Humira for Crohn's Disease User Reviews (Page 2)

• pa2787
• Taken for 1 to 6 months
• January 12, 2017

"This drug not only did not help reduce any symptoms of my Crohn's Disease, but it also caused severe issues. Though I maintained a healthy diet & stayed moderately active, I gained 15 pounds in a short amount of time on this drug. I also experienced hair loss. The most serious issue, however, is that I contracted multiple infections while on this drug. The first was a sinus infection that lasted more than two weeks. After this was over my doctor advised me to resume the Humira, and shortly afterwards, I ended up with severe sepsis that, according to several of the doctors in the hospital, probably would not have happened had I not been on Humira. I would never recommend this drug to anyone. It's not worth risking your life."

• emily...
• Taken for 1 to 2 years
• February 15, 2015

"Well, I have been on Humira for 15 months now. At first, it was my only maintenance med for what was a Crohn's Disease diagnosis. About 9 months in, I had a flare that spread to virtually every system in my body. Joints, bladder and kidney, skin, liver, blood, brain, you get the picture. The dr bumped my dose to once a week, added prednisone and methotrexate. I'm well on my way to better. Humira injections do cause discomfort. I let mine warm up to room temperature and plan an ice pack for after the injection. Helps a whole lot."

• Angie...
• Taken for less than 1 month
• December 25, 2015

"I suffered for many year with Crohn's having has a resection, fistulas, perforation, strictures you name it, having had antibodies after not using infiximab for a year I started Humira 13 days ago, so far so good, no side effects as yet, didn't even hurt to administer and for the first time in years I can hear my stomach actually making a noise !! I seem to be very more energetic as the days go by, fingers crossed it continues. Had no pain whatsoever in 6 days."

• KJLM
• December 28, 2016

"Horrible. Absolutely horrible. I do 40mg weekly using the prefilled syringe & oh my god. It's the most horrifying pain I've ever felt. I would tell anyone considering going on Humira to strongly reconsider & rethink your options. It may only be 10-30 seconds but it will make you cry, no matter how tough you are. It's also not helping with my Crohn's disease at all, 0 change in inflammation. Do not use this."

• Gina
• Taken for 1 to 6 months
• January 5, 2020

"My Doctor gave me humira first shot in July 2019 160 mg then 2 weeks later 80 mg then 2 weeks later another 80 mg. After 3rd shot I felt severe body heating upper body ,then 20 lb weight gain, swelling all over my body. Main side effect is numbness in my hands. It is the worst medicine..Then my doctor stopped this and said this medicine cause heart failure! She sends me for heart eco quickly which shows 2 valve leaking and right ventricular enlargement."

• Jhrd5d
• July 18, 2017

"Have had Crohns all of my adult life (+35 years). Taken everything from prednisone, methotrexate, 6mp, aszulfadine, endocort, to Remicade. Remicade was the first medicine to get me to a 5 year remission, however it didn't last. After playing with a cocktail of drugs including compound meds that landed me in the hospital with drug induced hepatitis, my doctor prescribed Humira. After getting used to the injections, I found it worked the best. I've been in remission for 5 years and recently had a clear colonoscopy. I'm so happy. It was a miracle!"

• Dtf
• January 18, 2020

"I started taking Humira for Crohns. It never did help, I continued losing weight and ended up losing my large intestine. My feet started getting cold from the very beginning and turned out it was neuropathy. So Humira did not help me, and gave me pain and numbness for the rest of my life!"

• Anonymous
• Taken for 5 to 10 years
• March 25, 2024

"I was diagnosed with Crohn's in 2018 and have been on Humira for 6 years. I am now in remission and have had no side effects. Unfortunately, my insurance will stop covering it in June of 2024 and I will have to go on another medication. I hope this will not affect my current remission."

• The...
• Taken for 1 to 6 months
• February 20, 2017

"I was diagnosed with Ulcerative Colitis about two years ago.All other medication failed so this was my last chance before an operation.The Humira has so far worked wonders although I have only been on it for about 6 weeks. The injection was so easy to administer and for me the company delivers the pre loaded pen to my home. Please don't be put off by the thought of injectin yougrself it couldn't be easier."

• Alm
• February 5, 2022

"My mother has been taking this long term and has suffered serious side effects. These include lesions, Fungal infections and muscle weakness in her arms and legs which I attribute to nerve damage. Her specialist witnesses these conditions and refuses to acknowledge them and continues to push the advantages of this drug. This is total incompetence and proof that Drs care more about their kickbacks from pharmaceutical companies than caring for their patients. This drug should be for short term to control flare ups and not be seen as a long term solution."

• Tyty
• Taken for 1 to 6 months
• May 30, 2018

"This med is bad, just sleeping all the time (over 12 hour a night plus 3-7 hour naps), when I take the med symptoms are worse, body heat goes from hypothermia to fever and other way around in a few hours everyday."

• Paula
• Taken for 1 to 6 months
• December 18, 2019

"I started humira in October of 2019 for crohn's disease, by December 15th, 2019 I had to stop using it because of the side effects. I had swollen red legs with a rash, restless legs syndrome, the feeling of ants under my skin throughout my entire body, rashes that became raw and very sore, a very strong foul body odor that would not go away with showers or deodorants, gums started to bleed and teeth became sensitive, my hair started falling out in big clumps, food had a nasty taste, constantly tired and my vision started getting blurry. My family said I was turning into a monster."

