Natalizumab and Dizziness: What Users Say

• Kat...
• August 14, 2015

For Multiple Sclerosis "I was diagnosed with RRMS in Nov 2008 (age 16). I started out with Rebif and took that for 2 years. I found that to be too painful, so I stopped taking any medication altogether. In May 2012, I tried Gilenya. I was on that for about 4 months during which I had 5 relapses. My neurologist decided to have me try Tysabri. I have been on it for 3 years, and next month it will be 3 years since I last had a relapse. I do feel tired and dizzy when it is hot out though."

• 201...
• June 3, 2016

For Multiple Sclerosis "In July of 2014, I was given the diagnosis of MS. The medicine has worked well for me so far. I have headaches after infusions, they don't last long. I take Cambia for the headaches. Tysabri helps me to walk, drive, travel, and keep my job. My dizzy spells don't happen as much. Tysabri is the only medicine I've taken for MS. I am still in shock from being diagnosed with this condition. I am very happy with Tysabri, even with the risks of JCV and PML."

• Lin...
• Taken for 5 to 10 years
• October 19, 2013

For Multiple Sclerosis "I was taken off Tysabri when my original consultant left the hospital. After 5 years of better quality of life, I now experience some nasty side effects after coming off the drug. Terrible rashes, MS symptoms returning, i.e., dizziness, fatigue, coordination problems, to name a few. Feel pretty rubbish to be honest. Consultant said couldn't justify the script as scans had no changes and was concerned about PML risk. I accept the risk, always have. Surely scans indicate the drug is doing what is expected? I'm stuck now, what is available for me to try? Cost is a big deciding factor!"

• Lin...
• Taken for 5 to 10 years
• October 19, 2013

For Multiple Sclerosis "I was taken off Tysabri when my original consultant left the hospital. After 5 years of better quality of life, I now experience some nasty side effects after coming off the drug. Terrible rashes, MS symptoms returning, i.e., dizziness, fatigue, coordination problems, to name a few. Feel pretty rubbish to be honest. Consultant said couldn't justify the script as scans had no changes and was concerned about PML risk. I accept the risk, always have. Surely scans indicate the drug is doing what is expected? I'm stuck now, what is available for me to try? Cost is a big deciding factor!"

• Abb...
• January 6, 2012

For Multiple Sclerosis "My husband has been on Tysabri for a year now. The first six months were great. He liked that he had no nausea and could control his bowels compared to Copaxone and Rebif. Fatigue improved. He had very slight improvements to his walking gait and balance. Mental attitude was improved. Lately, balance is poor, walking is dragging/carrying his leg forward, twitches and jerks are back. Strangers call him Spider-Man in public (he laughs). Depression is setting in again. Hearing ringing sounds."