Modafinil for Narcolepsy User Reviews (Page 2)

• Anonymous
• June 13, 2012

"Modafinil has changed my life. I am 50. I have probably suffered with narcolepsy for about 35 years. It has worsened with age. I was diagnosed 15 months ago. Initially prescribed dexamphetamine, initially I thought it was marvelous but I eventually realized it made my life almost unbearable. I have been taking Modafinil for 6 weeks, the first 2 weeks were difficult, mainly due to stopping the dex, since then life has slowly improved to the point where I have never felt better. Everything has suddenly become easy. I never realized how easy life can be. I wish I could meet the man who first produced modafinil to say "You have changed my life, THANK YOU. XX""

• techp...
• March 14, 2012

"Love this medication! Have been on it for over 10 years with no side effects. Different insurance companies have made me try Ritalin, Adderall and Nuvigil. None of those worked and the first two gave me awful side effects. It is not a fix all! You have to live different than other people do if you have narcolepsy. My doctor (who wrote a book on narcolepsy) said that I should still get about 10 hours sleep every night and should have a consistent daily schedule. Be properly diagnosed by a sleep latency study after an assessment for sleep apnea - it doesn't help sleep apnea! And don't take it if you are pregnant (also, birth control pills may not work while on it)."

• grann...
• November 19, 2011

Provigil (modafinil) "No side effects. Did not see anyone who listed pain relief. It was prescribed for my daytime sleepiness, but I noticed that my arthritic pain (knees and back) was much less. Had much more energy as well."

• Anonymous
• February 16, 2010

Provigil (modafinil) "Literally, PROVIGIL saved my life. I suffered the severest of symptoms re: Narcolepsy w / Cataplexy for several months prior to Physicians determining a diagnosis, I'd have complete "drop attacks" out of a clear blue sky; chattin someone up, nuking a cup of coffee, taking a shower, & SPLAT, down I'd drop! Hit like a sack of sand. Broke numerous bones, ruined numerous joints, fractured my skull & broke 3 ribs. After being evaluated & worked up by a SPECIALIST, I was diagnosed & medicated with 2 X's 200mg Provi's in the A.M. & I've now a somewhat normal life! It's been 2 years & I note the dose is less effective; I've not ate turf lately, but I'm noddin out @ the PC often & slipping from AWAKE to REM, boom like that!"

• Anonymous
• October 9, 2009

Provigil (modafinil) "I was diagnosed with narcolepsy in 1998. I have been on Cylert, amitriptyline, Ritalin, ambien, and now Provigil. The Provigil is a life saver. I did lose weight on it at first, but have leveled off and have not lost any weight since then. I have taken Provigil for 2 years now. It is not an "upper" and does not make me feel drugged. I take 200 mg in the morning. It does not wake me up, it helps me maintain the wakefulness that I need to get through the day. Without Provigil, I would not have a normal life. I am thankful to have found this drug. I would, however, like a generic to it that would help to offset the exorbitant cost of the drug."

• Anonymous
• March 6, 2009

Provigil (modafinil) "Works like a miracle but have nausea."

• CityL...
• January 31, 2009

Provigil (modafinil) "I was diagnosed with Narcolepsy when I was 17 and still in high school. That was about 14 years ago. Out of those 14 years, ten of them have been spent on Provigil. It has obviously worked for me. I take 200mg 3 x a day - One in the morning and two at lunchtime. I haven't had any side effects, other than not being ready for bed at night but that could be me just not wanting to go to bed. All in all Provigil keeps me awake and functioning. Oh, I do agree with everyone about the cost - it's not cheap."

• neuro...
• November 12, 2008

Provigil (modafinil) "This is a wonderful medicine. Costly, but great. However, I have found that it is best to take it an hour before eating or if need be an hour AFTER eating. This medication changed my quality of life. Future downfall....if I decide to have kids. Then what? Consider this if you are thinking about having kids."

• Anonymous
• October 30, 2008

Provigil (modafinil) "Only side effect for Provigil was a headache for the first week. Much more effective medication, better result and fewer side effects."

• Anonymous
• June 24, 2008

Provigil (modafinil) "Works great for my Narcolepsy; the only complaint I have is that the price is prohibitive. It is the only medication that has worked effectively for my condition and with dramatic results."

• Anonymous
• May 8, 2008

"This has changed my life. I thought it was depression but this has helped better than 10 different antidepressants."

• Anonymous
• May 1, 2008

Provigil (modafinil) "Works great. Too expensive. "

• Anonymous
• April 30, 2008

Provigil (modafinil) "compared to ritalin i was taking, provigil works much better and less side-effects. hasnt effected my blood pressure"

• Anonymous
• April 10, 2008

Provigil (modafinil) "I have never felt better."

