Modafinil for Narcolepsy User Reviews
Brand names: Provigil
Modafinil has an average rating of 6.6 out of 10 from a total of 145 reviews for the treatment of Narcolepsy. 54% of reviewers reported a positive experience, while 26% reported a negative experience.
Reviews for Modafinil
- Descon
- November 20, 2023
"My sleep attacks during the day have safely decreased. A low dose is sufficient."
- Moham...
- Taken for 1 to 2 years
- September 26, 2023
"I have struggled with sleepiness, fatigue, lack of motivation, anxiety, lack of concentration, and procrastination. 100mg (I don't need more) Modafinil helped me very much. I have motivation to do the tasks and focus for a longer period without being drowsy. No anxiety, no headache, no mood changes, no tremor. Everything works great."
Frequently asked questions
- Modafinil: Smart Drug For Decision Fatigue Or Workaholic Crutch?
- Modafinil (Provigil) vs Adderall: What's the difference?
- Does Provigil (modafinil) cause weight loss?
- Is Provigil (modafinil) a controlled substance?
- Teresa
- Taken for 10 years or more
- September 4, 2023
"I've been taking it for more than 20 years. My career is court reporting. I used to fall asleep in the courtroom while writing on my machine. On 15-minute breaks, I went into the closet to nap. This drug works magically perfect. I'm awake and attentive but can still nap if I feel like it. No side effects. I'm retired now but still need Modafinil if I need to drive anywhere. I always had to pull off the highway to take 10-minute naps before this lifesaving drug. I've also gone without it and NEVER feel addicted to it. I never feel hyper or jittery. It's a miracle pill! A+++++ When I first started taking it, I took 200 mg in the morning and 200 mg at noon. I can now get by with 200 mg once daily most days unless I have to drive several hours. It's the TOPS!"
- Lucille
- January 29, 2021
Provigil (modafinil) "When I was 50 years old I started nodding out in the car and restaurants and it was very humiliating it was uncontrollable my family was very embarrassed I went to a neurologist and they took sleep studies and they said that I had sleep apnea which was unusual because I am but at the time I was 105 lb and I was not diabetic and I am borderline narcoleptic I am hypersomnia I was prescribed many medications they did not work such as adderal which just come out they said it was a very unique medication. I had to fight the insurance to pay for it my doctor prescribed that after it was approved and I have to take 200 mg in the morning then I would become myself I take that faithfully and another 200 mg at 1 p.m. and I do not have those episodes anymore of uncontrolled sleeping where I cannot function. I've been on provigil for 12 years now my doctor prescribes 100 mg Nuvigil in the afternoon with the 200 mg Provigil"
Are you taking this medicine?
- Pretty...
- Taken for 1 to 6 months
- January 10, 2021
"I have struggled with mental health issues stemming from insomnia for years. I've been through a revolving door of prescribers and tried at least 12 different sedatives. After a sleep study I was diagnosed with narcolepsy and prescribed modafinil, while being taken off ambien CR. (Stay far far away unless blacking out and sending insane messages to old colleagues is your thing) I'm up to 200mg modafinil once a day and 100mg wellbutrin sr twice a day, and it feels as though I've been given my brain back. I'm exhausted when I go to bed and fall asleep quickly. I don't take sedatives to sleep for the first time in at least 6 years. My family and friends all tell me that I've completely changed; become more "with it." I honestly don't notice a difference or side effects. I'm simply not tired from a lack of sleep and able to set and achieve goals again. I can't believe how something so subtle has had such a profound impact on my life."
- Loulou
- Taken for less than 1 month
- December 5, 2020
"I MAY have narcolepsy (from reviews here with people who have been diagnosed with it), I have the exact same symptoms but without cataplexy , I slept up to 14 hours a day plus 1-2 naps. I walked out of 3 jobs as I could not stay awake. My sleep doctor (which I now have) plus my respiratory therapist have been working with me 13 months now, looking for the right sleep apnea, mask and settings for me. Nothing kept me awake so the doctor put me on 100 mg Modafinil 1 or 2 pills, up to twice a day. The dose that works for me is 2 pills. I am hyper all day long and its fantastic. Modafinil has given me my life back. I am in Ottawa, Ontario, Canada and I am now 67 years old, I retired with a tiny pension from the Government of Canada at age 58 because I became too exhausted to work."
- LifeC...
