Quillivant XR User Reviews & Ratings

• Rod...
• Taken for 1 to 6 months
• February 2, 2020

For ADHD "My 8-year-old son was given this med, Quillivant. The longer he took it, the worse he became. He became very aggressive, paranoid, had hallucinations, and was very hard to control. He had to be admitted to a psychiatric unit for 2 weeks, they were unable to get him off that med, and he was put on another med. He became himself again. He's one that does not tolerate stimulant medicines at all, I insisted he be put on non-stimulant, and our problems began to change. Two years later, he's doing much better!"

• Mar...
• Taken for 1 to 6 months
• May 28, 2019

For ADHD "Started my 6 y/o son on Quillivant for ADHD. It went well but only lasted a few hours. We switched to Quillivant XR and it's been good for him. We can increase his dose gradually, and he does not seem muted or spaced out. It's like someone turned down the volume on his ADHD. It's no magic thing. He still struggles to focus. But he's much more able to sit for longer than 10 seconds and has been able to keep up with what's going on in school a bit more. He does not lose his appetite, does not have any apparent side effects, though he does rebound at the end of the day. All in all, I'm very happy with this medication for him."

• Fin...
• September 13, 2016

For ADHD "I have Bipolar I disorder along with PTSD and ADHD. I am a rapid cycler, which means I'm all over the place, and I need to have a strict medication schedule in order to remain stable. Being on any stimulant medications, like even a steroid for inflammation, can make me manic. After spending years trying to stabilize my condition, I was faced with a choice: either drop out of college because I couldn't keep up or risk going manic by trying an ADHD med. It took months for my doctor to agree to give me something, anything, for my ADHD because the risks were too high, but she finally did. In February, she prescribed Quillivant XR because it had seemed to work with other bipolar patients. Since then, everything has changed. My mind works. My brain works finally."

• Deg...
• Taken for less than 1 month
• December 9, 2019

For ADHD "My 6-year-old started taking the lowest dosage of 4 ml. It did nothing. We raised the dosage to 5, then 6. Once we got to 7, we noticed a change. He was much calmer and much more focused. Then, the second day of him on the 7 ml dosage, he began to have hallucinations at school. Nightmares and lack of sleep. He was very emotional and paranoid. I immediately took him off the medicine."

• Anonymous
• Taken for 1 to 6 months
• December 13, 2015

For ADHD "My son was prescribed this at the age of five. It works well on his ADHD, the bad thing about it was that it made him see things that weren't there. He would hallucinate very badly. So we had him taken off and was put on a new medicine."

• cow...
• August 16, 2016

For ADHD "I got this for my 5-year-old daughter, who has high-functioning autism. This medication was a godsend in terms of making her focus and follow directions, but sadly, we had to stop giving it to her because it made her terrified of everything. She became very paranoid, and things she used to love suddenly scared her (example, blowing bubbles became scary!) She became jumpy and had nightmares. We tried to work with this medication for over a year, no luck. She's 7 years old now, and we finally took her off of it. After being off of it for a little over a week, she is no longer scared and paranoid about everything. She is back to being unfocused and not following directions, but I would rather have her unfocused than terrified of everything."

• Hop...
• Taken for less than 1 month
• August 17, 2016

For ADHD "Son was recently diagnosed with ADHD in June 2016 and just had his first dose on 8/16/16. The doctor recommended that we start at least a couple of days before school, just to see how it works. Well, as a mother who was against meds at first, I was impressed with it on the first day, with the exception that I noticed around the 4th hour that he had started to move his mouth a lot, lick his lips, and move his tongue around inside of his mouth uncontrollably, and it was concerning to me. Eventually, it did stop around the 11th hour after he was given the dose. I'm not sure what this could be, I do see one of the symptoms is dry mouth. Can anyone tell me if their child experienced this or what this may be?"

• Anonymous
• Taken for less than 1 month
• September 15, 2016

For ADHD "My 4-year-old son has autism, ADHD, and OCD. After coming off of risperidone, my son's neurologist wanted to try my son on Quillivant XR. Our pharmacy had to special order this medication due to there being nobody else in this county that takes it. The first dose of this medication that my son took, he went wild! He got violent with us and just refused to eat anything, he was also up for 22 hours straight! He only had two doses of this medication (day 1 and 2), then I had to call his doctor to have him taken off the medication. We ended up going back on risperidone and guanfacine. Once I stopped giving my son the Quillivant XR medication, he started acting like his old self again."

• Mvh...
• August 7, 2016

For ADHD "This is the first and only medication we've given to my 6-year-old son since being diagnosed with ADHD in January 2016. It works very well. We give him his dose at 6:30 a.m. during the school year, and the teacher notices it wearing off by about 2 p.m. The only noticeable side effects were a slight decrease in appetite the first few weeks and slightly more difficulty when settling down for bed at night. We no longer have either issue. It is pricey. We pay $65/month with our insurance plan. We live in PA and have to pick up the prescription from the doctor's office each month. We've also had an issue occasionally when our pharmacy does not have Quillivant in stock. When this happened, we had to drive to several pharmacies to find one that had it."

• Sum...
• August 11, 2015

For ADHD "This has been the best medication for my 10-year-old son, both in how it works and the fact that it's a liquid. He has severe ADHD. He can't swallow pills, and the patch gave him a rash. He had tried a few capsule meds opened up and the extended release bead mixed in pudding. As soon as this came out, we switched him to Quillivant, and he's had great success in managing his ADHD during the day. He starts having trouble at school around 1 PM, so it does wear off somewhat, but overall we have been impressed with this medication. I will second the other reviewer's comment that you should get the copay card from your prescriber that is given to them by the manufacturer, so it only costs $20 a month. You can get a new one each calendar year."

