OnabotulinumtoxinA for Urinary Frequency User Reviews (Page 4)

• Dano
• May 6, 2021

Botox (onabotulinumtoxinA) "I had Botox 8 months ago all I was told was how good it would be to help my over active bladder, 2 days after the procedure I couldn’t pee at all for 3 months I wore a bag on my leg then I ended up real sick and got sepsis and almost lost my life. I was on 3 different antibiotics while in the hospital. Then after 7 days in the hospital then still had to come home on 2 weeks more of levaquin which is dangerous in itself. I still had to come home and self cath which I am still doing in an 8 month time frame and have had 3 more kidney infections since coming home from the hospital now my kidneys have scarring on them and I still can not use the bathroom on my own or empty my bladder!!! Everyone has their own experience and mine hasn’t been good!!! I would read all reviews and do ur research before having this procedure done!!!"

• Lou
• September 25, 2017

Botox (onabotulinumtoxinA) "I've had bladder problems since the age of 13, got worse around 15 but could still go out even though I was using the toilet every couple of hours then at 18 I stopped leaving the house as it got so bad. I'm now 23. I had Botox in June and I can't wait for it to wear off. So ill all the time, feels as if I constantly need the toilet more that ever, pains in my bladder and sides, had to use a cath but can pee a little tiny bit. Was at the doctors on Thursday and he said I've got an bad infection that I've had for a while as there's blood in it. This Friday I go back to the hospital that I had Botox done for a check. I'm at my wits end, have no clue what to do anymore and I feel like I'm never going to get better"

• Cat
• Taken for less than 1 month
• December 23, 2018

Botox (onabotulinumtoxinA) "I had the botox on 11/30 and on 12/10 I had to go to the doctor because my bladder felt so full and I could not urinate enough. They gave me catheters to cath myself which was hard for me to do, I always got at least 500 mL. I got 650 mL back, called the doctor and was told to go to the ER and get a foley catheter. I went back to the doctor on 12/19, had the foley removed. The next morning, I had to cath myself again, I could only urinate a little. I went back to the doctor, after urinating they had a 650 mL urine return and they put another foley catheter in. I am in so much pain today I could just cry. I have had 2 UTI's since the procedure and am just miserable."

• Rocky...
• July 8, 2016

Botox (onabotulinumtoxinA) "Reading the testimonies here, I'm one of the luckier ones. I did not have to have a catheter, but I had to strain to void like I have never strained before. I was worried that I was going to do damage to the bladder muscle. I had constant feeling of needing to urinate. Rarely felt like bladder was empty. On top of this, my hands and feet would swell every day, when I have no problems with water retention. Doctor said I shouldn't ever have Botox again as it's likely an anaphylactic reaction. I had the procedure two weeks ago and am still miserable. Still not as long as others have gone through, but I was much happier to take the medication. Naturalist recommended a dot of estrogen cream on the urethra will draw it up to stop leaks."

• SBano
• Taken for 6 months to 1 year
• April 13, 2019

Botox (onabotulinumtoxinA) "Had my second set of Botox today for overactive bladder problems, the first one lasted 8 months, could have gone longer but going on a trip in June and wanted to make sure I did not have to pack a suitcase full of pads. Best decision I ever made. After five years of wetting all the time, not getting any sleep and quality of life awful, this has been a miracle. Yes it is a little painful during the injections, but well worth the pain."

• Haiku
• May 11, 2017

Botox (onabotulinumtoxinA) "I just had my third botox treatment. The first was great. It was painful but worth it. I did not retain urine or have an infection. What a relief. The second one was 7 months later and I had good results. This third one was nine months later and after 6 weeks I have not had any positive results. I have an appt with my urologist to see what we can do, but it is very disappointing to go through this with no results. I thought I could control this urge incontinency for life."

• DDSS...
• Taken for 2 to 5 years
• January 25, 2017

Botox (onabotulinumtoxinA) "I just recently had my 4th Botox injection. For the first time, other than needing to use catheters due to retention (just 1 1/2 wks now), I feel normal. Every 4 hrs, and my bladder is actually full!! Over the next couple of weeks that will get better, but I still might have to cath. (knowledge from past experience) after intercourse and 1st thing in the AM. I'm okay with that. Forgot what that was like since my hyst 10 yrs. ago. For those who are frustrated after two weeks: Patience...give it time. It takes a few times for things to begin to be better, and each Botox brings better relief. The pain during the injections, although quite powerful, are well worth the results!! At least for me."

