Salofalk User Reviews & Ratings

• GTa...
• March 12, 2021

For Ulcerative Colitis, Maintenance "I've used both the Salofalk foam and the liquid Salofalk enema and recommend trying this if you are struggling. It takes longer to administer but is easier to keep in. If you're having issues with the foam, I recommend the following: - Make sure to release the foam slowly. It's less of a shock to the system and helps reduce that reflex muscle action that makes you want to evacuate it. - Wait at least 30 seconds before the second dose, otherwise, you just feel too full when the second dose is released. - After the second dose, don't withdraw the nozzle immediately. Wait at least 30 seconds. When you withdraw it, do so as fast as possible. This stops any residual foam from coming into contact with (for want of a better word) your anus and causing a burning sensation. - Finally, it doesn't say this on the foam instructions, consider lying on your left side for 30 minutes after your treatment. This helps the foam get to where it needs to go and makes it easier to keep in. Hope this helps someone and good luck!"

• Col...
• Taken for less than 1 month
• July 19, 2023

For Ulcerative Proctitis "I was diagnosed recently and started on Pentasa enema (night) and Salofalk suppositories (day) but found the Pentasa made little or no difference and I found it difficult to sleep. My nurse changed to Salofalk rectal foam and tonight is my first time using it. I followed the instructions but inserted both doses but then was unable to hold it in for longer than 20 minutes. This site and the reviews have been a pleasure to read :) especially the review which included information about side effects, including jaw pain. I was thinking 'now something else is wrong with me' but didn't want to tell the GP as I wondered if it's psychosomatic, so it was a relief to read that I'm not alone. I really wrote this to say thank you to everyone for sharing their personal experiences. I have found this diagnosis to be somewhat isolating and sometimes I feel I should be embarrassed to speak about my symptoms, so thank you all and I pray for us all to be well x"

• A...
• Taken for less than 1 month
• February 17, 2020

For Ulcerative Colitis "Mesalazine foam enema. Available from NHS in the UK, so insurance is not an issue. I have only taken this for a week, so it's early to say... But so far, I think it is working better than other formulations. I tried the same brand suppositories, which were not effective, Pentasa was better, but this foam seems to be doing better again. Probably because my inflammation extends to 20 cm. After four days, I started to feel better. I had more energy and more regular and solid stools. At first, it was hard to keep the enema in, which is still true if I use a double dose as prescribed. It is uncomfortable to take, and so far, a double pump often leads to a bowel evacuation... but I'm hoping this improves as the inflammation recedes, as stated in the instructions."

• tes...
• Taken for 1 to 6 months
• February 16, 2020

For Ulcerative Colitis "I got UC 3 years after quitting smoking at age 70. As I was always healthy before, I was rather dismayed to be told I have ulcerative colitis. I take the enema and find it difficult to use as well as a nuisance. I do not 'go' as often and there is no more blood, but I am tired, have headaches, bloating, flatulence, and cramps---to the extent that I now get very little sleep. Before, my symptoms were in the morning. Now, I feel urgency to go all day---as well as most nights. Won't say I'm sorry I quit smoking. I'll just say I'm glad I smoked as long as I did. Hope others have better experiences with this drug."

• Mil...
• August 27, 2016

For Ulcerative Colitis "After being on an obscene amount of prednisone without working, I switched GI's, and he prescribed me Salofalk. When I know a flare is coming, I can take a few Salofalks over the course of a few days, and things usually clear up. Was a lifesaver!"

• maz...
• Taken for 1 to 6 months
• March 4, 2023

For Ulcerative Colitis "This is the only drug that made a difference without awful side effects. I started with suppositories, which calmed things down but didn't alleviate the inflammation completely. I am now on the granules, and these have been a game-changer so far. 3g to settle the inflammation and 1.5 a day for maintenance. Feel great. Realized I wasn't feeling as good as before. I have more energy, my stools are normal for the first time in 3 years."

• Unc...
• March 13, 2017

For Ulcerative Colitis, Active "I have mild UC, and I was prescribed both Pentasa and Salofalk enema. I found that those two taken together work really great, and my symptoms disappeared after 5 days. Taking Pentasa (pill form) by itself did not help at all until I started the enema after a week."

