Sofosbuvir / velpatasvir for Hepatitis C User Reviews (Page 2)

• Mary
• Taken for 1 to 6 months
• December 15, 2021

Epclusa (sofosbuvir / velpatasvir) "I thought my 12-week treatment on Epclusa was going really hard on me. Apparently I had had Hep C in my body with no symptoms for 45 years from a blood transfusion. Was tested for it in routine tests and then had a liver biopsy, which showed only level one liver damage. I had during treatment and still suffer from extreme fatigue, memory issues, and insomnia. If I had ever dreamed how my life would change for the worse, I would never have taken the first pill! The only positive is that I am now free of Hep C, which I had apparently had for 45 years without symptoms. I am 79 years old and believe I could have lived the remaining years of my life without Epclusa!"

• Anonymous
• Taken for 1 to 6 months
• April 14, 2019

Epclusa (sofosbuvir / velpatasvir) "65-year-old Geno 3. It is 6 months since I finished Epclusa, and I have a loss of hearing in my right ear, nausea, numb fingers, and can't sleep. I got rid of the virus, but I really did feel better BEFORE I did the treatment. Liver clinic and doctors are no help whatsoever; no one seems to know anything except that these horrible feelings won't be going away, and I feel like a guinea pig. I can't get any help; no one cares. Gilead makes money. I had this treatment here in Australia."

• Havoc
• Taken for less than 1 month
• July 19, 2019

Epclusa (sofosbuvir / velpatasvir) "This is my 2nd week on Epclusa. I caught the disease early with no liver scarring. I was terrified to begin treatment regardless of the positive reviews. The 1st week was rough but nothing compared to the free life I am headed towards. Day 1, nothing. Days 2 + 3 I had such unbearable fatigue and weakness I could hardly walk and required help from my family to get through the day. I was concerned that would be my life for the rest of the treatment and was afraid. Day 4 I spontaneously recovered but I was still weak, not alert. Day 4+ I RAPIDLY improved. Yesterday I felt better than even before I had started the medication, 0 side effects OR symptoms. I have night sweats but those are disappearing. I haven’t had nausea or headache, have had slight diarrhea. Those two days of despair were a small price to pay for the freedom I will get. Don’t fret about starting this medication. The first pill is your ticket to your new beginning."

• Emmyy
• July 29, 2022

Epclusa (sofosbuvir / velpatasvir) "Hey I started taking this drug Epclusa in June 2022 diagnosed & started this drug. 2 weeks in blood test show negative, great, but noticed straight away I had a weird heart beat on taking it, a high blood pressure feeling. Also feeling sick gradually went off food lost my appetite, so lost weight. By the way I’m half way thru and I still have no appetite I’m still loosing weight. I get severe headaches and sickness so feel like I’m loosing my mind. Also aches, pains, joint pain, head pain ,back pain, sore throat. I feel like absolute rubbish. I can not understand the weight loss I’ve been reading thru these and not once seen weight loss am I the only one ? Anyway point is I feel like I’m dying"

• Mandy
• Taken for 1 to 6 months
• February 9, 2020

Epclusa (sofosbuvir / velpatasvir) "I’m almost 12 weeks on Epclusa and to say it’s been hard would be an understatement. I’ve been beyond tired- I’ve tried taking the medication both in the morning and at night. I’ve found that at night works best for me. I’ve become extremely irritable and depressed. I’ve also recently had this weird hormonal issue where my boobs hurt and I have acne (not even close to having my period nor pregnant). I never got any headaches or ear ringing so that’s a plus. I know it’s all going to be worth it in the end and I would not have done things any differently. For those of you reading through hundreds of reviews like myself- know that it will get better. I also have to take it for 3 months due to having type 3. Cheers to being hep c free. I received the medication for free through Support Path also Gilead. Look into it if you don’t have insurance!"

