Tremfya and Joint Pain: What Users Say

• GKa...
• Taken for 1 to 6 months
• August 15, 2019

For Plaque Psoriasis "After the second shot of Tremfya, both shoulder joints and wrists hurt. Shoulders are worse than wrists. These pains were not there before. But psoriasis is almost gone with 99 percent clearance. Hopefully, the joint pains will go away. Tremfya research staff could make a real difference by collating information from side-effects database filed both with Tremfya itself, doctors around the country, and the FDA. How long do the joint pains last? What percentage of patients gave up on Tremfya because the pains will not go away? After how long did they give up? For those that stayed with Tremfya, how long do pains typically last? All this important information is hidden in the data. Instead, we have almost zero information with the Tremfya nurses, and the dermatologists also have no clue. Patients are literally on their own. Would the responsible party, in this case Tremfya and the FDA, please step up to the plate and do their job? “Please ask your doctor” is not an answer."

• Mig...
• Taken for less than 1 month
• September 5, 2022

For Plaque Psoriasis "Injected first dose 5 days ago. Day 3, 4, 5 since then I’ve had severe throbbing headache/migraine on my RHS temporal area behind the eye. I can’t function or work. I also have stiff muscles and joint pain. It is unbearable. Do the side effects get better?"

• Sti...
• Taken for 1 to 6 months
• August 25, 2021

For Psoriatic Arthritis "I am just about to have my fourth injection. I have not noticed any improvement in joint pain, fatigue, or enthesitis. My scalp psoriasis is slightly improved. Initially, my joint pain was much worse, but now I am back to my baseline joint pain. Still waiting for any other improvements…"

• Amb...
• Taken for 6 months to 1 year
• April 26, 2019

For Psoriasis "Been on Tremfya for over 6 months. Cleared 100% almost immediately. Failed Humira and Cosentyx previously. Body aches and joint pain on the rise. Cold sores occurring. A couple of intense colds. Energy drain. So far, worth the side effects for me. For now :)"

• KSl...
• Taken for 6 months to 1 year
• October 29, 2020

For Psoriasis "I have been on Tremfya for about 12 months now and have really loved the results. I do have small flare-ups just before I am due to take my next injection, but overall I have remained psoriasis-free. I do have some joint pain, which I assume is from the Tremfya, but even so, it is worth it. Wes, I think you will find getting hypothyroidism could be linked to already having an autoimmune condition such as psoriasis. Often, when you have one autoimmune condition, you are at risk of ending up with two or three. I have both of these conditions. I find intermittent fasting does help a little bit with my overall health."

• Anonymous
• Taken for 1 to 6 months
• June 19, 2023

For Psoriatic Arthritis "I have BOTH: psoriasis and psoriatic arthritis. Like most of the reviews here, my plaques are 100% gone, BUT the joint pain in hips and knees is off the charts. For years, I only had pain in my right hip, but since starting Tremfya about 6 months ago, now having bilateral hip pain, and knees have flared up as well. Like you have to choose: do you want to treat the plaques or the pain, because NOTHING has helped me with both."

• Sam...
• Taken for 1 to 6 months
• May 5, 2022

For Plaque Psoriasis "I am now a week out from my second injection. The first month went great, with skin psoriasis mostly gone and psoriatic arthritis pain very slightly better. Two weeks after my second injection, full-on joint pain worse than before taking and the return of my psoriasis. Going to switch to Humira and pray for better results!"

• eil...
• Taken for 1 to 6 months
• June 6, 2024

For Psoriasis "Got bad skin infections, cellulitis with it. When I had to stop the injection for a month, realized that the bad fatigue was caused by Tremfya because as the fatigue decreased, the joint and muscle pains increased, and the scalp and overall psoriasis increased and came back. Need to try another, but at least I know relief is possible. Been suffering too long...decades."

• Bur...
• Taken for 1 to 2 years
• January 27, 2025

For Psoriatic Arthritis "Have been using 100 mg Tremfya injection for over a year now, but usually after a week the joint pains return and muscle cramps begin. Not sure if it's related, but I also have a constant cough and regularly spit up mucus from my throat and chest."

• Kas...
• Taken for 1 to 2 years
• November 29, 2022

For Plaque Psoriasis "I have had psoriasis for 20 years. Tremfya works for psoriasis, but the joint pains and weakness are disabling. Stopping it, regardless of possible return."