Tymlos for Osteoporosis User Reviews (Page 4)
Reviews for Tymlos
- Dou...
- Taken for 1 to 6 months
- July 2, 2024
"Last year I had my first Dexa scan and it was devastating. -4.5! Today I had an amazing improvement. -2.7. June 29, 2023 Spine: Total BMD of the spine L3 is 0.613 g/cm2, with a T-score of -4.5. July 1, 2024 Spine: Total BMD of the spine L2-4 is 0.815 g/cm2, with a T-score of -2.7. I have only been taking Tymlos for two months. But I have been supplementing with Algae-Cal since last August."
- Anonymous
- Taken for 1 to 6 months
- March 4, 2024
"I have been on Tymlos for 4 months, but am taking a reduced dose. I had horrible side effects on the regular dose of 80 mcg. I started with 20 mcg and slowly ramped up to 40 mcg which is tolerable. I sure hope this helps my bones as I have broken 5 bones in less than 2 years. I am sensitive to most medications and petite. I usually do ask for half a dose."
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- Can Tymlos cause bone cancer?
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- Col...
- Taken for 1 to 6 months
- February 13, 2024
"I am starting my 5th pen and I have also experienced some side effects. They come and go, the very first injection caused terrible nausea about an hour after injection. I then started with the rapid heartbeats, head rush, and slight nausea. I have experimented with doing the injection at different times of the day and have found that I feel much better doing it in the evening after taking a bath and before getting to bed. I am pretty active and found that most of the side effects have tampered off when I am at a relaxed state. I still get a rapid heartbeat for about 10-20 minutes but not as bad as before. In the past two months, I am experiencing little zapping body aches in all different areas of my body. They are not horrible but I do feel them - it's a strange feeling. I just turned 53, and my dexa was -3.3, so I was recommended to start this medication. I was also switched to a different thyroid medication, so I am hoping to see positive results."
- CPu...
- Taken for 1 to 6 months
- December 1, 2023
"I am about to start my third pen. The first three days, I had palpitations, back spasms, and headaches. Someone told me to drink a lot of water, especially before and after the injection. After that, except for one day, I have had no major side effects. I do think there's some extra joint pain with this medication, but nothing that would be enough for me to stop it. I have had several spinal fractures (with kyphoplasty in 6), and my Dexa score in my spine is -3.5. So it is crucial that I continue and not stop. However, I am concerned about what relay drug I will have to take after this."
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Your review helps others make informed decisions.- Gra...
- Taken for 1 to 6 months
- October 25, 2021
"I am on my second pen. I have experienced palpitations, nausea, and headache, which are tolerable. But, I have the bone pain others mentioned. The pain occurs randomly, in different areas: ankle, hip, legs, etc. I too had an episode of back pain, I thought I fractured my spine, but it resolved in 24 hours. I also notice that the first void after injecting is cloudy. Has anyone experienced that? Also, each injection burns, has anyone else experienced that?"
- Goa...
- Taken for less than 1 month
- September 11, 2021
"Just started. Full dose 2nd day. Immediately after injection, intense lower back pain. Followed by racing heart, followed by headache. Can't imagine keeping this up. Haven't decided if I will skip a day or cut the dose in half or both, but if I can't get these issues to resolve, then I will be done with Tymlos."
- Dan...
- Taken for 1 to 2 years
- February 3, 2025
"I’ve been on Tymlos for 16 months for osteopenia. No significant side effects other than one kidney stone (my first, yeow!) at 14 months. Occasional foot cramps, but I can deal with that. Just switched Plan D provider and have to do another pre-authorization, which is always difficult. Don’t know if a lapse in taking Tymlos is acceptable. Will get a scan in 8 months to determine progress."
- Bam...
- Taken for less than 1 month
- December 29, 2021
"Day 1: headache and tired (ibuprofen did not help). Day 2: severe headache almost immediately and really tired, dizzy, had to just lay down. Left a message for my doctor, but it’s the week between Christmas and New Year’s, so probably limited staff. Will these symptoms go away? I’m afraid to try day 3."
- Spi...
- Taken for 1 to 6 months
- February 23, 2022
"Took for 4 months, and after 3 months, vertigo got really bad. Thought it was my ear. But part of me in legs got worse, and overall feeling crummy. Heart would race, break out in sweat. I will no longer take this drug."
