Repatha for High Cholesterol User Reviews (Page 3)

• Hfl
• Taken for 6 months to 1 year
• August 22, 2019

"I did not tolerate tolerate statins because of muscle pain and weakness. I was not aware of the severe side effects that could happen on Repatha. Diabetes was not listed as a side effect listed on brochure that my dr gave to me. While on Repatha, I developed a drug resistant bladder infection, severe insulin resistant diabetes, and severe shoulder and hip pain with profound weakness. All side effects have not improved since stopping Repatha a year ago. I am now wheelchair bound. It dramatically lowered my cholesterol, but not worth life threatening side effects."

• Indiana...
• Taken for 1 to 6 months
• December 27, 2016

"I have always hurt taking statins and refused for over 15 years to take more than a few weeks, because side effects of pain, aching, memory loss. My heart doctor and family doctor pushed me into taking Repatha as my cholesterol was 553. In September 2016, I tried it and the first 2 injections were okay, no side effects. But as soon as I took the third, I have been in the most pain I have experienced in my life. Every joint, tendon, muscle, from my neck to my toes. It is now December 27, 2016, and the pain has just increased instead of decreased. If I lay down or sit for just a while, I can hardly move when I get back up. I never had problems in my hands or knees before but feel like I could fall when walking, and my hands feel numb with tingling and pain."

• Hurting...
• March 27, 2017

"I'm a very active 63 yr old with a 4x bypass. After a year of not recommending any cholesterol treatment I finally brought it up myself with my doctor, when she recommended Repatha because of my statin intolerance. After my first injection I started to experience muscle pain in my lats and pecs. It felt like a severe muscle cramp that spread to my arms, although my muscles were not constricting as they would with a muscle cramp. I conferred with my doctor and she said I should not be feeling any side effects because it takes 3 months to reach a therapeutic level so I took the shot the second month and I'm sorry that I did and will not be taking it again because the pain has spread to other areas."

• 66Max
• October 2, 2016

"I started taking Repatha in Feb. of 2016. It lowered my cholesterol considerably at the beginning but started experiencing pain in my legs, hips, back and shoulders right after taking it but did not tie it to the Repatha at first. I gave myself an injection in the leg in August and had a large swelling at the site of the injection. It went down in 4 days, but the pain in my body became severe to the point I could not walk many days. My muscles and tendons became very swollen. I called the number listed on the Repatha prescription insert a total of 4 times the pain was so bad. The Repatha reps were no help and told me to talk to my doctor. I finally ended up in the E.R. and then had an aneurysm 3 days ago. I blame it on Repatha!"

• Frell
• December 22, 2019

"I was on repatha for 5 months 9/18 to 2/19. I am type 2 diabetic. I had to get off the drug as my blood glucose was uncontrollable. Now the repatha site reports a common side effect: High blood sugar levels (diabetes). I have detailed eye exams due to my diabetes each year. Between annual exams, taking repatha, I suddenly have a tear in my retina that I had sealed via laser surgery. MayoClinic site reports eye related side effects of repatha. 6 months after ending repatha, I have bladder cancer. Urologist said the tumor grew ~last 6-8 months and was quite large. I had at CT scan 2 years ago - no cancer or tumors. So cancer is recent. Bladder cancer is caused by smoking (non-smoker) or exposure to chemicals. The repatha side effects: Bladder pain, bloody or cloudy urine, frequent or difficulty or painful urination. Drug appears to affect the bladder. NCIS rule 39: "There is no such thing as coincidence"."

• Misti
• Taken for 1 to 2 years
• August 29, 2023

"Repatha worked great to lower my cholesterol and seemed fine for a year. After 1 yr, I started experiencing severe neurapathy starting in one foot then spread to the other foot, up both legs, and then to my hands. An EMG found large fiber nerve damage from ankle to knee. I also experienced severe sciatica at the same time as neurapathy and tried to convince doctors it was related, but they would not consider it and treated them separately. I also experienced blood in urine, and the ER kept saying I had a UTI, but a CT scan of the urinary tract found nothing. I do not have diabetes. I'm a 60+ female and have found other very similar cases online from women of a similar age. I stopped taking it almost 2 months ago, but it takes about 3 months to get out of your system. Sciatica is better with cortisone shots, but I've not seen any improvement in neurapathy yet."

