Norethindrone for Endometriosis User Reviews (Page 2)

• Hop...
• March 16, 2019

Norlyda (norethindrone) "I was having awful periods, and my side was always hurting even when I wasn’t on my period. I started taking Norlyda in October. I had adjustment bleeding mid-November that lasted a few weeks. Previously, I’ve always had regular periods, but since starting Norlyda, I haven’t. After the adjustment bleeding, I had my last real period in December. A week after, I had another “period” that lasted 3 days. I bled a little mid-January, but since then, none. Since starting the pill, I’ve had bad stomach problems and still had side pain. I stopped taking it the last week of February. It’s now March 16th, and I have started bleeding again. I don’t like that it stopped my periods altogether. It didn’t help with my pain, and I had almost constant diarrhea. I tried changing my diet, etc., and NOTHING made me feel better. Now that I’m off the pill, I haven’t had a stomach episode in about 3 weeks. My side still hurts some, but it was nowhere like it was when I was on the pill."

• Dee...
• April 7, 2016

Nora-Be (norethindrone) "I started this pill in November 2015, and now in April of '16, I am fed up! I have horrible bloating, gas, constipation every day (worsening in the evenings). I've gained over 10 pounds, and my abdomen looks like I'm 3 months pregnant. I'm 45 and have no plans for children. I can't exercise this weight off either! My back is covered in pimples, and my chest area has them also. I've noticed a decrease in my appetite (mainly in the evenings), yet I'm gaining weight. I have fatigue and completely random periods. My doctor, for the record, told me that these symptoms I was having were not related to my pill! So, needless to say, I'm finding a new doctor. Peri-menopause stinks! You young ladies, exercise while you can and enjoy that body!"

• Ven...
• Taken for less than 1 month
• December 20, 2020

Deblitane (norethindrone) "I hate this pill! I took it for about 3 weeks. I know you are supposed to give it time, but honestly, I didn't think it was worth 'waiting it out' or giving it a chance, given that it made me feel like rubbish instantly. It made me feel like an apathetic zombie most of the time, and when I did have emotion, it was either pure rage or distraught. My libido completely disappeared along with my natural lubrication and sensations. Didn't help with endo pains at all. Turned my stomach into a bottomless pit about an hour after taking it - I ate EVERYTHING in sight. Gave me nagging headaches. The only thing positive I can say is that I'm not pregnant."

• Anonymous
• October 3, 2011

"This medicine has significantly improved my life. I've had surgery for 'endometriosis' twice. The second surgery showed no sign of endometriosis, yet I continued getting severely ill with my cycle and missing work for several days each month. The doctor always gave me oral contraceptives that included estrogen, which caused constant illness and extreme bloating. Finally, I was prescribed norethindrone. My cycles have stopped, and although I have mild night sweats, decreased sex drive, and some weight gain, my quality of life is so much better! It's been about 7 months; hopefully, the side effects don't worsen and the benefit continues."

• Sal...
• December 18, 2016

Nora-Be (norethindrone) "I started Nora Be in April of 2016 because of severe cramping, vomiting, cysts that came especially burdensome with each menstrual cycle. It is now December of 2016, and I can say my pain and cramping have decreased to a much more livable situation. However, weight gain, laziness, anxiety, and depression have all increased so much. I definitely do not want to go back to the pain but am thinking of trying to go without for a bit to see what happens."

• A R...
• Taken for less than 1 month
• October 12, 2021

"I have been on this medication for almost a month to alleviate my endometriosis. I have tried Lupron Depot, Orilissa, and had laparoscopies to try to help, but this medication has messed me up the worst out of any of the previous ones. Half of my body went numb and so did my hands one night, along with a headache-symptoms of a stroke. I have also had my period twice in a month with huge clots and have to change a nighttime pad every hour. Also, my cramps are worse, feels like I am miscarrying. Not to mention hair loss, depression, and aggressiveness."

• Jen...
• Taken for less than 1 month
• August 7, 2021

Aygestin (norethindrone) "I was put on this after laparoscopic excision surgery for endo. I have adenomyosis. I ended up with excruciating cluster headaches, which are more painful than migraines. Felt like I had sharp pain in the eye for hours. I was also having fogginess with my vision, like it was harder to read close up. It was bizarre. I really didn't like it."

• Dia...
• Taken for 1 to 6 months
• January 10, 2020

Heather (norethindrone) "I have chronic endometriosis and adenomyosis. I was prescribed the mini pill and was given a 3-month supply of Heather birth control pill by my pharmacy. I continue to have extreme cramping even when not on my cycle. I have been bleeding for, so far as we speak, 12 days and counting. I'm 47, will be 48 in April and used to have clear skin, and now I have itchy, weird, puffy skin, especially on my cheeks near my eyes. Getting a lot of itchy hives on my face in random spots, especially around my upper cheekbones near and around my eyes. Really tired all the time, emotionless, and I've also noticed constipation. This pill is supposed to have regulated my period and help with the pain. I'm at the end of my second pack and am stopping the pill immediately! Not taking it anymore... Everyone is different, and that is my experience. Hope it helps. TAKE AT YOUR OWN RISK."