- October 3, 2020
Provigil (modafinil) "Provigil has changed my life! I have been taking it for 6 months. I was prescribed 200mg. I usually take half a pill, and I’m good to go for the entire workday. Before Provigil, I was in danger of losing my job. I could not get out of bed. On weekends, I would literally go to bed Friday night and not get dressed again until I forced myself out the door for work on Monday. After just a few days, I felt like a new person! I don’t suffer any terrible side effects. The only thing is I have to make sure I am not talking excessively (as it tends to speed up my speech). I now even go to the gym after work! Never ever would have dreamed of doing that previously! I am down 30 pounds (working hard at it) and I am enjoying my life! It gave me my life back!"
- Lucy...
- Taken for 10 years or more
- February 8, 2020
"I have been taking 400 to 600mg of modifinil, each day for 20 years, due to narcolepsy, and excessive daytime sleepiness. The Only side effect I have ever noticed, was a decrease in falling asleep during the day. Which is exactly what I need. It took nearly 20 years to get diagnosed with this sleep deprivation. I had many encounters with the law, and driving both before and after being diagnosed. However far less, after. I still have to have Ritalin, or some amphetamine, in the event, the current dose of 400mg a day wears off. Ritalin helps me on a shorter duration, such as in the evening, when an hour or two of wakefulness is needed, rather than the 12 hours typically provided to me by provigil/modifinil. Modifinil is a life saver for me. I was a danger to myself and others, without it. However, $5, 249 for 180 pills, a 90 day supply, is ridiculous.My fixed S. S. I is less than$3000 for 90 days.Thank God for Hip insurance in Indiana."
- Rosie
- Taken for less than 1 month
- December 25, 2019
Provigil (modafinil) "I have narcolepsy with cataplexy. Adderall, Ritalin, etc. did nothing for me. I’ve only been taking this for a short amount of time but unlike Adderall or Ritalin, this not only physically keeps me awake but I don’t feel the horrible fatigue I usually do. It keeps me awake and feeling good while also easing any nervousness I have. I feel very calm while also being energized. :)"
- BBB
- Taken for 10 years or more
- August 17, 2019
"I have severe narcolepsy without cataplexy and have been taking Provigil/Modafinil for about 12 years now. I started on 200mg but found it didn’t do much to help. After a couple months at 200mg I was then prescribed 400mg and have remained at that dose ever since. This medicine has truly changed my life. I take the full dose about an hour after waking up and eating something (seems to be more effective after eating). Insurance made me try Nuvigil right after it hit the market and the Nuvigil put me into a deep sleepiness state for more than 36 hrs, will never take that again!!! Seems that some of the manufactures versions aren’t as effective as others, as I’ve just been switched to Alembic’s Modafinil and it’s not giving me that fully awake feeling that Provigil, & Heritage versions do."
- Dozzz...
- Taken for 2 to 5 years
- December 17, 2017
Provigil (modafinil) "I am a Nurse . I gave in and began to take Provigil because I could not safely transfer my clients for appointments . I could NOT stay awake behind the wheel of a car or any time I sat still .Provigil has been a life changer! I started with 100mg once a day 4 years ago. It still works and no side effects!"
- LucyA...
- Taken for 5 to 10 years
- December 15, 2017
"My insurance wouldn’t cover it without a prior authorization & it would’ve cost me $780 cash at other pharmacies. I shopped around & found it at CostCo for $35 (that’s correct: THIRTY-FIVE DOLLARS!) so don’t lose hope! My insurance has now approved it & my co-pay is $50 so I STILL get it at CostCo! This is an amazing drug that helps me stay awake for 8 hours, without euphoria or building a tolerance. It’s helped me reclaim my life from Narcolepsy & Fibromyalgia - no longer exhausted, but productive!"
- Bill...
- Taken for 5 to 10 years
- October 7, 2017
Provigil (modafinil) "Awake ..... Euphoria!"
