Modafinil for Narcolepsy User Reviews (Page 5)

• Anonymous
• April 8, 2009

Provigil (modafinil) "I have been on 2 x 200 a day for 10 months now, and it has not been the miracle drug for narcolepsy that some people talk about. I have given it a lot of time, but still have excessive daytime sleepiness. Works better for others I suppose. Also, does anyone else notice that it makes your urine smell weird?"

• Anonymous
• March 16, 2009

Provigil (modafinil) "I hear people rave about Provigil and I was excited to try it. Unfortunately it did not help me. I slept just as much as I did taking no medication at all. I am still in testing and trying different medications. Hopefully I will find one that will help me stay awake eventually."

• Vicki...
• March 19, 2019

"I was diagnosed with Narcolepsy with Cataplexy when I was a freshman in high school. I am now 26 years old with a 3 year old daughter. While I was in high school, I was prescribed Ritalin, which did help. Recently I was prescribed Adderall and it worked GREAT. I was taking a 20mg tablet twice a day (one in the morning, once at noon or 1 pm). I went and saw a new Sleep Disorder Doctor who prescribed the Modafinil at 200mg a day (1 tablet in the morning). I am still absolutely exhausted by noon or 1pm. On Modafinil I am fine in the morning after I take it, but again, by Noon or 1pm, I am absolutely exhausted, can't focus and can barley keep my eyes open enough to function. I had high hopes for this medication but it just doesn't seem to be enough for me. I don't feel any different then when I wasn't taking anything."

• Irama...
• June 9, 2016

Provigil (modafinil) "I have taken Provigil years ago with no significant improvement. I went through the last 20 years being prescribed Xyrem, Cylert, Adderall, Ritalin, and recently Provigil along with Ritalin. None of these drugs provide wakefulness that lasts more than 3-4 hours. I can take the combination of Provigil and Ritalin at 9 am and fall back to sleep at 9:30 am. I take my medication on an empty stomach, but the wakefulness is almost nonexistent. I want to volunteer to be a case study because I believe I am a rare individual with narcolepsy. I want to find out if there is an underlying problem because I hear of people getting addicted to these drugs and they barely have an effect on me. I want to live a normal life and not be sleepy all day, every day."

• Anonymous
• Taken for 1 to 6 months
• September 16, 2012

Provigil (modafinil) "I have Narcolepsy with Cataplexy and am currently taking Provigil during the day when I first wake up. I have noticed that my Cataplexy attacks are fewer but it doesn't stop them all. I still have at least 3 big attacks a week. I have found that I am more alert taking Ritalin but have more cataplectic attacks. I am currently working with my doc to up the dosage because the 200mg are not enough. I have had some side effects with the medicine. Mood Swings, becoming fixated on a task or project, confusion, headache and some depression. I am currently a full time student and for me taking Provigil to prevent attacks vs being more alert is the best option for me at this point."

• Anonymous
• August 16, 2009

Provigil (modafinil) "Provigil made me lose my appetite at first, I lost about 20 pounds. The energy was great for a few months but it lost it's effectiveness. It only took me four months to reach the maximum dose. "

• dozy
• July 28, 2009

Provigil (modafinil) "I was diagnosed with Narcolepsy about 2 weeks ago. For 2 months I had been nodding off at work and at home, it got really bad when I nodded off while at a stoplight driving and when I got "written" up for sleeping at work. I was given Provigil to help me out which when I started taking it, it was like a miracle drug. I felt alert and not drowsy all the time. After 5 days I started feeling nauseous and then 2 days later out of the blue it stopped working. My Doctor put me on Ritalin but I'm still having problems later in the day, on my way to see a sleep specialist."

• Beach...
• Taken for 10 years or more
• November 20, 2021

"Been taking this for 10 years or so. I take 800mg a day along with Concerta 36-50 mg. My opinion? I don't like it. Never did from day one. I took Desoxyn for years before this. One small pill a day . My original Dr. gave me 5 mg. Desoxyn worked like a charm. He retired and my present Dr. decided this combo is better, It's not. What I find it to be is, it keeps you in an awake state without the Concerta, a "foggy" awake state. (regardless of dosage) I feel like I'm full of pills because the tablets are so large, I got used to this "dip" you get where you feel like your in trance for about 20 minutes..(even with one of the pills and it takes hours to peak). No matter how I juggle them I seem to stay more alert at night.. Desoxyn was 3 dollars and something for a months supply. THESE? Thank God I have a Prescription Card. I felt myself with the Desoxyn. It activated in minutes and lasted all day. No comparison. Great if you want to be a nightwatchman."

• Daddy...
• Taken for 2 to 5 years
• May 21, 2019

Provigil (modafinil) "Does nothing for my narcolepsy. I stay on it because the doctor told me to and I’m not competent enough to know that it’s not working. Also I look like a drug seeker if mention anything, and don’t agree with the doctors recommendation. It gives me some anxiety, my body feels awake but my head feels sleepy. Does nothing for brain fog I get with my narcolepsy. Armodafinil works better"

• Chelle
• Taken for 6 months to 1 year
• August 1, 2016

Provigil (modafinil) "I have Narcolepsy and I am currently taking 200mg twice daily and it barely works. My doctor added Ritalin 20mg twice daily and I have been on Ritalin for previous years until I moved to TX. In 2013, I was prescribed Vyvanse 70mg I believe. It didn't work better than the Ritalin or Adderall I tried while in TX. My doctor then prescribed Xyrem. Needless to say none of these drugs have provided adequate relief from daytime sleepiness. I started provigil in January 2016 and there's no change. I took provigil about 10 years ago and the same results. I need serious help because I barely function."

