Repatha for High Cholesterol User Reviews (Page 2)

• Aaaaa...
• December 9, 2019

"My doctor also told me there were no side effects. So, initially, I was thrilled to get a chance to try it. It took 10 days for side effects to appear, waking me at 3 AM with severe pain in my ankles, calves, hips, and neck with spasms in the ankle, but those symptoms subsided after a day. After the second injection, it took only 3 days for severe tendon pain to hit my left leg, leaving me barely able to walk. I was shuffling like a 90-year-old. I went to an ortho who ordered an MRI. He said the pain I had was medicine-induced. I asked my cardiologist about the symptoms, along with severe insomnia, but he denied it was from Repatha. My PCP encouraged me to stick with it due to the very low cholesterol numbers, so I took a third injection and quit after that. But 3 months later, there is little relief. The reduced quality of life has not been worth this! What bothers me is the automatic denial by the doctors who are so quick to say NO ONE else has complained. Really?"

• Sicke...
• January 10, 2020

"The best advice I have for all you poor patients is to call an attorney. This drug should be removed from the market; it’s causing too many horrible adverse reactions. You poor patients should not be experiencing this. The problem I have with all these reports on here is that it’s being kept quiet from Amgen. Someone needs to start investigating this drug starting with all the FDA & Amgen’s reports they have, or maybe someone should call 60 Minutes and let them investigate this; then something might get done."

• kmcarls
• Taken for 1 to 2 years
• June 18, 2024

"I was taking Repatha for about a year but started developing bruising so I stopped and started again after 3 months. Now my hair is falling out. I had thyroid and all sorts of blood work. Can’t determine if it's Repatha or cortisone injection that I had. I’m going to stop again and see if it stops falling out. Ugh! My cholesterol is great on the drug so hoping it's not the Repatha."

• Revie...
• Taken for 2 to 5 years
• February 21, 2024

"Not going to lie, I was extremely afraid to take this medicine with all of the internet reviews and horror stories. I'm a healthy, normal-weight individual with familial hypercholesterolemia since my teens. Levels are 300-400s off statins, 200s on statins. By 46, 2 years ago, I had a stroke. 99% blocked artery (now fixed), 60-80% blocked on the other side (not fixed) - so I started taking 420mg Repatha via Pushtronex injector monthly. Guess what?! I'm at 2 digit cholesterol levels, and no further progression in blockage after 2 years! Repatha basically fixes a genetic problem, and without it, I was on the way out - wish I knew about it sooner! The injection burns a little sometimes while going in (barely), but I cannot report a single issue with side effects or other issues. 100% success!"

• Very...
• November 19, 2019

"Read all comments. Decided to call FDA. OMG, they do have 8 Lung cancer reports including 2 deaths from Repatha. So everyone, with all these comments, you are so right. Tell your physicians to start doing their homework & stop giving out like it’s candy. Sorry, it’s all about money, not the patient's safety. This is so sad. God bless all of you."

• alwkj...
• Taken for 6 months to 1 year
• November 20, 2022

"I started on Repatha in January of this year. I read the reviews here but dismissed them as only a small group of bad experiences. After all, a couple cardiologists had told me Repatha was "well tolerated" and had no side effects. Everything was going fine until I was about 8 months in, and then I began to feel off, initially foggy, blurry, dizzy, difficulty thinking. I initially doubted myself because after all this drug has been pitched as not having the side effects of the statins. I took one more injection of Repatha after these initial symptoms and was then almost incapacitated. Complete spaced out feeling, blurred vision, dizzy to the point of almost falling a couple times, unable to think clearly. Literally the worst side effects I've ever felt in my life. I was terrified I had seriously damaged my brain. Thankfully, after stopping the Repatha, my symptoms began to clear up around 18 days after the last injection. The reviews here are real, and this is a very troubling drug."