• Pat...
• Taken for 2 to 5 years
• April 24, 2018

For ADHD "I have given this med to my son for ADD, but our experience is he is like a zombie. And yet his teacher says he does not focus. Well, how can he if his state of mind is where? So, I cut back the dosage to 4 mg and then 3 mg and then 2 mg. But he still seems like he is out in left field somewhere and not focusing. Has anyone else had this problem?"

• Mom...
• Taken for 2 to 5 years
• August 13, 2016

For ADHD "Quillivant has changed our lives. My 12-year-old son has ADHD with slight autism. When he isn't on medication, he is depressed, cries a lot, and can be inappropriate. He won't swallow a pill. We tried a few medications and the patch, but they all had instant side effects. We love that Quillivant is a liquid, and at 5ml, he is very happy. The only slight side effect is a decrease in appetite. It wears off 8 hours later when we give him a Ritalin pill that he chews. Yuck. We couldn't be happier with this product, but it is hard to find at pharmacies. Get a discount card for only a $20 co-pay."

• Mom...
• Taken for 1 to 2 years
• September 24, 2023

For ADHD "My daughter started this about 1 year ago while she was in the 3rd grade. It has done wonders for us! She is able to finally focus in school! She takes 20mg at about 7:20 and it starts to wear off around 3 or 4. No decrease in appetite or any negative effects that I've noticed. She loves the flavor, says it tastes like bananas so we call it her banana medicine! Because of this medicine, her grades have improved! I give it to her on weekends as well and can definitely tell when the medicine was forgotten or not given to her in the morning!"

• Mel...
• December 4, 2016

For ADHD "My son was put on this medication at the age of 8. The first day he was focused, however, he kept licking his lips and would just stare when being spoken to. I took him off the medication. It's not for us."

• She...
• Taken for 1 to 6 months
• April 13, 2017

For ADHD "My daughter was put on this for her ADHD, and it has worked reasonably thus far. We weren't looking for a miracle cure, as everything has its pros and cons. We have Tricare Prime, and I pay $25 a month for her bottle."

• emb...
• Taken for 1 to 6 months
• November 18, 2022

For ADHD "My granddaughter I'm raising has ADHD. She tried to exist a week without this medicine at school. The school could tell you exactly day by day how she was coming off of it, it was terrible. This is a wonderful medicine for these children, but the reason she can't take it now is that it can't be found by Walmart distribution or any other drug store around. Now Medicaid, when we can't find the liquid, wants to fight paying for it in the chewable, after it's worked so wonderfully all along."

• caf...
• Taken for 1 to 2 years
• February 18, 2015

For ADHD "Used for ADHD treatment in my 8-year-old daughter. We had to increase her dosage to last the school day. Only real pitfall is it comes in a glass bottle and not easily transported. We switched to a pill that I can keep on hand for mornings when ADD mom forgets. Also, stupid expensive unless you get the $20 copay card from your doctor. They will send you another after 12 uses. Did have to get authorization from insurance for this medication."

• Jaz...
• Taken for 1 to 6 months
• July 25, 2021

For ADHD "This is the worst medicine you can give a child. I gave my kid like 7 ml of this stuff, she was literally acting like a zombie, didn't want to talk, was refusing to go on fun rides or activities she normally gets excited for. Side effects are slowing growth in children. Your child will not act right at all. I wish I knew this before I gave her anything. I prefer her being active, jumping, talking, and playing compared to her just zoning out and not doing anything."

• PFa...
• Taken for less than 1 month
• January 15, 2017

For ADHD "I have been on this medicine for approximately a week with no benefits whatsoever. I am taking 60 mg (12 ml) a day. Dexedrine, on the other hand, has very positive reviews, and I will be asking for Dexedrine next appointment."

• Kyn...
• Taken for 1 to 6 months
• January 24, 2024

For ADHD "My son is 6 years old and has ASD and ADHD. The combination of ASD and ADHD makes everything much worse for my son as far as hyperactivity, lack of focus, irritability, and so forth. He first started taking 4 ml because anything less than that had no effect. It works very well but only lasted 4 hours. So, his doctor said it could be gradually increased to 6 ml, which is effective for the entire school day but doesn't last any longer than that. I don't see any letdown with him at all. It works throughout the day, and then all of a sudden it doesn't, and he is back to his typical behavior. He doesn't experience any mood swings, loss of appetite, trouble sleeping, or increased aggression. He does, however, experience a slightly increased heart rate. Other than that, it does help a lot, but it's not magic, it just greatly reduces the things he struggles with."

• L W...
• Taken for less than 1 month
• January 6, 2017

For ADHD "'Tried' to fill the Rx my son's Dr. had written (very first of this med) at one of the large retail store pharmacies and... Even with a Tricare co-pay, the cost was just over $1K!!! Needless to say, I called the Dr.'s office back immediately for another/different Rx. Talk about price-gouging!"

• rob...
• Taken for 2 to 5 years
• July 24, 2019

For ADHD "It really works for me, great medicine."

• thx...
• Taken for less than 1 month
• January 15, 2017

For ADHD "This medication does nothing for me. I still can't concentrate or remember much. I am taking 60 mg (12 ml) daily. I have read a lot of positive reviews for Dexedrine and will be asking for it."