Repatha for High Cholesterol User Reviews (Page 4)

• Jud...
• Taken for 1 to 6 months
• March 23, 2019

"Repatha is great for lowering your cholesterol really fast, but the side effects are terrible. My back, hips, and knees are hurting me 24/7. I have been to the doctor many times, and he has given me many different pain meds. Nothing really helps. I can hardly walk across the floor. Working all day is killing me. I just want to cry because of the pain. I have been off Repatha for almost 3 months, and the pain still has not gone away. I just want to be normal again. I will never take it again."

• Anonymous
• Taken for 5 to 10 years
• October 25, 2024

"In 2008, my legs began aching and losing strength. Hypercholesterolemia. Through the years, they tried different brands and strengths of statin meds: Lipitor, Atorvastatin, Pravastatin, etc. The pain and weakness continued growing worse. It reached the point where I could hardly rise from a sitting position, with the constant pain becoming unbearable. The statins were correcting my cholesterol readings but were causing the weakness and pain in my legs. My doctor began reducing the dosage from 20 mg to 10 mg per day. The pain and weakness continued. On March 17, 2017, I stopped taking statins altogether. Within 10 weeks, the leg pain and weakness were gone, but my cholesterol levels rose. I went back on the weakest dosage, trying first to stagger to every other day, then three times per week, then once a week. On 6/28/2019, my cardiologist stepped in, putting me on Repatha SureClick 14 mg once every two weeks. The pain and weakness are gone. Cholesterol numbers are great! I'm back to enjoying life at the ripe old age of 82!"

• Mas...
• March 27, 2017

"I have inherited familial high cholesterol. At age 36, I had quintuple bypass surgery. At age 46, 56, 63, and 65, I had stents due to blockages. I've been taking statins for 30 years despite severe muscle pain, currently Crestor, and started Repatha injections every two weeks shortly after it became available. I attribute the shortness of breath I have been experiencing to Repatha, and my symptoms have grown increasingly worse during this period of time, including weakness and trouble breathing. I have allergies and asthma, which I thought was the source of my trouble breathing, however, my breathing problems have significantly worsened since taking Repatha and are a debilitating side effect. Cholesterol has dropped significantly."

• Nan...
• Taken for 1 to 6 months
• November 15, 2021

"I have taken four injections, and I will not take any more. I have congestion that I have never experienced before. I have completely lost my sense of smell and taste (not from COVID), my test was negative. This is now in my fifth week. My coughing is so bad I think I am not going to make it. I have a runny nose, earaches, and sore shoulders. I have one suggestion: don’t take Repatha."

• taj...
• Taken for 6 months to 1 year
• March 20, 2021

"I was a very active, healthy 61-year-old, athletic male who had to have a heart stent because of family history. No heart attack or anything. My doc put me on Repatha to lower cholesterol. After injections of six months, numerous ER visits, and every health test possible, the side effects have diminished my quality of life. It has been over a year and a half since stopping the injections, and I am still suffering from bouts of feeling very ill. DO NOT TAKE THIS stuff."

• Rep...
• Taken for 1 to 2 years
• December 31, 2019

"Please, everyone, I have been reading all your comments. You need to call the FDA and report what is happening. I can’t make it any clearer how important this is. This drug is so bad for patients, especially causing cancer. It’s not a coincidence. It’s a horrible drug."

• Anonymous
• Taken for 6 months to 1 year
• April 26, 2021

"I’m a 64-year-old female with hypercholesterolemia. Nothing worked to lower my cholesterol, so my doctor highly recommended Repatha. Right away, I noticed blisters in my mouth, nose, butt, etc. I was rushed to the emergency room at 3 a.m. because I couldn’t breathe from blisters on my throat and nose. Repatha causes shingles. It has been 8 months, and the left side of my face is still tingling because the left side of your face has nerves, and Repatha affected all the nerves. I can’t chew on the left side of my mouth, and my smile is drooping. This drug is horrible, and it’s just another money-making way for doctors to lie to us. I stopped going to doctors now. I go to holistic doctors. They are definitely more experienced in good health and care more about their patients. I’m thinking of suing Repatha because I’m still suffering."

• Bad...
• Taken for 1 to 6 months
• February 20, 2017

"I was on Praluent for a year with no side effects. My cholesterol was great. Insurance wanted me to switch to Repatha. After the 2nd injection, I noticed constant stomach pain, persistent diarrhea, and I have vivid dreams all night, making me wake up exhausted. I called my doctor to switch back to Praluent because I cannot handle the side effects."

