Repatha for High Cholesterol User Reviews (Page 4)

• Bad...
• Taken for 1 to 6 months
• February 20, 2017

"I was on Praluent for a year no side effects, cholesterol was great. Insurance wanted me to switch to Rapetha, after 2nd injection noticed constant stomach pain, constant diarrhea, and I have vivid dreams all night and wake up exhausted. I called my doctor to go back to Praluent, I cannot take the side effects."

• Kitty
• August 4, 2019

"Having taken statins since 1993 for high cholesterol, I became allergic and began Repatha injections a year ago. My hair started falling out, so I had blood work to rule out thyroid trouble. Ruled that out. My numbers are down, but my hair loss continues. I have a feeling it is Repatha causing it. I came on here to see if anyone else was having this problem. It being such a new drug, I feel like a Guinea pig. I am scared to stop the drug, but my cholesterol will go sky high again. I am at a loss as to where to turn for answers."

• Deanna
• Taken for 1 to 6 months
• April 6, 2019

"I started this medication and took maybe 7 shots. First few times mild cold symptoms which I could tolerate. I also had ear issues. The next few shots came with blurry eyes, nausea and some diarrhea and weight loss. The next shots started with severe diarrhea, nausea and more weight loss. I am a kidney transplant patient and my kidney labs are worse, will be having a biopsy in 3 days to see why my transplant is rejecting (probably Repatha). I stopped taking it 3 weeks ago and saw my cardiologist today and he told me to stay off of it and it will take 3+ months To get out of my system. This stuff is POISON! I am very angry, sad, and feel deceived by Amgen and the rubbish they peddle about this stuff. Heed the warnings."

• tajos...
• Taken for 6 months to 1 year
• March 20, 2021

"I was a very active healthy 61 year old athletic active male who had to have a heart stent because of family history. No heart attack or anything. My doc put me on repatha to lower cholesterol. After injections of six months, numerous ER visits, and every health test possible, the side effects have diminished my quality life. It has been over a year and half science stopping the injections, and I am still suffering from bouts of feeling very ill. DO NOT TAKE THIS stuff."

• Laney
• Taken for 1 to 6 months
• May 1, 2019

"Numbers are great from this medication. Dropped cholesterol 100 points, LDL to 70. That's great for this 59 year old female who has always had high cholesterol. However, those numbers are not worth the side effects. Have tremendous burning from neck to abdomen. Muscle pains in legs and severe back pain, especially lower and between my shoulder blades. Have taken 5 injections and discussed the side effects with Dr and he reduced the injections to once a month. Last had the injection on April 1st. As we speak, April 30th, am fighting extreme side effects. With the burning in my chest, I'm not sure if I'm having a heart attack or not. Have suffered 3 attacks like this that last all night since my last injection. THERE IS NO WAY I'M TAKING ANOTHER INJECTION. I am just praying that these symptoms stop and do not continue long term like others have stated on this site. Stay away from this drug! Please! There may be no recovery from it."

• Anonymous
• Taken for 6 months to 1 year
• April 26, 2021

"I’m a 64 yo female with hypercholesterolemia. Nothing worked to lower my cholesterol so my doctor highly recommended Repatha. Right away I noticed blisters in my mouth, nose, butt, etc. I was rushed to emergency room at 3am because I couldn’t breathe from blisters on my throat and nose. Repatha causes shingles. It has been 8 months and my left side of my face is still tingling because the left side of your faces has nerves and the Repatha affected all the nerves. I can’t chew on the left side of my mouth and my smile is drooping. This drug is horrible and it’s just another money making way for doctors to lie to us. I stopped going to doctors now. I go to holistic doctors. They are definitely more experienced in good health and care more about their patients. I’m thinking of suing Repatha because I’m still suffering."

• Ginjoe
• Taken for less than 1 month
• September 7, 2017

"After 1 shot started diarrhea, scalded my skin and it made open sore. Lower right back started hurting. Day 17 I'm waiting on blood work before I take a second shot and my neck at the base hurts. Weird pains I'm not used to that hurt and affect my life quality. Can't take statins. Don't think I'll ever take another shot of Repatha. If it messes with your liver it can kill you. Will walk at least 60 minutes a day every day. Continue watch fat and trans and cholesterol. Last shot 27 days ago. Between initial post and now, I'm still nauseated. Loose bowels every time I eat I have to go. Can't go anywhere. And physically irritating. Still knees and back pain and behind my eyes, trouble swallowing, body spasms. Still so tired and no energy and have trouble."

• Loraine
• November 3, 2019

"I was prescribed repatha after having side effects from statins. I was totally off statins when I started. First injection I had some mild cold/flu symptoms for just a couple of days, very mild. I had my second injection on a Thursday and by Tuesday the next week I had cold and flu like symptoms, neck and back pain and was in bed for three weeks. At first I didn't even connected to being side effects of Repatha but then I had remembered when they briefed me the PA saying cold and flu like symptoms. So I started doing some research and I had every side effect listed with the exception of high blood pressure. It is now almost 3 months since my last injection. My migraine that in the past had basically gone have recurred. I also have sinus pressure, neck ache and lower back ache, aching hands feeling arthritic, urgency to urinate and extreme fatigue. My internist said could take about six months to get out of my body. I pray she's right. This is a life-altering in a negative way for me. Incredibly frustrated."