• Valerie
• Taken for 1 to 6 months
• December 29, 2021

Epclusa (sofosbuvir / velpatasvir) "I am 62 years old and haven't used I.V. drugs since I was 22. Recently found out I have been infected with Hep C for 40 years. I had no symptoms but after 3 tests I chose Epclusa. Did not have any side effects at all. No headaches no nausea no bowel changes no fatigue. I had strain 1a and 1b with a viral load of 18 million. The doctor called me on the phone and said I am cured that no virus is detected in my blood. Unfortunately, my stomach is noticeably bloated and hard up high. I can't eat much at all or it will bloat to the point of pain. I am also making clay colored bowel motions occasionally which is both a symptom of liver disease and hep c. I felt fine before I took this medicine now I feel like I've done damage to my liver. I really don't believe I'm cured.I feel like there was no point in taking this medicine. I felt better and looked better before I took it."

• jjjj
• Taken for 1 to 6 months
• March 19, 2019

Epclusa (sofosbuvir / velpatasvir) "Completed the 3 months of Epclusa treatment in December 2018 for my Hep C, it is now March 2019 and the side effects are worse now. I have constant buzzing in my head/ears (tinnitus), numbness & tingling, internal shakiness, insomnia, brain fog, very weak, depression, and back pain. I regret taking Epclusa. I felt better before the treatment. I have gone to a Naturopathic Practitioner, Chiropractor, and Acupuncturist to try to help but it is not any better. I don't know what to do at this point and it is scary."

• Jonny
• Taken for 1 to 6 months
• August 1, 2019

Epclusa (sofosbuvir / velpatasvir) "I took my last pill today after completing 3 months. I had HCV genotype 3, for about 27 years. During treatment I felt tired in the afternoon and after doing any exercise. I'd take a nap for a few hours then I'd feel pretty good. No tinnitus but sometimes when relaxing I'd feel numbness in my hands or fingers. It didn't last long. Overall I am very happy with Epclusa. Prior to treatment I'd read all these horrible stories about side effects. Thankfully whatever side effects I had were not too bad. My blood work at 4 weeks came back as virus undetected, so after 2 more months on the med I am hoping that all the little hiders have been destroyed."

• Wacka...
• April 22, 2017

Epclusa (sofosbuvir / velpatasvir) "I finished Epclusa two weeks ago. I've had gum pain and pain in my legs since. I'm glad to be completed. I'm not sure why everyone keeps leaving reviews only a few weeks into treatment. My side effects varied weekly, so I couldn't really give a review while taking the drug. I also have a ringing sound in my head all day, every day, and no hearing loss. I hope that goes away with time. Undetected since week 4. I'd like to hear from others who are months into recovery after this. Do you feel better? Did your side effects go away?"

• Moni
• Taken for 1 to 6 months
• April 11, 2021

Epclusa (sofosbuvir / velpatasvir) "Just started my third month of Epclusa. So far not much of side effects. A little anxiety or irritation at times. No nausea, diarrhea, or anything like that so far. My doctor won’t test until a few weeks after final dose is taken. I did notice after the first four weeks I have much more energy and not feeling so depressed anymore. I will update again once I’ve finished taking the medication and after I’ve been tested again for viral detection."

• rudone
• Taken for 1 to 6 months
• February 11, 2019

Epclusa (sofosbuvir / velpatasvir) "I am 71 - have had Hep C for who knows how long. Did the interferon / procrit six years ago - don't do it - doesn't work and the side affects are psychologically and physically destructive - can lead to suicidal depression - had two friends die on it. 90 days since treatment with epclusa - no virus detected."

• Lizzy...
• Taken for 1 to 6 months
• August 21, 2019

Epclusa (sofosbuvir / velpatasvir) "I'm 2 weeks off of finishing the Epclusa drug I'm so exhausted all the time, I hurt all over even doing nothing leaves me in physical pain and physically exhausted. I was not sick before I started but have been sick since the first tablet. I have headaches, weird dreams, pain on my feet pain in my legs pain in my back sleeping only helps for a couple of hours can barely leave the house. If this dosn't work I'm never going to take anything else"

• Kat
• Taken for 1 to 6 months
• September 14, 2018

Epclusa (sofosbuvir / velpatasvir) "Today, 31 days after starting this WONDERFUL drug, my lab test came back "Not Detectable" I have had Hep C for 53 years, without knowing it for 52 years. Blood transfusion in 1965. I have had no side effects. My advice to everyone that is starting it: Drink at least 100 ounces of water every day, limit caffeine, fake sugars and spicy stuff. Coffee, hot sauce and Splenda were aggravating my tinnitus, and cutting back fixed it. Best of luck to everybody, and thank you Gilead for developing this drug! You saved my life!"

