Omalizumab for Urticaria User Reviews (Page 5)

• Vculp...
• November 22, 2017

Xolair (omalizumab) "I am 52 yrs old. On xolair for 3 yrs. I get 2 injections every 4 wks. The shot is painful because the medicine is thick, but having the shot injected at the back of my arm has helped. I've had hives since I was 17. I've been on most of all kinds of allergy medicines. I was on benedryl before it was OTC. I've had lips and eyes swell to beyond recognitions. I've had swollen hands and feet and have waken up in the middle of the night with hives from head to foot. Prednisone was the only thing that has helped before xolair. Insurance companies are a pain though. I missed my last dose waiting on insurance who wants to make sure the other meds won't work. With the missed dose and the appearance of hives I think xolair works."

• Abeer
• April 10, 2018

Xolair (omalizumab) "I suffer from Urticaria for 11 months and I had my 1st xolair injection last month and I am going to take the 2nd in few days. I suffer from joint and muscle pain even before I had my xolair medication and it is still there, I can say that I am feeling better especially with the hives and the rash although they appear, but, still they are not severe as before. I hope that better results are seen with my coming injections."

• Jewel...
• February 14, 2016

"Xolair saved me from a miserable existence. I have been on it having monthly shots for over a year and a half. Takes 4 shots to work well and 6 for headaches to stop. Highly recommend. Hive free since 6th shot. Don't let headaches and pain discourage you."

• Noca
• Taken for 6 months to 1 year
• April 11, 2018

Xolair (omalizumab) "I take 450mg of Xolair injections every 4 weeks and while it starts to work within 24 hours at this dose, it starts to wear off at week 3. My government won't pay for more than 450mg every 4 weeks, would have been nice to have had 300mg every 2 weeks but oh well. I still have to rely on a total of 5 other meds besides Xolair to control my severe chronic urticaria including zrytec, benadryl, naltrexone, doxepin and singular."

• KatNich
• Taken for 6 months to 1 year
• April 24, 2017

"This is the best thing to help my CIU! I had to leave my last year of highschool because my hives would cause my lips and eyes to swell up every day for 7 months and nothing seemed to help. We went to a doctor that recommended Xolair and I started getting the shot monthly. I was devastated because the first three months of being on the shot nothing happened, it cleared them up a little bit, but not to where I was happy and feeling any better. My fourth shot of Xolair was like a miracle, I woke up the next morning and there was 0 hives. I've been on the shot for 7 months now and have been hive free for 3 months straight, the only time they come back is when I'm more then a week late for my next shot. It's amazing, it gave me my life back."

• Lou
• Taken for 2 to 5 years
• October 29, 2020

Xolair (omalizumab) "21 yr M with Idiopathic Angioedema -swelling of hands, feet, intestines, tongue, throat, face First administration of Xolair was in 2016, side effects were minimal, minor flushing in face and hands. 300 mg every 4 weeks, I've had maybe 3 small flares since my first injection. Diet, exercise and lifestyle changes have also helped my condition."

• Lynn
• February 13, 2016

"I am now 33 years old and have been on Xolair injections for 6 months. I get two 150mg shots (one in each arm) every 4 weeks. I lived with chronic hives with angioedema for 4 years. Took countless antihistamines that never helped and even done a course of a transplant drug they give organ transplant patients with the hopes of rebooting my immune system to no avail. I couldn't even walk on the beach without my feet swelling so much I couldn't stand on them. I have been hive and swelling free since the first dose of xolair and luckily my insurance covers the whole amount. I hope to continue to have great results with this injections."

• CMSTN
• Taken for 1 to 2 years
• November 15, 2017

Xolair (omalizumab) "I have been getting 2 injections once a month for almost two years now. Before the doctor diagnosed me as having Chronic Urticaria with Angioedema, I went into anaphylactic shock 3 times in a month. Xolair has made a huge difference for me. I have not had any hives since I started getting Xolair injections. My big issue is my insurance (Blue Cross Blue Shield of TN) requires me to go to a different office within a group in order for them to cover the cost of injections. Every time I have gone to this other office I end up with a hard spot at injection site with major bruising. It is very frustrating. Still outweighs the horrendous hives."

