 2 years
• August 25, 2015

Botox (onabotulinumtoxinA) "I agreed to a Botox injection to treat frequent urination when all other treatments failed. Since the Botox injection I have the urge to urinate almost all the time. When I can pass small amounts of urine the pressure is often still present and urgency sometimes returns in as little as 20 minutes. Sometimes I cannot pass any urine. Even when I can pass urine, about 150 to 200 cc remains in the bladder and I have to use catheters. I have to stay close to a restroom all the time. I was told the Botox would wear off after a year but here I am about a year after the Botox injection and I'm still using catheters to empty my bladder as often as needed. There has not been any noticeable change. I'm beginning to think that my bladder functions will never return to at least as good as before the Botox injections. What a huge mistake. What a gullible victim I've been."

• CAN...
• Taken for less than 1 month
• October 5, 2015

Botox (onabotulinumtoxinA) "I was a basket case. Had the sling (we all know how THAT went - grew in to my uterine wall and had a full hysterectomy with some still left inside), Detroit LA, Vesicare - first 5mg then 10mg then doubled up on the 10mg (THAT got my GP's attention. Referring me to Uro-gynecologists where I FINALLY had a concrete diagnosis of a spastic bladder (was always told I had a prolapsed bladder!). Botox or permanent cathater were my only 2 options. Botox it was! Besides an excruciating experience with the injections (the Dr. RINSED out the lydocaine half way through the process because she saw "debris" in my bladder and didn't re-apply), it's been 6 days since my injections and I literally feel THE BEST I've felt in years!"

• Sophhee
• Taken for 6 months to 1 year
• April 27, 2016

Botox (onabotulinumtoxinA) "I think it depends on if you really suffer with this condition or you just wee alot as to wether you will appreciate it. I'm 30 years old and for the last 5 years I've had to wear adult nappys to bed (which more often than not, leak) this is humiliating. I already suffer with borderline personality disorder, depression, Fibromyalgia, IBS, Stomach ulser and now this! It was making my life hell. I had my first injection last year which did decrease the frequency I had to wee and stopped the leaking bit unfortunately didn't stop having to wear adult nappys at night, BUT this changed my life!! I will be having my 2nd injection on the 9th May, higher dose this time, if you don't appreciate what this does you didn't suffer beforehand."

• Anonymous
• April 9, 2017

Botox (onabotulinumtoxinA) "Ok an update on my Botox treatment , close to 3 weeks since I had this done , it kicked in faster than expected and what a relief to not wear pads for the first time in years and the urge to go has basically gone and now I can sleep all night , a Huge Huge plus , now what many call the down side to the botox is the self cathing , for me I don't see this as a real down side , it takes just seconds to cath and its no big deal to me , it is such a small price to pay for the huge benefits , but thats just my opinion , cath 5 or 6 times a day , or tinkle every 30 minutes and constant leaking , I'll take cathing hands down"

• Arose
• June 21, 2016

Botox (onabotulinumtoxinA) " I had my injections last Wed. I had to go to the ER last night for Major Acute Water Retention (can't pee). I have to wear a cathater with the bag. I'm pretty sure I will have to self catherize until the Botox wears off. I wish I never did it, it paraylayzed my bladder. I will never have it done again. On the other hand I'm glad I'm not the only one that suffers from OAB I'm 36. Very disappointed why this had to happen to me, quality of life is worse with the Botox at this point I'd rather wear depends. Please do not to this procedure. PLEASE the possible side effects are not worth it at all."

• Anne...
• Taken for less than 1 month
• August 21, 2016

Botox (onabotulinumtoxinA) "Just had this done 5 days ago, finally something that works, after trying various medications for nearly 20 years, no more incontinence pads during the day, and had first night sleep without getting up 3 or four times to go to toilet. I would recommend this. Only wish it had been done years ago. I know its early days yet for me, but great improvement so far."

