Pentasa User Reviews & Ratings (Page 3)

• Jack
• Taken for less than 1 month
• March 16, 2022

For Ulcerative Colitis "I just was diagnosed with UC recently. My doctor has me on 1g 4 times a day. Everything was going great for the first couple weeks. No immediate need. Normal looking stools and no blood. After the first 2 weeks however the bleeding has come back and I'm using the toilet more than ever. Will be reaching out to my doctor to see if we are over dosing."

• Buzzb...
• Taken for 10 years or more
• November 22, 2016

For Crohn's Disease, Maintenance "I was on Pentasa for 19 years but every time I had a colonoscopy the crohn's was progressing. I finally ended in the hospital with a severe inflammation. I was told by 2 GI docs that the Pentasa was probably not working but back in 1997, except for 6mp they really had no other alternative. 2 months ago I switched to Humira. Many more side effects than Pentasa however."

• Amanda
• Taken for 1 to 2 years
• July 5, 2021

For Ulcerative Colitis, Maintenance "Been on Pentasa for a couple of years. Everything great. Had a bit of a relapse so was prescribed pentasa as a suppository. Worked immediately on first one and been absolutely fine for over a year. Can eat what I want and drink in moderation. Everything normal. Do not hesitate, gives you your life back!!"

• Zonar
• May 17, 2018

For Ulcerative Colitis "Got diagnosed with Ulcerative Colitis 25 yrs ago and they said I had to have a bag which I refused. Then said you have to go on steroids which I also refused , then I gave up smoking ! Wow 4 months later UC kicked in with a vengeance ended up losing a half glass of blood can honestly say the toilet was my best friend for 4 months ! I plucked up the courage to go to the hospital had a colonoscopy was put on Pentasa 4 tabs a day - bearing in mind I hadn't taken any tablets except Paracetamol occasionally, I put on too much weight which I didn't like that ! So it was decided that I cut down to 2 tabs a day, anyway still didn't feel right so I went to the chemist and showed my belly he gave me water tabs said take 1 a day so off I went next morning I couldn't believe it I had a half solid stool ! I thought that's odd ! Now for 2 weeks I'm doing great 1 Pentasa tab and 1 water tablet and my weight is levelling off and my stools are normal ! My experience maybe not good for everybody !"

• Psych
• Taken for 1 to 2 years
• August 15, 2015

For Inflammatory Bowel Disease "This is the first drug I was prescribed after hospitalization and initial diagnosis. It made it possible to get off steroids and back to work. Hair loss was extensive, until I increased water intake and saw a renal dietician. Even though I am allergic to Sulfa drugs, this has been the least risky of the medications prescribed for my condition. My hair has grown back in, and with lifestyle changes I am much better. Long term, this is the only regimen that works for me."

• Crohn
• Taken for less than 1 month
• July 6, 2013

For Crohn's Disease "I had Crohn's with a resection 30 years ago and have been mostly in remission since. Have recently had a bad flare and narrowing at the anastomosis and need to be on medication, but haven't found one that I can handle. Asacol gave me such serious body aching and fatigue that I could not function. Pentasa immediately gave me heart palpitations and arrhythmias so I had to discontinue it."

• Amanda...
• April 2, 2016

For Ulcerative Proctitis "I've been using pentasa 2 times a day a total of 4 pills it definitely helps! Sometimes I get headaches and feel sick sometimes and occasionally get pain and for some reason ever since I started taking them I get these weird skin patches"

• sewing
• Taken for 1 to 6 months
• March 11, 2014

For Crohn's Disease "I had surgery removing 6" of my small intestines. In Dec. 2013 was diagnosed with Crohn's disease, I have been taking Pentasa for about 3 months, since Jan. 2014. It has really helped me but I am losing handfuls of hair every day. I am also having dizzy spells. The hardest side effect to deal with is, every time I have a bowel movement, I have terrible itching inside my rectum. Otherwise I haven't noticed any other side effects yet."

• MinCA
• Taken for 10 years or more
• December 2, 2022

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's in 1994. Over the first couple of years I bounced around on Prednisone, Metronidazole and a few other things. After a year, a new GI put me on Pentasa. I started at 1 gm each morning and night and have since reduced to 750mg morning and night. By avoiding trigger foods, reducing stress and getting plenty of exercise - my Crohns is reasonably controlled. I haven't even had a significant flare in 5 years. I have experienced just about zero side effects other than some increased sun sensitivity. My old GI spent 15 years trying to convince me to that Pentasa does not work and I should try one of the expensive biologicals with a plethora of side effects. My new GI is happy to see that I am doing well with minimal therapy. My insurance is currently bugging me to try the new Pentasa generic. They charge me $40 a month more to have Pentasa. I need to get my GI's opinion."