• Tina
• Taken for 1 to 6 months
• December 1, 2019

"I have Crohn's and My Doctor gave me Humira 160 mg first shot and after 2 weeks 80 mg then 2 weeks another 80 mg.This Medicine cause me so many problems swelling, weight gain quickly and heart problem. My upper body during that treatment was o fire. Finally my doctor said stop this med and I want you to see cardiologist. Worse medicine."

• Flo
• Taken for 1 to 6 months
• November 22, 2020

"I have been on Humira for 8 weeks. The first 2 injections 160mg, left me in total agony for 9 straight days. Hip joints, knees, ankles and achilles in both legs were extremely painful with every step I took. I have a job where I work 12-15 hours a day on my feet, putting in 10-15 miles a day. I couldn't work. Called my doctors relentlessly. They told me to keep taking it. On day 10 no pain at all. On day 14 took 80mg. Started sneezing and haven't stopped. Been tested for flu, strep, bronchitis, pneumonia and covid. All negative. Took 40mg. Still sneezing. Been sneezing now everywhere I go all day and all night. Went to ENT doc, going to an allergiest. All tie back to Humira. Bowels no different 8 weeks in. Hope to be off Humira by xmas. Awful med."

• Kelly...
• Taken for 6 months to 1 year
• August 20, 2017

"It took doctors years to diagnose me with moderate to severe Crohn's. I've been on Humira for 8 months now and I feel the best that I have ever felt. I rarely get sick and I have more energy to keep up with my active lifestyle. The only side effect was that I got two very small marks of psoriasis which were gone within a couple of days. So far so good for me."

• Jaysonk
• October 13, 2020

"Terrible drug, made everything worse and the injections were painful and left lumps, felt like injecting straight lava under your skin, they do not mix the drug well and charge 5000$ a month for it lmao. Went off and now they keep saying I owe money yet it’s covered by trillium, for a drug this expensive it didn’t help at all."

• Roary...
• February 24, 2017

"I've been on 4 different medications since I was diagnosed with Crohn's 2 years ago. I've been on Humira for 6 months and its the only medication that has helped and made difference. Side Effects: I do break out in small dime size hives around the injection site that goes away within 24 hours. Dr. says this is ok."

• Mike
• Taken for 1 to 2 years
• September 18, 2020

"Used Humira for about a year and a half before I stopped. It had good effect on the Crohn's disease but the side effects were terrible. Severe headaches, muscle and joint pain, skin rash and fatigue were some of the worst. Although it was very easy to take, just using a autoinjector every second week."

• Tori
• Taken for 1 to 6 months
• June 26, 2022

"I had 4 infusions. The last was the 8 week dose. Next day into two weeks in bed. It has been 5 weeks since the last infusion. Crohn's disease is better but not worth any of the horrid side effects. Horrid. Not belly pain as warned, but pain like high level labor pain day or night. The nausea is the scariest part. I was 165lb when I began. 6 months after starting remicade I am now 135. It doesn't look good on me almost 70. And I am so weak. These last 5 weeks I have been a shell of myself. Don't plan a trip wedding cruise anything. This stuff is barbaric from my viewpoint. The side effects are worse than my crohn's disease. I will ask my GI for a pill that gets directly to the small section of inflammation I have. This med is going way overboard. It is awful It was a chemo drug at one time."

• Anonymous
• Taken for 1 to 2 years
• December 9, 2021

"I did not have a positive experience at all with Humira. I started Humira when I was 20 years old due to my Crohn’s. Humira suppressed by immune system significantly. I would get sick so easily. I also believe I have permanent nerve damage to my arms because of the humira. When I was on humira my joints and bone were so stiff, I felt like a 90 year old woman in a 19 year old body. I am now 27 and have been off humira for 6 years and feel significantly better. I am now on Entivyo and my immune is not as suppressed. I personally will never use humira again."

• Anonymous
• Taken for 10 years or more
• November 24, 2021

"AVOID HUMIRA IF AT ALL POSSIBLE. Your doctor won't tell you this, but, if you have any issues with the Humira, your doctor, your pharmacy, and the manufacturer will not assist you. For example, if the pen becomes damaged or it's accidentally left out of the refrigerator and becomes ineffective, the manufacturer will not send you a replacement. Your doctor will tell you that it's expensive and that they don't have any samples. Things happen in life and you pen could become affected. There is no safety net. You will have to tough it out until the next shipment arrives, which could be two weeks later. It happened to me."

• Cece
• Taken for 5 to 10 years
• November 27, 2020

"I was diagnosed with Crohns in 2013 and was prescribed Humira. I had been taking it for 7 1/2 yrs and had to change because Humira was not working as well as needed. I was taking a weekly dose for 6 months with no improvement. I never had a problem while taking Humira. My GI Doc prescribed Entyvio. A total Disaster!!!! I would never recommend this so-called medication. Entyvio should be taken off the market !!!!! I am now on another med and am hoping for better results for a many years."

• aynom...
• Taken for 1 to 2 years
• August 12, 2022

"I've been on Humira for 2 years. It's helped a little I have gained weight. Less than a year on Humira I developed a urinary tract infection (I'm male) and it Iasted for over a year. Now I don't know for sure if Humira caused it but I suspect it did because I've never had that before. They put me on long term antibiotics just recently they seem to think it was an infection of the prostate. I know antibiotics are very bad for you but they said I had to take them. Again I don't know if Humira caused it but I think it probably did."

• JD2008
• May 7, 2016

"Started my humira on Thursday and was suicidal by Sunday. I only took 4 injections and this medication destroyed me mentally and physically."

• Stanly
• May 25, 2015

"I don't think this is working.....Now I have Psoriasis all over my hands!!! this is also supposed to be used to TREAT PSORIASIS!!"