• Anonymous
• Taken for 2 to 5 years
• November 24, 2023

"Been on this for 2 years now. Was put on 10mg prior to surgery for endometriosis and to manage it. This medication is fantastic if you don't want to deal with periods. My period stopped coming within 2 months of starting this. However, the more research I've done because of symptoms I've experienced and didn't think would be related to the BC, I have decided to stop this medication. My hair began coming out in clumps every time I washed my hair. It became dry and the breakage was severe no matter how many hair treatments I did. My fatigue was insane. Constantly tired, like all day no matter how much sleep I had. I also gained about 30 lbs. I had lost interest in sex and physical touch and being a very sexual and affectionate person, could not understand why. It's been 4 days now that I've been off of this and I feel so much better."

• Tks...
• Taken for 1 to 6 months
• April 24, 2023

"I just want to begin by saying that medications, especially hormones, are going to affect every person differently. I’m 33 and have stage one endometriosis with uterine fibroids. Before this medication, I had a period once every 35-ish days that was heavy, extremely painful, and debilitating. The first month on this, I got my usual painful, heavy period but noticed it made me feel quite tired. Month two, I have a period two weeks apart, again very painful and heavy, and the same on month three. My doctor urged me to stop and said it likely won’t improve, but I wanted to give it the 6 full months to say I truly tried. I’m on pack 5 and my period is now going on day 12 and it's painful. My skin has also gotten oilier. I’m officially done."

• Ann...
• Taken for 1 to 6 months
• November 14, 2020

Ortho Micronor (norethindrone) "I have been on this pill, Ortho Micronor, for 3 months due to a hemo cyst, and the endo hemo cyst went away, but periods are now happening every 3 weeks, not 4 weeks. The pain and flow are the same. If you are not sexually active and don't have a cyst, don't take this. It has done nothing to help with my endo or chronic pain. I am still experiencing sciatic pain and painful ovulations. Nothing has changed. In fact, I got more help from my anti-inflammatory diet, Advil, and yoga to regulate my cycles and minimize the cramp pain. I definitely do not want to have my period every 3 weeks. Seeing the doctor on Monday. I also do not want to go on Vissane, which causes worse side effects than Micronor does either. I want to be hormone and drug-free."

• Sky...
• Taken for 1 to 6 months
• June 25, 2019

Heather (norethindrone) "It's okay, but not the best. Without birth control, my periods are extremely heavy, and I cramp so badly I can't move. I also have migraines. This has improved them a little bit, but compared to my on-the-clock bleeding, I am actually going to scream! I have been having my period for three weeks! Has never happened to me before!"

• End...
• August 11, 2009

"I had a similar experience to the person who posted before. After 2 surgeries in 5 years and going through almost all the drugs, we finally found something that works! Along with Micronor daily, Norethindrone for the past 8 months has done great with all my endometriosis symptoms, and I had them all. No breakthrough bleeding, no pelvic pain, no pain during sex."

• Wig...
• Taken for less than 1 month
• December 24, 2018

"I took this drug for three days. I became extremely ill after the second pill. I had severe pelvic pain right underneath my pelvic bone that I've never even experienced with endometriosis. My pain from endo is atrocious, but this was a different pain. I was too nauseous to even eat much. I was so exhausted I couldn't get out of bed. I was short of breath. I was crying at everything, very irritable, and I had dark thoughts. I was weak and shaky. There's no way I could tolerate this medication for even a week. It's 100% not for me. I called my doctor and she told me to stop taking it."

• Ros...
• Taken for 1 to 6 months
• January 12, 2019

Errin (norethindrone) "I started this med only a couple of months ago for cysts and possible endometriosis. Not only have I had extreme weight gain in a very small amount of time, but I ended up with another cyst anyway. I’m also tired all the time and feel foggy. Never again."

• All...
• January 13, 2019

"I was diagnosed with endometriosis. I had the most painful cramps during my periods to the point where I would crawl into a ball on the floor, screaming and wailing in pain. I absolutely dreaded my period and had to plan around my period because I knew that I would have to stay home and be in agonizing pain. Norethindrone has been a lifesaver! My doctor recommended it to stop my periods so that I wouldn't feel the pain anymore. The first month, I had spotting for 3 weeks. I was taking it at nighttime, but then I read the bottle and it said to take it in the morning. As soon as I switched to taking it in the morning, the spotting stopped! I haven't had a period in 6 months! I'm pain-free! Thank goodness. For years, I thought my cramp pain was normal, but it wasn't. I wish I'd found this medication sooner. Cons: - weight gain - my acne increased - I started giving off a scent. It's not bad-smelling, but it's weird. I'm not happy about the side effects, but they're a small price to pay in exchange for being pain-free!"

• ave...
• Taken for 2 to 5 years
• December 29, 2022

"I was prescribed norethindrone .35mg after a new gyn listened to my complaints of extremely painful periods, painful bowel movements, cramping most of the month, pain after sex, etc., and said she suspected endometriosis. I had tried several combined oral contraceptives prior, but after a few months, my pain would always worsen, probably due to the estrogen. I’ve been on norethindrone now for just over 2 years, and it has helped significantly. I did have breast swelling/tenderness for the first 3 or so months on it, but it has since stopped. I also had spotting initially, which my gyn then emphasized to me this medication must be taken at the *exact* same time every day. When taken at the exact same time daily, I have no issues with spotting. After about 12 months on it, I started getting my period less, and now I often don’t get it at all, or I will have a much more manageable, short-lived period with little or no flow. If you have endo or similar symptoms, I think it’s worth a try."