• San...
• Taken for 10 years or more
• November 14, 2023

For Ulcerative Colitis "Pentasa has been a lifesaver. I have been taking it for 23 years with no side effects and have been in remission for 12 years. Pentasa is extremely expensive but works as a maintenance for UC. Now, I am forced to look for an alternative due to costs."

• Sandy
• Taken for 1 to 6 months
• December 4, 2021

For Inflammatory Bowel Disease "Pro: It kind of worked, a bit. My bloodwork improved and the mildest part of the inflammation went away. Cons: It didn't work enough. The area of more severe inflammation hasn't budged, unfortunately, and I'm still having bad stomach cramps every day. I tried upping my dose from 2 grams to 4 grams and that actually made my symptoms worse, so I went back down. I'm also losing a lot of hair, but it's not really noticeable to anyone else, and I will say that that's the only side effect I've had from this medication on a 1-2 grams dosage, which I think is pretty good. If your doctor tells you to take this medication, definitely take it! I wish it had worked for me. It does work for a lot of people. I would be happy to take this medication every day for the rest of my life if it only worked!"

• Gryffon
• Taken for 5 to 10 years
• December 11, 2021

For Inflammatory Bowel Disease "I've had IBD for around 5-6 years now, which most of that time I have been using Pentasa. Before, my stomach pain was really bad but it's seem to have calmed down now with medicine. I take 4 capsules /day. (2 @ morning, 2 @ night) I've not had any symptoms since I started using Pentasa. I burp a lot, but that's really the only side effect I have."

• Crohn...
• Taken for 1 to 2 years
• May 26, 2023

For Crohn's Disease, Maintenance "Pentasa has helped with the inflammation of my Early Stage Crohn’s. I take 2 tablets three times a day. I still have flares on occasion, and I have had some side effects but nothing too difficult to manage. Mostly, this drug is very expensive, and my insurance company won’t cover it, so I have to order it from a Canadian drug company. I wish this was more affordable!"

• Brenpeg
• Taken for 1 to 6 months
• August 3, 2022

For Ulcerative Proctitis "I have a stoma now due to a blocked bowel ( Diverticulitis ) now have Proctitis..Pentasa suppositories definitely stopped the rectum bleeding, but as soon as I reduced then stopped it came back..Dr has put me back on it.x ."

• Medic...
• Taken for less than 1 month
• August 31, 2022

For Crohn's Disease, Maintenance "Just diagnosed with Crohn’s Disease about two weeks ago. Have suspected it for some time, due to intense pain and cramping after eating, a bowel obstruction and a fairly sizeable weight loss (over about a 4 month period) My GI Doc started me on Pentasa, 4 pills twice a day to see how I respond. So far so good. No ill side effects to speak of. It’s nice to finally be able to eat food without pain and cramping. Taking it combined with Prednisone (steroids for about 7 more weeks). Fingers crossed it continues to look up and be positive from here. Thankfully I have good health insurance and get a 90 day supply for cheap, because I don’t know what I’d do if I didn’t."

• mn cr...
• Taken for less than 1 month
• December 23, 2012

For Crohn's Disease, Maintenance "I have been on Pentasa 2 capsules 2x day first week feel amazing to not have all day tummy pain or cramping. Hope I have found something that will continue to work for me."

• Petie
• December 6, 2019

For Ulcerative Colitis "This drug made my colitis worst... more flare ups and extreme pain... I do not recommend this for ulcerative colitis"

• Raniya
• November 13, 2015

For Crohn's Disease, Maintenance "I've been on pentasa for 3 years. I've had very bad acne and losing a lot of hair."

• morocco
• Taken for 10 years or more
• October 8, 2019

For Ulcerative Colitis "Pentasa works good for me but I have to follow diet of no fat, no acidic no spices, no outside food ."

• Anonymous
• October 19, 2009

For Crohn's Disease, Maintenance "My child was diagnosed 05/06. Since that time the only major flare he has had was precipitated by the stomach flu. He is otherwise basically controlled with Pentasa."

• Emma...
• March 26, 2009

For Crohn's Disease, Maintenance "I have never had any significant side effects from Pentasa, and it has kept me feeling great."

• TJ003
• April 18, 2014

For Crohn's Disease "Within one month of starting on Pentasa all my Crohn's symptoms have been completely in remission and have remained so going on 5 years now."

• Anonymous
• April 2, 2012

For Crohn's Disease "I have had good results with this medicine."

• mehas...
• March 17, 2011

For Crohn's Disease, Maintenance "I have been on Pentasa since 2002. 500mg anywhere from 2 a day to 6 a day and it has helped."

• Aano
• Taken for less than 1 month
• September 15, 2018

For Ulcerative Proctitis "Was prescribed the Salofalk suppositories first which worked a charm, but then the pharmacy ran out so I’ve been using Pentasa (same dosage) and they don’t seem to be working much at all."