Lialda and Pain: What Users Say

• Ano...
• June 25, 2015

For Ulcerative Colitis, Active "I was diagnosed with left-sided UC in May of 2015. My GI prescribed 4.8 grams (4 pills in the a.m.) of Lialda, plus 1 Canasa suppository (1 gram) at night. The suppository was for 3 weeks only. Within 2 weeks, the bleeding stopped, and I no longer saw the remnants of the colon tissue erosions when I had a bowel movement. I stopped taking the Canasa after a week and a half because I think it was leading me towards diarrhea, and I felt slight rectal pain. There was no noticeable negative effect to me stopping the Canasa dose at that point. I continued to take the regular dosage of Lialda. I had some dizziness the first week or two, but that has since abated. I also noticed acne that I haven't had in many years. No issues with hair thinning."

• Tum...
• Taken for 1 to 6 months
• June 25, 2014

For Ulcerative Colitis, Active "I was told to switch to Lialda after being on Asacol HD for 3 years, 2 pills 3x a day, 800mg each, due to my insurance not covering it anymore. My doctor told me the only difference was the coating, so I felt confident making the switch. By the end of week one of Lialda, 1200mg, 2 pills 2x a day, I was starting to get pain and go more frequently until it turned into diarrhea. I had no flare-ups for a year and had been feeling great on the Asacol, so I immediately switched back to it after a month on Lialda. It was too late, the wheels had already started turning on the road to a flare-up. I am now on day 8 of being back on Asacol, waiting for my prednisone to get me better. I am so disappointed this happened."

• Bea...
• April 24, 2014

For Ulcerative Colitis, Active "I was diagnosed with ulcerative colitis 8 years ago and, due to my financial situation, stopped taking any meds for the past 5 years. But recently, I went back to my GI, and after being reprimanded for my actions, I was put back on Lialda. It has been about 2 and a half months, and most of my symptoms have improved, though I am still having soreness/dull ache in my abdomen and urgency for the bathroom more than my GI thinks I should. A colonoscopy is scheduled in a few weeks to see what the condition of the colon is in, and I may have to add another medication. I would advise, even if you are feeling fine, do not stop taking your meds unless directed by your doctor. I have been told I will need to take meds for the rest of my life."

• MS ...
• Taken for 2 to 5 years
• March 9, 2013

For Ulcerative Colitis, Active "My daughter takes Lialda for severe Ulcerative Colitis. If the cost is a problem, talk with your doctor for a discount card through the company. When added to your insurance, it only costs about $10, with my insurance, it's $40. If no insurance, I believe it's about $40 a month, not sure, doesn't hurt to check out. The card is good for a year, and you have to call to renew it at no cost. She started taking 4 pills a day, and last summer her doctor dropped her down to 1. Since then, over a period of 5 months, it's back with a vengeance: severe bleeding and pain."

• vnd...
• September 1, 2016

For Ulcerative Colitis "Works fairly well on the ulcers, but the side effects are terrible. Two days in, my knee swelled to twice the normal size, and I can't stand on it. Fever and headache constant. Ache all over. Eyes hurt. Going back to Colazol."