• Mek...
• Taken for 1 to 2 years
• August 25, 2019

"I have been on this pill for over a year. When I first started, my cycle stayed on for two weeks. My GYN increased my dose to three 5 mg tablets. This did the trick! I do NOT have a cycle at all. I do cramp severely about 5 to 7 days out of the month. I don't mind this because prior to the pill I had PAINFUL and HEAVY cycles. I literally had to wear a pad and tampon and still had leaks sometimes. I have lost 30 pounds with diet and exercise, so my 30-pound loss is in no relation to taking the pill. For those who are gaining, then diet and exercise may help that up. Norethindrone made my life a little better when it comes to the nightmare of the menstrual cycle."

• cho...
• Taken for 1 to 2 years
• November 30, 2022

Aygestin (norethindrone) "Got put on this after lap for endometrioma and finding out that I had 'a war zone' of endometriosis (direct quote from my doctor). I was started on 5 mg daily and 10 mg when bleeding, but I started having more depression symptoms than usual, so I dropped it to 2.5 mg and 5 mg when bleeding. Bleeding decreased a LOT and I had very little pain. Now I'm out and just waiting to see my doctor again to get another supply!"

• ner...
• May 3, 2014

Errin (norethindrone) "I've been on progestin-only birth control for about 3 years. I started on Ortho-Micronor, I had a period for about 3 months straight, but then my period stopped entirely. Then I moved, and I was given Camila (same thing, different brand), it kept in line with the 'no period' havingness. It was great. Moved again, I was given Errin. For about 2-3 months, I was okay, but I noticed some changes in my mood and some bloating. Then about 3 months in (February 2014), I had spotting. I thought maybe it would be normal after having NO period for 2 years, but then 2 weeks later, I had a full-on period. Since then, I've had maybe 3-4 periods in 2 months, extremely painful tenderness in my breasts."

• ARJ...
• Taken for 1 to 6 months
• December 30, 2019

Errin (norethindrone) "I’ve been taking Errin birth control pill for about a month now. Overall, it’s been really good! I haven’t had the spotting everyone complains about, and I have not had any cramping either. I normally have really terrible periods, so I’m hoping this birth control can either stop them completely or lessen the pain. The first week or two, it gave me really bad headaches (not migraines, just headaches), but those went away after about week two. I haven’t noticed any weight gain either. I feel like the medicine maybe gives me slight mood swings, but I can recognize them pretty quickly. Unfortunately, I’m not seeing any improvement in my skin."

• Boo...
• Taken for 2 to 5 years
• December 26, 2015

"I've been on norethindrone for probably 2 years. I never have periods unless I go beyond 3 hours after my usual time slot for taking it. You should take it within 1-2 hours at the same time every night. What I can say is I love having no periods. However, I have little to no desire for sex. If you want to be celibate, take this pill and you won't care about sex, haha. So, I can't say I take it to prevent pregnancy. Symptoms I seem to have often: anxiety (though I've been on the pill 24 years, all different brands, always had anxiety). I also have TMJ, depression, and no interest in activities. I'm very lazy and a heavy smoker. Mood swings often. Quick temper. Wait? Maybe this is from the celibacy."

• aj2...
• May 26, 2011

Jolivette (norethindrone) "I just finished my first month of Jolivette and have no complaints whatsoever! I have been on several other pill forms and have had a lot of trouble with them due to breast tenderness mostly. With Jolivette, I haven't had any breast tenderness (except during my period), but we are hoping that I won't have a period anymore after taking this for a while. Easy to take, although if I miss a pill, it doesn't matter as I am not using it for birth control. I did have some bleeding to start with, but my OB/GYN said that is normal."

• Oki...
• Taken for 2 to 5 years
• June 28, 2022

"I have mostly great things to say about norethindrone. I take 10 mg once per day for 365 days a year, unless I feel I need a hormone reset, then I'll stop taking it to have a single menstrual cycle. It completely eliminated my cycles with consistent use and thus eliminated my pain. Four years after an endometriosis surgery, the endometriosis did not recur in the areas it was removed from. The only complaint I have is that by default of being a hormone treatment, consistent use does lead to facial hair growth (not like becoming a man, but just more of the peach fuzz we all generally have some of). It's annoying, and I do have manly type beard hair that grows on my neck and one on my back thanks to this med. That being said, I wouldn't go off of this medicine until I have a hysterectomy, planned for age 35."

• Suz...
• November 3, 2016

Camila (norethindrone) "I just started taking this pill for heavy, very crampy monthly periods. I am on my second pack, and I've had my period for 12 days, but no cramping, which is great. It has made the bleeding a lot less but longer. Some days all I need is a panty liner, which I could never do before this pill. Other than that, I have had no headache, acne, or weight gain."