• Dayda
• Taken for 6 months to 1 year
• December 27, 2019

"I have been taking g 140 mg repatha every 2 weeks for 8 months-cholesterol came down significantly-but.... my feet hurt terribly legs hurt terribly -I am 69 and have had quad bypass 5 years ago and a minor stroke-I have gained 8 pounds -I used to out walk everybody now my pain in my feet and legs are so bad I use a heating pad every night just so the pain will feel better. I also believe it has made me short of breath. So it is good for lowering cholesterol but terrible side effects. I am going to stop taking it and see in 3 months how much my cholesterol goes up. Glucose blood sugars fasting were 90-102 in the mornings now blood sugars fasting can be 120-130. Good luck to all who can tolerate it-but I don't want to spend the rest of my life with this leg and feet pain"

• Persil
• February 16, 2020

"I am on my 9th injection of Repatha. Had no side effects until my 9th injection. My cholesterol levels dropped dramatically which was great news. However, on the day after my 9th injection I was out shopping and had a back spasm and had to call for a ride home. The pain has increased to my hips. I am in consultation with my Dr (Via email) to stop taking this medication. Reading the reviews made me realise yes I need to stop. I just paid $435 .00 for this medication"

• Carri...
• Taken for 1 to 6 months
• May 27, 2017

"I started taking Repatha in April 2017 and the first thing I noticed was back pain, then muscle pain. I can't use my right arm for much and can't open jars and things that required using my wrist. I am dizzy headed, and feel so bad all the time. (Fatigue I guess) I am taking 2-3 hour naps during the day and I am only 51. I've never done this before. I talked to my doctor and she said come off of the Repatha for a month and see how I feel. She's not sure it's the medicine. Repatha is really easy to use and is shipped right to my door in a cooler package. Repatha dropped my bad cholesterol from 187 to 67 after 3 doses. (bi-weekly). I don't know what to do about taking This drug. I think it's making me feel really bad all the time."

• Mickey
• Taken for less than 1 month
• May 4, 2019

"Took 1st dose of Repatha on a Thursday and had side effects of flu symptoms, terrible back pain, neck pain, vertigo within 24 hrs. By Monday, was in ER with a NSTEMI (a type of heart attack) . Sent home Tues. Back in ER on Thursday with 2nd NSTEMI. 2 angiograms. It's been a month now and still have muscle pain, weakness, blurry vision, fatigue, depression, shoulder pain, hand swelling. And this was from 1 dose. The doc said no side effects. Yeah, ok."

• Jumper
• Taken for 6 months to 1 year
• June 9, 2019

"Don't let anyone tell you to hold off on Repatha injections and then "try again!" Also, do NOT let your Dr convince you there aren't side effects. This is a dangerous drug if you have pre-existing comorbidities. I have RA (rheumatoid arthritis), need 5 surgeries for vascular blockages in torso and legs, and 4 coronary stents are placed. My RA symptoms of joint pain have worsened with the Repatha but my biggest negative on this drug is increased BP and chest pain. Very dangerous when I'm already a heart patient! Think carefully about what your medical issues are and whether you want to risk them worsening. New problems for me are dizziness, sudden gut pain, anxiety, visual disturbances, nausea and leg weakness. Yes, my cholesterol went from 300 to normal but even taking an injection every 3 months has incapacitated me and exacerbated my medical issues!"

• Mel
• Taken for 1 to 6 months
• November 23, 2019

"I have been suffering since stopping Repatha after 8 injections. Legs have gone weak and painful to walk. I was ok before I started but now it’s a challenge to get around. I hate it that I even tried it. This is a Lawsuit drug - just stay away!"

• della
• Taken for 1 to 6 months
• September 9, 2018

"I injected this drug on August 10 2018. The next morning I felt like I had the flu with my hands and face swollen. Then 4 days later horrific diarrhea .After that horrific mucus from coughing and horrific back pain now I have problems with my stomach - I can't eat drink or burp feels like my stomach is dying along with my colon - horrific swelling in my stomach. I have been rushed to hospital twice allergic reaction to repatha also it has given me a auto immune disease. This drug is dangerous. I feel like my organs are dying. My dr is trying different meds to try to reverse the side effects nothing is working. Please be careful I wish I had researched this drug before taking it. Now I'm bed ridden and its Sept 9 2018 and I am still having side effects."

• Karen
• Taken for 6 months to 1 year
• April 2, 2024

"About three to four days after injecting Repatha, I become very nauseous, dizzy, and extremely fatigued. I just want to lie down and sleep to feel better. I lose one or two days of my life. My cholesterol levels have never been so good, however. Going to discuss with my doctor. This is my third experience, and it’s always after the injection."

• Sue
• December 5, 2019

"I had to pay over and above my insurance to get this drug just so I could end up having more problems than I've ever had from a prescription. I had the one and only injection on Nov. 3rd, 2019. On the 4th Nov during the night I woke up with the room spinning so bad that I couldn't move. I was told by my cardiologist to call 911 which I did. When they got there they tried to help me up, but couldn't so They told me I would have to wait it out. After two and a half weeks on prednisone I started feeling better. Now I'm getting vertigo off and on. For instance, today I was suppose to go golfing, but from the time I got up this morning I've been so dizzy that I have to cancel. I never had this problem in my whole life until this injection. I can't believe that my doctor even prescribed this poison to me!! I just hope that eventually this goes away. I wouldn't recommend anyone even trying this medication."