• Tir...
• Taken for 1 to 6 months
• September 8, 2020

For Ulcerative Colitis, Active "I was on Salofalk enema for two weeks and didn't see improvement in my ulcerative colitis until day 13. By then, I was done dosing. After a few days, bleeding again. Doctor put me back on for another 14 days, same thing happened. Improvement on day 13 and then was done dosing. After 8 days, symptoms came back with a vengeance. I'm now on my third week to see if I'm responding to treatment but just need more than two weeks on it. I'm tired of it all. Been suffering since March. Doc doesn't think I need a colonoscopy. Symptoms are identical to colon cancer, yet he is so sure without any diagnostic testing that it's not cancer."

• Ale...
• Taken for 10 years or more
• February 11, 2022

For Ulcerative Proctitis "Salofalk appears to work fine, as did Asocol before it. My only gripe is the plastic covering of the suppository. They are produced in two factories, one has a black/white covering, the other red/white. The black/white is easy to open, but the red/white is much more difficult. The ends you pull apart appear shorter, and whereas the black/white has ribbing so you can grip, the red/white one has ribbing that appears photographed, i.e., no grip at all. Have complained to the company, to no avail."

• UC1...
• Taken for 1 to 2 years
• February 19, 2016

For Ulcerative Colitis, Maintenance "I have been on Salofalk since I was diagnosed with UC 18 months ago. Over that time, I've had about 8 courses of prednisone. Every time I come off prednisone and rely solely on Salofalk, I get another flare. I'm currently on 1500 mg/day of Salofalk. Even after being hospitalized and pumped full of steroids, which resulted in no symptoms (and normal bowel movements - YAY!), the Salofalk couldn't keep me there :("

• Bra...
• Taken for 2 to 5 years
• June 14, 2016

For Crohn's Disease, Maintenance "Switched from Pentasa, which I was throwing up or having it come out in bits in my stool (not absorbed). Salofalk is easier to swallow and has kept me in remission, although how much of it is due to the drug and not just avoiding stress, which triggers my symptoms, I don't know. It is coated better than Pentasa, and the oblong shape works better for swallowing, as they are not small."

• Bra...
• Taken for 10 years or more
• August 27, 2022

For Crohn's Disease, Maintenance "Salofalk I got first in the hospital while I was on Pentasa at home. Found it easier to swallow. I requested to be switched so I could swallow it (even when later developing a non-related swallowing disorder). Does not show up in bits in my stool (not absorbed) like Pentasa did. So far, it has kept me in remission. Went from 2 pills 3 times a day to 2 pills twice a day to now only 2 pills in the morning."

• Kha...
• January 18, 2016

For Ulcerative Colitis "This medicine worked really well for me. This is the first time I used it, and it did its job within the first use."

• Jac...
• March 16, 2015

For Ulcerative Colitis, Maintenance "Lived in Australia for 2 years and switched to Salofalk from Asacol. It worked great, and I had no side effects."

• Tea...
• Taken for less than 1 month
• November 12, 2015

For Ulcerative Colitis, Active "I think it's making my symptoms worse. I went from going to the bathroom most frequently at night to all day after starting Salofalk enemas and suppositories."

• Ran...
• Taken for 1 to 6 months
• October 31, 2019

For Crohn's Disease, Maintenance "Loved it, absolutely did! Way better than Pentasa and is mostly out of stock for where I live! On the other hand, Pentasa is easy to get but not as effective as Salofalk."

• Asi...
• Taken for 1 to 6 months
• December 29, 2021

For Ulcerative Colitis "I have a mild case of UC, and used this suppository for four months. It worked perfectly. The bleeding stopped just after 2 weeks, and I am still using it. One concern is that it leaks a little."

• Anonymous
• Taken for 1 to 6 months
• January 4, 2024

For Ulcerative Proctitis "Works fast and easy to use. Easy to store and no side effects compared to Pentaza. Was recommended by a pharmacist."

• C M...
• Taken for less than 1 month
• December 30, 2022

For Ulcerative Colitis, Active "Excessive dry mouth, headache, ridiculous granule formulation, which makes no difference to mode of action. Won't be using again."