Opdivo for Renal Cell Carcinoma User Reviews

• Bra...
• Taken for 2 to 5 years
• September 19, 2019

"Saved my life. Been on Opdivo (Nivolumab) for 3.5 years after being told I was about to die. All my tumors have shrunk, if not disappeared altogether. No side effects! CT scans are clear. No cancer symptoms. Doctor says I could live a normal lifespan. Treatment consists of a monthly half-hour IV drip."

• Ray...
• Taken for 1 to 2 years
• July 17, 2019

"I was on the drug for almost 2 years. It worked for my bone metastasis, and it shrank my tumor in the right kidney. Stage IV RCC, I was able to stop and have been stable over a year now without medication. Hoping it will continue to work for a while."

• Cha...
• Taken for 6 months to 1 year
• February 18, 2023

"December 25, 2021, diagnosed with stage four clear cell renal cell carcinoma that had gone to my lungs (non-small cell lung cancer). Softball-sized tumor on my right kidney and numerous ping pong ball-sized tumors in both lungs. No outward signs that I was ill. January 19, 2022, received my first infusion. Combo Opdivo with Yervoy by infusion. Two weeks into the first infusion, I developed a facial tumor that tested out to be clear cell renal cancer in origin. Doctors wanted to start me on Cabometyx, but I declined. One week later, just prior to my second infusion, that tumor had vanished and was only a small subdermal bump (subsequently, all evidence of that tumor was gone). I just received my 15th infusion today (4 combo Opdivo/Yervoy at 3-week intervals and now my 11th Opdivo 480 mgs once a month). My tumors, both in my lungs and on my kidney, have shrunk by 60%, and I’ve had almost no side effects (slight fatigue, minor itching, some muscle/bone pain). It’s working for me."

• GCP...
• Taken for 1 to 6 months
• February 3, 2020

"Opdivo was the end for my husband!!! The doctors had been pushing this drug at us for 2 years. My husband finally decided to try it, and 7 weeks after his first infusion, he passed away due to complications from the medication!!! It caused pseudo-diabetic symptoms, respiratory failure, and numerous other complications!!! I would not recommend this treatment for anyone!!! I feel that they faked their trial runs to get funding for their experimental treatment!"

• For...
• Taken for 1 to 6 months
• November 24, 2021

"Daddy was on this for about 6 months. Would have been longer if his cancer didn't spread to his brain. This does not cross the blood-brain barrier. This was the best medicine he ever took. Took in combination with Yervoy. Daddy had clear cell RCC. It was in his stomach, liver, lung, and right atrium (heart) at the time. This medicine got rid of the cancer in his stomach, atrium, and lungs. I highly recommend this medicine. Daddy was still working as an automotive mechanic while taking this medicine. Side effects were minimal. The only thing is his immune system seemed to be more weak. That was it. He also had no kidneys left from the cancer. So he was on dialysis. I wish he could have stayed on this."

• Cha...
• Taken for 1 to 2 years
• December 20, 2023

"This is a follow-up to my February 2023 posting. I've completed my 24th Opdivo infusion with no adverse side effects. I've already scheduled number 25 and 26. Yesterday, I had my first-ever PET scan. My results were totally unexpected - NED, no evidence of disease (remission). I will be meeting with my doctor to plan my future course of treatment. I believe my Yervoy/Opdivo treatments have saved my life. Stage 4 CCRCC with NSCLC is not the end, it's a starting point. Explore all your options and go forward."

• MHT...
• Taken for 2 to 5 years
• July 1, 2024

"Diagnosed ccRCC Stage IV. Started Opdivo in July 2020 as second-line treatment; Sutent failed after 14 months. My Nov 2020 scan showed no evidence of disease! Even in areas that Sutent never was able to fully suppress! Clean scans for almost 4 years now. Zero side effects."

• Mel...
• Taken for 1 to 6 months
• December 11, 2021

"I took 4 treatments of Opdivo Yervoy, and I have horrible joint pain in my knees, hands, and shoulders. It's been a month since the last treatment, and still severe pain. I wouldn't recommend it to anyone. Dr. keeps telling me it will go away. Pain medications don't work!!"

• Lyn...
• Taken for 1 to 6 months
• April 22, 2025

"My kidney cancer had spread to my lungs with numerous cancerous nodules throughout both lungs. The nodules were growing slowly but finally had gotten to the size that caused concern. I started Opdivo with Yervoy 5 months ago and for the last 3 months just Opdivo. The nodules have begun to shrink, which we are very excited about. I, however, in the last couple of months have experienced a loss of the ability to taste. Some foods have a slight taste, but most have no taste at all. This has made cooking for my family a challenge. Also, I developed carpal tunnel with complete numbness in my thumb and forefinger on one hand. I just started feeling a little tingle in the forefinger of my other hand, which has me a little concerned."

• Cha...
• Taken for 1 to 2 years
• February 4, 2025

"Received my 28th and last Opdivo infusion 11 months ago. I opted for going past the recommended 24 months of treatment. It’s hard to stop treatment when the treatment has saved your life and with very few side effects. It’s 12 months since being given a remission diagnosis, and all the intervening CT scans have indicated my tumors are not changing or metabolizing. Opdivo was my magic bullet and remains a viable option to look at when researching a treatment protocol for your cancer treatment."

• S3a...
• January 27, 2017

"I was on Opdivo for 6 months. It really set me back, I had to quit it before it killed me."

• Kim...
• Taken for 1 to 2 years
• January 29, 2023

"Renal metastatic cancer in back and lungs also worked terrific, going on 6 years cancer-free."

• Bob...
• Taken for 2 to 5 years
• June 27, 2023

"Drug is being administered by infusion every 28 days for about two years. No sign of cancer for many months in my CT scans."

• Fai...
• Taken for 1 to 6 months
• April 4, 2019

"I was on Opdivo for 4 months for stage 4 RCC. Felt good, diarrhea was the only side effect until I got blurry vision in one eye. During those 4 months, I had no increase in the size of the tumors."

• sdw...
• Taken for less than 1 month
• February 26, 2024

"So far, so good. I have only had one infusion and no side effects. A couple more months and I will have a PET scan. Will know more then. I also have psoriasis so some immunology difficulties."