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Oxcarbazepine User Reviews & Ratings (Page 4)

Brand names: Trileptal, Oxtellar XR

Oxcarbazepine has an average rating of 7.8 out of 10 from a total of 348 reviews on Drugs.com. 70% of reviewers reported a positive experience, while 13% reported a negative experience.

Reviews for Oxcarbazepine

  • itlps...
  • Taken for 6 months to 1 year
  • June 19, 2014

Trileptal (oxcarbazepine) "I take 150mg at night. It makes me drowsy, along with a 0.5mg alprazolam I can finally get at least 5-6 hours of sleep at night. I did not know how ill my disorder was making me until I was on this medication and the prescriber that I was seeing let me lapse because I missed my appointment for a refill. Within a couple weeks, I wanted to put my jacket on and run away, thought about running into traffic, real manic, racing thoughts while feeling depressed. I never knew how sick I was for all of those years until I was on the Trileptal and felt what "healthy" was like. Thankfully, found a new doctor and back on it and do not plan on stopping, ever!"

10 / 10
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  • alex
  • July 14, 2019

For Borderline Personality Disorder "I LOVED Trileptal. It was my ride or die. My irritability, stubbornness/nitpicking, and anger were reduced to almost 0; my interpersonal relationships became healthier and I was overall not a pessimistic, moody, grouchy, insufferable Grinch anymore. No other medication had ever done that; I've always suffered terribly from my own irrational anger and anxiety. The only downside was not being able to enjoy a drink while out with friends, but I only socially drink, and even that's rare. It made me extremely sleepy (I took that as a good sign; that's what made me mellow out) so I suggest anyone else take it at night right before bed, and it'll probably even help you sleep. The only -- and I mean only -- reason I went off was because the form of birth control I wanted to get (Nexplanon implant) interferes with oxcarbazepine and other anticonvulsants. Definitely recommend for others, though."

9 / 10
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  • Xboater
  • Taken for 10 years or more
  • May 29, 2012

Trileptal (oxcarbazepine) for Trigeminal Neuralgia "I have been taking 1200mg daily for a number of years, and there are times when I'm pain-free and times when I'm not pain-free. Interestingly, enough, the pain is usually worse in the morning, and if I ignore it as best I can, it subsides. But, it often comes back later in the day and around bedtime."

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  • Anonymous
  • Taken for less than 1 month
  • April 20, 2019

For Trigeminal Neuralgia "Been diagnosed with Trigeminal Neuralgia (TN) since October 2108 and have tried 4 types of meds. I had really bad reactions with all of them and also didn't reduce the pain. Now I am taking 150mg Trileptal with 100 mg Gabapentin both of them in morning and bedtime. The pain has reduced to a manageable level like 3 out of 10. Am thankful for that and I hope it will continue like that!!! I started going back to work and also enjoy life with friends!!!"

10 / 10
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  • Your...
  • December 1, 2016

For Bipolar Disorder "I was put on this drug when I was diagnosed with bipolar and it has made such a difference. No more racing mind, just calm and normal feeling. We worked to get the correct dosage and now I feel terrific."

8 / 10
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  • Anonymous
  • January 30, 2012

Trileptal (oxcarbazepine) for Bipolar Disorder "I took Trileptal over 2 years ago and had horrible side effects. Started at 1500mg with no change in mood and with no side effects. Raised it to 2400 Mg (Max dosage) and was in a constant drunk/high haze all day. 20 minutes after taking it I couldn't walk in a straight line. My parents would spend an hour some mornings trying to get me to wake up. My managers wouldn't let me work cause it was too noticeable I was "high". Trileptal seems to help a lot of people so this isn't to discourage people for taking it. "

3 / 10
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  • in pain
  • Taken for 10 years or more
  • January 7, 2016

For Trigeminal Neuralgia "I have had trigeminal neuralgia for 14 years. The condition is debilitating. If you have the condition you know exactly what I mean. I take 1200mg 3 times a day. Which is a lot! I have side effects such as tiredness, blurred vision, forgetfulness, weight gain, trouble walking because of double vision etc... AND there is still break through pain. However, I would rather be tired and forgetful than have the lighting shock pain 24/7. I think it saved my life in a way."

8 / 10
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  • JPano
  • Taken for 1 to 6 months
  • February 3, 2020

For Bipolar Disorder "Put on oxcarbazepine for bipolar and did not notice a change with my mood, put on 10 pounds in a month. The headaches and brain fog were awful. Ate like a horse. No thanks. Stopped and the weight is slowly coming off. I’m so tired of hearing weight neutral, before given a prescription. I have been playing this game for way too long."