• Jackit
• September 3, 2013

Provigil (modafinil) "Provigil worked for my narcolepsy for about 6 months. After that, I began to have bouts of insomnia at night and became ultra sleepy during the day times. I was prescribed sleep medications to help combat the new side effects. Things did not seem to improve. I also gained 40 pounds during the time I took Provigil (which was a total of 9 months). As a woman, gaining weight was my LEAST desirable side effect of all. Finally, I switched off of Provigil and returned to what was working for me originally, Adderall XR 30 mg one to two times per day (depending on what my schedule was like that day). I only switched off of Adderall XR originally because my doctor was concerned about the potential long term cardiovascular effects on my body."

• Anonymous
• February 14, 2011

Provigil (modafinil) "I took this medicine for a month and it didn't work for me at all."

• vonbunn
• June 4, 2009

Provigil (modafinil) "Not effective for me, I took the 200mg once a day for 2 weeks. Did not have any reactions good or bad. Just no effect at all."

• Anonymous
• Taken for 1 to 6 months
• January 23, 2021

"modafinil was disappointing for me. I can sleep almost all day while on this med. I guess I'm one of those that it just does not work for."

• Anonymous
• November 2, 2019

"I have been recently diagnosed with narcolepsy with cataplexy and mild sleep apnea. Prescribed 100mg modafinil twice a day. I have been on it a week and have not noticed any difference, except lights seem more brighter. I have been misdiagnosed my whole life. I am 42, and am so tired of being exhausted. I am scared to drive since falling asleep and totaling my car on the interstate. I just want to be able to work and be a mom. Hate this disease. I had a hard time even getting modafinil because they wanted to treat the very mild sleep apnea first."

• Amay
• Taken for 2 to 5 years
• July 21, 2019

Provigil (modafinil) "Whether I take 50mg-100mg or 150mg, it always kicks in (if it even does) 12hr after taking it. 95% of the time, I can sleep straight through the med and I’m still severely dragging all day. This med doesn’t work for me."

• Sleepy
• Taken for 1 to 6 months
• June 11, 2018

"This drug has absolutely zero effect on me. I've taken doses from 50mg up to 400 mg and I don't feel anything. I can take it and go to sleep immediately. For me, this is basically a sugar pill. I wish I had the great experiences others report, but I seem to be a total non-responder."

• CM550
• Taken for 1 to 6 months
• August 16, 2016

Provigil (modafinil) "over 2 months on provigil. still tired, can't remember words, yawn all day. only side effect was appetite suppressant. which is all I felt. waiting for Dr to prescribe something else."

• AbbeyL
• Taken for less than 1 month
• July 13, 2013

Provigil (modafinil) "I found that this medicine was good at keeping my body awake, but I still felt like my mind was falling asleep. After about 4 or 5 days on it I developed the worst migraine of my life...when I get migraines they usually resolve with just half of a Vicodin. After taking two full Vicodin's I still had the most raging migraine ever. It lasted for 3 days. Once it resolved I went back on the Provigil two days later another raging migraine. That was it for me. "

• Anonymous
• Taken for 1 to 6 months
• September 12, 2012

Provigil (modafinil) "I have only been on Provigil for a month, but it has caused extreme nausea and headaches. I have a history of cluster headaches and migraines, which had diminished, but are now back in full force. I've also had stomach cancer twice and Provigil makes me very nauseous and losing weight due to an inability to eat. I'm glad that it is effective for some, I just wish that I was in that group because I am TIRED."

• toots
• July 24, 2009

Provigil (modafinil) "I started taking Provigil about a year ago when it was suspected I had narcolepsy. I was tested and found it was Idiotic Hypersomnia (lack of melatonin) they call it Idiotic because they don't know what causes it. Provigil works one day for me then not the next. You can only take 200mg max per day. I went off it and on Ritalin. I am awake without any ill effects. I have recently been tested again for narcolepsy and was found that I am narcoleptic. The test given last year was done incorrectly (without my C-pap), it was supposed to be done WITH it on during my sleep study. All is good now."

• Sleep...
• Taken for 1 to 6 months
• June 12, 2023

"I have narcolepsy without catalepsy. I end up getting so sleepy, fatigued, and feeling like my head is full of cotton. This medication did absolutely nothing for me. They even increased my initial dose to twice the amount I initially started with and it had no effect. In fact, the ONLY effect it had (and maybe TMI) is that it made my urine smell TERRIBLE! Like celery. This is apparently a rare genetic side effect, but it's so unpleasant. I'm now on Adderal XR and am it is like night and day with how well it works."

• repul...
• Taken for less than 1 month
• October 9, 2022

"Generic Modafinil is a dirty nasty drug; it made me paranoid & my skin crawl. Had previously taken name brand stimulants with no side effects. Modafinil made me feel down right insane! I'll never take another generic stimulant ever again!!"

• Exhau...
• Taken for 1 to 6 months
• May 21, 2022

Provigil (modafinil) "I have been prescribed Provigil for excessive daytime sleepiness. Originally 100mg twice a day. I honestly thought I’d been given a placebo. It did nothing. No side effects but also no reduction in sleepiness. Still fighting to stay awake during the day. My doctor doubled the dose. Still not working! My mental health is declining. What’s the point of living if this is life."

• Menta...
• Taken for less than 1 month
• July 7, 2021

"Have had Adderall before to treat narcolepsy & loved it! Then I had a doctor switch me to Modafinil bc it's "less addictive" & not as high of a controllable with the government. It made me feel completely crazy & about made me come out of my skin and loose my mind! As a drug I feel like it was just a step above bath tub crank! No thanks never again will I ever consider taking it again!"