• Greg
• Taken for 2 to 5 years
• February 12, 2024

"I am SHOCKED at the number of bad reviews, including advice to contact attorneys, etc. I was a study volunteer who participated in the clinical trials for Repatha in circa 2016-ish. Initially, I was to participate for one year. Near the end of that year, I was invited to continue participating in the longer-term phase 3 study. So I remained on the drug for TWO more years. During my 3 years, I had random interactions with other volunteers during office visits. In the course of three years, there is an opportunity to talk...despite symptom discussions being highly discouraged (possibly against policy). In that time, I encountered NO ONE who had an adverse reaction to this drug, including myself. That is why I am so shocked by the percentage of bad reviews. It's the opposite of what my personal experience and that of the other participants was during the trials. Statins gave me horrible cramps; Repatha maybe 10% of that amount & far less severe. Everybody is entitled to their opinion."

• GaryE
• March 17, 2017

"Be careful. This drug can put you in the hospital within the first week. I suffered debilitating muscle pain in my left leg. I lost half the muscles. I had to sit in a chair for 3 months to recover on 60 mg of steroids. It took 8 months to figure it out. If you have any pain in your legs or back, stop immediately. Don't think you can overcome the pain; the company will not admit the severity."

• Paul
• Taken for 1 to 2 years
• May 15, 2019

"I have been taking Repatha for almost two years with great results. However, late last year I had terrible back & shoulder pain. A report listed a requirement to take CoQ10. It helps immensely. It's needed when taking or starting Repatha, as these drugs deplete this enzyme in the body. Start taking immediately if not currently taking it. CoQ10 requires some oil in your stomach to absorb, though works fine as long as you do this. I take mine after my fish oil. I have no muscle pain any longer. Please use CoQ10 if taking either Repatha or statins."

• Poisin...
• Taken for 1 to 6 months
• November 16, 2022

"Took Repatha for 3 months. 1 Month in I started feeling side effects. Anxiety, depression, insomnia, bizarre repeating thoughts, and head and neck pain. Ask my doctor about the problems and he said it wasn't the Repatha. So Continued taking it. 2 1/2 months in the side effect were a lot worse. Severe, unbearable and debilitating. Went back to doctor and he still refused to admit Repatha was the problem. He then diagnosed me with depression. Gave me a prescription for depression and sleeping pills. Trusted my doctor and took the new meds for 2 days. I thought is was going to lose my mind. 10 times worse. It was like putting fuel on the fire! I stopped new meds after 2 days. Unfortunately I had just taken Repatha shot 2 days before new meds. It was 30 days of pure nightmare stuff! Didn't think I would make it thru. 4 months out I'm slowly, very slowly feeling a tiny bit better. This drug is pure Poison! Repatha and my doctor have ruined 4 months of my life and God only knows how much longer."

• ronvi...
• August 1, 2019

"I took Repatha for about 16 months. I put up with the awful side effects because it brought my cholesterol way down into the normal range. But at what cost? I had flu/cold symptoms for the entire time. I never had congestion my entire life except with a cold. But I was going through boxes of Kleenex and getting into coughing jags I could not control from all the dripping down the back of my throat, and I started to have pain in the joints of my fingers. I finally took myself off of it and let my cardiologist know I did. I am an RN for 40 years now and would never recommend this drug to family or friends."

• Peggy
• Taken for 1 to 6 months
• October 4, 2020

"I've been on many statins and after taking them for 3 months I experience muscle and joint pain , which I discontinue it is to the point where I can't function properly, I'm on repatha now my cholesterol levels are great, but after 3 months again I can barely lift my left arm and my elbow pain is tremendous. I thought I had injured it, going for a xray on my shoulder next week. But I think it def is Repatha, we will see"

• Naano
• Taken for 1 to 6 months
• June 18, 2019

"This medication is so dangerous! Do not let anyone talk you into taking it ! I have been incapacitated for 2 months so far . Without seeing relief ! First injection , uneventful, I thought this is great ! Second one I had excruciating sinus infection and eye , did not relate it to the rapatha . Third injection every blood vessel in my eye broke , eye pressure sky rocketed, vision loss and migraine s unbearable and chess pain ! 5 doctors later and steroids No relief . Missing months of work from being incapacitated ! One more injection and I’m sure I would have died . This should not be used by anyone ! My eye sight has been bad and not seeing signs of relief ! I am planning on sueing! Which is something I’ve never done before . I’m just praying I get better and don’t want to see one more person suffer the way I have"

