Norethindrone for Endometriosis User Reviews (Page 4)

• Lynn
• Taken for 6 months to 1 year
• August 21, 2018

"I was diagnosed with endometriosis at 41 years old. My periods were so incredibly painful I would turn white and almost pass out from the pain. My doctor put me on birth control and the painful periods ended but I started to get migraines. He switched me to POP and I don’t get a period anymore so the pain issue is solved. However, my appetite went through the roof and I gained 10 pounds within the first 4 months. I strength train and I’m on a high protein moderate carb eating plan and I can’t lose one pound. I have not ever struggled to lose weight like I have while on this pill. I’m thankful that I have no periods and no pain but my confidence took a nose dive with the weight gain."

• MJC
• Taken for 1 to 2 years
• October 11, 2017

"I really thought this was the perfect pill for me. I couldn't tolerate anything with estrogen because of migraines. Plus I was getting really bad PMS and heavy periods. So last October I started this pill. For months it seemed pretty good. I only spotted a bit the first month & my periods seemed better. I had unprotected sex a few times & did not get pregnant either. But exactly 1 year on since taking this pill & I gained 20 pounds-- 20!! This shocked me because most of my clothes still fit & I only thought I gained a few pounds at most. So my body is basically carrying around a massive amount of water weight(!!) which has bad side effects too... I feel bloated & achy all the time, & sadly my PMS is still really bad! So I think I'm done!"

• Solol...
• April 14, 2019

"Been taking this medication for a month now. I'm 26 and have endometriosis. In the past month I have seen great results with my cystic and hormonal acne... But that's it. I am CONSTANTLY exhausted, I can't get out of bed. I'm literally crying 80% of my day. I am not an emotional person either. I haven't had ANY improvement in pain.. I have even been having very dark Thoughts.... Yesterday I literally felt like I wanted to die. Emotionally, mentally... It's not a good medication for me WHATSOEVER. I am forgetting to do basic things like feed the cats or pay the bills, I'm forgetting simple things that shouldn't be something to forget.. I feel like I'm extremely depressed and I can't get into a doctor for another 5 weeks. But I'm scared that if I stop taking it my pain is going to get even worse and my cystic pimples will come back and I'll be just as depressed."

• Mandy
• Taken for 6 months to 1 year
• May 20, 2018

"I am taking norethindrone as an additional back up therapy with Lupron shot for endometriosis. As a combination it has been effective at inducing fake menopause for relief, but it causes rapid weight gain. Have gained 47 pounds in 8 months. Regardless of my diet or activities it keeps piling on. I would not recommend this unless medically necessary."

• Kote
• Taken for 6 months to 1 year
• February 21, 2022

Errin (norethindrone) "Been on for about 6 months due to having a blood clot possibly from estrogen BC; hence the progesterone. I started on a higher dose of norethindrone and ended up going here because the side effects were terrible; they are better on this pill but still present (currently on .35mg) I've had breast leakage, breast pain/tenderness (all the time), clots on periods, somewhat irregular periods in terms of time. I will say my nausea hasn't been bad on this pill, and my pelvic endometriosis symptoms have lessened (not so much my bowel or upper abdominal), but I really don't like the breast pain. It's unbearable for me but I'm hoping to last until March after my endo surgery to get off it."

• Paper...
• Taken for 1 to 6 months
• September 26, 2017

"I have a history of side effects from synthetic hormones and was on Prometrium for a year, but still having very heavy periods. My new Dr. suggested norethindrone might take my period away entirely, but I started bleeding and have been for 12 days with cramps and really feeling on edge! Also having interrupted sleep and night sweats, no libido and my body odor seems different. I'm going back on the Prometrium but hoping this bleeding will stop. I can't wait to go back to not having to bleed every day. Jealous this works for some but it's definitely not for me."

• Jexxa
• Taken for 1 to 2 years
• August 14, 2021

"This was the second medicine I was put on to try and help my endo. At first it worked well although I had to go to max dose within a month because the others just were not cutting it. But after several months of using it it just wasn't enough. I've had to take max dose of this medication on top of every other med I've tried. It helps a lot while paired with other meds but nothing is enough to stop my pain unfortunately. Definitely worth a try in my book, especially if your case isn't as severe as mine. It'll probably help a lot!"

• Anonymous
• February 28, 2021

"This medicine was absolute the worst for me for me! I was out on it to treat endometriosis in addition to having an IUD. I started this medicine on the 18th then had to go to the ER for such bad cramping two days later. I was constantly nauseous, getting sick every time I ate, I lost so much weight after a week that my ribs were showing and people were commenting on my face looking “sickly”. My ADHD meds were no longer effective during the time I was taking this, it even got to the point where water would make me sick. While at the ER they gave me tramadol for the pain (I hate pain meds! But every time I could feel them wearing off I would get the same intense pain and passing out as the night I went to the ER). My periods before were intense and I would pass out every month but nothing as bad as this! I should have questioned my dr more before going on and that’s what I recommend anyone doing before starting this! I’m only 20, my period should not be this bad!! Or this hard to fix!!"

