Mycophenolate mofetil and Diarrhea: What Users Say

• Mom...
• Taken for less than 1 month
• April 14, 2023

Mycophenolate mofetil for Organ Transplant, Rejection Prophylaxis "CellCept gave me just severe diarrhea that I ended up back in the hospital with severe dehydration and anemia. Was switched to Envarsus XR with Zortress and prednisone. Envarsus was switched to Prograf. A biopsy showed thrombotic microangiopathies (TMA) (very small blood clots), which can be caused by tacrolimus, so I was switched to cyclosporine. Everolimus caused my cholesterol to go very high, so was switched to Imuran. Imuran messed up my blood with an extremely low platelet count. So now I am just on cyclosporine and prednisone, with fingers crossed and prayer."

• Bad...
• Taken for less than 1 month
• December 29, 2020

Mycophenolate mofetil for Organ Transplant, Rejection Prophylaxis "I am having severe diarrhea on CellCept, which has my electrolytes out of whack to the point of having to go to the local ED for fluids and supplements. I'm taking 2g daily in 4 doses. The more I drink, the worse it gets, so I am in a catch-22 situation. I am also on Envarsus and prednisone as anti-rejection meds. I'm also taking Septra, which may be contributing to my problem."

• Die...
• Taken for 1 to 6 months
• April 29, 2022

For Myasthenia Gravis "Unfortunately, I did not have a good experience with mycophenolate. I had frequent bouts of watery diarrhea and constant nausea. I lost about 10 pounds. I took 500 mg at night. I was also taking Mestinon. I only took it for 5 weeks but just could not tolerate the side effects. I was taking it because I had neck weakness and realized I didn’t take it long enough to show any results but could not see myself experiencing diarrhea and constant nausea for months."

• SRa...
• December 3, 2020

For Organ Transplant, Rejection Prophylaxis "No problem except diarrhea in the beginning."