• suffe...
• Taken for 1 to 6 months
• December 31, 2019

"went on repatha for 5 months. What a huge mistake as reading all your reviews has shown me this is an horrible, poisoning drug. Calling an attorney. My whole life has changed from October 2019 until present. Thank you all and hope we all get over this soon."

• Suffe...
• Taken for less than 1 month
• January 19, 2020

"I took just one shot of Repatha on the advise of my cardiologist on 31st August, after statins intolerance which caused muscular myalgia, now even after 5 months, suffering from musculoskeletal disorders and gastric issues, insomnia, constipation mention the side effects and I have it, my cardiologist quietly avoided it after showing this page. Any solutions please advise I am 52 years old with 4 stents and cannot manage the piercing stabbing back pain."

• JBano
• Taken for less than 1 month
• February 13, 2019

"Injected 1st Repatha on a Tuesday woke up vomiting and spiked high fever on Wednesday. Woke up Thursday with horrible sore throat that progressively got worst as day went on. Went to dr on Friday to see if it was strep throat, it was negative. It hurt so bad where my thyroid gland is located and I have sharp pain in my right jaw, weird thing it didn’t hurt to eat. Saturday I experienced body aches and fatigue I had issues lying flat on my back due to swelling in my throat it was hard to breathe. Sunday had horrible stabbing stomach pains followed by significant diarrhea. Tuesday I woke up with swelling on my left side of my face, went to urgent care. Came back sub acute thyroiditis and Bell’s palsy. Alerted Amgen, FDA and cardiologist of side effects caused by Repatha. Won’t ever take it again no worth all the side effects and sick days at work. Crazy thing is everyone acts like it’s the first time they have ever heard of side effects with Repatha."

• No...
• Taken for 1 to 6 months
• January 1, 2020

"Repatha is the worst drug ever. It sure proves there are no free lunches. It a really awful. I'm informing my insurance company never to pay . Is there any support groups for patients suffering from this product? "

• Spano
• May 6, 2019

"My first injection of Repatha was somewhat uneventful. The second injection began a nightmare!. After about 2 days I experienced dizziness, almost passed out 3 times, and had a headache that was so bad along with with unbelievable back pain. I already have chronic back pain but it was so bad I thought I would die. I called my cardiologist after suffering for 7 days and she insisted it wasn't caused from Repatha and that I should visit my primary. I did, and she did blood work, a flu swab, and urinalysis. Everything came back normal. She reviewed the side effects of Repatha and said she thought it was from the Repatha. I started this medication reluctantly. It had been prescribed several months earlier and after reading reviews, I opted out. The next time I went to my cardiologist she assured me that the side effects were minimal so I told her I would try it. She said because my LDL was so high and because I had already had one stent, I really needed this drug. I wish I had not listened to her."

• Anonymous
• Taken for 1 to 6 months
• June 4, 2019

"I started taking this medication in February 2019 first shot was not a problem I actually felt better but that quickly dissipated yes it lowered my cholesterol dramatically but I started feeling flu like symptoms with aches and pains after two months on this medication I felt like I was hung over all the time. I also felt that my memory has been going I’m always in a fog the worst feeling is that I’m only 48 years old and I feel like I’m 100 I’m tired all the time my legs feel like lead weights and all of my normal aches and pains that I have are intensified, I wish my doctor would have told me about potential side effects because I never would’ve started this medication (mmm maybe that is why they didn't?)"