• Gin...
• Taken for less than 1 month
• September 7, 2017

"After one shot, it scalded my skin, made an open sore, and I started experiencing diarrhea. My lower right back started hurting. Day 17, I'm waiting on blood work before I take a second shot, and my neck at the base hurts. Weird pains I'm not used to that hurt and affect my quality of life. Can't take statins. Don't think I'll ever take another shot of Repatha. If it messes with your liver, it can kill you. I will walk at least 60 minutes a day, every day, and continue to watch my fat, trans fat, and cholesterol intake. My last shot was 27 days ago. Between the initial post and now, I'm still nauseated. I have loose bowels every time I eat, and I have to go. Can't go anywhere, and it's physically irritating. My knees and back still hurt, and I feel pain behind my eyes, have trouble swallowing, and experience body spasms. Still so tired with no energy and have trouble."

• Lea...
• Taken for 1 to 2 years
• June 19, 2019

"This drug was effective year one. Raised my HDL cholesterol, which was my issue. A week ago, I injected as always, and by nightfall, I had a 5-minute angina attack. Night 2, one-hour attack. Next AM, my body was writhing in pain: hands, shoulder, back. My thumb was the worst. Went to my cardiologist, of course he said, “Repatha wouldn’t do that!” I have been miserable for a week. Mornings are the absolute worst. My biggest concern is how to combat this reaction? CoQ10 was recommended, so I began this yesterday. Please, if anyone can help, reach out to me. I’m feeling crippled."

• Lor...
• November 3, 2019

"I was prescribed Repatha after having side effects from statins. I was totally off statins when I started. For the first injection, I had some mild cold/flu symptoms for just a couple of days, very mild. I had my second injection on a Thursday, and by Tuesday the next week, I had cold and flu-like symptoms, neck and back pain, and was in bed for three weeks. At first, I didn't even connect it to being side effects of Repatha, but then I remembered when they briefed me, the PA saying cold and flu-like symptoms. So, I started doing some research, and I had every side effect listed with the exception of high blood pressure. It is now almost 3 months since my last injection. My migraine, which in the past had basically gone, has recurred. I also have sinus pressure, neck ache, and lower back ache, aching hands feeling arthritic, urgency to urinate, and extreme fatigue. My internist said it could take about six months to get out of my body. I pray she's right. This is life-altering in a negative way for me. Incredibly frustrated."

• SLA...
• Taken for less than 1 month
• April 7, 2017

"Works great, but my quality of life wasn't there. The drug turned my muscles into marshmallows to the point I couldn't walk. So what's the point? I ended up pulling muscles when I bent over. $300 later at a chiropractor put me back together again. Statins for me are bad news! I can't take them, PERIOD, so quit pushing the meds at $500.00 a shot."

• Dea...
• Taken for 1 to 6 months
• April 6, 2019

"I started this medication and took maybe 7 shots. First few times mild cold symptoms, which I could tolerate. I also had ear issues. The next few shots came with blurry eyes, nausea, some diarrhea, and weight loss. The next shots started with severe diarrhea, nausea, and more weight loss. I am a kidney transplant patient, and my kidney labs are worse, I will be having a biopsy in 3 days to see why my transplant is rejecting (probably Repatha). I stopped taking it 3 weeks ago and saw my cardiologist today, and he told me to stay off of it and that it will take 3+ months to get out of my system. This stuff is POISON! I am very angry, sad, and feel deceived by Amgen and the rubbish they peddle about this stuff. Heed the warnings."

• Pk4...
• Taken for 6 months to 1 year
• March 8, 2021

"After 8 months of use, started having major muscle pains, neuropathy, and increased anxiety. Stopped after multiple ER visits. Now told it could take 3 to 6 months to get it out of my system. Need other drugs to quell or minimize discomfort."

• Rev...
• Taken for 1 to 6 months
• January 1, 2021

"So, just like Dee, I have seen a pretty big jump in my blood sugar levels. History, on top of several other things, I was never diabetic. Suddenly, I was contacted regarding a blood test that said my sugar was very high. Metformin made me sick as a dog. Next thing I knew, I was waking up 8 days after being in a diabetic coma. I took insulin for 6 or 7 months. Levels returned to normal. So, just controlled now by diet. My cardiologist put me on Repatha. I noticed one of the side effects was increased glucose. Sure enough, within a couple of weeks, my levels began to climb from 90-110 to now 160-170. The answer? Go back on insulin. Not sure I like adding two drugs instead of none. Oh, during the year or so my diet was controlled, I ate almost identically every day, with dinner being the exception. I did this so I could watch for increases. All I've done is quit more and more of what I eat, and it just keeps rising. Only change? Repatha."

• Rex...
• Taken for 1 to 6 months
• December 2, 2023

"One month after two two-week injections of Repatha, blood test shows great control of LDL and general cholesterol, but a significant rise in A1C, neutropenia, upper respiratory infection, especially in both nostrils responsive to Bacitracin, general muscle fatigue, terrible low mood, and social withdrawal, significant cognitive/psychosocial impairment. Physicians never tell patients what to expect, they just write the prescription and wish you luck."

• Red...
• Taken for 1 to 6 months
• December 1, 2018

"I put my experience up some time ago, and now I have taken my 7th injection. My neck is hurting so bad I don't think I can continue on this medication. Dizziness is bad, and back pain. Going to contact my cardiologist to try and stop this nonsense."