3 / 10
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  • jayndoe
  • Taken for less than 1 month
  • May 16, 2014

For Anxiety "This medication is the first one I've ever taken that completely controls my extreme restlessness. I have tried antidepressants, antipsychotics, benzodiazepines, and other anticonvulsants. None of them did the job. I tried this, expecting very little. I am amazed at how wonderfully this treats my issues. When I take it, it does take a while for it to take effect, but once it does, my restlessness and agitation completely vanishes. I love it because it doesn't make me feel any differently, I just suddenly notice that I'm sitting still and my mind is going a hundred miles an hour. Medications affect everyone differently, but this one works wonders for me!!"

10 / 10
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  • jaal
  • February 9, 2016

For Trigeminal Neuralgia "Diagnosed May 2015 - left side typical TGN. Didnt want to take Tegretol because of the side effects so tried Gabapentin with minimal effect even on 2700mg pd. After 7 months of daily agony I finally changed to Trileptal. Took two weeks to kick in properly but have been pain free for the last 6 weeks. Have come off the Gabapentin (hideous) and am now working up the courage to come off the trileptal to see if its gone into remission. The MRI I had has identified the offending blood vessels but I really want to avoid surgery if I can. Medication is expensive but I have had very few side effects - I'll take that over pain any day of the week!"

9 / 10
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  • Anonymous
  • February 28, 2012

Trileptal (oxcarbazepine) for Bipolar Disorder "This medication was extremely effective at stabilizing my moods. The problems that I had made it so that I could not continue on it and therefore needed to rate it so low (because of the severe side effects). First off, I literally saw double for several hours after taking it. Do you remember the Wrigley's double mint gum commercials? Well literally that's what I experienced. It DID go away after several hours afterward but was really weird and gave me a headache when it happened every morning. My skin, especially my lips, would get numb and tingly. The biggest problem though was that it gave me constipation so bad that nothing I ate or took could alleviate it. The ONLY way I could EVER go is if I took a heavy (not mild) laxative."

3 / 10
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  • Just...
  • June 10, 2015

For Bipolar Disorder "Been on this med for 3 yrs & generally have had a good experience. I've been on multiple antidepressants over the years, but found they increased my irritability. My Favorite was Zoloft, but gained 40 pounds in 2 yrs. A Dr. put me on lamictal & kept increasing the dose. Total nightmare. Extreme depression, anxiety increased & felt mania for the first time ever. My current Dr. switched me to Trileptal. Complete blessing to sleep again. The toss up? Going from feeling like I was on a pot of coffee to a bottle of wine. Had slurred speech & foggy head. My job requires me to speak in front of groups & taking in the AM was bad. Solution? Small dose of Lamictal (25 mg) in the AM (gets me up) & Trileptal (300 mg) at night for sleep. Been working!"

9 / 10
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  • Marge...
  • July 17, 2016

Trileptal (oxcarbazepine) for Seizures "I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals."

6 / 10
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  • Betty
  • Taken for less than 1 month
  • March 9, 2013

For Trigeminal Neuralgia "Been in pain for three years with headaches and trigeminal neuraligia, and taking Tegretol with not much relief. Just switched to Oxcarbazepine, and it is like I am a new person. No pain. I'm thrilled. Hoping the relief lasts, unlike my experience with Tegretol where it worked in the beginning and then it had no effect at all. Thankful to my new doc for prescribing this for me!!!!!"

10 / 10
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  • Tabit...
  • Taken for less than 1 month
  • February 12, 2018

For Bipolar Disorder "I started taking Trileptal (oxcarbazepine) a week ago. I started noticing relief of my manic symptoms almost immediately. This medication helped calm my mind down from racing thoughts and manic outbursts. I've tried so many medications in the past that didn't work for me. This medication is a Godsend. Right now I'm on 600mg per day."

10 / 10
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  • Jill
  • Taken for 6 months to 1 year
  • April 9, 2018

For Neuropathic Pain "I have suffered for years from migraines and neuropathy pain. This medication has relieved my pain and I am grateful. I take 300 mg twice a day and have gained a few pounds but it’s worth it. I am able to function without constant pain now."

9 / 10
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  • KRano
  • Taken for 2 to 5 years
  • December 31, 2019

For Bipolar Disorder "After many other meds that didn’t work for bipolar II, oxcarbazepine really changed my life for the better. Also a word of caution after 2 years of never missing a dose, my doc is on vacation and I need a refill. I halved and quartered and now I’m out of them completely and MANIC! Don’t let this happen to you. Peace to you all."