• SLAP
• Taken for less than 1 month
• April 7, 2017

"Work great but, my quality of life wasn't there. Drug turned my muscles into marshmallow to the point I couldn't walk. So what's the point. I ended up pulling muscles when I bent over, $300 later @ a chiropractic put me back together again. Statins for me are bad news !!!! Can't take them PERIOD so quit pushing the meds @ $500.00 a shot"

• Eugene
• Taken for 1 to 6 months
• December 17, 2019

"I am a physician and I warn my patients that there is no such thing as a completely safe, and side effect free medication. Even a quarter of an adult aspirin tablet has caused GI bleeding problems. I take Repatha as I cannot tolerate any statin. High cholesterol is a serious problem. People die from strokes and coronary artery disease, lung cancer is a horrible side effect, but people also die from high cholesterol and always the risks vs the benefits must be considered."

• duh...
• July 5, 2021

"I have taken 4 statins in the past five years all leaving me with leg pain which gets worse with walking. Stopped each pill within weeks as I would rather have quality of life. Physician recommended Repatha. No leg pain for two months, however I experienced constantly being tired. Blamed it on old age(80). After my last injection I couldn't walk 50 feet without being out of breath. I decided to check side effects and of course the #1 is trouble breathing, little farther down the list is tired and drowsy. I'll live with the cholesterol. I pray the effects go away, I still have them a week later."

• Jms
• Taken for 1 to 6 months
• July 6, 2021

"I have gained weight on every statin I've been on. My NP said I want you to try Repatha. I've read and have had great reports with people who can't take statins like yourself. So I was happy there was hope for my condition. I went home looked up weight gain as side effect. Researched all I could. I started it 8 weeks ago. I had back surgerynthe week prior. I've been gaining weight. I finally looked up "I have been gaining weight on Repatha" I couldn't believe it. It is a side effect. I've also read it only helps 1 out of 66 people from having a HA or Stroke. What!! I will take my chances. I have also felt very uneasy, not myself, short with my family, gaining weight, body aches, thinning hair and earaches!!!"

• Rever...
• Taken for 1 to 6 months
• January 1, 2021

"So, just like Dee, I have seen a pretty big jump in my blood sugar levels. History, on top of several other things, I was never diabetic. Suddenly was contacted regarding a blood test said my sugar was very high. Metformin made me sick as a dog. Next thing I knew I was waking up 8 days after being in a diabetic coma. Took insulin for 6 or 7 months. Levels returned to normal. So just controlled now by diet. Cardiologist puts me on Rapatha. I noticed one of the side effects was increased glucose. Sure enough, within a couple of weeks my levels began to climb from 90-110 to now 160-170. The answer? Go back on insulin. Not sure I like adding TWO drugs instead of none. Oh, during the year or so my diet was controlled, I ate almost identically every day with dinner being the exception. I did this so I could watch for increases. All I've done is quit more and more of what I eat and it just keeps rising. Only change? Rapatha."

• Dogmom
• Taken for 1 to 6 months
• May 19, 2024

"Took my third shot this past week. I am so extremely tired and ache. My asthma has flared up and I just don't feel good. I take a shot every 2 weeks. 140 mg each injection. I cannot take statin drugs. I don't think this is going to work. Not when I sleep so much."

• Mr Golf
• Taken for 1 to 6 months
• June 13, 2016

"I have muscle aches with statins. Tried Repatha and did fine for a month or so. Lowered total cholesterol to 120. Then one day after an injection in my right leg, I got severe right leg cramps. It took two more injections to tie the leg pain to the injections. I thought it might be gout. Orthopedic doctor said it was a torn tendon in the knee Pain was level 2-8 and I could hardly walk. It settled in the knees. I'm about 10 days since last injection and pain is less every day. Definately sure its the drug as I have never had knee problems. Hope there is no permanent damage."

• Poison
• Taken for 6 months to 1 year
• December 15, 2019

"Call Amgen who makes this poison, it takes months before it’s out if your system. This is horrible this Repatha is so bad for all of us. Please everyone call The FDA file a report they need to know all these side effects. Look at the poor person who has stage 4 Lung Cancer."

• Mailman
• June 29, 2017

"Horrible experience. Lost all lower body strength. Severe and I mean severe knee pain. My knees would burn all over and just a lite touch to them would make the pain even worse! Have had bad tendinitis for 4 months. Pulled back muscles. Walking became difficult. Didn’t even bring my numbers down. Stopped taking it and felt my strength and muscles return. Still waiting on my tendinitis but I feel it is finally getting better. Not safe, not effective, wouldn’t recommend to a lab rat."