• Ms It...
• Taken for 1 to 6 months
• December 2, 2019

Xolair (omalizumab) "I have had CIU (chronic idiopathic urticaria) once before in the past about 10 years ago. I can't remember how long I had had it but I woke up one day and it was gone. In June this year I noticed I was itching more than normal and my nightmare CIU was back. Needless to say I still have it and It is worst. I have had 3-4 shots of Xolair and I have no results yet, The shots them hurt and I hope and the end of the day it's worth it."

• Nat
• Taken for 1 to 6 months
• January 16, 2022

Xolair (omalizumab) "My 13 year old daughter suddenly broke out with chronic hives, basically covering every part of her body daily. After 4 months with not one day not covered, our immunologist got her into Xolair (2 x 150). Thank goodness after the 3rd dose (monthly), it worked and she’s been hive free ever since. She had her 4th dose last week & it’s changed her life (thank goodness). She will continue on this dose for several months and will then look to increase the period between doses (to 5 weeks etc). Thank goodness in Australia it’s covered by the PBS. I highly recommend this product. I have written my comments because like so many I was constantly reading reviews etc."

• Itchy...
• Taken for 6 months to 1 year
• June 30, 2019

Xolair (omalizumab) "Worked for about 9 months as long as it was given every 2 weeks on time. It is difficult to get the medication delivered to Dr office consistently though. Follow-up testing needs to be done for possible adverse effects."

• iSteve
• Taken for 1 to 6 months
• June 6, 2016

"I've had chronic idiopathic urticaria since May of 2003. I'd get hives ALL OVER my body, every day, non-stop. After trying a whole slew of medicines, I wound up on a self implemented regiment of 30mg of loratadine (Claritin) twice daily (60mg total, 6x the daily dose). It worked okay and I was avoiding the steroids. Then I tried Xolair. I'm writing the review in the waiting room of my Doctor after having just received my 5th shot, (2 shots, 1x per month). The day after shot 1, I quit loratadine cold turkey. From day 1 until today (5 months), I haven't had one hive! This is a miracle drug for those suffering with CIU."

• Sar
• Taken for 1 to 6 months
• August 16, 2015

"I have severe allergy attacks and am now up to 11 medications I'm allergic to within the past year. 4 months on Xolair and became allergic to 2 more medications. I'm on 5 allergy medications and still not working. Xolair work? For some, not for everyone but it can take some time to work. "

• Sofia...
• Taken for 1 to 6 months
• August 29, 2022

Xolair (omalizumab) "I first got my Xolair shot in June 2022, within 3 weeks I would say I started seeing a huge difference! Right until my second shot I was completely free from hives! I have struggled with this for many years (5-6yrs) its been so draining for me, thankfully this has helped and my insurance covered it! I recommend xolair."

• Mima
• Taken for 1 to 6 months
• October 24, 2023

Xolair (omalizumab) "I have suffered from hives for about ten years, during which I have seen a plethora of specialists in order to mitigate my chronic urticaria. Although I have tried many prescription and OTC medications, I tried to avoid being dependent on medications and instead determine the trigger. Only recently, I had XOLAIR injections of 150mg x2 once a month. I have had no hives for two months starting after the first day. This is amazing. The side effect of a headache was present a few days after the first injections but did go away after a couple of days. A few days after the second session, the headache returned. This time the headache is much worse and has lasted for days. Three days and counting. If it doesn't go away soon, I will stop using XOLAIR as I cannot sleep with this pain."

• Twister
• Taken for less than 1 month
• August 23, 2022

Xolair (omalizumab) "I just got my first shot of Xolair TODAY, for solar urticaria, and chronic spontaneous urticaria, including angioedema that comes and goes, caused by random stuff- no confirmed allergies. I am a 45 y/o f in Florida, and we have a LOT of sunlight, so I have been using an umbrella and long sleeves and hats, and curtaining my house for two and a half years now. Today, that changed!!! I couldn't believe it. Within 5 hours of having the shot, I have stood in sunlight with no protection, with minimal discomfort! My TINY numerous hives are down by at 50-75% in numbers, already! My face is still flushed, but my skin doesn't really itch like crazy now. This is a miracle drug!! I am praying this is a cure for me. I only had a 150 mg sample shot, today, probably due to having milder symptoms. I also feel like my inflammation is better, all over, ALREADY!!! AWESOME STUFF THANKS A LOT, MY XOLAIR PEEPS!! Also, I have had high blood pressure lately so maybe this will bring that down while I lose weight again. YAAAY! HAPPY!"