10 / 10
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  • chris...
  • April 27, 2017

For Bipolar Disorder "Trileptal has been a life-saver so far in treating my Bipolar. I've been on the drug for a little over 10 weeks and I currently take 600mg/day split between morning and evening. For the first month I experienced extreme fatigue, dizziness and headaches. Currently, I only sometimes have blurry vision and I feel like my memory has gotten worse (but it was poor to begin with). I didn't feel like it was actually working until I got to my current dose about three weeks ago and now every week is better than the last in that I have fewer "bad" days. I've even started to have good days without being manic! I do have a problem with sodium levels that I only notice after exercise, but eating a pickle or two resolves that."

10 / 10
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  • Joao...
  • Taken for 10 years or more
  • September 1, 2014

Trileptal (oxcarbazepine) for Seizures "Due to possible heart failure about 15 years ago I started having partial seizures waking up in airplanes or hotels not knowing were I was for some time and than gradually became alert until I started with many severe seizures. I started with Tegretol and then switched with Trileptal that was very effective. Forgot to take it a few times and had seizures until I became very conscious of the need and since then I am quite well. I need to stay far from confrontations and conflicts. I currently take 1,500 MG daily (600 morning, 300 dinner 600 @ sleep). My sodium level suffered a lot but I am good on it now. The way to balance it is with coconut water, sports drink and adding a bit more on home cooking. It is a super medicine. I miss my red wine!"

10 / 10
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  • Deej
  • April 15, 2017

For Bipolar Disorder "I have been on Trileptal and just started taking it about a week ago and I have been in better moods from the time I wake up to the time I go to bed. I was on 75mg of lamictal for over 3yrs and it was working fine and then it stopped working. I have also been diagnosed with bipolar when I was young when they said that I had the beginning stage of it. I was just recently diagnosed with the highest stage of bipolar that you can go and my psychologist put me on this med. I am taking 600mg a day 300mg in the am and 300mg at night I am not drowsy or nothing just a little dizzy every now and then."

10 / 10
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  • Anonymous
  • January 13, 2011

Trileptal (oxcarbazepine) for Seizures "My son has been taking this medication for about 2 months now. Before he got on the medicine he was really mean and talked back. I found that he was not happy, crying all the time for now reason at all. He would have a seizure and about 10 times a day. It got where it was really hard. I finally got him to see a great doctor. She put him on this medicine and there hasn't been a seizure yet and he is playing laughing and having fun again. I really thank who ever came out with this medicine."

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  • Jenny...
  • Taken for less than 1 month
  • September 8, 2015

For Trigeminal Neuralgia "I have been on this medicine for 5 days and it has absolutely turned my life around...literally. I was trying Tegretol and it worked for my Trigeminal/Occipital neuralgia but made me off balance, slur my words even on a low dose. The doctor gave me this based on those debilitating side effects and I have almost no side effects so far and almost no pain! So hoping it will continue to work like this!"

10 / 10
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  • Jod
  • September 25, 2011

Trileptal (oxcarbazepine) for Trigeminal Neuralgia "I use it for Trigeminal neuralgia and it is working great! I was first prescribed Tegretol and it worked for about a year but then the pain started to return. Doc said the Tegretol was being metabolized at a faster rate and she switched me to Trileptal. It worked in about 8 hours! And, as others have noted, you do struggle for words and have a bit of short-term memory impairment, but the pain is gone! Also, so is your libido! Tegretol was like taking Viagra, increased libido! But, it's still a better life without the pain."

10 / 10
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  • Mothers...
  • January 6, 2018

For Bipolar Disorder "My daughter was diagnosed 2 years ago with several different mental health problems, she's been dealing with these issues for years, but seems like we couldn't get the right help for her, she had a manic episode 2 weeks ago, I had to have her hospitalized, they put her on the triliptal and by the time she came home she was a totally different person, she's so calm and mellow, I can tell for the first time in a long time, she seems at peace in her mind and actions, best medication I've seen in a long time, thank God and the doctor who finally found her some relief, including myself"

9 / 10
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  • Melissa...
  • February 4, 2016

For Trigeminal Neuralgia "Life changing and I would not quit taking this unless I was forced to. I tried the tegretol and it was too severe for me. I have been on oxcarbazepine for 6 weeks now and it has almost stifled my trigeminal neuralgia episodes to where I can function now. It does have its side effects and I am often confused for the first few hours of taking my medication which is 150 milligrams 2 times per day. I'm glad we are starting out on a low dose As I am down to 102 pounds. I am also taking 3200 milligrams of gabapentin. This combination has worked for me. My last episode of trigeminal neuralgia was in September 2015 and it lasted for 34 days. That was it for me. I'm so glad for this medication to be available to me. There is a trade off though."

10 / 10
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45 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.