Modafinil for Chronic Fatigue Syndrome User Reviews (Page 2)

• TheJaye
• July 15, 2016

"I was prescribed Provigil 200mg BID in 2005 for my Chronic, severe fatigue due to MS and multiple flare ups from fibromyalgia.It is the best drug for me. I get a good 4 1/2 hours with the AM dose. And the same with the PM dose. It allowed me to maintain my full time job until my retirement. The prob is I'm on Medicare and pay $800 /mo for highmark PPO blue, just for the drug coverage. Then, my pharmacy will only give me 15 days at a time at a $120.00 co pay. So, now we have a drug that helps me function normally, but the poor house is just around the corner for me. Why make such a successful drug, offer it to middle class people, give them the hope they were seeking and then at some point have to stop because really, who can afford it??? Not to mention, if you try to refill your next 15 days worth a day early, huh!!"

• fibro...
• August 18, 2009

Provigil (modafinil) "I take this pill only as needed because of the price, so I take it if I have an appointment or have to be somewhere on time or before 4 pm. I am a zombie if I don't. I just can't understand why it costs so much. Do they honestly think people can afford to pay this price? "

• TBPCR
• July 27, 2015

"I wish I was having the experience most of you are sharing. I've been on modafinil for a month with NO CHANGE at all. I am so tired all the time, nap every day without fail. I feel useless at work and in life."

• Ladyb...
• Taken for less than 1 month
• April 15, 2015

"I am 29 yrs old, female, and have Chronic fatigue due to depression and rheumatoid arthritis. This drug seemed like the perfect cure but it gave me pretty unwanted side effects including worsening of depression, panicky, dizziness, blurred vision, headaches, worsening of fatigue, dazzed, would have words on the tip of my tongue sometimes that would take like 30 sec to remember what I wanted to say, and muscle tension, extreme anger at people and myself, and increased joint pain. So the 2 hours it'd actually increase my energy, All these side effects are NOT worth it."

• Michael...
• Taken for less than 1 month
• December 6, 2015

"I have Chronic Fatigue Syndrome. Pretty much bed ridden. Took 100 mg of Modafinil. Within 5 minutes, had lots of pressure in my head.Very unpleasant. Did absolutely nothing to make me feel better. Instead, felt worse. Extreme pressure in head lasted 90 minutes. Then mild headache rest of the day. Very disappointing."

• Memul
• August 10, 2016

"I been taking this medication Provigil/modafinil since 2007. It has been my experience with both to increase my way of life and to function as a normal human. No side affects, it has been amazing. the down fall is the insurance company's and FDA. When I started taking the meds 200 mg 1 1/2 tabs twice a day. The insurance approved. As the cost of the meds increased the denials started coming. I had to change insurance company due to my work. They would only approve two tablets a day therefore I had to adjusted to only taking two tablets a day. As of 7-1-2016 the FDA and insurance has decided that they will only approve and pay for one tablet per day. I ask the pharmacy how much would it cost me for a 30 days supply the reply made me cry $800"

• Sleep...
• Taken for 1 to 6 months
• May 20, 2015

"This medication worked for about a week, but now I just sleep right through it. I'm on 200 mg. I set an alarm to take the medication in the beginning I'd wake up about 45 minutes after talking it, but now I continue to sleep."

• leopa...
• September 26, 2010

Provigil (modafinil) "I started out on 100mg in the morning. I was falling asleep an hour later, so the doctor put me on 200mg. I still was very sleepy, but then the sleepiness would wear off. I drove about 60 miles into town and I was driving very fast and taking risks I would never do normally. It also made me want to buy lottery tickets. The increase of compulsive behaviors is very true with this medication.. I stopped taking it immediately. It was too expensive anyway!"

• Sciss...
• Taken for less than 1 month
• August 29, 2016

"I started nuvigil a week ago and I feel much better. I don't feel so exhausted and run down and I don't have to take naps. I am sleepingredients 8 hours at night and am awake an average of 5 hours more each day vrs days when I dont take my medication. In other words life changing for mw"

• COJAM
• July 26, 2013

"This med worked for me for about 2 weeks. It was amazing. But it seems I have started already become imune to it. I was so hoping it would work for me like it did everyone else. I am totally crushed that it isnt."

• Slower...
• February 1, 2010

Provigil (modafinil) "Used to be active. Over last ten years extreme fatigue has grown to total dominance. Interest, hobbies and life in general just vanished. After extensive testing and use of CPAP, doc put me on 200mg/day Provigil, it was like a teaser not quite doing anything, but 400mg seemed to at least get me mentally more active, but does very little for the fatigue part. My major complaint is hard to describe, but after a couple of days I get a sore feeling in my mouth. I don't grind my teeth, but tend to keep a negative pressure in my mouth causing a ridge to form along the tooth line, and slight but painful sores on the gum here and there, it has to be some form of tension, also affects sleep."

• Mount...
• April 5, 2015

"I have ME resulting in severe tiredness.... I Started taking 200 mg modofinal 5 days ago. It is fabulous. It is not funded in the UK. But if you have ME do some research and see if it is right for you. It really worked for me!"