• Coach
• August 17, 2021

Provigil (modafinil) "Diagnosis with Narcolepsy at 23 yrs old and now I am currently 41years old. Saved me from quitting college. I now have 3 college diplomas. I run about 30+ miles a week. Fall asleep no problem and can still take naps if need to. My dose is 200mg am and another 200mg at lunch. Will often supplement with caffeine beverage as long as it’s not after 4pm. I have slight cataplexy, anxiety, and both are treated with Effexor XR which goes nicely with provigil. There is a weird side effect, if I am not hydrated enough I will have itchy legs. No rash or hives just uncontrollably itchy especially after a run in the summer. So if that happens and dermatologist can’t figure out, that’s your problem is you are not drinking enough. Sleep well y’all"

• Kay
• Taken for less than 1 month
• May 10, 2021

"I experienced Narcolepsy symptoms my entire life (without cataplexy). I would fall asleep while driving, take naps in the bathroom floor at work, sneak off to sleep in my car during events. The sleep attacks were debilitating. I haven't been on this med long (only a few weeks) but I've felt incredibly better. It took about 4 days for it to work fully. I don't feel jittery or unnaturally focused, both of which Adderall causes. I simply feel like "me" just more awake. Don't even need my coffee. I take 100mg in the morning and 100mg in the afternoon. Some reviews say it has increased mood/ reduced depression but that hasn't been the case for me. Regardless, it is truly a life changer. Use GoodRX: It costs me $25 for a 30 day supply of 200mg pills"

• Mel
• July 14, 2019

"Modafinil takes a lot of getting used to and to figuring out what doses at what time works best. It has made me able to be sociable and do things again! I used to sleep for over 50% of the day, but this is no longer a problem. I’m very very happy with it. I can still fall asleep when I take it though."

• JDano
• Taken for less than 1 month
• June 11, 2019

"I am new to this modafinil (just started this week). I am taking 200mg for narcolepsy. So far it has been great. I haven’t felt this awake in so long. I am able to function all day without naps. One question I have is since I started this I have only been sleeping on average 4-4.5 hours at night. Has anyone else experienced this. Is it because I just started? I don’t want to sleep that little that can’t be healthy."

• Narco...
• April 24, 2019

"Diagnosed with narcolepsy at 14 after Multiple Sleep Latency Test (MSLT) had me asleep in 40 seconds. My type is Severe Narcoleptic without cateplexy,. Provigil is gave me my life back so I can complete school!! On it for 7+ years. I take a high dosage in the morning (AFTER eating), sleep immediately afterward to get rid of dizziness/mental fog, wake up an hour+ later with massive energy for the day. Did well, but best results when I started doing a sport regularly along with Provigil (Not as effective when I was inactive). TIPS + Provigil increases alertness/energy level, not a full cure. I take 1-2 hour naps after eating/exercising/awake too long. Learned to plan sleep schedule around activities. + EXPENSIVE, but getting cheaper. Initially paid $1,200 a month. Insurance covered modafinil after Adderal, Xyrem, Ritalin, Nuvigil failed + "Midday fallout" happened during first few months because my dosage was too low. Doctor increased my dosage and I began keeping VERY consistent schedule, and it went away."

• Joelben
• December 13, 2017

"Been taking modafinil for 2 years. When I don't take this drug I'm more prone to taking involuntary naps, dozing, and falling asleep early in the day. This drug had allowed me to live a normal life with exceptional benefits and no withdrawal /side effects. On the off day I decline to take it so my tolerance does not build. I sometimes get angry that recreational users with no prescription write reviews about this drug because they have no experience with sleep disorders and thus have a skewed idea of what this drug can do for those that do."

• Metat...
• Taken for 2 to 5 years
• October 26, 2017

"I am diagnosed with Bipolar, ADHD Inattentive Type and Narcolepsy without Cataplexy. Modafinil generic or Brand name is very effective in uncontrolled daytime sleepiness without disturbing nightime sleep as long as it is not taken too late in the day. Helps with depression and focus and general energy. It literally saved my life by stopping me from falling asleep while driving and saved the lives of others. Generic is still pricey and the Insurance will not want to pay for it."

• Haloguy
• Taken for 5 to 10 years
• December 11, 2016

"I was put on provigil at the age of 12 and it worked sometimes but I lost Insurance after hitting 18 then was able to get back on it at 20. Now I've been taking for 3 years and going. 2 200 milligrams 1 time when I wake up.some times 3 due to tollarence. I do road construction and operate heavy machines like Bob cats and trucks and rollers but I still fall asleep when we move to next job(not driving) I also use marijuana to help balance the shakes. It works wonders for me. You might just have to bump up dosage. I do this at 50mg plus until it works. Never went past 600 mg tho. Only bad effect is aloft of aggression and mania list of appetite"

• danco...
• Taken for 2 to 5 years
• June 18, 2016

Provigil (modafinil) "Provigil is different for everyone. Personally, I can begin to feel it working about 30 to 45 minutes. I take it as soon as I get out of bed so it's on an empty stomach. I eat after I get dressed, so by the time I'm making breakfast, I feel like I received a caffeine boost that will last about 8-10 hours. If I'm having a hard time waking up, I have been known to take the medication and take a 15-minute nap. I set my alarm for 15-20 minutes. When I wake up again, my head is clear, I feel refreshed, and ready to burst out of bed."

• Infin...
• Taken for 2 to 5 years
• September 16, 2015

Provigil (modafinil) "Sensational medication. Provigil taken alone for my narcolepsy kept me awake and alert when needed yet allowed me to take my short nap(s) through out the day when needed."

• Frogy...
• July 27, 2015

Provigil (modafinil) "I have taken Provigil for 5 years now (since I was 16) 400 mg a day, as the lower dosage was ineffective. It has been a godsend. I really struggled through school, and while it didn't help me get top grades, it did wonders for keeping me awake during lessons. I'm awake for around 15 hours a day, with a 2-hour nap in the afternoon and 7 hours sleep at night. The best part is being able to have a sleep pattern, something which beforehand, I could never experience. Without this drug, I could never get anything done."