• Cheri
• Taken for 2 to 5 years
• February 19, 2020

"I have had very high cholesterol and I can not take statins. My cholesterol doctor recommended Repatha. I have been taking it for about two years now. My cholesterol is better, not perfect. The only side effects I have experienced is some back pain and some insomnia. I can walk two miles without increased pain. My bloodwork has been good so far. For the most part, I seem to be able to tolerate Repatha much better than statin pills."

• Sore...
• Taken for 1 to 6 months
• May 24, 2023

"This drug is rough. I know it helps some folks with chronic high cholesterol, but I am not one of them. I cannot take statins either. I tried the first injection in October 2022 without much problem. I took the second dose in December (I had elbow surgery in November which delayed the second dose). I have felt like complete crap, off and on, since then. At first, it was digestive cramping and other issues. It has since moved into my joints, especially my ankles and shoulder/neck. Those are areas where I've had injuries before, so the tissue might be weaker/more susceptible. I read a study that showed Repatha can be so strong that it strips the fatty layer from the myelin sheath on nerves. I have begun supplementing with mega doses of B vitamins, particularly B-12, and consuming lots of collagen and gelatin. I am looking into other supplements, such as immunoglobulins, as well as the usual CoQ-10."

• bjano
• Taken for 1 to 6 months
• February 1, 2019

"I think this drug is killing me. I have severe pain everywhere, but especially in my back. I am talking severe with trips to E. R. Nothing is helping. Now I am beginning to have urinary incontinence and need to walk with a cane. I cannot get up & down alone, & I have to sleep sitting up in a chair with a heating pad since the pain in getting out of bed is excruciating. I am scared to death & I have only had 2 doses, nearly a month ago now. I took this due to my cholesterol being so high, & my heart history being so bad. I really wanted this to help, but I am really scared now and in pain 24/7. Several people said if you have any history of back/muscle/bone pain this will intensify it tremendously & that is what has happened to me."

• Red
• Taken for 1 to 6 months
• December 1, 2018

"I put my experience up sometime ago and now I have taken my 7th injection. My neck is hurting so bad I don't think I can continue on this medication. Dizziness is bad and back pain. Going to contact my Cardiologist to try and stop this nonsense"

• DCvdOwl
• Taken for less than 1 month
• October 3, 2018

"After second dose, I had nausea, missed a day of work for vomiting, no appetite, felt weak. 4 days later I had intractable diarrhea. Called Repatha nurseline. She read statistics about side effects to me. Asked her for help/advice. She said they don't give advice on dealing with side effects. Within an hour, I collapsed. My mom called 9-1-1. Went by ambulance to the hospital with severe dehydration which caused acidosis. Spent 3 days in the intermediate care unit of the hospital. My palms and the soles of my feet itch. I have a hacking cough, head and muscle aches, and blurry vision. The doctors had no answers and treated me for a virus that usually only causes a cold. Read about similar reactions. I asked if it could be from the Repatha; docs didn't know what it was or what it was for, (at a teaching hospital). Wish I'd done more research. When my doctor prescribed it, I asked if it was safe. He said it was. I believed him, like most patients would their doctors. He was wrong."

• Very...
• Taken for 2 to 5 years
• December 1, 2019

"Just like all of you I have been on Repatha and my quality of life has failed so I stopped it and still have all the side effects and now read that the FDA has 8 reports including 2 deaths with Lung Cancer. So really they are aware and not doing anything about this drug We need to all call the FDA and file an Adverse Report so hopefully they remove it from the market. Which is highly unlikely just like someone said it’s about the money And also report it to Amgen Pharm +1-888-463-6332 What is wrong with this FDA"

• David
• Taken for 6 months to 1 year
• December 29, 2018

"I used Repatha for 12 months and was pain free for the first 8 months. Thereafter, pain started growing in right leg just below and above the right knee. The muscle in this area became so sore that by the 11th month of use I could not walk without a limp. On the 12th and final month, I discontinued the Repatha as I could no longer climb a stairway with my damaged right leg muscle. Two weeks have passed since my last Repatha dose and my leg muscle pain is 95% gone. The Repatha did lower my LDL to 52, which was great, but what damage it was doing to my leg muscle, and any other parts of my body I'm not aware of, I just don't know. It is virtually the same to my body as was any of the statins I tried. None of them worked for me at age 77 years, male, and in very good health other than high cholesterol."

• Joyce
• Taken for 6 months to 1 year
• May 8, 2024

"Cholesterol levels have come down to the normal ranges. I use one SureClick pen every two weeks, which has been very easy to use. Blood sugar is getting harder to control; however, and it keeps going up. I have had Type 2 diabetes for almost 25 years, and my HbA1c was down to 6.5 before Repatha started. Now it is back up to 9. I have not discussed this with my physician yet, but it will be addressed soon. My use of Repatha has been less than one year."