• Anonymous
• Taken for 10 years or more
• September 19, 2023

"I used it for years due to fibromyalgia. 20 years ago, I was given it when diagnosed in Boston. But since moving to California, my current doctor doesn't want to prescribe it, so I suffer desperately and no longer get much done. I highly recommend this medication - no side effects, only benefits. It will make a huge difference in your life. I would take it 30 minutes prior to getting up. I found it gave me the extra energy to do it."

• Hanse...
• Taken for less than 1 month
• April 4, 2017

"I have another comment because this drug is so expensive. My insurance required preauthorization, but after a week, they allowed it and it cost me only $8/month. If it was not allowed by insurance I couldn't have afforded it because it is about $100 from the local compounding pharmacy that also seeks bargains for their customers. That's too much for me. This drug has been around for a long time, there's no sense it delaying medical care like this. So how about that? Automatic preauthorization should be just as dangerous and just as denounced. For CFS this drug can be life or death for people. I wish it wasn't an allergy for me though. :("

• Not...
• Taken for 1 to 6 months
• February 14, 2022

"I was prescribed modafinil for chronic fatigue and brain fog. The first week, my doctor had me take 1/2 a pill for a week then move to 1 pill a day thereafter. The first week I noticed a big difference and when I started taking the whole pill I was blown away by my energy and desire to get things done. HOWEVER, after being on it for about a month, the energy and desire to do anything was completely gone. My fatigue was worse than before and started having suicidal tendencies and horrible thoughts towards people I know and love. I realized it was time to stop and did cold turkey and I'm worse than I was before I started taking it."

• Lorrie
• Taken for 1 to 6 months
• September 1, 2023

"Hi, I have used it in the past. I just started again because I was spending six days out of seven in bed. It’s a game changer for me. It literally changed my life. I’m up and moving. I can only get a half a day out of it, 200 mg, but it’s better than nothing."

• Sherb...
• Taken for 2 to 5 years
• July 22, 2021

"Modafinil has saved me. I have 8 autoimmune diseases and they cause me debilitating fatigue. This drug has given me my life back and I am now able to go on walks, play with my grandkids and live life. The only side effect I had when first starting it 2 years ago was mild headaches. I am very thankful this works for me"

• Roger...
• Taken for 1 to 6 months
• November 30, 2021

"It’s 4 years post contracting chronic fatigue syndrome and fibromyalgia from contracting multiple infections (1 Australian mosquito borne virus, 3 bacterial infections requiring antibiotic treatment - that wasn’t provided for 2 years). 2 years post infections still not fully resolved - 3 months of multiple antibiotics 2 yrs ago, last year 2 months of a single antibiotic. No antiviral meds. Many serological tests, no arthritis, no heart issues (stress test echo cardio gram), no organ failures and brain scans normal, no known covid (extensive pcr covid tests). No mental issues. Past bouts of depression. In those 4 yrs only worked about 3 weeks total. Basic house work wasn’t completed, couldn’t cook most of time, nor maintaining personal hygiene on a daily basis. Life is slowly returning since modafinal, don’t push your body, go slow see an exercise physiologist, build muscle strength, 2x sars cov vax, smoker, light drinker, occasional joint. Early 40’s."

• Modaf...
• Taken for 1 to 2 years
• August 11, 2021

"Been taking this drug for about 2 years, first year, it helped and I stay awake, more energy. Now I get sleepy about 3 hours After . My eyes get so tired, usually a headache, also pretty chatty. I was prescribed 200 mg and I never took that much, I take a little less than half which maybe not enough ? Great in the beginning and now I am not sure what to do."

• Kitten
• Taken for 1 to 6 months
• June 29, 2023

"I've had CFS from Ross River Virus for 13 years now, and I was recently diagnosed with Fibromyalgia. It's destroyed my life. I've been a shadow of my former self and failed to parent, work, and keep my life in order. Modafinil has been helping me regain some semblance of normalcy. I can function again. More energy and focus to tackle life, and no negative side effects. The added bonus of mild alleviation of my pain levels has been welcomed. It's not completely gone, but the severe, rolling pain throughout my body is eased, and I can see a gradual improvement day by day in my overall capacity. I'm so thankful this drug was available."

• Dale
• Taken for 1 to 2 years
• February 14, 2023

"This medicine really helped me with chronic fatigue. I had no side effects that I was aware of and I was able to clean the house, go for walks and manage chores that I otherwise couldn’t manage. It helped with depression as well."

• Sophie
• Taken for less than 1 month
• May 20, 2024

"Used for chronic fatigue when coming off long-term prednisone. I found it very effective. I feel alive again, more social. Coming down off prednisone is very hard, 2 steps forward, one step back. Modafinil really helped. 100 mg. More alert, memory still a problem remembering names, but otherwise okay. More difficult to sleep at night."

• janeenH
• Taken for 5 to 10 years
• July 19, 2015

"Most awesome drug. Doc must write excessive daytime sleepiness for insurance to pay. Practically no side effects"

• Todds...
• Taken for 1 to 6 months
• February 6, 2014

"I got modafinil a few weeks ago when I discovered a great review on the product. It has worked amazingly for me. I do not get tired nor do I lose focused on my tasks at hand."

• NW49E...
• Taken for 1 to 6 months
• December 28, 2015

"It works, it really really works, it is just expensive !"