• Jamie
• Taken for 6 months to 1 year
• February 21, 2021

Xolair (omalizumab) "Xolair gave me my life back! I was SO miserable with CIU and Xolair started working within 2-3 days of my first set of injections. I get maybe 2-3 hives at a time now, I sleep well and can work and exercise and do all of the things that I enjoy again now. I am scared of the side effects and I hope I don't have to be on it for years, but I can honestly say that it has been my miracle."

• Axgd
• Taken for less than 1 month
• January 22, 2016

"I just had my first round of Xolair. I fought really hard to get it approved and finally got the two shots 10 days ago. I did not get relief from it unfortunately. I itch all the same. Plus, I have had daily migraine headaches. The day after, I was in bed all day with the headache and it has been very hard to function normally after the shots. No relief, weakness, daily headaches. Give me the misery of just the hives back!"

• Silve...
• Taken for less than 1 month
• July 8, 2017

"This is the 4 episode of my life of chronic hives/ angioedema. By far the worst.so far 8 weeks. Taking Cyclosprine( worked in the past episodes) and max dose Zyrtec, Allegra plus Ranitidine, as needed Benadryl. Multiple prednisone courses and steroid shots. 1st Xolair injection 8 days ago. So far not effective. Hives remain daily 60-80% of body and itching with episodes of Angioedema. Lack of empathy from medical providers astounding. Wish someone could assure me subsequent injections may bring some relief"

• MARIO
• Taken for 1 to 6 months
• April 22, 2022

Xolair (omalizumab) "I received my first injection about a month and a half ago. I just received my second injection this past Monday and I am still itching! I am not sure how long this medication takes to officially make you stop itching. I am at my boiling point with dealing with these hives on a daily basis. Has anybody else had a similar experience where it takes a couple on months to stop itching all over your body?"

• Not...
• Taken for 2 to 5 years
• August 28, 2023

Xolair (omalizumab) "Great drug for those who suffer with chronic hives. I used to be on plaquenil, which took forever to work when I would have a flare up of a new hive cycle. Xolair works within a month, and I haven't had any nasty side effects. A small headache, and some nasal congestion post injection that typically last for a couple of hours."

• Tesa
• January 21, 2017

"I have had chronic hives for 10 years now. They started shortly after having gastric bypass surgery and have never gone away. I was on a cocktail of allergy medications for years and they only kept the hives from getting too out of control. I also was on an immune suppressant (that organ transplant patients take) for almost two years with very little change. I tried acupuncture too. About two years ago my allergist approved for me to get Xolair injections. This was the first time in 8 years where I didn't have hives at all. An injection lasts approximately 8 weeks and then I start breaking out again. I have had no side effects from it. I hope one day my hives will go away, but for now, this has been the ONLY medication that has worked"

• Kelly
• Taken for 2 to 5 years
• July 30, 2023

Xolair (omalizumab) "It works for my Chronic Idiopathic Urticaria. I still get some angioedema. I take Vitamin D - 6000 IU to help with that. One side effect has been a weight gain of 12 pounds in 4 years. I track what I eat, consume less than 1200 calories daily, exercise 4-5 days per week, and no matter what, I can't lose a pound."

• DaniM
• Taken for 1 to 2 years
• February 29, 2016

"I am a 25 year old female who has battled chronic idiopathic urticaria since age 2. My hives come and go every few years sometimes 2years sometimes 3years. The older I have gotten the worse they are when they come back... Last batch lasting 7months. 7 full months of 24/7 full body hives. Throughout my course of treatment I have had steroids all the way to kidney rejection drugs. NOTHING WORKED!!!! When my doctor suggested we try xolair I was sceptical. I recieve 2 shots every 4wks. This medication has changed my life. Do I still get hives on occasion YES! But they are so frequent. Xolair is here to manage your condition not cure it. Good luck to all of you!"

• Cas
• March 3, 2016

"Hives out of no where 4 years ago. Severe angioedema as well. 6 antihistamines a day, prescriptions, Tagamet acupuncture etc etc etc....4 years of being covered in hives every single day. Gave up on medicine.... And then decided one more try. My immunologist said Xolair and I had my first shot exactly a week ago today and haven't had a hive for two days! I had just one or two for The first few days after the shot The shot did make me lethargic for a few days but that has passed"