Lialda and Flare-Ups: What Users Say

• Mam...
• December 29, 2011

For Ulcerative Colitis, Maintenance "I was prescribed Asacol, Apriso, had 3 sessions of Remicade, all with disappointing results. I have been using Lialda for about 21 months. I was in total remission until about 2 weeks ago, so I did really good for nearly a year. Then one hugely stressful incident caused a flare-up. I am working with my doctor to get back on track."

• Tum...
• Taken for 1 to 6 months
• June 25, 2014

For Ulcerative Colitis, Active "I was told to switch to Lialda after being on Asacol HD for 3 years, 2 pills 3x a day, 800mg each, due to my insurance not covering it anymore. My doctor told me the only difference was the coating, so I felt confident making the switch. By the end of week one of Lialda, 1200mg, 2 pills 2x a day, I was starting to get pain and go more frequently until it turned into diarrhea. I had no flare-ups for a year and had been feeling great on the Asacol, so I immediately switched back to it after a month on Lialda. It was too late, the wheels had already started turning on the road to a flare-up. I am now on day 8 of being back on Asacol, waiting for my prednisone to get me better. I am so disappointed this happened."

• gtr...
• October 27, 2011

For Ulcerative Colitis, Active "My doctor switched me from Asacol (which was working very well) to Lialda, and the results were horrible. When I started having bad flare-ups, my gastroenterologist had no clue what to do. She put me on Remicade for over 16 months with no results, and I was miserable. When I suggested that perhaps it was the Lialda that was causing the problems, she stated that that was 'not likely.' Well, after about two years of misery and being back on steroids, I switched doctors - a guy who came highly recommended. After a heart-to-heart consultation with him, he stated he had some patients who did not do well with Lialda and decided to take me off that medication immediately. Within three weeks, I was off steroids, back to using Asacol, and life is now okay."

• Sch...
• January 11, 2013

For Ulcerative Colitis "I used Lialda for approx 1 month after a relapse of my Ulcerative Colitis. My doctor gave me samples of it. It worked very well. I had been on sulfasalazine for many years and was happy to find something else to take since I didn't have to take as many pills with Lialda. That said, after the samples ran out, I was given a prescription, and when I went to fill it at the pharmacy, I was shocked to see it was going to cost me over $300 for one month's supply, and that was AFTER my insurance paid more than half of it. I normally have a $5.00 copay, so needless to say, I am back on sulfasalazine and dealing with flare-ups again. (I got a discount card from Shire so the prescription would only cost me $120 a month, but that's still too much)."

• Lov...
• April 16, 2015

For Ulcerative Colitis "****Helpful information**** Search the web for Lialda coupons to get Lialda for $10 a month! I am a 24-year-old who has been diagnosed with ulcerative colitis since age 11. I started on Colazal when I was first diagnosed; but it only continued to keep me in remission for a few years. I was prescribed many other medications that didn't seem to work for me either. Finally, once I was prescribed Lialda, my health and quality of life improved greatly! Lialda is such a lifesaver for me! (Although I still have occasional flare-ups, things calm down when suppositories are used in conjunction with Lialda.)"

• Cor...
• March 9, 2015

For Ulcerative Colitis "I was diagnosed with UC at 18 years old. After a week in the hospital, they came up with the final diagnosis, and after a few tried meds, they landed me on Lialda, and it worked great for me for 7-8 years, only experiencing flare-ups if I were to drink too much alcohol and lose sleep, which was rare, but in that case, I would need to use prednisone to get back into remission. Healthy diet, sleep, exercise, and Lialda kept me normal! I am 26 now, and I feel my body has built up a tolerance. For the past year, I have been on a low, going to the restroom more than five times a day. Up until now, Lialda was perfect. With the Shire card and health insurance, it was only $10 a month."

• Roo...
• Taken for 10 years or more
• March 28, 2022

For Ulcerative Colitis "Took Lialda for years, worked great until my insurance would only pay for the generic brand. Started having flare-ups and had to switch to basalamide. Generic Lialda doesn’t work well for me."