• Smitty
• July 26, 2019

Epclusa (sofosbuvir / velpatasvir) "Took Epclusa for 90 day course of treatment, fatigue, brain fog, lethargy, moody, lots of anxiety. 30 day blood work showed no Hep C. 2 weeks till I get final blood work done. Hopefully I’m cured. Still tired and lethargic but not as bad. I’m 64 years old and am glad I did it. Don’t let the side effects hold you back or scare you. Just suck it up and do it. Price is frikkin outrageous but I got help from a grant from PAN organization. There’s financial help out there. If you wanna be cured, do it!"

• Madei...
• Taken for less than 1 month
• April 21, 2017

Epclusa (sofosbuvir / velpatasvir) "So, I began taking this medication for Hep C contracted from IV drug use. 24 years old. Doctor explained that since I had PPO insurance they would most likely cover the cost of the medication, which I believe goes for around 75k for a 3-month supply. The medication was delivered straight to my house. Genotype 2b. Viral load was 1.7 million initially. I started taking the medication on March 30th, 2017. I had labs done this week to check on progress. After just 21 days of taking Epclusa, viral load is completely undetectable. Initial fatigue first week, no symptoms after that. Great medication! Grateful that this option was available to me. Was absolutely worth it!"

• Jesst...
• Taken for 1 to 6 months
• September 26, 2017

Epclusa (sofosbuvir / velpatasvir) "Hi...So I took 12 weeks of Epclusa for genotype 3a (viral load-3million). The epclusa did do the trick to get rid of the hep c, however I did experience and still do experience side effects. While I was on treatment I experienced tingling, nerve pain, irritability, insomnia, ear ringing, etc. The ear ringing and ear issues remain a problem after 7 months off of the meds. I urge everyone to report side effects to the FDA. When I reported them to my doctor, I was told NO ONE else had those side effects...and I felt like I was crazy. The only way they will have a list of the accurate side effects is if they are reported to the FDA and GILEAD. This helps other patients not feel so alone. All in all it solved the main issue I suppose--"

• Skpp
• Taken for 1 to 6 months
• March 26, 2018

Epclusa (sofosbuvir / velpatasvir) "Ruined my life, feel like I'm dying everyday. Don't believe all these miracle stories you read. It's been over a year for me now and I'm getting worse everyday. Even the people that had no side effects when taking it are now showing up down the road."

• Hpano
• Taken for 1 to 6 months
• February 9, 2020

Epclusa (sofosbuvir / velpatasvir) "I was tired before with Hep C, but on Epclusa this is exhausting to a whole new level. I've had migraines, nausea, vomiting, diarrhea and shortness of breath. For a month of taking it, it was causing asthma exacerbation along with thrush. The thrush was horrible. I have five weeks left and I am looking forward to feeling better. My color came back and during the second month I have had good days where I've had energy. I didn't have that before. I also broke out in a rash like shingles and scabies mixed on my neck and arms. I refuse to stop taking it though. The shortness of breath is better than the first month. I have ringing in the ears a lot. My blood pressure is higher than usual. My body is usually aching. The exhaustion from it is the worst because I have never felt so tired in my whole life."

• Say
• Taken for 1 to 6 months
• September 17, 2019

Epclusa (sofosbuvir / velpatasvir) "I was taking in the morning and that isn’t a good idea I felt sick all day long til about 4pm then I got a my energy back so I take it at night now. I do have insomnia but It’s getting better I started it on Aug 19 2019. The brain fog is getting worse as I take the medication. Drink lots of water or I get sick feeling and nauseous. My joint pain and fatigue is better. My eyes turn blue about 20 minutes after taking the medication and I get this odd feeling all threw my body after I take it I only say it’s like you feel the medication working on fighting the virus. I have the depression just start 9-10-2019. I can say I feel more there except when the Brain fog kicks in and I have serious worry it won’t ago away. My lymph node are swollen but they are going down. I’m glad I finally got to fight this virus I honestly Can’t wait for this 12weeks to be over."