• bluew...
• November 18, 2015

"After a PCOS diagnoses camila was recommended to me to treat high blood pressure and regulate my cycle. It has dropped my blood pressure considerably but I either spot or have my cycle 80% of the time , I've gained roughly 20lbs in 6 months and am bloated beyond period bloating. I only had 6 cycles a year before so I was doing better without"

• Kanbc...
• May 9, 2016

"Terrible terrible depression ; discharge ; major mood swings. I was put on this medicine in January & I'm going to stop it after this week. Ever since I've been taking it I've been getting bad headaches & I'm always irritated. My stomach is always hurting & I've been late every month on my period bc of this pill. I was put on it to "prevent" cysts from growing & I'm more likely for a blood clot to happen."

• Fano
• Taken for less than 1 month
• February 11, 2021

"Absolutely terrible. My dr prescribed this after I had to get off of Daysee(which I liked before I problems 2 months in). The first day I took it I got so nauseous and sick. I was taking it in the morning and would be nauseous all day, so I switched to taking it at night before bed, and I would wake up so sick and unable to eat until evening. Anything I ate made me sick and I lost about 6lbs in just the first 3 days of starting. Well the nausea never went away and I ended up quitting this after 4 days because I threw up so bad which I never do. Honestly this medication did nothing except make me sick 24/7 and I couldn’t take it anymore."

• Anonymous
• Taken for 2 to 5 years
• November 24, 2023

"Been on this for 2 years now. Was put on 10mg prior to surgery for endometriosis and to manage it. This medication is fantastic if you don't want to deal with periods. My period stopped coming within 2 months of starting this. However, the more research I've done because of symptoms I've experienced and didn't think would be related to the BC, I have decided to stop this medication. My hair began coming out in clumps every time I washed my hair. It became dry and the breakage was severe no matter how many hair treatments I did. My fatigue was insane. Constantly tired, like all day no matter how much sleep I had. I also gained about 30 lbs. I had lost interest in sex and physical touch and being a very sexual and affectionate person, could not understand why. It's been 4 days now that I've been off of this and I feel so much better."

• Noran...
• Taken for less than 1 month
• April 21, 2021

"I've been on this med for just over 2 weeks after learning I had endometriosis, during fertility treatment screenings. My doctor thought this would be a better tolerated treatment than Lupron, but I have to wonder how bad Lupron is, because this med is not my favorite. It's not awful, but it definitely has had its side effects for me. Bloating, weight gain, constipation, extreme fatigue, decreased sex drive and trouble achieving orgasm, worsening anxiety and depression. I'm supposed to be on this for 4 more weeks, and if I wasn't doing this because I wanted to have a baby, I would go off it tomorrow. It's doable, given the desired outcome, but I really look forward to getting off of it and feeling like myself again."

• Scorpio...
• Taken for less than 1 month
• November 8, 2018

"I started taking this pill and it made my stomach cramp . Nipples was so sore & it made my vagina so dry !!! And made my period last about 2 weeks longer . Then the next month didn’t have a period . So I stopped it after a month in a half and finally I’m on my period . Not knowing what to expects"

• CaliD...
• Taken for 1 to 6 months
• March 5, 2021

Errin (norethindrone) "Took for a month to treat heavy bleeding and extreme pain from endometriosis and it only got worse. Doctor suggested taking it for 3 months to see results but I’m afraid to, given the increase in flow and pain. It did make me a little more depressed than usual as well. But the side effects weren’t noticeable. No spotting either and period came on time."

• NR99
• Taken for 1 to 2 years
• April 13, 2023

"As with others, the horror stories did scare me. But as someone living with endometriosis and the horrible symptoms that come with it I got to a point where I said F it. So glad I did! I'm also on this as a contraceptive. I had been on multiple different kinds of combo BC for a decade, helped with the pain but the side effects were horrific. My libido tanked multiple times, my pre-existing depression got awful, acne, everything. Finally I just wanted a change, less hormones. Within two months my libido was back, my brain fog was lessened a bit, and I just felt more 'normal' for the first time in a long time! The only (huge) downside was I got my period twice a month for the first 6 months, it finally evened out for 3 months then started getting wonky again. I attribute this mostly to my endometriosis though as I finally had my surgery to excise it and my period is so normal and manageable!"

• Anonymous
• Taken for 1 to 6 months
• June 21, 2017

Errin (norethindrone) "Side effects, side effects, side effects!!!! Rapid weight gain, headaches, fainting, cholesterol raised to high levels, severe abdominal cramping"

• Phoebe
• Taken for 1 to 6 months
• February 23, 2021

Errin (norethindrone) "This birth control was really detrimental to my mental health, which I found out after taking it for 2 months. Such a bummer. The panic attacks and depression were terrible. Did not work for me."

• Boobie
• July 14, 2018

"Light head ache, some cramping, mood swings, increased appetite, gained 10lbs over the last 3.5 mnts."

• Brey
• Taken for 1 to 6 months
• October 5, 2018

Errin (norethindrone) "Errin gave me the worst acne I have ever had in my life. I took it for four months. Never again..."

• ellee
• December 25, 2016

Errin (norethindrone) "Does a great job as both birth control and helping with my endo symptoms! My only complaint is the spotting and sometimes it makes my period still a bit irregular (i.e., longer) and odd."

• Anonymous
• December 14, 2009

"This was added to my therapy to help with the insomnia and moodiness, well the moodiness is a bit better. I still have the insomnia and really weird dreams!"

• Angry
• December 7, 2021

"Horrible acne, stomach cramps, back and breast pain. Would not recommend."