• Star
• November 4, 2019

"I've always had high cholesterol it runs in my family I never could take statins always had bad side effects my doctor assured me that there were no side effects from Repatha. I was very reluctant to take it but she told me if I didn't take it I was going to have a heart attack and die. The side effects are so bad the quality of my life went down. I was fatigued when I woke up and I was fatigued when I went to bed. I missed a lot of work couldn't hardly breathe it was horrible. I will not take this drug again. I cannot believe the doctors will tell you that there's no side effects. Are we their guinea pigs? I'm so upset with my cardiologists now I need to find a new one how dare she lie to me."

• Henry
• July 12, 2019

"71 year old male, A-Fib fix by Ablation, no blood thinners. Prior high cholesterol. Cancer on the esophagus corrected with surgery. 3 medications for Blood Pressure and Biweekly injections of Testosterone. Repatha for 10 months. It has worked great - was 270. Now, 134, LDL 55 and HDL 46 T. Chol/HDL Ratio 2.9. Occasional leg/join pain but cause unknown. When on Zocor (Statain Drug), developed chronic muscle pain that stopped my walking. Within 3 weeks of no Zocor could resume my 3 mile per day walk. Recommend people with high cholesterol get more tests. Half of the heart attacks have low cholesterol so something else is in play. Recommend: Heart Calcium Scan, F2-Isoprostane/Creatinine, OxLDL, Myeloperoxidase (MPO), and Apolipoprotein B. If your cardiologist only treats high cholesterol, I would get a new cardiologist. I follow the Cleveland Heart Lab & Mayo Clinic. Leading edge of the medical profession is starting to see real cause of Atherosclerosis."

• George
• Taken for 1 to 6 months
• February 10, 2022

"I started Repatha because I can't take any kind of statins. I am 21 years old and hard work out 5 times a week (gym). With statins CPK in blood test was going 800+ and its limits are 175 , after first injection I was doing workout like before but after 5 days I couldn't even move much pain (CPK was normal), I had to lower the time I was going to the gym. I talked with my doctor and he told me to do 1 injection each month and not 2. I hoped that my body will get used to it and I would be better. Well thats not possible before I had so much energy I could sleep like 4-6 hours per day now if I sleep 8+ hours and still feeling tired. I feel my legs really weak and I have pain in muscles (that will stop if I sit on a couch all day). It's awful you won't have any energy, you will have muscle pain. Its my only choice because I can't take any statin (260 LDL) with Repatha 150, but no thanks, I have a life to live. If you start it forget the life you had before sorry for saying this but its true"

• disbe...
• Taken for 1 to 2 years
• September 13, 2022

"I started Repatha in May of 2021, it lower my cholesterol quickly to 214 within a few months. I was happy with that result but I knew something was really happening with my health. I told my husband something had changed in the last 6 months with my health. I didn't think about Repatha, I was told by my cardiologist and pharmacist there were no side effects from Repatha. I kept using it and by January 2022 my mouth was totally covered inside with blisters and sores, I could barely walk, I was severely depressed, severe headaches and hip pain. I stopped taking it, tried it again 3 months ago to see if symptoms were caused by something else!! I kept thinking the doctor and pharmacist said no side effects. I am sitting here with a mouth full of blisters and sores, so weak I can hardly do anything, can't go for my daily walks which I loved. I survived cancer twice, chemo and radiation were bad but nothing like Repatha, I hope I can recover and have some quality of life left."

• Kmc
• Taken for 1 to 2 years
• December 14, 2023

"I have been on this drug for 1 year now. It has definitely lowered my cholesterol. However, now I have severe muscle pulls without doing much. Calf muscle strain, glute muscle strain, shoulder pain. My doctor said Repatha does not have these side effects. Bull! I am going to go off for 3 months and see if I feel better to see if it really is the drug. Will update."

• KayKay
• January 26, 2020

"I been taking Repatha for about 2 years with minimal side effects. About a week ago, I started having severe muscle cramps in my legs, feet and ankle. I decided to research how other patients feel while taking this med. Needless to say, I've had similar symptoms as others. But I never associated them with Repatha. I'm now are going to talk to my cardiologist for other treatments for high cholesterol, as I can't take any Statins. I have to do whats best for me without endangering my health."