• WeakB...
• Taken for 6 months to 1 year
• February 11, 2016

Botox (onabotulinumtoxinA) "This has been a nightmare. When the botox started working, I was barely able to urinate at all and my partner had to rush me to hospital emergency to get a catheter put in. My bladder was completely paralyzed from the botox. This treatment is really brutal! I had to then self catheterize 3 times per day for about 2 months until the botox wore off enough that I could urinate, and I've had multiple UTIs since then, which is another side effect of this treatment. If a doctor offers you this treatment, run a mile! Its not worth the pain and suffering that you will go through. Now, after 7 months, the botox has mostly worn off but its still difficult to empty the last bit out of my bladder because the bladder muscle is still partially paralyzed"

• GHC
• April 6, 2015

Botox (onabotulinumtoxinA) "My brother had Botox done last year for Bladder problems with MS. It has been the worst year since been diagnosed 20 years ago. He wasn't told he would need to use a catheter and he has severe vision problems. Has had constant UTI's terrible pain from using catheters and developed hemarrhoids after having Botox done. Now Botox worn off and still needs catheters and is in pain. He has been told he'll need to have more Botox so he won't feel the pain. Complete disaster and very costly trips to specialists."

• Esmer...
• Taken for 10 years or more
• March 1, 2017

Botox (onabotulinumtoxinA) "I've been receiving Botox every 4 months for severe OAB for the past 10 years. Without it I need heavy incontinence pads or adult diapers. With it, I only experience an occasional small accident about 2 weeks before treatment and need no pads at all. It completely changed my quality of life for the better."

• M Gg
• Taken for 1 to 2 years
• February 17, 2017

Botox (onabotulinumtoxinA) "I've had Botox injections 3 times. The 1st time I developed symptoms after a week which made me go to the ER. My bladder was on fire! The Botox only lasted 4 months. The second time, I had zero symptoms and it kicked in right away. The Botox lasted 8 months. The third time, which was yesterday, hasn't kicked in yet but I've been having bladder pains which is relieved after emptying. But I wrote this to say that everyone is different so you can't really go by our reviews - try it out & if you don't like it, don't get it anymore, simple as that. Also, I've found it to last longer while also taking Ditrapan 10mg once a day. Ps. Someone said it's more expensive for males which isn't true, it all depends on your insurance."

• Galway...
• July 3, 2016

Botox (onabotulinumtoxinA) "One week after Botox treatment, I was and still am miserable. I have had utis and urinary retention. Following a trip to the ER, I was fitted with a catheter, which was pretty uncomfortable. Next came self catherization, which has been nearly impossible, due to my bulging bladder. I would rather wear depends than go through this ongoing nightmare. I resent the fact that my doctor only mentioned retention casually and did not explain the consequences."

• RB2020
• May 28, 2017

Botox (onabotulinumtoxinA) "An update from my post on March 7- I still cannot empty my bladder and have to self-cath. The Botox treatment was December 21, so now it has been five months! I am beyond frustrated! I have no idea when and if my bladder will ever be normal again."

• Mazza...
• October 11, 2016

Botox (onabotulinumtoxinA) "Had Botox for overactive bladder 12 days ago. Been miserable ever since, pain is as bad as ever and I have gone into retention so now having to self catheterise up to 4 times a day. Will now need to wait for the Botox to wear off to see if I can pass urine normally again. 6 months of pain, throbbing, pulsating sensation and the constant feeling of needing the toilet and I thought Botox was the answer, instead it's made matters worse!"

• Having...
• Taken for 6 months to 1 year
• January 30, 2017

Botox (onabotulinumtoxinA) "For years I've had to deal with my overactive bladder. I went on various prescription drugs only to have bad reactions, the worse being severely dry eyes causing a tear in my cornea, it did not put me in my happy place. In 2007 I had a bladder suspension which stopped the peeing when I laughed, coughed, sneezed or cried. That change my life but I still had that "key in the door" peeing sensation. I still had to find the bathroom every time I entered a mall or grocery store. I found the best urologist. We tried the interstem. Unfortunately I herniated a few discs in my back due to a car accident. The interstem had to come out in order to have a MRI. I have had Botox 5 times now. It's amazing. now I even get injections in his office & awake"

• owl
• Taken for 2 to 5 years
• July 27, 2016

Botox (onabotulinumtoxinA) "I have had Botox injections often over the past three years. For me they last about six months. My doctor performs the injections under general anesthesia so I don't feel a thing except for the IV that is the worst part for me. I have only gotten one UTI from the injections. I have Multiple Sclerosis, the doctor I have is knowledgeable about MS. We tried four different meds which didn't work. I have good luck with the injections so I plan on sticking with them."