• Shays...
• Taken for less than 1 month
• December 22, 2018

Botox (onabotulinumtoxinA) "So I’ve been taking medicine for overactive bladder for a long time and I’ve had some undesirable side effects from those medications. I’m only 27 and when my doctor told me about the Botox injection into the bladder I was skeptical but I told myself I would give it a try and at least then I would know so when I went into the doctor to get the procedure done it was pretty uncomfortable but here I am three days later and I can feel Definite relief for me. I wasn’t having any problems with leaking or peeing on myself it was just the urgency I was having to get up during the night up to 10 or even more. Anyways like I said I’m on day three and I definitely feel a lot of relief from the sense of urgency and my doctor said that it could take up to two weeks for the full effects to work so I am super hopeful that it will get even better than it already has overall I’m really glad I got this treatment I hope this helps"

• help
• Taken for 1 to 6 months
• March 8, 2019

Botox (onabotulinumtoxinA) "I had a Botox injection in my bladder in December and I had trouble peeing. My bladder was in a lot of pain before I had this done too. The severe pain did stop but still had some pain still with my bladder. By February I was having severe pain again and infections again. So that Botox injection doesn't really work. It causes problems. It is not good that you can't pee and that is what it does. I much rather run to the bathroom several times then not be able to pee at all. And my pain issue with my bladder is back so soon. So I wouldn't recommend it to anyone."

• Johny
• June 13, 2015

Botox (onabotulinumtoxinA) "My father 84 years old received botox treatment in April, still today he can not empty the bladder by himself and continue using catheters. This part was not disclosed when presenting the treatment option. Will he be able to empty the bladder by himself when botox effect is gone?"

• Bladder...
• Taken for 1 to 6 months
• January 2, 2019

Botox (onabotulinumtoxinA) "I had this done in December 2018 due to an over active bladder. I regret having this done. Now I can't fully empty my bladder which brings on cramps. I rather deal with the over active bladder.. At least I felt relief when I passed urine. Now constant cramps, fullness and discomfort.."

• Gecko...
• July 26, 2017

Botox (onabotulinumtoxinA) "@Colbak - I too had the sling surgery. It took care of the laughing, coughing, etc. accidents. I had difficulty emptying my bladder. I couldn't sit to urinate, I had to squat like a linebacker. I had to go pee every 30 minutes. And when I had to go, I went from no urge to running and barely getting my pants down. My urologist said that I could a. Have the injection. b. Have bladder snipped to "undo" the surgery. Or c. Go to a dr. in Pittsburgh (close to me) and have a pacemaker type device put in. I got the injection a little over a week ago. The first day I was really crampy. Now, I can't fully empty and its getting worse everyday. I thought it was a UTI ,but now I have to self cath. I also go (trickle) every 15 min. Grrr! Hope this helps!"

• GGano
• February 26, 2020

Botox (onabotulinumtoxinA) "It is my experience as a health care professional that I would never advise botox for the bladder. The bladder is a muscle, therefore you use a stimulant not a product that stops muscle activity. Most patients never been asked to measure their urine when the urinate. Frequency doesn't mean quantity. I treat patients with acupuncture and it works."

• Miche...
• Taken for less than 1 month
• November 29, 2019

Botox (onabotulinumtoxinA) "I am 70 years old and have severe OAB since I was 35. Medications were of little help. In March 2019 I had botox injections of 200 units. It was not unpleasant but of no use. Three weeks ago I got 300 units and it was a much worse experience. I have to pee every 10-30 minutes and urine just flows out between bathroom visits. I am extremely discouraged and disappointed. I give up."

• BMGBMG
• May 27, 2015

Botox (onabotulinumtoxinA) "I've had overactive bladder for about 6 years and tried many medications. Some of them helped a little for a few months, then stopped helping. Three weeks ago I had the surgery where botox is injected into the bladder. It didn't help me at all. I'm back to taking 30mg of Ditropan daily which helps a little, but not much. Am going to visit the specialist and hopefully there's a solution."

• Gray
• October 8, 2017

Botox (onabotulinumtoxinA) "I had Botox for an OAB. Before I had a terrible urge to go but I could not fully empty BUT I COULD GO ! The date is Oct in April it would have been three years since I had this done. At the beginning I was reluctant but my urologist recommended this. I was told I was going to have to be totally reliant of self catheterisation which I was ok. She did however say there are instances where the Botox would get rid of the urge but you would still be able to pee. A week after having Botox I have been 100% reliant on catheters. Without them I have urinary retention I cannot go at all. I feel totally let down by the medical profession and the company that makes this drug as they have washed their hands of me and the only suggestion is to have MORE Botox !"