• Geezer
• Taken for 1 to 6 months
• February 27, 2019

Epclusa (sofosbuvir / velpatasvir) "I started on epclusa 5 weeks ago. I was really nervous about side effects..as it turned out I didn't have any. Nothing. I have a viral load of 6 million. My fibroscan was a 4.6 so my liver is in better shape than even most people that don't have hep c. The beginning of fatty infiltration. Genotype 1a. My ALTs were 400 when I started, my 4 week ALT was 19. So far so good. Hoping for the best. Don't be afraid of this miracle. Genotype 1a."

• Marc...
• December 11, 2017

Epclusa (sofosbuvir / velpatasvir) "I'm a 62 year old man with Hep C type 2 b, I have had Hep C for over 40 years from IV drug use in the early 1970's I got sober in AA in 1977 and was diagnosed with Hep C shortly afterwards. I annually would get my blood work tested and in 2010 had stage 3 cirrhosis. In 2014 my insurance covered 90 day hep c treatment Sovaldi and Robaviran I had a difficult time, after 60 days hep c was undetected however 90 days after conclusion the Hep c returned! Fast forward to today I have 25 days left on the Epclusa 90 day treatment plan. I am still hep c detected from 1.5 million to 85 however Still Detected my doctor is not optimistic and I am frustrated but still trying. I am not giving up hope please pray for me! Thank you"

• Fresh...
• Taken for 1 to 6 months
• October 8, 2019

Epclusa (sofosbuvir / velpatasvir) "I have been taking Epclusa now for 4 weeks and the main side effects are as they say, nausea (but haven’t actually thrown up just strong feeling) and extreme tiredness (you’ll sleep for a couple of days if you're not on a schedule). Your fluid intake needs to double with his medication!! I’ve been having diarrhea and it is very easy to get dehydrated which can cause other problems. Other side effects have been tolerable. I have Genotype 1a Chronic hepatitis C. And before taking this medicine I was very weak and the brain fog was so extreme it had me depressed. Now the cloud is starting to clear and my strength is coming back too. I too was nervous about taking it as we all are but it is worth it to me so I can have a fresh start. Good luck!!!"

• exhau...
• August 14, 2019

Epclusa (sofosbuvir / velpatasvir) "Was diagnosed four months ago with Hep C, it was a complete shock. Terrified, but my Dr assured me it would be fine in time. The med at first caused extreme fatigue, restlessness, inability to sleep. Late in the day I would feel more energetic, so I began to take my med at 8pm to sleep through side effects. It helped tremendously. I returned to almost normal levels of energy. I am four weeks post treatment, terrified because I am so exhausted that doing ADL’s is about all that I can manage most days. I am terrified that the treatment was more destructive to my body than the disease. My review is mixed, my viral load is undetectable that is-success"

• Mr Re...
• May 11, 2021

Epclusa (sofosbuvir / velpatasvir) "Took epclusa mid 2018 had no Hep c symptoms went to doctor for stomach ache. Test showed Hep c,no liver damage. Felt sick everyday taking Epclusa, my side effects are nausea headache fatigue body aches. Doctor said keep taking it. Hep c was cleared but now 3 years later I am so ill. I am in so much pain all over it hurts to move, I also have nausea, weight loss sleep the list goes on. I was not sick like this before Epclusa but it's ben like this since I took this medication. Been told I have fibromyalgia. All I know is this medication has ruined my life and I live with extreme pain everyday. If I could go back I would never have taken it."

• Anonymous
• July 2, 2020

Epclusa (sofosbuvir / velpatasvir) "I have now completed Epclusa!! I am 2 months post treatment!! I am still NEGATIVE!! So it does work!! I wanted to share my experience because some of you who are concerned about the side effects should be!! Yes I am treated but now the COVID is going around. I have been left with near to no immune system to fight anything else off!! I don't know for sure the epclusa did this. But I got a yeast infection during treatment. Probably from the epclusa and fought for 2 months to get rid of it. I ended up at my doctor. After test results from the past 3 months of blood work from 3 diff docs. I have found out my WBC is down to a 4 and has remained there sense I completed treatment. I am now susceptible to catching basically anything and having no immune system left to fight it off. During treatment I did not sleep for 3 months!! I lost 20 pounds was left with migraines every night. Night sweats and the list goes on. I am still weak everyday in my arms and legs!"