• bja...
• Taken for 1 to 6 months
• February 1, 2019

"I think this drug is killing me. I have severe pain everywhere, but especially in my back. I am talking severe, with trips to the E.R. Nothing is helping. Now I am beginning to have urinary incontinence and need to walk with a cane. I cannot get up and down alone, and I have to sleep sitting up in a chair with a heating pad since the pain in getting out of bed is excruciating. I am scared to death, and I have only had 2 doses, nearly a month ago now. I took this due to my cholesterol being so high, and my heart history being so bad. I really wanted this to help, but I am really scared now and in pain 24/7. Several people said if you have any history of back, muscle, or bone pain this will intensify it tremendously, and that is what has happened to me."

• Mr ...
• Taken for 1 to 6 months
• June 13, 2016

"I have muscle aches with statins. I tried Repatha and did fine for a month or so. It lowered total cholesterol to 120. Then, one day after an injection in my right leg, I got severe right leg cramps. It took two more injections to tie the leg pain to the injections. I thought it might be gout. An orthopedic doctor said it was a torn tendon in the knee. Pain was at a level of 2-8, and I could hardly walk. It settled in the knees. I'm about 10 days since the last injection, and the pain is less every day. I'm definitely sure it's the drug as I have never had knee problems. I hope there is no permanent damage."

• DCv...
• Taken for less than 1 month
• October 3, 2018

"After the second dose, I had nausea, missed a day of work for vomiting, no appetite, felt weak. Four days later, I had intractable diarrhea. Called the Repatha nurse line. She read statistics about side effects to me. Asked her for help/advice. She said they don't give advice on dealing with side effects. Within an hour, I collapsed. My mom called 9-1-1. Went by ambulance to the hospital with severe dehydration, which caused acidosis. Spent three days in the intermediate care unit of the hospital. My palms and the soles of my feet itch. I have a hacking cough, head and muscle aches, and blurry vision. The doctors had no answers and treated me for a virus that usually only causes a cold. Read about similar reactions. I asked if it could be from the Repatha; the doctors didn't know what it was or what it was for (at a teaching hospital). Wish I'd done more research. When my doctor prescribed it, I asked if it was safe. He said it was. I believed him, like most patients would their doctors. He was wrong."

• Mai...
• June 29, 2017

"Horrible experience. Lost all lower body strength. Severe, and I mean severe, knee pain. My knees would burn all over, and just a light touch to them would make the pain even worse! I have had bad tendinitis for 4 months and pulled back muscles. Walking became difficult. It didn’t even bring my numbers down. I stopped taking it and felt my strength and muscles return. Still waiting on my tendinitis, but I feel it is finally getting better. Not safe, not effective, wouldn’t recommend to a lab rat."

• duh...
• July 5, 2021

"I have taken 4 statins in the past five years, all leaving me with leg pain, which gets worse with walking. Stopped each pill within weeks, as I would rather have quality of life. Physician recommended Repatha. No leg pain for two months, however, I experienced constantly being tired. Blamed it on old age (80). After my last injection, I couldn't walk 50 feet without being out of breath. I decided to check side effects, and of course, the #1 is trouble breathing. A little farther down the list is tired and drowsy. I'll live with the cholesterol. I pray the effects go away, I still have them a week later."

• Jms...
• Taken for 1 to 6 months
• July 6, 2021

"I have gained weight on every statin I've been on. My NP said I want you to try Repatha. I've read and have had great reports with people who can't take statins like yourself. So I was happy there was hope for my condition. I went home, looked up weight gain as a side effect. Researched all I could. I started it 8 weeks ago. I had back surgery the week prior. I've been gaining weight. I finally looked up 'I have been gaining weight on Repatha.' I couldn't believe it. It is a side effect. I've also read it only helps 1 out of 66 people from having a heart attack or stroke. What!! I will take my chances. I have also felt very uneasy, not myself, short with my family, gaining weight, body aches, thinning hair, and earaches!!!"

• Rob...
• Taken for 1 to 6 months
• November 30, 2022

"Fantastic lab results led to absolutely horrific pain! As many other reviewers have stated, everything started out well, but after the 6th dose, I ended up with pain that was worse than anything I thought possible. Recovery isn't quick like statin pain but rather has taken me a very long 3 months to be able to walk properly again. I am extremely happy to have survived this experiment with no long-term damage (I hope), but will never ever try it again. If you are new to this drug, then please be careful, and if you have been injured by it, then have hope that given time, the pain and disability will diminish."

• Poi...
• Taken for 6 months to 1 year
• December 15, 2019

"Call Amgen, who makes this poison. It takes months before it’s out of your system. This is horrible, this Repatha is so bad for all of us. Please, everyone, call the FDA, file a report, they need to know all these side effects. Look at the poor person who has stage 4 lung cancer."