• Annette
• Taken for 1 to 6 months
• June 18, 2023

"Had 6 doses over 5 months. Each dose made me feel worse than the previous one. Could not tolerate more than one dose per month. Two jabs in one month resulted in 3 days off work. Dizziness, nausea, extreme tiredness, stomach cramps, muscle cramps - especially at night, flu like symptoms, lack of sleep due to blocked nose. Only plus was that cholesterol levels dropped after second dose. Depletion of vitamin D, Lowest ever B12 - Unable to work for 3 days each fortnight. Would not recommend to anyone. However, when the side effects became to severe to cope with and I gave up, I still had to endure muscle pain and general illness."

• BJL
• Taken for 1 to 6 months
• June 17, 2023

"Extreme fatigue as a result of taking this drug. At first, I used the sureclick 140ml pen every 2 weeks for about 6 weeks. I was unable to do anything, not even simple household chores, because of the fatigue. My cholesterol did lower, but I didn't think it was worth it if I couldn't move. It has taken me about 3 months to regain my full energy after stopping this drug."

• Disgu...
• Taken for 2 to 5 years
• December 27, 2019

"The person with bladder cancer you are correct it’s the Repatha. My lung cancer tumor grew fast also and has spread to other parts of my body. It’s stage 4. I too had 2 chest X-rays before I went on Repatha and was fine drive my bike to work everyday I was healthy but my quality of life went downhill This is a law suit ready to happen. It needs to be removed from the market. "

• Jude
• Taken for 1 to 6 months
• March 23, 2019

"Rapatha is great to lower your cholesterol really fast, but the side effects are terrible. My back, hips, and knees are hurting me 24/7. I have been to the doctor many times and he has given me many different pain meds. Nothing really helps. I can hardly walk across the floor. To work all day is killing me. I just want to cry because of the pain. I have been off the Rapatha for almost 3 mths and pain still is not gone away. I just want to be normal again. Will never take again."

• Nans
• Taken for 1 to 6 months
• November 15, 2021

"I have taken four injections and I will not take anymore. I have congestion that I have never experienced before. I have completely lost my sense of smell and taste (not from COVID) my test was negative. This is now in my fifth week. My coughing is so bad I think I am not going to make it. I have the runny nose, earaches, sore shoulders. I have one suggestion, don’t take Repatha."

• Martha
• Taken for less than 1 month
• June 4, 2023

"Severe muscle pain and weakness in my legs and nerve pain. Can't sleep at night and can hardly walk, the pain is so bad. My feet feel like they are burning but on top they are cold. I have been on Repatha for 2 1/2 months. Don't know how long this will continue. I'm a 64-year-old woman."

• Report
• Taken for 1 to 2 years
• December 31, 2019

"Please everyone I been reading all your comments. You need to call the FDA and report what is happening I can’t make it any clearer how important this is. This drug is so bad for patients especially causing cancer. It’s not a coincidence. It’s a horrible drug."

• Mastry
• March 27, 2017

"I have inherited familial high cholesterol. At age 36, I had quintuple by-pass surgery. At age 46, 56, 63 and 65, I had stents due to blockages. I've been taking statins for 30 years in spite of severe muscle pain, currently Crestor and started Rapatha injections every two weeks, shortly after it became available. I consider the shortness of breath I have been experiencing to the Rapatha, and my symptoms have grown increasingly worse during this period of time, including weakness and trouble breathing. I have allergies and asthma, which I thought was the source of my trouble breathing, however, my breathing problems have significantly worsened since taking Rapatha and is a debilitating side effect. Cholesterol has dropped significantly."

• Pk42021
• Taken for 6 months to 1 year
• March 8, 2021

"After 8 months of use started having major muscle pains, neuropathy, and increased anxiety. Stopped after multiple ER visits. Now told it could take 3 to 6 months getting it out of my system. Need other drugs to quell or minimize discomfort."

• Leah
• Taken for 1 to 2 years
• June 19, 2019

"This drug was effective year one. Raised my HDL cholesterol which was my issue. A week ago I injected as always and by nightfall I had a 5 minute angina attack. Night 2 one hour attack. Next am my body was wreathing in pain, hands, shoulder back. My thumb was the worse. Went to my cardiologist of course he said “ Repatha wouldn’t do that! “ I have been miserable for a week. Mornings are the absolute worse. My biggest concern is how to combat this reaction? CoQ10 was recommended so I began this yesterday. Please if anyone can help reach out to me. I’m feeling crippled"