• Yves
• Taken for 1 to 6 months
• August 29, 2018

Botox (onabotulinumtoxinA) "I had an overactive bladder before the botox treating. I had to urinate very often especially after drinking coffee or alcohol. Five weeks after the injection my condition has worsened. I urinate more often, in smaller amounts and the urge comes on very rapidly. I do not recommend this treatment."

• lrz
• August 31, 2017

Botox (onabotulinumtoxinA) "Let's just say LIFE CHANGING!! Good bye pads - hello active lifestyle! I've had this procedure twice and am excited to be going for the third time tomorrow! I have a great doctor who has been with me every step of the way since I asked him about it in 2015. It sounds like I'm one of the lucky ones - besides pain/cramping during urination that first day (which Ibuprofen helps!), and a couple of UTIs shortly after each procedure, I've suffered no ill-effects, but have experienced a dramatic improvement in all issues I've had with painful urges, frequency, and leakage. Mine lasted a full year each time before I noticed any degradation, and it was almost 18 months before I was 100% back to the old symptoms."

• KMano
• Taken for 1 to 6 months
• August 15, 2019

Botox (onabotulinumtoxinA) "Had botox done in March 19 under local anaesthetic. Told this was the all singing and dancing cure, total rubbish. Not only was it extremely painful (according to clinicians only going to feel a slight scratch), it didn't work. I was worse off than when I started after this useless treatment. I would never have this treatment again and it is extremely painful under local."

• Dont...
• Taken for 2 to 5 years
• March 8, 2017

Botox (onabotulinumtoxinA) "I've been having bladder botox injections for 12 years at Hospital I have had urge double incontinence for about 15 years, caused by Multiple Sclerosis (primary progressive). I am nearly 70. I was tried on different treatments for about 3 years. Nothing worked. I had to wear thicker and thicker incontinence pads (very embarrassing)! Eventually, I was given Flexible Cystoscopy and Botox. Has to be done every 9 months, first it was with (20 injections), later increased to (30 inj's). It was worth every jab! Takes about 15 minutes under local. They always do FC and test your urine first. Discomfort during procedure and sore for a few days. No other side effects. Time to find a loo, and dry pants."

• buzzfm
• Taken for 1 to 6 months
• July 12, 2016

Botox (onabotulinumtoxinA) "I had botox March 21st 2016..When i havent got a UTI it works a treat,since having it done i have had a UTI just about every other week..Its sad because it does make a massive difference...Awaiting water test results just getting over another UTI as i write..I have become immune to certain antibiotics ..Not sure if im gonna have it again"

• Sue
• Taken for less than 1 month
• June 12, 2019

Botox (onabotulinumtoxinA) "I have MS and unfortunately for months I was suffering with overactive bladder issues and urine leakage. Urologist told me about procedure. I had this done under anesthesia. Its nearly day 4 and so far I feel amazing, I remember the day after waking up with not a full bladder at all. I don’t have to cath myself. but I do have to strain a bit to make it come out. But no pain or discomfort at all."

• Rpoole
• Taken for less than 1 month
• May 17, 2017

Botox (onabotulinumtoxinA) "So I just had the botox done yesterday. I was really hoping for possible reaction but with in a few hours I couldn't urinate called the Dr on Call and pissed (pun!) me off for he never called me . I had to go to my own hospital for 3 hours which was way to far. The hospital drained my bladder all though not much in it and had me begging him please there is still more iron in there he said nothing I'm sorry. I went to there bathroom 5 more times. I have one of the worst cases and next is getting the box implanted."

• Toni
• Taken for 1 to 6 months
• July 17, 2018

Botox (onabotulinumtoxinA) "I had botox injection on June 12, 2018. The doctor never told me about urinary retention possibilities before hand or I would never have agreed to this procedure. I have had urinary retention since June 12 and still have to self catherize 6 weeks later with no let up in sight. I am constantly sick like I have the flu. I have terrible urge to urinate constantly. This is living hell for me between trips to the ER and doctor's office. I have lost over 20 pounds in 6 weeks. DO NOT HAVE THIS PROCEDURE DONE. I DO NOT RECOMMEND IT."

• Nannies...
• Taken for 5 to 10 years
• October 16, 2017

Botox (onabotulinumtoxinA) "I've had botox injections 5 times and would definitely recommend it. They say it lasts for 6/8 months but mine have lasted the longest being 2 years. I'm very pleased with the outcome of it, it has made a massive improvement in my life."