- 63y...
- Taken for 1 to 6 months
- January 29, 2022
"Two months on Tymlos, switching to Forteo soon. Within 10 minutes of injecting Tymlos (before bed), heart rate increases about 25 bpm. Heart rate goes back down within 30 minutes or less. Only other symptom is my cheeks have gotten very red and warm. So much so, that friends and family comment. Hope these two things go away when I start Forteo."
- Anonymous
- March 4, 2022
"The customer service from this company is appalling. Messages are left without return phone calls. My follow-up Dexa scan is scheduled for the beginning of April to determine if I will be able to have my fusion surgery. I have been out of medication since Wednesday with no hope that I will be able to obtain medication for another two weeks."
- Don...
- Taken for less than 1 month
- September 12, 2024
"I'm 55 years old with a family history of osteoporosis. I recently found out I too have significant bone loss. I took my first dose of Tymlos today. While I did feel a dull backache and headache, that was about it. The injection was easy and pretty painless. I hope the rest of my injections go as well. I was given a month's supply by the doctor. Having a hard time getting pre-authorization to go through for insurance. They need more info, so hopefully I will be able to continue to take it."
- Ano...
- Taken for 1 to 6 months
- April 8, 2025
"Started Tymlos full dose, and it made me feel odd, but tolerable. The palpitations were better after one week. Then I got bone pain in my leg-very different from any pain I've had before! Woke me up. After skipping it for a few days, the pain went away, so I started back 2 clicks (20 mg) and am up to 5 clicks (50 mg), but starting to get insomnia. I'm a bit into investigating. I found a dose response clinical trial that shows that 40 mg works half as well as 80 mg, but it still works! Even 20 mg has a positive effect. So I may stay with a half dose until I give up and switch to something else."
- pda...
- Taken for 1 to 2 years
- April 10, 2025
"I was on Tymlos for 2 years. It was a game changer for me, where my T score improved significantly. While on it, after the injection, I did have lower back pain for a few minutes. My doctor recommended I do the injection at night before bed to alleviate some of that. That helped, and the pain is short-lived. I would continue to take this if I could, but I did my 2 years already. Now I am on Reclast infusion every year, which has also been great."
- Lee...
- Taken for less than 1 month
- May 3, 2019
"This is my Tymlos review after trying it. You might want to know what are the side effects of Tymlos? For me, I had leg pain, stomach cramps, headache, body pains."
- Flo...
- Taken for 6 months to 1 year
- June 16, 2019
"Started after multiple spinal fractures. It helped with bone building and pain-definitely a godsend. The only side effect is itching, but I can deal with that."
- Bcb...
- Taken for 1 to 6 months
- June 29, 2020
"After 6 months on Tymlos, the ONLY side effects I've noticed are occasional heart palpitations that go away in minutes."
- Sal...
- May 28, 2019
"Severe back pain, like almost unbearable at times."
- pai...
- Taken for less than 1 month
- January 22, 2020
"I've been on Tymlos for 2 days, have side effects of severe pain in my back radiating up my back and heart palpitations and head hurting bad. It lasts for 1 hour."
- sis...
- Taken for 1 to 6 months
- June 15, 2020
"Tymlos for 2 months, my side effects were fatigue, constant nausea, finally had to stop. I felt like I was poisoned. A year later, and I am having significant leg pain."
- Ban...
- Taken for 1 to 6 months
- June 28, 2020
"On Tymlos for 3 months, severe insomnia."
- Jan...
- Taken for 1 to 6 months
- March 17, 2020
"I have been using Tymlos for 2 months at this time, and it causes side effects of severe nausea."
- SLa...
- Taken for less than 1 month
- January 24, 2020
"Have been on Tymlos for 2 weeks. Will the back pain and palpitations subside after being on the drug for a while?"
- gia...
- Taken for 6 months to 1 year
- January 28, 2025
"Tymlos has been fantastic for me. I improved my bone density by 15% in less than a year, with no side effects. I'm actually borderline osteopenia at this point. The doctor is thrilled."
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"I started Tymlos 1 month ago. I do have some palpitations, but it goes away after half an hour. I inject before I go to sleep, so I just lie down after taking it. Hopefully, this will help my bones. I plan to stay on it for 1 year. Then get a new Dexa to check my T score."