- corsys
- Taken for 10 years or more
- September 8, 2017
"I have taken Provigil off and on since 2000, for narcolepsy/apnea. I started with the 200mg per day, but discovered that my brain required more. Since increasing my dosage to 400mg per day, I have fewer daytime sleep concerns. I have not experienced any appetite changes, and have certainly not lost any weight. This medication allows me to function, just enough to keep my job, and have a somewhat normal social life. No matter what dosage I take, my brain/body will shut down at approximately 6:00pm, and on the days I don’t take the medication; I pretty much sleep all day. I’ve made life style changes, such as, eating better, increased cardio, and strength training; just as a supplement to the medication and CPAP therapy. "
- Lolabee
- March 17, 2017
"I've been taken for 2 years for excessive day time sleepiness and suspected narcolepsy. It's changed my life, I'm a single mom, in full time uni, working two jobs, my days are long and exhausting but I'm reaching heights unimaginable before. Just a few weeks from my 2nd degree!! I've experienced few effects, it's hard on my stomach, curbs appetite & sometimes jittery & Babbling. Also having considerably more migraines, but my lifestyle is hectic and I'm sure it doesn't help. Positives far outweigh...thanks to provigil I now have a normal life, with a steady awakeness & I'm alert with insane durations of concentration. I'm so grateful, I'm scoring it 10/10, something I rarely do! Also, I'm lucky to get it for free on Irish medical card system"
- Snugl...
- Taken for 2 to 5 years
- October 21, 2016
"To counteract the headache I get with this drug, I take two panadol one hour before modafinil."
- Awake...
- Taken for less than 1 month
- December 15, 2014
"I was just prescribed modafinil and I was happy I picked up my prescription on Friday so I had the weekend to try it out. So yup- I woke up and cleaned things I haven't cleaned in months with incredible focus. I didn't feel scattered, didn't lose my train of thought, my attention span was excellent. It almost made me wonder if I had ADHD and never knew it. But anyway, I took 100mg, half a pill at a time. No headache, no nausea, I ran a couple miles and did okay. I was able to feel good and not be tired and even got to play with my kids in the evening- something that never happens because I'm usually too exhausted to do anything like that. Overall, I'm feeling a ton better!"
- Millie...
- Taken for 5 to 10 years
- July 11, 2014
Provigil (modafinil) "This was more effective than any others tried including Ritalin, Vyvanse which made my heart rate rise to the 140s. Modafinil worked quickly but not suddenly and lasted for the entire day."
- Kathy
- September 23, 2013
Provigil (modafinil) "I am 2 months shy of having used Provigil for 10 years. I have no physical side effects from it, which is pretty good since I am in my late 60s. It was more effective at keeping me awake when I first started using it, but it also made me a little nervous. These days it is usually effective, but sometimes not, but the good news is that I am much calmer than I have been in years. If this medicine seems to lose its effectiveness, don't give up. Stop taking it for a little while (a week or two) and it will work again just fine. All in all this medicine has given me back my life, except for driving me to the poor house."
- Cheri
- Taken for 1 to 2 years
- September 6, 2013
Provigil (modafinil) "I took Provigil along with Adderall and felt the best ever. I was alert, not on too much Adderall, so I didn't feel bad from that. Then my insurance company wouldn't cover Provigil anymore, they pushed Nuvigil, and it made me sleepier."
- Sagem...
- July 25, 2013
Provigil (modafinil) "Wide awake, enhanced reflexes, but too expensive."
- Anonymous
- Taken for less than 1 month
- November 13, 2012
Provigil (modafinil) "Felt like the energizer bunny! Within an hour I was racing around work. Pain I normally have(back surgery) disappeared but after 6 hrs when I slowed down finally, I ached everywhere!"
- DrWil...
- July 19, 2012
Provigil (modafinil) "I can't take Provigil daily because it is expensive so I use it on days when I need to accomplish important tasks (shopping, housework, social occasions, etc.). Having suffered from depression since my teens, and although my standard medicines help, Provigil is the only medicine ever that has made me feel "good". I'm so happy my psychiatrist suggested this medication and I hope that it is approved for depression so that insurance companies will cover it."
- Anonymous
- Taken for less than 1 month
- June 29, 2012
Provigil (modafinil) "It saved my life, had forgotten normal people live this type of life, I feel normal again! I feel so lucky my doctor prescribed it."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"I have been taking (Provigil) Modafinil 200 mg for many years. It was determined after multiple sleep studies that I had narcolepsy. Without this medication, I would fall asleep at work during meetings and just talking with coworkers. Taking the Modafinil is literally like day and night for me. It keeps me awake during the day with no side effects. If I forget to take my medication, it will be obvious to my office coworker, and she will say, 'Did you forget your medication today?' Without it, I am tired, sluggish, and feel horrible. I cannot live a productive life without Modafinil!"