• jiljen
• August 4, 2016

Botox (onabotulinumtoxinA) "I had botox bladder injections just over a week ago and wished id never let them anywhere near me. I suffer with severe over active bladder disorder, intersticial cystitis and have done all of my adult life I thought, prayed this would be the answer. A week on and i'm in so much distress and discomfort and at my wits end. God only knows if its such early days what else is to come. Im being treated for UTI even though the test showed negative but it was worth a try. On reading the posts on here it seems I'm not alone. Im hopefully seeing my Doctor tomorrow but not really sure what they're going to do. I am so fed up but it is reassuring to know im not the only one. This condition is a curse that no one can understand unless they've lived wi"

• JeninDC
• Taken for less than 1 month
• December 17, 2016

Botox (onabotulinumtoxinA) "I had the procedure done just a few days ago and it has been wonderful. I've had a few minor side effects like a UTI and some burning, but other than that, I'm doing well. I know it takes a few weeks to kick in, so I will update accordingly. If I have to complain about anything, it's that my insurance requires that this is done in the surgery center, so I lose a day of work. I planned for this so it was fine. I went to the mall last night and realized that I had been there for hours and didn't need to run to the bathroom every 10 minutes. I have to go for a check up in 2 weeks. I am urinating on my own, so that's good. I think this was a good decision. Again, I will update next week with any side effects."

• Guaguin
• Taken for 1 to 2 years
• April 15, 2016

Botox (onabotulinumtoxinA) "I got my second round of Botox yesterday. First one was in 2014. I think that depending on your doctor's experience and acknowledge with this medication is how you will get better. If your doctor put to much medication will not be good for you. Thanks to my doctor I feel better."

• Kerri...
• Taken for less than 1 month
• August 12, 2016

Botox (onabotulinumtoxinA) "I had Botox in bladder 10 days ago and it has only made my bladder worse.instead of going to the toilet every 20 minutes I'm now going every 5! I'm not sleeping and have had really bad urine infection! I was back in hospital on Sunday! I would not recommend anyone getting this done. I have suffered with bladder problems for 17 years and getting really down about it all now! I have no idea what to do now."

• Miser...
• September 17, 2015

Botox (onabotulinumtoxinA) "Worst decision I ever made as I am far worse now with frequency, always feeling like I need to urinate, UTIs and pain. Can't sleep at night with going to the bathroom 8 or more times, and lack of sleep triggered my depression."

• Christy
• Taken for less than 1 month
• November 4, 2019

Botox (onabotulinumtoxinA) "I got botox October 1st 2019 for urinary problems and they said it takes anywhere from 2 weeks to 4 weeks to 6 weeks to work. The procedure is very painful. And takes about 1 hour. The aftermath this has caused I would never wish on anyone. I'm peeing every 15 min to 5 mins the procedure weaken the bladder and made me worse. Don't have it done."

• Happy...
• January 25, 2021

Botox (onabotulinumtoxinA) "I used to pee about hourly and about 5-6 times a night. Botox suggested. Had botox and ended on toilet every 5-10 minutes. Warned to expect frequency. Hours later crippled in pain from continual peeing then had blood in urine. Had ultrasound of bladder to measure residual urine which showed 60ml residual after peeing. My bladder holds 50-70ml. Needed catheter to give me some rest. Went home with indwelling catheter. No antibiotics before or after botox. 2 weeks later now 2-3 bags of blood each day in bag. No visibility in bag due to blood and stringy clots 4 days in a row. Told nothing to worry about at local hospital, antibiotics injected and got tablets for bladder infection. Wishing I was never pushed to try botox by Urologist. Returning to remove catheter for 1 day in a few days, to see if successful & teach self cathing. This means toileting 15min - 1/2 hour and 1-2 hours at night with self cathing. Would not recommend botox for bladder issues requiring bladder surgery."

• BKano
• May 20, 2017

Botox (onabotulinumtoxinA) "First had Botox injections March of 2016. Doctor stated it would last six to nine months. Lasted 13 months and no side effects. Last week had my second injection as an outpatient. Took about five days to have me back to normal. Best choice I made for my OAB. No problems at this time and hoping it last at least nine months."